References
- Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616
- Ashton, C., Aziz, N. A., Barwood, C., French, R., Savina, E., & Worrall, L. (2008). Communicatively accessible public transport for people with aphasia: A pilot study. Aphasiology, 22(3), 305–320. https://doi.org/10.1080/02687030701382841
- Barnes, S., & Ferguson, A. (2015). Conversation partner responses to problematic talk produced by people with aphasia: Some alternatives to initiating, completing, or pursuing repair. Aphasiology, 29(3), 315–336. https://doi.org/10.1080/02687038.2013.874547
- Beeke, S., Sirman, N., Beckley, F., Maxim, J., Edwards, S., Swinburn, K., & Best, W. (2013). Better conversations with Apahsia: An e-learning resource. University College London. https://extend.ucl.ac.uk
- Blom Johansson, M., Carlsson, M., Östberg, P., & Sonnander, K. (2012). Communication changes and SLP services according to significant others of persons with aphasia. Aphasiology, 26(8), 1005–1028. https://doi.org/10.1080/02687038.2012.671927
- Blom Johansson, M., Carlsson, M., Östberg, P., & Sonnander, K. (2013). A multiple-case study of a family-oriented intervention practice in the early rehabilitation phase of persons with aphasia. Aphasiology, 27(2), 201–226. https://doi.org/10.1080/02687038.2012.744808
- Blonski, D. C., Covert, M., Gauthier, R., Monas, A., Murray, D., O’Brien, K. K., Mendelson, A. D., & Huijbregts, M. (2014). Barriers to and facilitators of access and participation in community-based exercise programmes from the perspective of adults with post-stroke aphasia. Physiotherapy Canada, 66(4), 367–375. https://doi.org/10.3138/ptc.2013-70
- Bornman, J., & Murphy, J. (2006). Using the ICF in goal setting: Clinical application using talking mats®. Disability and Rehabilitation. Assistive Technology, 1(3), 145–154. https://doi.org/10.1080/17483100612331392745
- Brandenburg, C., Worrall, L., Copland, D., & Rodriguez, A. D. (2017). Barriers and facilitators to using the CommFitTM smart phone app to measure talk time for people with aphasia. Aphasiology, 31(8), 901–927. https://doi.org/10.1080/02687038.2016.1219016
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
- Clinical Centre for Research Excellence in Aphasia Rehabilitation. (2014). Aphasia rehabilitation best practice statements: Comprehensive supplement to the Australian aphasia rehabilitation pathway. CCRE in Aphasia Rehabilitation. http://www.aphasiapathway.com.au/flux-content/aarp/pdf/2014-COMPREHENSIVE-FINAL-01-10-2014-1.pdf
- Coulter, A., Entwistle, V. A., Eccles, A., Ryan, S., Shepperd, S., & Perera, R. (2015). Personalised care planning for adults with chronic or long-term health conditions. Cochrane Database of Systematic Reviews, 2015(3). https://doi.org/10.1002/14651858.CD010523.pub2
- Croteau, C., & Le Dorze, G. (2006). Overprotection, “speaking for”, and conversational participation: A study of couples with aphasia. Aphasiology, 20(2–4), 327–336. https://doi.org/10.1080/02687030500475051
- Croteau, C., Vychytil, A.-M., Larfeuil, C., & Le Dorze, G. (2004). “Speaking for” behaviours in spouses of people with aphasia: A descriptive study of six couples in an interview situation. Aphasiology, 18(4), 291–312. https://doi.org/10.1080/02687030344000616
- Dalemans, R. J. P., De Witte, L. P., Wade, D. T., & Van den Heuvel, W. J. A. (2008). A description of social participation in working-age persons with aphasia: A review of the literature. Aphasiology, 22(10), 1071–1091. https://doi.org/10.1080/02687030701632179
- Dietz, A., Hux, K., McKelvey, M. L., Beukelman, D. R., & Weissling, K. (2009). Reading comprehension by people with chronic aphasia: A comparison of three levels of visuographic contextual support. Aphasiology, 23(7–8), 1053–1064. https://doi.org/10.1080/02687030802635832
