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Research Article

Preliminary Findings from a Collaborative Storytelling Program on Life Participation and Communication among Persons with Aphasia

, PhD, CCC-SLP & , PhD, CCC-SLP
Pages 1818-1838 | Received 07 Mar 2022, Accepted 16 Sep 2022, Published online: 13 Oct 2022

References

  • Adair-Ewing, S. E. (1999). Group process, group dynamics, and group techniques with neurogenic communication disorders. Group treatment for neurogenic communication disorders: The expert clinician’s approach, 916.
  • Armour, M., Brady, S., Sayyad, A., & Krieger, R. (2019). Self-reported quality of life outcomes in aphasia using life participation approach values: 1-Year outcomes. Archives of Rehabilitation Research and Clinical Translation, 1(3–4), 100025.
  • Attard, M. C., Loupis, Y., Togher, L., & Rose, M. L. (2018). The efficacy of an inter-disciplinary community aphasia group for living well with aphasia. Aphasiology, 32(2), 105–138.
  • Avent, J. R., & Wertz, R. T. (1996). Influence of type of aphasia and type of treatment on aphasic patients’ pragmatic performance. Aphasiology, 10(3), 253–265.
  • Azios, J. H., & Damico, J. S. (2020). Clinical practice recommendations for improving life participation for people with aphasia in long-term care. Perspectives of the ASHA Special Interest Groups, 5(2), 384–396.
  • Babbitt, E. M., & Cherney, L. R. (2010). Communication confidence in persons with aphasia. Topics in Stroke Rehabilitation, 17(3), 214–223.
  • Babbitt, E. M., Heinemann, A. W., Semik, P., & Cherney, L. R. (2011). Psychometric properties of the communication confidence rating scale for aphasia (CCRSA): Phase 2. Aphasiology, 25(6–7), 727–735.
  • Bahlke, L. A., Pericolosi, S., & Lehman, M. E. (2010). Use of timeslips to improve communication in persons with moderate–late stage dementia. Journal of Aging, Humanities, and the Arts, 4(4), 390–405.
  • Basting, A. D. (2003). Exploring the creative potential of people with Alzheimer’s disease and related dementia: Dare to imagine. Mental wellness in aging: Strengths-based approaches, 353–367.
  • Basting, A. D. (2009). Forget memory: Creating better lives for people with dementia. Johns Hopkins University Press.
  • Bernstein-Ellis, E., & Elman, R. J. (2007). Aphasia group communication treatment: The Aphasia Center of California approach. Group treatment of neurogenic communication disorders: The expert clinician’s approach, 71–94.
  • Bischoff, T., Anderson, S. R., Heafner, J., & Tambling, R. (2020). Establishment of a reliable change index for the GAD-7. Psychology, Community & Health, 8, 176–187.
  • Brown, K., Worrall, L. E., Davidson, B., & Howe, T. (2012). Living successfully with aphasia: A qualitative meta-analysis of the perspectives of individuals with aphasia, family members, and speech-language pathologists. International journal of speech-language pathology, 14(2), 141–155.
  • Cahana-Amitay, D., Albert, M. L., Pyun, S.-B., Westwood, A., Jenkins, T., Wolford, S., & Finley, M. (2011). Language as a stressor in aphasia. Aphasiology, 25(5), 593–614.
  • Carter, A., Nicholas, M., Hunsaker, E., & Jacobson, A. M. (2015). Modified Berg Balance Scale: making assessment appropriate for people with aphasia. Topics in Stroke Rehabilitation, 22(2), 83–93.
  • Centers for Disease Control and Prevention. (2019). National Vital Statistics System: Deaths: Leading Causes for 2019. https://www.cdc.gov/nchs/nvss/leading-causes-of-death.htm
  • Chadd, K., Moyse, K., & Enderby, P. (2021). Impact of COVID-19 on the Speech and Language Therapy Profession and Their Patients. Frontiers in neurology, 12, 96.
  • Chapey, R., Duchan, J. F., Elman, R. J., Garcia, L. J., Kagan, A., Lyon, J. G., & Simmons Mackie, N. (2000). Life participation approach to aphasia: A statement of values for the future. The ASHA Leader, 5(3), 4–6.
  • Cherney, L. R., Babbitt, E. M., Semik, P., & Heinemann, A. W. (2011). Psychometric properties of the Communication Confidence Rating Scale for Aphasia (CCRSA): phase 1. Topics in Stroke Rehabilitation, 18(4), 352–360.
  • Code, C., & Herrmann, M. (2003). The relevance of emotional and psychosocial factors in aphasia to rehabilitation. Neuropsychological rehabilitation, 13(1–2), 109–132.
