“Difficult but Good”: enjoying accessible digital creativity

References

• Bamberg, M. (2011). Who am I? Narration and its contribution to self and identity. In Theory & Psychology (Vol. 21, Issue 1, pp. 3–24). SAGE Publications. https://doi.org/10.1177/0959354309355852
   Google Scholar
• Bryant, L., Brunner, M., Power, E., & Hemsley, B. (2021). Content and network analysis of tweets tagged with #aphasia: An emergent community of practice. Aphasiology, 35(8), 1084–1102. https://doi.org/10.1080/02687038.2020.1770195
   Web of Science ®Google Scholar
• Bryman, A., & Burgess, B. (Eds.). (2002). Analyzing Qualitative Data. Routledge. https://doi.org/10.4324/9780203413081
   Google Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. In Sociology of Health and Illness (Vol. 4, Issue 2, pp. 167–182). Wiley. https://doi.org/10.1111/1467-9566.ep11339939
   Google Scholar
• Caute, A., & Woolf, C. (2015). Using voice recognition software to improve communicative writing and social participation in an individual with severe acquired dysgraphia: an experimental single-case therapy study. In Aphasiology (pp. 1–24). Informa UK Limited. https://doi.org/10.1080/02687038.2015.1041095
   Google Scholar
• Caute, A., Woolf, C., Wilson, S., Stokes, C., Monnelly, K., Cruice, M., Bacon, K., & Marshall, J. (2019). Technology-Enhanced Reading Therapy for People With Aphasia: Findings From a Quasirandomized Waitlist Controlled Study. In Journal of Speech, Language, and Hearing Research (Vol. 62, Issue 12, pp. 4382–4416). American Speech Language Hearing Association. https://doi.org/10.1044/2019_jslhr-l-18-0484
   Google Scholar
• Charmaz, K. (1983). Loss of self: a fundamental form of suffering in the chronically ill. In Sociology of Health and Illness (Vol. 5, Issue 2, pp. 168–195). Wiley. https://doi.org/10.1111/1467-9566.ep10491512
   Google Scholar
• Cherney, L., Oehring, A., Whipple, K., & Rubenstein, T. (2011). “Waiting on the Words”: Procedures and Outcomes of a Drama Class for Individuals with Aphasia. In Seminars in Speech and Language (Vol. 32, Issue 03, pp. 229–242). Georg Thieme Verlag KG. https://doi.org/10.1055/s-0031-1286177
   Google Scholar
• Corsten, S., Konradi, J., Schimpf, E. J., Hardering, F., & Keilmann, A. (2013). Improving quality of life in aphasia—Evidence for the effectiveness of the biographic-narrative approach. In Aphasiology (Vol. 28, Issue 4, pp. 440–452). Informa UK Limited. https://doi.org/10.1080/02687038.2013.843154
   Google Scholar
• Corsten, S., Schimpf, E. J., Konradi, J., Keilmann, A., & Hardering, F. (2015). The participants’ perspective: How biographic–narrative intervention influences identity negotiation and quality of life in aphasia. International Journal of Language & Communication Disorders, 50(6), 788–800. https://doi.org/10.11111/1460-6984.12173
   PubMed Web of Science ®Google Scholar
• Csikszentmihalyi, M. (1990). Flow: The psychology of optimal experience (Vol. 1990). New York: Harper & Row.