- Dietz, A., Thiessen, A., Griffith, J., Peterson, A., Sawyer, E., & McKelvey, M. (2013). The renegotiation of social roles in chronic aphasia: Finding a voice through AAC. Aphasiology, 27(3), 309–325. https://doi.org/10.1080/02687038.2012.725241
- Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005). Synthesising qualitative and quantitative evidence: A review of possible methods. Journal of Health Services Research & Policy, 10(1), 45–53. https://doi.org/10.1177/135581960501000110
- Eames, S., McKenna, K., Worrall, L., & Read, S. (2003). Grand rounds. The suitability of written education materials for stroke survivors and their carers. Topics in Stroke Rehabilitation, 10(3), 70–83. https://doi.org/10.1310/KQ70-P8UD-QKYT-DMG4
- Egan, J., Worrall, L., & Oxenham, D. (2004). Accessible internet training package helps people with aphasia cross the digital divide. Aphasiology, 18(3), 265–280. https://doi.org/10.1080/02687030344000562
- Ferrari, R. (2015). Writing narrative style literature reviews. Medical Writing, 24(4), 230–235. https://doi.org/10.1179/2047480615Z.000000000329
- Grant, M., & Booth, A. (2009). A typology of reviews: An analysis of 14 review types and associated methodologies. Health Information and Libraries Journal, 26(2), 91–108. https://doi.org/10.1111/j.1471-1842.2009.00848.x
- Greenhalgh, T., Thorne, S., & Malterud, K. (2018). Time to challenge the spurious hierarchy of systematic over narrative reviews? European Journal of Clinical Investigation, 48(6), e12931. https://doi.org/10.1111/eci.12931
- Greig, C.-A., Harper, R., Hirst, T., Howe, T., & Davidson, B. (2008). Barriers and facilitators to mobile phone use for people with aphasia. Topics in Stroke Rehabilitation, 15(4), 307–324. https://doi.org/10.1310/tsr1504-307
- Grohn, B., Worrall, L. E., Simmons-Mackie, N., & Brown, K. (2012). The first 3-months post-stroke: What facilitates successfully living with aphasia? International Journal of Speech-language Pathology, 14(4), 390–400. https://doi.org/10.3109/17549507.2012.692813
- Heart and Stroke Foundation. (2018). Canadian stroke best practice recommendations (6th Edition). Heart and Stroke Foundation.
- Hersh, D., Godecke, E., Armstrong, E., Ciccone, N., & Bernhardt, J. (2016). Ward talk: Nurses’ interaction with people with and without aphasia in the very early period poststroke. Aphasiology, 30(5), 609–628. https://doi.org/10.1080/02687038.2014.933520
- Hersh, D., Sherratt, S., Howe, T., Worrall, L., Davidson, B., & Ferguson, A. (2012). An analysis of the “goal” in aphasia rehabilitation. Aphasiology, 26(8), 971–984. https://doi.org/10.1080/02687038.2012.684339
- Hilton, R., Leenhouts, S., Webster, J., & Morris, J. (2014). Information, support and training needs of relatives of people with aphasia: Evidence from the literature. Aphasiology, 28(7), 797–822. https://doi.org/10.1080/02687038.2014.906562
- Hoffmann, T., & McKenna, K. (2006). Analysis of stroke patients’ and carers’ reading ability and the content and design of written materials: Recommendations for improving written stroke information. Patient Education and Counseling, 60(3), 286–293. https://doi.org/10.1016/j.pec.2005.06.020
- Holliday, R. C., Ballinger, C., & Playford, E. D. (2007). Goal setting in neurological rehabilitation: Patients’ perspectives. Disability and Rehabilitation, 29(5), 389–394. https://doi.org/10.1080/09638280600841117
- Horton, S., Lane, K., & Shiggins, C. (2016). Supporting communication for people with aphasia in stroke rehabilitation: Transfer of training in a multidisciplinary stroke team. Aphasiology, 30(5), 629–656. https://doi.org/10.1080/02687038.2014.1000819
