References
- Abels, P. A., & Garvin, C. D. (2006). Standards for social work practice with groups. Alexandria, VA: Association for the Advancement of Social Work with Groups.
- Aphasia Community. (2017). Current groups. Retrieved from http://aphasia.community/current-groups
- Armstrong, E. (2000). Aphasic discourse analysis: The story so far. Aphasiology, 14, 875–892. doi:10.1080/02687030050127685
- Attard, M., Loupis, Y., Togher, L, & Rose, M. (n.d. a). Experiences of people with severe aphasia and spouses attending an interdisciplinary community aphasia group (in preparation).
- Attard, M., Loupis, Y., Togher, L, & Rose, M. (n.d. b). Staff experiences of an interdisciplinary community aphasia group (in preparation).
- Attard, M. C., Lanyon, L. E., Togher, L., & Rose, M. L. (2015). Consumer perspectives on community aphasia groups: A narrative literature review in the context of psychological well-being. Aphasiology, 29, 983–1019. doi:10.1080/02687038.2015.1016888
- Australian Association of Social Workers. (2013). Practice standards. Canberra, Australia: Author.
- Babbitt, E. M., Heinemann, A. W., Semik, P., & Cherney, L. R. (2011). Psychometric properties of the Communication Confidence Rating Scale for Aphasia (CCRSA): Phase 2. Aphasiology, 25, 727–735. doi:10.1080/02687038.2010.537347
- Babbitt, E. M., Worrall, L., & Cherney, L. R. (2016). Who benefits from an intensive comprehensive aphasia program? Topics in Language Disorders, 36, 168–184. doi:10.1097/TLD.0000000000000089
- Bakas, T., Champion, V., Perkins, S. M., Farran, C. J., & Williams, L. S. (2006). Psychometric testing of the revised 15-item Bakas Caregiving Outcomes Scale. Nursing Research, 55, 346–355. doi:10.1097/00006199-200609000-00007
- Beeke, S., Beckley, F., Johnson, F., Heilemann, C., Edwards, S., Maxim, J., & Best, W. (2014). Conversation focused aphasia therapy: Investigating the adoption of strategies by people with agrammatism. Aphasiology, 29, 355–377. doi:10.1080/02687038.2014.881459
- Beeke, S., Sirman, N., Beckley, F., Edwards, S., Heilemann, C., Johnson, F., ... & Best, W. (2016, December). Conversation training in aphasia rehabilitation: The challenges of measuring outcomes. Workshop presented at the 17th International Aphasia Rehabilitation Conference, London.
- Beesley, K., White, J. H., Alston, M. K., Sweetapple, A. L., & Pollack, M. (2011). Art after stroke: The qualitative experience of community dwelling stroke survivors in a group art programme. Disability & Rehabilitation, 33, 2346–2355. doi:10.3109/09638288.2011.571333
- Bertcher, H. J., & Maple, F. (1994). Group participation: Techniques for leaders and members (2nd ed.). California: Sage.
- Blackstone, S. W., & Hunt Berg, M. (2003). Social Networks: A communication inventory for individuals with complex communication needs and their communication partners. Monterey, Canada: Augmentative Communication, Inc.
- Borenstein, P., Linell, S., & Wahrborg, P. (1987). An innovative therapeutic program for aphasia patients and their relatives. Scandinavian Journal of Rehabilitation Medicine, 19, 51–56.
- Cherney, L. R., Oehring, A., Whipple, K., & Rubenstein, T. (2011). “Waiting on the Words”: Procedures and outcomes of a drama class for individuals with aphasia. Seminars in Speech and Language, 32, 229–242. doi:10.1055/s-0031-1286177
- Corsten, S., Konradi, J., Schimpf, E. J., Hardering, F., & Keilmann, A. (2014). Improving quality of life in aphasia—Evidence for the effectiveness of the biographic-narrative approach. Aphasiology, 28, 440–452. doi:10.1080/02687038.2013.843154
- Corsten, S., Schimpf, E. J., Konradi, J., Keilmann, A., & Hardering, F. (2015). The participants’ perspective: How biographic-narrative intervention influences identity negotiation and quality of life in aphasia. International Journal of Language & Communication Disorders, 50, 788–800. doi:10.1111/1460-6984.2015.50.issue-6
- Cruice, M. N., Worrall, L. E., & Hickson, L. M. H. (2006). Quantifying aphasic people’s social lives in the context of non‐aphasic peers. Aphasiology, 20, 1210–1225. doi:10.1080/02687030600790136
- Cruice, M. N., Worrall, L. E., Hickson, L. M. H., & Murison, R. (2005). Measuring quality of life: Comparing family members“ and friends” ratings with those of their aphasic partners. Aphasiology, 19, 111–129. doi:10.1080/02687030444000651
- Dalton, D., Attard, M., & Rose, M. (2017). A Phase I proof-of-concept study of a speech pathologist-led community aphasia group. Manuscript in preparation.