   Google Scholar
• Elman, R. J. (2001). The Internet and aphasia: Crossing the digital divide. In Aphasiology (Vol. 15, Issues 10–11, pp. 895–899). Informa UK Limited. https://doi.org/10.1080/02687040143000267
   Google Scholar
• Enderby, P. M., Wood, V. A., Wade, D. T., & Hewer, R. L. (1986). The Frenchay Aphasia Screening Test: a short, simple test for aphasia appropriate for non-specialists. In International Rehabilitation Medicine (Vol. 8, Issue 4, pp. 166–170). Informa UK Limited. https://doi.org/10.3109/03790798709166209
   Google Scholar
• Faircloth, C. A., Boylstein, C., Rittman, M., Young, M. E., & Gubrium, J. (2004). Sudden illness and biographical flow in narratives of stroke recovery. In Sociology of Health and Illness (Vol. 26, Issue 2, pp. 242–261). Wiley. https://doi.org/10.1111/j.1467-9566.2004.00388.x
   Google Scholar
• Fotiadou, D., Northcott, S., Chatzidaki, A., & Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships? In Aphasiology (Vol. 28, Issue 11, pp. 1281–1300). Informa UK Limited. https://doi.org/10.1080/02687038.2014.928664
   Google Scholar
• Gale, N. K., Heath, G., Cameron, E., Rashid, S., & Redwood, S. (2013). Using the framework method for the analysis of qualitative data in multi-disciplinary health research. In BMC Medical Research Methodology (Vol. 13, Issue 1). Springer Science and Business Media LLC. https://doi.org/10.1186/1471-2288-13-117
   Google Scholar
• Herbert, R., Webster, D., & Dyson, L. (2012). Effects of syntactic cueing therapy on picture naming and connected speech in acquired aphasia. In Neuropsychological Rehabilitation (Vol. 22, Issue 4, pp. 609–633). Informa UK Limited. https://doi.org/10.1080/09602011.2012.679030
   Google Scholar
• Kagan, A. (1995). Revealing the competence of aphasic adults through conversation: A challenge to health professionals. In Topics in Stroke Rehabilitation (Vol. 2, Issue 1, pp. 15–28). Informa UK Limited. https://doi.org/10.1080/10749357.1995.11754051
   Google Scholar
• Kagan, A. (1998). Supported conversation for adults with aphasia: Methods and resources for training conversation partners .Aphasiology, 12(9), 816–830.
   Google Scholar
• Kearns, Á., Kelly, H., & Pitt, I (2021). Self-reported feedback in ICT-delivered aphasia rehabilitation: A literature review. Disability and Rehabilitation, 43(9), 1193–1207.
   Google Scholar
• Lanyon, L., Worrall, L., & Rose, M. (2018). What really matters to people with aphasia when it comes to group work? A qualitative investigation of factors impacting participation and integration. In International Journal of Language & Communication Disorders (Vol. 53, Issue 3, pp. 526–541). Wiley. https://doi.org/10.1111/1460-6984.12366
   Google Scholar
• Lazar, J., Goldstein, D., & Taylor, A. (2015). Ensuring digital accessibility through process and policy. Morgan Kaufmann. https://doi.org/10.1016/c2013-0-13367-3
   Google Scholar
• Leonardi, S., Cacciola, A., De Luca, R., Aragona, B., Andronaco, V., Milardi, D., Bramanti, P., & Calabrò, R. S. (2018). The role of music therapy in rehabilitation: improving aphasia and beyond. In International Journal of Neuroscience (Vol. 128, Issue 1, pp. 90–99). Informa UK Limited. https://doi.org/10.1080/00207454.2017.1353981
   Google Scholar
• Lincoln, Y. S., Guba, E. G., & Pilotta, J. J. (1985). Naturalistic inquiry. In International Journal of Intercultural Relations (Vol. 9, Issue 4, pp. 438–439). Elsevier BV. https://doi.org/10.1016/0147-1767(85)90062-8
   Google Scholar
• Lo, T. L. T., Lee, J. L. C., & Ho, R. T. H. (2018). Creative Arts-Based Therapies for Stroke Survivors: A Qualitative Systematic Review. In Frontiers in Psychology (Vol. 9). Frontiers Media SA. https://doi.org/10.3389/fpsyg.2018.01646
   Google Scholar
• Lyon, J. G. (1995). Drawing: Its value as a communication aid for adults with aphasia. In Aphasiology (Vol. 9, Issue 1, pp. 33–50). Informa UK Limited. https://doi.org/10.1080/02687039508248687
   Google Scholar