- Howe, T., Davidson, B., Worrall, L., Hersh, D., Ferguson, A., Sherratt, S., & Gilbert, J. (2012). ‘You needed to rehab … families as well’: Family members’ own goals for aphasia rehabilitation. International Journal of Language & Communication Disorders, 47(5), 511–521. https://doi.org/10.1111/j.1460-6984.2012.00159.x
- Howe, T. J., Worall, L. E., & Hickson, L. M. H. (2004). What is an aphasia-friendly environment? Aphasiology, 18(11), 1015–1037. https://doi.org/10.1080/02687030444000499
- Howe, T. J., Worrall, L. E., & Hickson, L. M. H. (2008a). Interviews with people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22(10), 1–29. https://doi.org/10.1080/02687030701640941
- Howe, T. J., Worrall, L. E., & Hickson, L. M. H. (2008b). Observing people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22(6), 618–643. https://doi.org/10.1080/02687030701536024
- Jensen, L. R., Løvholt, A. P., Sørensen, I. R., Blüdnikow, A. M., Iversen, H. K., Hougaard, A., Mathiesen, L. L., & Forchhammer, H. B. (2015). Implementation of supported conversation for communication between nursing staff and in-hospital patients with aphasia. Aphasiology, 29(1), 57–80. https://doi.org/10.1080/02687038.2014.955708
- Johansson, M. B., Carlsson, M., & Sonnander, K. (2012). Communication difficulties and the use of communication strategies: From the perspective of individuals with aphasia. International Journal of Language & Communication Disorders, 47(2), 144–155. https://doi.org/10.1111/j.1460-6984.2011.00089.x
- Jones, F., Postges, H., Brimicombe, L., Danzl, M., & Etter, N. (2016). Building bridges between healthcare professionals, patients and families: A coproduced and integrated approach to self-management support in stroke. NeuroRehabilitation, 39(4), 471–480. https://doi.org/10.3233/NRE-161379
- Levack, W., Weatherall, M., Hay-Smith, E., Dean, S., Mcpherson, K., & Siegert, R. (2015). Goal setting and strategies to enhance goal pursuit for adults with acquired disability participating in rehabilitation. The Cochrane Database of Systematic Reviews, 2015(7). https://doi.org/10.1002/14651858.CD009727.pub2
- Luck, A. M., & Rose, M. L. (2007). Interviewing people with aphasia: Insights into method adjustments from a pilot study. Aphasiology, 21(2), 208–224. https://doi.org/10.1080/02687030601065470
- Macrae, M., & Douglas, J. M. (2008). Communication outcome 12 months following left-hemisphere stroke in the elderly. Brain Impairment, 9(2), 170–178. https://doi.org/10.1375/brim.9.2.170
- Mays, N., Pope, C., & Popay, J. (2005). Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. Journal of Health Services Research & Policy, 10(1_suppl), 6–20. https://doi.org/10.1258/1355819054308576
- McKenna, S., Jones, F., Glenfield, P., & Lennon, S. (2013). Bridges self-management program for people with stroke in the community: A feasibility randomized controlled trial. International Journal of Stroke, 10(5), 697–704. https://doi.org/10.1111/ijs.12195
- Michie, S., van Stralen, M. M., & West, R. (2011). The behaviour change wheel: A new method for characterising and designing behaviour change interventions. Implementation Science, 6(1), 42. https://doi.org/10.1186/1748-5908-6-42
- Murphy, J., & Boa, S. (2012). Using the WHO-ICF with talking mats to enable adults with long-term communication difficulties to participate in goal setting. Augmentative and Alternative Communication, 28(1), 52–60. https://doi.org/10.3109/07434618.2011.653828
- Murphy, J., Tester, S., Hubbard, G., Downs, M., & MacDonald, C. (2005). Enabling frail older people with a communication difficulty to express their views: The use of talking mats as an interview tool. Health & Social Care in the Community, 13(2), 95–107. https://doi.org/10.1111/j.1365-2524.2005.00528.x