  • Code, C., Torney, A., Gildea-Howardine, E., & Willmes, K. (2010). Outcome of a one-month therapy intensive for chronic aphasia: Variable individual responses. Seminars in speech and language, 31(01), 021–033.
  • Cruice, M., Worrall, L., & Hickson, L. (2006). Perspectives of quality of life by people with aphasia and their family: Suggestions for successful living. Topics in Stroke Rehabilitation, 13(1), 14–24.
  • Damico, J., Tetnowski, J., Lynch, K., Hartwell, J., Weill, C., Heels, J., & Simmons-Mackie, N. (2015). Facilitating authentic conversation: An intervention employing principles of constructivism and conversation analysis. Aphasiology, 29(3), 400–421.
  • Demarin, V. (2017). The role of arts in enhancement in stroke recovery. Neurosonol. Cereb. Hemodyn, 13, 111–114.
  • Devanga, S. R., Pollens, R. D., & Glista, S. O. (2021). Toward developing outcome measures in university-based aphasia programs: Perspectives from the aphasia communication enhancement program. Perspectives of the ASHA Special Interest Groups, 6(5), 1047–1059.
  • Eales, C., & Pring, T. (1998). Using individual and group therapy to remediate word finding difficulties. Aphasiology, 12(10), 913–918.
  • Elman, R. (2007). Introduction to group treatment of neurogenic communication disorders. Group treatment of neurogenic communication disorders: The expert clinician’s approach, 1–10.
  • Elman, R., & Bernstein-Ellis, E. (1999). Psychosocial aspects of group communication treatment-preliminary findings. Seminars in speech and language, 20(01), 65–72.
  • Evans, C., Margison, F., & Barkham, M. (1998). The contribution of reliable and clinically significant change methods to evidence-based mental health. Evidence-Based Mental Health, 1(3), 70–72.
  • Ferguson, R. J., Robinson, A. B., & Splaine, M. (2002). Use of the reliable change index to evaluate clinical significance in SF-36 outcomes. Quality of Life Research, 11(6), 509–516.
  • Foki, T., Hitzl, D., Pirker, W., Novak, K., Pusswald, G., & Lehrner, J. (2018). Individual cognitive change after DBS-surgery in Parkinson’s disease patients using reliable change index methodology. neuropsychiatrie, 32(3), 149–158.
  • Fritsch, T., Kwak, J., Grant, S., Lang, J., Montgomery, R. R., & Basting, A. D. (2009). Impact of TimeSlips, a creative expression intervention program, on nursing home residents with dementia and their caregivers. The Gerontologist, 49(1), 117–127.
  • Grohn, B., Worrall, L. E., Simmons-Mackie, N., & Brown, K. (2012). The first 3-months post-stroke: What facilitates successfully living with aphasia? International journal of speech-language pathology, 14(4), 390–400.
  • Gronseth, G. S., Woodroffe, L. M., & Getchius, T. S. (2011). Clinical practice guideline process manual. American Academy of Neurology.
  • Hemsley, G., & Code, C. (1996). Interactions between recovery in aphasia, emotional and psychosocial factors in subjects with aphasia, their significant others and speech pathologists. Disability and Rehabilitation, 18(11), 567–584.
  • Hilari, K., Byng, S., Lamping, D. L., & Smith, S. C. (2003). Stroke and aphasia quality of life scale-39 (SAQOL-39) evaluation of acceptability, reliability, and validity. Stroke, 34(8), 1944–1950.
  • Hilari, K., Lamping, D. L., Smith, S. C., Northcott, S., Lamb, A., & Marshall, J. (2009). Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clinical rehabilitation, 23(6), 544–557.
  • Hinton-Bayre, A. D. (2010). Deriving reliable change statistics from test–retest normative data: Comparison of models and mathematical expressions. Archives of Clinical Neuropsychology, 25(3), 244–256.
  • Holland, A. L., & Nelson, R. L. (2018). Counseling in communication disorders: A wellness perspective. Plural Publishing.
  • Houser, W. S., George, D. R., & Chinchilli, V. M. (2014). Impact of TimeSlips creative expression program on behavioral symptoms and psychotropic medication use in persons with dementia in long-term care: a cluster-randomized pilot study. The American Journal of Geriatric Psychiatry, 22(4), 337–340.
  • Howe, T. J., Worrall, L. E., & Hickson, L. M. (2008). Observing people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22(6), 618–643.
  • Joyce, A. S., MacNair-Semands, R., Tasca, G. A., & Ogrodniczuk, J. S. (2011). Factor structure and validity of the Therapeutic Factors Inventory–Short Form. Group Dynamics: Theory, Research, and Practice, 15(3), 201.