• Manning, M., MacFarlane, A., Hickey, A., & Franklin, S. (2019). Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis. In S. Federici (Ed.), PLOS ONE (Vol. 14, Issue 3, p. e0214200). Public Library of Science (PLoS). https://doi.org/10.1371/journal.pone.0214200
   Google Scholar
• Marshall, J., Booth, T., Devane, N., Galliers, J., Greenwood, H., Hilari, K., Talbot, R., Wilson, S., & Woolf, C. (2016). Evaluating the Benefits of Aphasia Intervention Delivered in Virtual Reality: Results of a Quasi-Randomised Study. In P. Howell (Ed.), PLOS ONE (Vol. 11, Issue 8, p. e0160381). Public Library of Science (PLoS). https://doi.org/10.1371/journal.pone.0160381
   Google Scholar
• Marshall, J., Caute, A., Chadd, K., Cruice, M., Monnelly, K., Wilson, S., & Woolf, C. (2018). Technology-enhanced writing therapy for people with aphasia: results of a quasi-randomized waitlist controlled study. In International Journal of Language & Communication Disorders (Vol. 54, Issue 2, pp. 203–220). Wiley. https://doi.org/10.1111/1460-6984.12391
   Google Scholar
• Marshall, J., Devane, N., Talbot, R., Caute, A., Cruice, M., Hilari, K., MacKenzie, G., Maguire, K., Patel, A., Roper, A., & Wilson, S. (2020). A randomised trial of social support group intervention for people with aphasia: A Novel application of virtual reality. In A. Martinuzzi (Ed.), PLOS ONE (Vol. 15, Issue 9, p. e0239715). Public Library of Science (PLoS). https://doi.org/10.1371/journal.pone.0239715
   Google Scholar
• Menger, F., Morris, J., & Salis, C. (2016). Aphasia in an Internet age: wider perspectives on digital inclusion. In Aphasiology (pp. 1–21). Informa UK Limited. https://doi.org/10.1080/02687038.2015.1109050
   Google Scholar
• Morris, J., Toma, M., Kelly, C., Joice, S., Kroll, T., Mead, G., & Williams, B. (2016). Social context, art making processes and creative output: a qualitative study exploring how psychosocial benefits of art participation during stroke rehabilitation occur. In Disability and Rehabilitation (Vol. 38, Issue 7, pp. 661–672). Informa UK Limited. https://doi.org/10.3109/09638288.2015.1055383
   Google Scholar
• Moss, B., Parr, S., Byng, S., & Petheram, B. (2004). ‘Pick me up and not a down down, up up’: how are the identities of people with aphasia represented in aphasia, stroke and disability websites? In Disability & Society (Vol. 19, Issue 7, pp. 753–768). Informa UK Limited. https://doi.org/10.1080/0968759042000284222
   Google Scholar
• Neate, T., Roper, A., Wilson, S., Marshall, J., & Cruice, M. (2020a). CreaTable Content and Tangible Interaction in Aphasia. In Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems. CHI ’20: CHI Conference on Human Factors in Computing Systems. ACM. https://doi.org/10.1145/3313831.3376490
   Google Scholar
• Neate, T., Roper, A., & Wilson, S. (2020b). Painting a Picture of Accessible Digital Art. In The 22nd International ACM SIGACCESS Conference on Computers and Accessibility. ASSETS ’20: The 22nd International ACM SIGACCESS Conference on Computers and Accessibility. ACM. https://doi.org/10.1145/3373625.3418019
   Google Scholar
• Neate, T., Roper, A., Wilson, S., & Marshall, J. (2019). Empowering Expression for Users with Aphasia through Constrained Creativity. In Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems. CHI ’19: CHI Conference on Human Factors in Computing Systems. ACM. https://doi.org/10.1145/3290605.3300615
   Google Scholar
• Norris, M., Allotey, P., & Barrett, G. (2012). ‘It burdens me’: the impact of stroke in central Aceh, Indonesia. In Sociology of Health & Illness (Vol. 34, Issue 6, pp. 826–840). Wiley. https://doi.org/10.1111/j.1467-9566.2011.01431.x
   Google Scholar
• Northcott, S., Simpson, A., Thomas, S., Barnard, R., Burns, K., Hirani, S. P., & Hilari, K. (2021). “Now I Am Myself”: Exploring How People with Poststroke Aphasia Experienced Solution-Focused Brief Therapy Within the SOFIA Trial. Qualitative Health Research, 31(11), 2041–2055.