- National Institute for Health and Care Excellence. (2013). Stroke rehabilitation: Long term rehabilitation after stroke (Clinical guideline 162). NICE. https://www.nice.org.uk/guidance/cg162/evidence/full-guideline-pdf-190076509
- O’Halloran, R., Worrall, L., & Hickson, L. (2011). Environmental factors that influence communication between patients and their healthcare providers in acute hospital stroke units: An observational study. International Journal of Language & Communication Disorders, 46(1), 30–47. https://search.proquest.com/docview/1230617125?accountid=15977
- Plant, S., Tyson, S., Kirk, S., & Parsons, J. (2016). What are the barriers and facilitators to goal-setting during rehabilitation for stroke and other acquired brain injuries? A systematic review and meta-synthesis. Clinical Rehabilitation, 30(9), 921–930. https://doi.org/10.1177/0269215516655856
- Pluye, P., Robert, E., Cargo, M., Bartlett, G., O’Cathain, A., Griffiths, F., Boardman, F., Gagnon, M. P., & Rousseau, M. C. (2018, February). Proposal: A mixed methods appraisal tool for systematic mixed studies reviews. Department of Family Medicine, McGill University. http://mixedmethodsappraisaltoolpublic.pbworks.com
- Prescott, S., Fleming, J., & Doig, E. (2015). Goal setting approaches and principles used in rehabilitation for people with acquired brain injury: A systematic scoping review. Brain Injury, 29(13–14), 1515–1529. https://doi.org/10.3109/02699052.2015.1075152
- Purdy, M., & Hindenlang, J. (2005). Educating and training caregivers of persons with Aphasia. Aphasiology, 19(3–5), 377–388. https://doi.org/10.1080/02687030444000822
- Rohde, A., Townley-O’Neill, K., Trendall, K., Worrall, L., & Cornwell, P. (2012). A comparison of client and therapist goals for people with aphasia: A qualitative exploratory study. Aphasiology, 26(10), 1298–1315. https://doi.org/10.1080/02687038.2012.706799
- Rose, T., Worrall, L., Hickson, L., & Hoffmann, T. (2010). Do people with aphasia want written stroke and aphasia information? A verbal survey exploring preferences for when and how to provide stroke and aphasia information. Topics in Stroke Rehabilitation, 17(2), 79–98. https://doi.org/10.1310/tsr1702-79
- Rose, T., Worrall, L., & McKenna, K. (2003). The effectiveness of aphasia‐friendly principles for printed health education materials for people with aphasia following stroke. Aphasiology, 17(10), 947–963. https://doi.org/10.1080/02687030344000319
- Rose, T. A., Worrall, L. E., Hickson, L. M., & Hoffmann, T. C. (2011a). Aphasia friendly written health information: Content and design characteristics. International Journal of Speech-language Pathology, 13(4), 335–347. https://doi.org/10.3109/17549507.2011.560396
- Rose, T. A., Worrall, L. E., Hickson, L. M., & Hoffmann, T. C. (2011b). Exploring the use of graphics in written health information for people with aphasia. Aphasiology, 25(12), 1579–1599. https://doi.org/10.1080/02687038.2011.626845
- Rose, T. A., Worrall, L. E., Hickson, L. M., & Hoffmann, T. C. (2012). Guiding principles for printed education materials: Design preferences of people with aphasia. International Journal of Speech-language Pathology, 14(1), 11–23. https://doi.org/10.3109/17549507.2011.631583
- Rosewilliam, S., Roskell, C., & Pandyan, A. (2011). A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clinical Rehabilitation, 25(6), 501–514. https://doi.org/10.1177/0269215510394467
- Royal College of Physicians. (2016). National clinical guideline for stroke (fifth edition). Royal College of Physicians. https://www.strokeaudit.org/SupportFiles/Documents/Guidelines/2016-National-Clinical-Guideline-for-Stroke-5t-(1).aspx.