- Davidson, B., Howe, T. J., Worrall, L., Hickson, L. M. H., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15, 325–340. doi:10.1310/tsr1504-325
- Deloitte Access Economics. (2013). The economic impact of stroke in Australia. Melbourne, Australia: National Stroke Foundation.
- Duke, W., Bains, R., Ferdinandi, A., & Tittley, L. (2013). The use of Goal Attainment Scaling for setting, monitoring and upgrading language goals in the treatment of chronic aphasia [Abstract]. Stroke: Abstracts from the 4th Canadian Stroke Congress, 44, e194–e194.
- Elman, R. J. (2007). Group treatment of neurogenic communication disorders: The expert clinician’s approach. ( R. J. Elman, Ed.) (2nd ed.). San Diego, CA: Plural Publishing.
- Elman, R. J., & Bernstein-Ellis, E. (1999). The efficacy of group communication treatment in adults with chronic aphasia. Journal of Speech, Language, and Hearing Research, 42, 411–419. doi:10.1044/jslhr.4202.411
- Ewing, S. (2007). Group process, group dynamics, and group techniques with neurogenic communication disorders. In Group treatment of neurogenic communication disorders: The expert clinician’s approach (2nd ed., pp. 11–24). San Diego, CA: Plural Publishing.
- Goldberg, D. (1972). The detection of psychiatric illness by questionnaire: A technique for the identification and assessment of non-psychotic psychiatric illness. London: Oxford University Press.
- Goldberg, D. P. (1978). Manual of the general health questionnaire. Windsor: NFER Nelson.
- Goldberg, D. P., & Hillier, V. F. (1979). A scaled version of the General Health Questionnaire. Psychological Medicine, 9, 139–145. doi:10.1017/S0033291700021644
- Grawburg, M., Howe, T., Worrall, L., & Scarinci, N. (2013a). Third-party disability in family members of people with aphasia: A systematic review. Disability & Rehabilitation, 35, 1324–1341. doi:10.3109/09638288.2012.735341
- Grawburg, M., Howe, T. J., Worrall, L. E., & Scarinci, N. (2013b). A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia. Aphasiology, 27, 828–848. doi:10.1080/02687038.2013.768330
- Grawburg, M., Howe, T. J., Worrall, L. E., & Scarinci, N. (2013c). Describing the impact of aphasia on close family members using the ICF framework. Disability & Rehabilitation, 36, 1184–1195. doi:10.3109/09638288.2013.834984
- Hartke, R. J., King, R. B., & Denby, F. (2007). The use of writing groups to facilitate adaptation after stroke. Topics in Stroke Rehabilitation, 14, 26–37. doi:10.1310/tsr1401-26
- Hebert, D., Lindsay, M. P., McIntyre, A., Kirton, A., Rumney, P. G., Bagg, S., … Teasell, R. (2016). Canadian stroke best practice recommendations: Stroke rehabilitation practice guidelines, update 2015. International Journal of Stroke, 11, 459–484. doi:10.1177/1747493016643553
- Hersh, D., & Owen, P. (2000). A new charity comes forward…and carers retreat. ACQ: Issues in Language, Speech, and Hearing, 2, 88–89.