   PubMed Web of Science ®Google Scholar
• Pąchalska, M., & Góral-Półrola, J. (2022). Visual art in aphasia therapy: the lost and found self. Acta 955 Neuropsychologica, 18(2). https://doi.org/10.5604/01.3001.0014.1355
   Google Scholar
• Osa Garcia, A., D’Anjou, C., Letourneau Edwards, N., & Francois, S (2021). “I’m an artist, but with others tools!” Le Theatre Aphasique and the intersection between artistic and clinical practices with people living with aphasia. Canadian Journal of Disability Studies, 10(2), 130–161.
   Google Scholar
• Palmer, R., Dimairo, M., Cooper, C., Enderby, P., Brady, M., Bowen, A., Latimer, N., Julious, S., Cross, E., Alshreef, A., Harrison, M., Bradley, E., Witts, H., & Chater, T. (2019). Self-managed, computerised speech and language therapy for patients with chronic aphasia post-stroke compared with usual care or attention control (Big CACTUS): a multicentre, single-blinded, randomised controlled trial. In The Lancet Neurology (Vol. 18, Issue 9, pp. 821–833). Elsevier BV. https://doi.org/10.1016/s1474-4422(19)30192-9
   Google Scholar
• Pitt, R., Theodoros, D., Hill, A. J., & Russell, T. (2019). The impact of the telerehabilitation group aphasia intervention and networking programme on communication, participation, and quality of life in people with aphasia. In International Journal of Speech-Language Pathology (Vol. 21, Issue 5, pp. 513–523). Informa UK Limited. https://doi.org/10.1080/17549507.2018.1488990
   Google Scholar
• Pound, C., Parr, S., Lindsay, J., & Woolf, C. (2018). Beyond Aphasia. Routledge. https://doi.org/10.4324/9781315169057
   Google Scholar
• Raglio, A., Oasi, O., Gianotti, M., Rossi, A., Goulene, K., & Stramba-Badiale, M. (2016). Improvement of spontaneous language in stroke patients with chronic aphasia treated with music therapy: a randomized controlled trial. In International Journal of Neuroscience (Vol. 126, Issue 3, pp. 235–242). Informa UK Limited. https://doi.org/10.3109/00207454.2015.1010647
   Google Scholar
• Rapley, T., & Seale, C. (2004). Qualitative research practice. Qualitative research practice, 16–34. https://doi.org/10.4135/9781848608191.d5
   Google Scholar
• rehabINK (2020, June 11). When aphasia comes on the scene: The journey and achievements of Le Théâtre Aphasique. rehabINK | A World of Rehabilitation Research, Practice, and Advocacy. Retrieved May 3, 2021, from https://rehabinkmag.com/previous-issues/rehabink-summer-2019-volume-1-issue-7/when-aphasia-comes-on-the-scene-the-journey-and-achievements-of-le-theatre-aphasique/
   Google Scholar
• Rapley, T. (2004). Interviews. In C. Seale, G. Gobo, J. Gubrium, & D. Silervman (Eds), Qualitative research practice, Thousand Oaks, California; London: Sage Publications. https://doi.org/10.4135/9781848608191.d5
   Google Scholar
• Repetto, C., Paolillo, M. P., Tuena, C., Bellinzona, F., & Riva, G. (2020). Innovative technology-based interventions in aphasia rehabilitation: a systematic review. In Aphasiology (Vol. 35, Issue 12, pp. 1623–1646). Informa UK Limited. https://doi.org/10.1080/02687038.2020.1819957
   Google Scholar
• Roper, A., Marshall, J., & Wilson, S. M. (2014). Assessing technology use in aphasia. In Proceedings of the 16th international ACM SIGACCESS conference on Computers & accessibility - ASSETS ’14. the 16th international ACM SIGACCESS conference. ACM Press. https://doi.org/10.1145/2661334.2661397
   Google Scholar
• Roper, A., Marshall, J., & Wilson, S. (2016). Benefits and Limitations of Computer Gesture Therapy for the Rehabilitation of Severe Aphasia. In Frontiers in Human Neuroscience (Vol. 10). Frontiers Media SA. https://doi.org/10.3389/fnhum.2016.00595