  • Kagan, A. (2011). A-FROM in action at the Aphasia Institute. Seminars in speech and language, 32(03), 216–228.
  • Kagan, A. (2020). The Life Participation Approach to Aphasia: A 20-Year milestone. Perspectives of the ASHA Special Interest Groups, 5(2), 370–370.
  • Kagan, A., Simmons‐Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., McEwen, S., Threats, T., & Sharp, S. (2008). Counting what counts: A framework for capturing real‐life outcomes of aphasia intervention. Aphasiology, 22(3), 258–280.
  • Kearns, K. P. (1994). Group therapy for aphasia: Theoretical and practical considerations. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders (4th ed., pp. 304–321). Lippincott Williams & Wilkins.
  • Kelley, M. L., Heffer, R. W., Gresham, F. M., & Elliott, S. N. (1989). Development of a modified treatment evaluation inventory. Journal of psychopathology and behavioral assessment, 11(3), 235–247.
  • Kertesz, A. (2007). WAB-R: Western aphasia battery-revised. PsychCorp.
  • Kim, S., Chee, K. H., & Gerhart, O. (2020). Generativity in creative storytelling: Evidence from a dementia care community. Innovation in aging, 4 (2),igaa002.
  • Kong, A. P.-H. (2021). The Impact of COVID-19 on speakers with aphasia: what is currently known and missing? Journal of Speech, Language, and Hearing Research, 64(1), 176–180.
  • Lanyon, L., Worrall, L., & Rose, M. (2018). Combating social isolation for people with severe chronic aphasia through community aphasia groups: consumer views on getting it right and wrong. Aphasiology, 32(5), 493–517.
  • Layfield, C. A., Ballard, K. J., & Robin, D. A. (2013). Evaluating group therapy for aphasia: what is the evidence?
  • Lee, H., Lee, Y., Choi, H., & Pyun, S.-B. (2015). Community integration and quality of life in aphasia after stroke. Yonsei Medical Journal, 56(6), 1694–1702.
  • Lin, R., Chen, H.-Y., Li, H., & Li, J. (2019). Effects of creative expression therapy on Chinese elderly patients with dementia: an exploratory randomized controlled trial. Neuropsychiatric Disease and Treatment, 15, 2171.
  • Lo, T. L. T., Lee, J. L. C., & Ho, R. T. H. (2019). Creative arts-based therapies for stroke survivors: a qualitative systematic review. Frontiers in psychology, 9, 1646.
  • Lomas, J., Pickard, L., Bester, S., Elbard, H., Finlayson, A., & Zoghaib, C. (1989). The communicative effectiveness index: Development and psychometric evaluation of a functional communication measure for adult aphasia. Journal of speech and hearing disorders, 54(1), 113–124.
  • LPAA Project Group. (2001). Life participation approaches to aphasia. In R. Chapey (Ed.), Language intervention strategies in aphasia and related neurogenic communication disorders. Lippincott Williams & Wilkins.
  • Lucas, M. (2021). Community-based arts program for persons with aphasia: clinician-observed engagement levels and participant-reported satisfaction ratings [Unpublished masters’s thesis]. Texas Tech University Health Sciences Center.
  • McDermott, O., Charlesworth, G., Hogervorst, E., Stoner, C., Moniz-Cook, E., Spector, A., Csipke, E., & Orrell, M. (2019). Psychosocial interventions for people with dementia: a synthesis of systematic reviews. Aging & mental health, 23(4), 393–403.
  • Morris, J., Toma, M., Kelly, C., Joice, S., Kroll, T., Mead, G., & Williams, B. (2016). Social context, art making processes and creative output: a qualitative study exploring how psychosocial benefits of art participation during stroke rehabilitation occur. Disability and Rehabilitation, 38(7), 661–672.
  • Mozaffarian, D., Benjamin, E. J., Go, A. S., Arnett, D. K., Blaha, M. J., Cushman, M., De Ferranti, S., Després, J.-P., Fullerton, H. J., & Howard, V. J. (2015). Executive summary: heart disease and stroke statistics—2015 update: a report from the American Heart Association. Circulation, 131(4), 434–441.
  • Nebeker Adams, C. A. (2018). The development of a reliable change index and cutoff for the SCORE-15 [Unpublished Master’s thesis]. Brigham Young University.
  • Northcott, S., & Hilari, K. (2011). Why do people lose their friends after a stroke? International Journal of Language & Communication Disorders, 46(5), 524–534.