- Scobbie, L., Dixon, D., & Wyke, S. (2011). Goal setting and action planning in the rehabilitation setting: Development of a theoretically informed practice framework. Clinical Rehabilitation, 25(5), 468–482. https://doi.org/10.1177/0269215510389198
- Scobbie, L., Duncan, E., Brady, M., & Wyke, S. (2015). Goal setting practice in services delivering community-based stroke rehabilitation: A United Kingdom (UK) wide survey. Disability and Rehabilitation, 37(14), 1291–1298. https://doi.org/10.3109/09638288.2014.961652
- Scobbie, L., McLean, D., Dixon, D., Duncan, E., & Wyke, S. (2013). Implementing a framework for goal setting in community based stroke rehabilitation: A process evaluation. BMC Health Services Research, 13(190). https://doi.org/10.1186/1472-6963-13-190
- Shrubsole, K., Worrall, L., Power, E., & O’Connor, D. A. (2018). The Acute Aphasia IMplementation Study (AAIMS): A pilot cluster randomized controlled trial. International Journal of Language & Communication Disorders, 53(5), 1021–1056. https://doi.org/10.1111/1460-6984.12419
- Shrubsole, K., Worrall, L., Power, E., & O’Connor, D. A. (2019). Barriers and facilitators to meeting aphasia guideline recommendations: What factors influence speech pathologists’ practice? Disability and Rehabilitation, 41(13), 1596–1607. https://doi.org/10.1080/09638288.2018.1432706
- Simmons-Mackie, N. (2018). Communication partner training in aphasia: Reflections on communication accommodation theory. Aphasiology, 32(10), 1215-1224. https://doi.org/10.1080/02687038.2018.1428282
- Simmons-Mackie, N., Raymer, A., & Cherney, L. R. (2016). Communication partner training in aphasia: An updated systematic review. Archives of Physical Medicine and Rehabilitation, 97(12), 2202–2221.e8. https://doi.org/10.1016/j.apmr.2016.03.023
- Simmons-Mackie, N. N., Kagan, A., O’Neill Christie, C., Huijbregts, M., McEwen, S., & Willems, J. (2007). Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change. Aphasiology, 21(1), 39–66. https://doi.org/10.1080/02687030600798287
- Snyder, H., & Engström, J. (2016). The antecedents, forms and consequences of patient involvement: A narrative review of the literature. International Journal of Nursing Studies, 53, 351–378. https://doi.org/10.1016/j.ijnurstu.2015.09.008
- Stroke Association (2012). Accessible information guidelines: Making information accessible for people with aphasia. Stroke Association, UK.
- Stroke Foundation. (2017). Clinical guidelines for stroke management (Australia). Stroke Foundation. https://informme.org.au/en/Guidelines/Clinical-Guidelines-for-Stroke-Management-2017
- Sugavanam, T., Mead, G., Bulley, C., Donaghy, M., & Wijck, V. F. (2013). The effects and experiences of goal setting in stroke rehabilitation a systematic review. Disability and Rehabilitation, 35(3), 177–190. https://doi.org/10.3109/09638288.2012.690501
- Van De Weyer, R. C., Ballinger, C., & Playford, E. D. (2010). Goal setting in neurological rehabilitation: Staff perspectives. Disability and Rehabilitation, 32(17), 1419–1427. https://doi.org/10.3109/09638280903574345
- Worrall, L., Rose, T., Howe, T., Brennan, A., Egan, J., Oxenham, D., & Mckenna, K. (2005). Access to written information for people with aphasia. Aphasiology, 19(10–11), 923–929. https://doi.org/10.1080/02687030544000137
- Worrall, L., Rose, T., Howe, T., McKenna, K., & Hickson, L. (2007). Developing an evidence‐base for accessibility for people with aphasia. Aphasiology, 21(1), 124–136. https://doi.org/10.1080/02687030600798352
- Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25(3), 309–322. https://doi.org/10.1080/02687038.2010.508530