   Google Scholar
• Sacchett, C., Byng, S., & Marshall, J. (1999). Drawing together: evaluation of a therapy programme for severe aphasia. In International Journal of Language & Communication Disorders (Vol. 34, Issue 3, pp. 265–289). Wiley. https://doi.org/10.1080/136828299247414
   Google Scholar
• Sather, T. W., Howe, T., Nelson, N. W., & Lagerwey, M. (2017). Optimizing the Experience of Flow for Adults With Aphasia. In Topics in Language Disorders (Vol. 37, Issue 1, pp. 25–37). Ovid Technologies (Wolters Kluwer Health). https://doi.org/10.1097/tld.0000000000000111
   Google Scholar
• Shadden, B. (2005). Aphasia as identity theft: Theory and practice. In Aphasiology (Vol. 19, Issues 35, pp. , Issues 35, pp. 211–223). Informa UK Limited. https://doi.org/10.1080/02687930444000697
   Google Scholar
• Simmons-Mackie, N., & Elman, R. J. (2011). Negotiation of identity in group therapy for aphasia: the Aphasia Café. In International Journal of Language & Communication Disorders (p. 100917004613033). Wiley. https://doi.org/10.3109/13682822.2010.507616
   Google Scholar
• Strong, K. A., & Shadden, B. B. (2020). The Power of Story in Identity Renegotiation: Clinical Approaches to Supporting Persons Living With Aphasia. In Perspectives of the ASHA Special Interest Groups (Vol. 5, Issue 2, pp. 371–383). American Speech Language Hearing Association. https://doi.org/10.1044/2019_persp-19-00145
   Google Scholar
• Swinburn, K., Best, W., Beeke, S., Cruice, M., Smith, L., Pearce Willis, E., Ledingham, K., Sweeney, J., & McVicker, S. J. (2018). A concise patient reported outcome measure for people with aphasia: the aphasia impact questionnaire 21. In Aphasiology (Vol. 33, Issue 9, pp. 1035–1060). Informa UK Limited. https://doi.org/10.1080/02687038.2018.1517406
   Google Scholar
• Tamburro, C., Neate, T., Roper, A., & Wilson, S. (2020). Accessible Creativity with a Comic Spin. In The 22nd International ACM SIGACCESS Conference on Computers and Accessibility. ASSETS ’20: The 22nd International ACM SIGACCESS Conference on Computers and Accessibility. ACM. https://doi.org/10.1145/3373625.3417012
   Google Scholar
• Tamplin, J., Baker, F. A., Jones, B., Way, A., & Lee, S. (2013). ‘Stroke a Chord’: The effect of singing in a community choir on mood and social engagement for people living with aphasia following a stroke. In R. Ll. Wood (Ed.), NeuroRehabilitation (Vol. 32, Issue 4, pp. 929–941). IOS Press. https://doi.org/10.3233/nre-130916
   Google Scholar
• Tarrant, M., Carter, M., Dean, S. G., Taylor, R., Warren, F. C., Spencer, A., Adamson, J., Landa, P., Code, C., Backhouse, A., Lamont, R. A., & Calitri, R. (2021). Singing for people with aphasia (SPA): results of a pilot feasibility randomised controlled trial of a group singing intervention investigating acceptability and feasibility. In BMJ Open (Vol. 11, Issue 1, p. e040544). BMJ. https://doi.org/10.1136/bmjopen-2020-040544
   Google Scholar
• Tarrant, M., Carter, M., Dean, S. G., Taylor, R. S., Warren, F. C., Spencer, A., Adamson, J., Landa, P., Code, C., & Calitri, R. (2018). Singing for people with aphasia (SPA): a protocol for a pilot randomised controlled trial of a group singing intervention to improve well-being. In BMJ Open (Vol. 8, Issue 9, p. e025167). BMJ. https://doi.org/10.1136/bmjopen-2018-025167
   Google Scholar
• Taubner, H., Hallén, M., & Wengelin, Å. (2017). Signs of aphasia: Online identity and stigma management in post-stroke aphasia. In Cyberpsychology: Journal of Psychosocial Research on Cyberspace (Vol. 11, Issue 1). Masaryk University Press. https://doi.org/10.5817/cp2017-1-10