- Hilari, K., & Byng, S. (2009). Health-related quality of life in people with severe aphasia. International Journal of Language & Communication Disorders, 44, 193–205. doi:10.1080/13682820802008820
- Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J., & Ames, D. (2010). Psychological distress after stroke and aphasia: The first six months. Clinical Rehabilitation, 24, 181–190. doi:10.1177/0269215509346090
- Hinckley, J. J., Packard, M., & Bardach, L. G. (1995). Alternative family education programming for adults with chronic aphasia. Topics in Stroke Rehabilitation, 2, 53–63. doi:10.1080/10749357.1995.11754080
- Hinckley, J. J., & Packard, M. E. (2001). Family education seminars and social functioning of adults with chronic aphasia. Journal of Communication Disorders, 34, 241–254. doi:10.1016/S0021-9924(01)00049-1
- Hoen, B., Thelander, M., & Worsley, J. (1997). Improvement in psychological well-being of people with aphasia and their families: Evaluation of a community-based programme. Aphasiology, 11, 681–691. doi:10.1080/02687039708249415
- Hula, W., Donovan, N. J., Kendall, D. L., & Gonzalez-Rothi, L. J. (2010). Item response theory analysis of the Western Aphasia Battery. Aphasiology, 24, 1326–1341. doi:10.1080/02687030903422502
- Johannsen-Horbach, H., Crone, M., & Wallesch, C.-W. (1999). Group therapy for spouses of aphasic patients. Seminars in Speech and Language, 20, 73–83. doi:10.1055/s-2008-1064010
- Joyce, A. S., MacNair-Semands, R., Tasca, G. A., & Ogrodniczuk, J. S. (2011). Factor structure and validity of the Therapeutic Factors Inventory–Short Form. Group Dynamics: Theory, Research, and Practice, 15, 201–219. doi:10.1037/a0024677
- Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners. Aphasiology, 12, 816–830. doi:10.1080/02687039808249575
- Kagan, A., Simmons-Mackie, N., Victor, J. C., Carling-Rowland, A., Hoch, J., Huijbregts, M., ... & Mok, A. (2011). Assessment for living with aphasia (ALA). Toronto, ON: Aphasia Institute.
- Kagan, A. A., Black, S. E., Duchan, J., Simmons-Mackie, N., & Square, P. (2001). Training volunteers as conversation partners using “Supported Conversation for Adults With Aphasia” (SCA): A controlled trial. Journal of Speech, Language, and Hearing Research, 44, 624–638. doi:10.1044/1092-4388(2001/051)
- Kagan, A. A., Winckel, J., Black, S. E., Duchan, J. F., Simmons-Mackie, N., & Square, P. (2004). A set of observational measures for rating support and participation in conversation between adults with aphasia and their conversation partners. Topics in Stroke Rehabilitation, 11, 67–83. doi:10.1310/CL3V-A94A-DE5C-CVBE
- Kearns, K. P., & Elman, R. J. (2001). Group therapy for aphasia: Theoretical and practical considerations. In R. Chapey (Ed.), Language intervention strategies in adult aphasia (5th ed., pp. 316–337). Baltimore: Lippincott Williams & Wilkins.
- Kertesz, A. (2007). Western aphasia battery-revised. San Antonio, TX: PsychCorp.
- Kovesy, L., Steel, G., Attard, M., & Rose, M. (2017). A Phase I proof-of-concept study of the Austin ICAP (Intensive Comprehensive Aphasia Program) for chronic post-stroke aphasia. Manuscript in preparation.
- Lanyon, L., Rose, M., & Worrall, L. (2013). The efficacy of outpatient and community-based aphasia group interventions: A systematic review. International Journal of Speech Language Pathology, 15, 359–374. doi:10.3109/17549507.2012.752865
- Le Dorze, G., & Brassard, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9, 239–255. doi:10.1080/02687039508248198
- Le Dorze, G., & Signori, F.-H. (2010). Needs, barriers and facilitators experienced by spouses of people with aphasia. Disability & Rehabilitation, 32, 1073–1087. doi:10.3109/09638280903374121
- Lesser, R., & Watt, M. (1978). Untrained community help in the rehabilitation of stroke sufferers with language disorder. BMJ, 2, 1045–1048. doi:10.1136/bmj.2.6144.1045
- Levin, T., Scott, B. M., Borders, B., Hart, K., Lee, J., & Decanini, A. (2007). Aphasia talks: Photography as a means of communication, selfexpression, and empowerment in persons with aphasia. Topics in Stroke Rehabilitation, 14, 72–84. doi:10.1310/tsr1401-72
- Lomas, J., Pickard, L., Bester, S., Elbard, H., Finlayson, A., & Zoghaib, C. (1989). The communicative effectiveness index: Development and psychometric evaluation of a functional communication measure for adult aphasia. Journal of Speech and Hearing Disorders, 54, 113–124. doi:10.1044/jshd.5401.113
- Marshall, R. C. (1993). Problem-focused group treatment for clients with mild aphasia. American Journal of Speech-Language Pathology, 2, 31–37. doi:10.1044/1058-0360.0202.31
- Mayo, N. E., Anderson, S., & Barclay, R. (2015). Getting on with the rest of your life following stroke: A randomized trial of a complex intervention aimed at enhancing life participation post stroke. Clinical Rehabilitation, 29, 1198–1211. doi:10.1177/0269215514565396
- Mumby, K., & Whitworth, A. (2012). Evaluating the effectiveness of intervention in long-term aphasia post-stroke: The experience from CHANT (Communication Hub for Aphasia in North Tyneside). International Journal of Language & Communication Disorders, 47, 398–412. doi:10.1111/jlcd.2012.47.issue-4
- National Stroke Foundation. (2010). Clinical guidelines for stroke management. Melbourne: Australia.