  • Ostergren, J. A., & Guzzino, S. (2014). group therapy. Speech-Language Pathology Assistants: A Resource Manual, 317.
  • Page, P. (2014). Beyond statistical significance: clinical interpretation of rehabilitation research literature. International journal of sports physical therapy, 9(5), 726.
  • Plourde, J. M., Purdy, S. C., Moore, C., Friary, P., Brown, R., & McCann, C. M. (2019). Gavel Club for people with aphasia: Communication confidence and quality of communication life. Aphasiology, 33(1), 73–93.
  • Ribeiro Lima, R., Rose, M. L., Lima, H. N., Guarinello, A. C., Santos, R. S., & Massi, G. A. (2021). Socio-demographic factors associated with quality of life after a multicomponent aphasia group therapy in people with sub-acute and chronic post-stroke aphasia. Aphasiology, 35(5), 642–657.
  • Rosas, A. G., Stögmann, E., & Lehrner, J. (2021). Individual cognitive changes in subjective cognitive decline, mild cognitive impairment and Alzheimer’s disease using the reliable change index methodology. Wiener klinische Wochenschrift, 133(19), 1064–1069.
  • Simmons-Mackie, N. (2001). Social approaches to aphasia intervention. Language intervention strategies in aphasia and related neurogenic communication disorders, 246–268.
  • Simmons-Mackie, N., Elman, R. J., Holland, A. L., & Damico, J. S. (2007). Management of discourse in group therapy for aphasia. Topics in Language Disorders, 27(1), 5–23.
  • Simmons-Mackie, N., Kagan, A., Victor, J. C., Carling-Rowland, A., Mok, A., Hoch, J. S., Huijbregts, M., & Streiner, D. L. (2014). The assessment for living with aphasia: Reliability and construct validity. International journal of speech-language pathology, 16(1), 82–94.
  • Simmons-Mackie, N., Raymer, A., Armstrong, E., Holland, A., & Cherney, L. R. (2010). Communication partner training in aphasia: A systematic review. Archives of physical medicine and rehabilitation, 91(12), 1814–1837.
  • Simmons‐Mackie, N., & Damico, J. S. (2008). Exposed and embedded corrections in aphasia therapy: Issues of voice and identity. International Journal of Language & Communication Disorders, 43 (sup1), 5–17.
  • Speer, D. C., & Greenbaum, P. E. (1995). Five methods for computing significant individual client change and improvement rates: support for an individual growth curve approach. Journal of Consulting and Clinical Psychology, 63(6), 1044.
  • Stamatakis, C. (2015). The efficacy of peer support in stroke rehabilitation Cardiff University].
  • Taylor, C. (1994). The politics of recognition. In A. Gutman (Ed.), Multiculturalism (pp. 35–73). Princeton University Press.
  • Tregea, S., & Brown, K. (2013). What makes a successful peer-led aphasia support group? Aphasiology, 27(5), 581–598.
  • Unicomb, R., Colyvas, K., Harrison, E., & Hewat, S. (2015). Assessment of reliable change using 95% credible intervals for the differences in proportions: A statistical analysis for case-study methodology. Journal of Speech, Language, and Hearing Research, 58(3), 728–739.
  • Wells, M. (2014). Computer-assisted anomia treatment for persons with chronic aphasia: generalization to untrained words. Journal of Medical Speech-Language Pathology, 21(2), 149–163.
  • Wertz, R. T., Collins, M. J., Weiss, D., Kurtzke, J. F., Friden, T., Brookshire, R. H., Pierce, J., Holtzapple, P., Hubbard, D., & Porch, B. E. (1981). Veterans Administration cooperative study on aphasia: A comparison of individual and group treatment. Journal of Speech, Language, and Hearing Research, 24(4), 580–594.
  • Wilcox, M. J. (1983). Aphasia: pragmatic considerations. Topics in Language Disorders, 3(4), 35–48.
  • Zahra, D., & Hedge, C. (2010). The reliable change index: Why isn’t it more popular in academic psychology. Psychology Postgraduate Affairs Group Quarterly, 76(76), 14–19.
  • Zhang, H., Chen, Y., Hu, R., Yang, L., Wang, M., Zhang, J., Lu, H., Wu, Y., & Du, X. (2017). rTMS treatments combined with speech training for a conduction aphasia patient: A case report with MRI study. Medicine, 96(32).
  • Zhao, J., Li, H., Lin, R., Wei, Y., & Yang, A. (2018). Effects of creative expression therapy for older adults with mild cognitive impairment at risk of Alzheimer’s disease: a randomized controlled clinical trial. Clinical interventions in aging, 13, 1313.

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