   Google Scholar
• Taubner, H., Hallén, M., & Wengelin, Å. (2020). Still the same? – Self-identity dilemmas when living with post-stroke aphasia in a digitalised society. In Aphasiology (Vol. 34, Issue 3, pp. 300–318). Informa UK Limited. https://doi.org/10.1080/02687038.2019.1594151
   Google Scholar
• Thompson, C. K., Choy, J. J., Holland, A., & Cole, R. (2010). Sentactics®: Computer-automated treatment of underlying forms. In Aphasiology (Vol. 24, Issue 10, pp. 1242–1266). Informa UK Limited. https://doi.org/10.1080/02687030903474255
   Google Scholar
• Thorne, S. (2016). Interpretive description: Qualitative research for applied practice. Routledge. https://doi.org/10.4324/9781315545196
   Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. In International Journal for Quality in Health Care (Vol. 19, Issue 6, pp. 349–357). Oxford University Press (OUP). https://doi.org/10.1093/intqhc/mzm042
   Google Scholar
• van der Meulen, I., van de Sandt-Koenderman, W. Mieke. E., Heijenbrok-Kal, M. H, Visch-Brink, E. G., & Ribbers, G. M. (2014). The Efficacy and Timing of Melodic Intonation Therapy in Subacute Aphasia. In Neurorehabilitation and Neural Repair (Vol. 28, Issue 6, pp. 536–544). SAGE Publications. https://doi.org/10.1177/1545968313517753
   Google Scholar
• Van Lancker, D. R., & Kempler, D. (1987). Comprehension of familiar phrases by left- but not by right-hemisphere damaged patients. In Brain and Language (Vol. 32, Issue 2, pp. 265–277). Elsevier BV. https://doi.org/10.1016/0093-934x(87)90128-3
   Google Scholar
• Wallace, S. J., Worrall, L., Rose, T., Le Dorze, G., Cruice, M., Isaksen, J., Kong, A. P. H., Simmons-Mackie, N., Scarinci, N., & Gauvreau, C. A. (2017). Which outcomes are most important to people with aphasia and their families? an international nominal group technique study framed within the ICF. In Disability and Rehabilitation (Vol. 39, Issue 14, pp. 1364–1379). Informa UK Limited. https://doi.org/10.1080/09638288.2016.1194899
   Google Scholar
• Wilson, C., & Kim, E. S. (2019). Qualitative data collection: considerations for people with Aphasia. In Aphasiology (Vol. 35, Issue 3, pp. 314–333). Informa UK Limited. https://doi.org/10.1080/02687038.2019.1693027
   Google Scholar
• Wilson, S., Roper, A., Marshall, J., Galliers, J., Devane, N., Booth, T., & Woolf, C. (2015). Codesign for people with aphasia through tangible design languages. CoDesign, 11(1), 21–34. https://doi.org/10.1080/15710882.2014.997744
   Web of Science ®Google Scholar
• Winner, E., & Gardner, H. (1977). The comprehension of metaphor in brain-damaged patients. Brain, 100(4), 717–729. https://doi.org/10.1093/brain/100.4.717
   PubMed Web of Science ®Google Scholar
• Winner, E., & Von Karolyi, C. (1998). Artistry and Aphasia. In Acquired Aphasia (pp. 375–411). Elsevier. https://doi.org/10.1016/b978-012619322-0/50014-2
   Google Scholar
• Woolf, C., Caute, A., Haigh, Z., Galliers, J., Wilson, S., Kessie, A., Hirani, S., Hegarty, B., & Marshall, J. (2016). A comparison of remote therapy, face to face therapy and an attention control intervention for people with aphasia: a quasi-randomised controlled feasibility study. In Clinical Rehabilitation (Vol. 30, Issue 4, pp. 359–373). SAGE Publications. https://doi.org/10.1177/0269215515582074
   Google Scholar
• Zumbansen, A., Peretz, I., Anglade, C., Bilodeau, J., Généreux, S., Hubert, M., & Hébert, S. (2017). Effect of choir activity in the rehabilitation of aphasia: a blind, randomised, controlled pilot study. In Aphasiology (Vol. 31, Issue 8, pp. 879–900). Informa UK Limited. https://doi.org/10.1080/02687038.2016.1227424
   Google Scholar