- Northcott, S., Burns, K., Simpson, A., & Hilari, K. (2016). Living with Aphasia the best way I can’: A feasibility study exploring solution-focused brief therapy for people with aphasia. Folia Phoniatrica Et Logopaedica, 67, 156–167. doi:10.1159/000439217
- Parr, S., Byng, S., Gilpin, S., & Ireland, C. (1997). Talking about aphasia: Living with loss of language after stroke. Buckingham, UK: Open University Press.
- Perkins, L., Crisp, J., & Walshaw, D. (1999). Exploring conversation analysis as an assessment tool for aphasia: The issue of reliability. Aphasiology, 13, 259–281. doi:10.1080/026870399402091
- Pimentel, J., & Algeo, D. (2009). Effects of environmental props on communication in aphasia group therapy. SIG 15 Perspectives on Gerontology, 14, 12–18. doi:10.1044/gero14.1.12
- Purdy, M., & Hindenlang, J. (2005). Educating and training caregivers of persons with aphasia. Aphasiology, 19, 377–388. doi:10.1080/02687030444000822
- Purves, B. A., Petersen, J., & Puurveen, G. (2013). An aphasia mentoring program: Perspectives of speech‐language pathology students and of mentors with aphasia. American Journal of Speech-Language Pathology, 22, S370. doi:10.1044/1058-0360(2013/12-0071)
- Reblin, M., & Uchino, B. N. (2008). Social and emotional support and its implication for health. Current Opinion in Psychiatry, 21, 201–205. doi:10.1097/YCO.0b013e3282f3ad89
- Rice, B., Paull, A., & Muller, D. J. (1987). An evaluation of a social support group for spouses of aphasic partners. Aphasiology, 1, 247–256. doi:10.1080/02687038708248841
- Rodriguez, A. D., Worrall, L. E., Brown, K., Grohn, B., McKinnon, E., Pearson, C., … Copland, D. A. (2013). Aphasia LIFT: Exploratory investigation of an intensive comprehensive aphasia programme. Aphasiology, 27, 1339–1361. doi:10.1080/02687038.2013.825759
- Rohde, A., Townley-O’Neill, K., Trendall, K., Worrall, L. E., & Cornwell, P. (2012). A comparison of client and therapist goals for people with aphasia: A qualitative exploratory study. Aphasiology, 26, 1298–1315. doi:10.1080/02687038.2012.706799
- Rose, M. L., & Attard, M. C. (2015). Practices and challenges in community aphasia groups in Australia: Results of a national survey. International Journal of Speech-Language Pathology, 17, 241–251. doi:10.3109/17549507.2015.1010582
- Rose, M. L., Ferguson, A., Power, E., Togher, L., & Worrall, L. E. (2013). Aphasia rehabilitation in Australia: Current practices, challenges and future directions. International Journal of Speech-Language Pathology, 16, 169–180. doi:10.3109/17549507.2013.794474
- Ross, A., Winslow, I., Marchant, P., & Brumfitt, S. M. (2006). Evaluation of communication, life participation and psychological well‐being in chronic aphasia: The influence of group intervention. Aphasiology, 20, 427–448. doi:10.1080/02687030500532786
- Royal College of Physicians Intercollegiate Stroke Working Party. (2012). National clinical guideline for stroke (4th ed.). London: Royal College of Physicians.
- Sarason, I. G., Sarason, B. R., & Shearin, E. N. (1986). Social support as an individual difference variable: Its stability, origins, and relational aspects. Journal of Personality and Social Psychology, 50, 845–855. doi:10.1037/0022-3514.50.4.845
- Schlosser, R. W. (2004). Goal attainment scaling as a clinical measurement technique in communication disorders: A critical review. Journal of Communication Disorders, 37, 217–239. doi:10.1016/j.jcomdis.2003.09.003
- Sekhon, J. K., Douglas, J., & Rose, M. L. (2015). Current Australian speech-language pathology practice in addressing psychological well-being in people with aphasia after stroke. International Journal of Speech-Language Pathology, 17, 252–262. doi:10.3109/17549507.2015.1024170
- Shadden, B. B. (2005). Aphasia as identity theft: Theory and practice. Aphasiology, 19, 211–223. doi:10.1080/02687930444000697
- Simmons-Mackie, N., Elman, R. J., Holland, A. L., & Damico, J. S. (2007). Management of discourse in group therapy for aphasia. Topics in Language Disorders, 27, 5–23. doi:10.1097/00011363-200701000-00003
- Simmons-Mackie, N., Raymer, A., Armstrong, E., Holland, A. L., & Cherney, L. R. (2010). Communication partner training in aphasia: A systematic review. JAPMR, 91, 1814–1837. doi:10.1016/j.apmr.2010.08.026
- Sutcliffe, L. M., & Lincoln, N. B. (1998). The assessment of depression in aphasic stroke patients: The development of the Stroke Aphasic Depression Questionnaire. Clinical Rehabilitation, 12, 506–513. doi:10.1191/026921598672167702
- Tamplin, J., Baker, F. A., Jones, B., Way, A., & Lee, S. (2013). “Stroke a Chord”: The effect of singing in a community choir on mood and social engagement for people living with aphasia following a stroke. NeuroRehabilitation, 32, 929–941. doi:10.3233/NRE-130916
- Tarrant, M., Warmoth, K., Code, C., Dean, S., Goodwin, V. A., Stein, K., & Sugavanam, T. (2016). Creating psychological connections between intervention recipients: Development and focus group evaluation of a group singing session for people with aphasia. BMJ Open, 6, e009652. doi:10.1136/bmjopen-2015-009652
- Togher, L., McDonald, S., Tate, R., Power, E., & Rietdijk, R. (2013). Training communication partners of people with severe traumatic brain injury improves everyday conversations: A multicenter single blind clinical trial. Journal of Rehabilitation Medicine, 45, 637–645. doi:10.2340/16501977-1173
- Togher, L., Power, E., Tate, R., McDonald, S., & Rietdijk, R. (2010). Measuring the social interactions of people with traumatic brain injury and their communication partners: The adapted Kagan scales. Aphasiology, 24, 914–927. doi:10.1080/02687030903422478
- Tregea, S., & Brown, K. (2013). What makes a successful peer-led aphasia support group? Aphasiology, 27, 581–598. doi:10.1080/02687038.2013.796506
- van der Gaag, A., Smith, L., Davis, S., Moss, B., Cornelius, V., Laing, S., & Mowles, C. (2005). Therapy and support services for people with long-term stroke and aphasia and their relatives: A six-month follow-up study. Clinical Rehabilitation, 19, 372–380. doi:10.1191/0269215505cr785oa
- Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (2014). Measuring outcomes in aphasia research: A review of current practice and an agenda for standardisation. Aphasiology, 28, 1364–1384. doi:10.1080/02687038.2014.930262
- Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G. (2016). Which treatment outcomes are most important to aphasia clinicians and managers? An international e-Delphi consensus study. Aphasiology, 31, 643–673. doi:10.1080/02687038.2016.1186265
- Wallace, S. J., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., … Gauvreau, C. A. (2017). Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF. Disability & Rehabilitation, 39, 1364–1379. doi:10.1080/09638288.2016.1194899
- Webber, M., & Fendt-Newlin, M. (2017). A review of social participation interventions for people with mental health problems. Social Psychiatry and Psychiatric Epidemiology, 52, 369–380. doi:10.1007/s00127-017-1372-2
- Wilkinson, R., Bryan, K., Lock, S., & Sage, K. (2010). Implementing and evaluating aphasia therapy targeted at couples’ conversations: A single case study. Aphasiology, 24, 869–886. doi:10.1080/02687030903501958
- Winstein, C. J., Stein, J., Arena, R., Bates, B., Cherney, L. R., Cramer, S. C., … Zorowitz, R. D. (2016). Guidelines for adult stroke rehabilitation and recovery: A guideline for healthcare professionals from the American Heart Association/American Stroke Association. Stroke, 47, e98–e169. doi:10.1161/STR.0000000000000098
- World Health Organization. (2001). International classification of functioning, disability and health. Geneva, Switzerland: Author.
- Worrall, L. E., Sherratt, S., Rogers, P., Howe, T. J., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25, 309–322. doi:10.1080/02687038.2010.508530
- Yalom, I. D., & Leszcz, M. (2005). The theory and practice of group psychotherapy (5th ed.). New York, NY: Basic Books.
- Zigmond, A. S., & Snaith, R. P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67, 361–370. doi:10.1111/acp.1983.67.issue-6