Family and TBI: an investigation using the Family Outcome Measure – FOM-40

References

• Ponsford J. Mechanisms, recovery and sequelae of traumatic brain injury: a foundation for TEH REAL approach. In: Ponsford J, Sloan D, Snow P, editors. Traumatic brain injury: rehabilitation for everyday adaptive living. 2 ed. East Sussex UK: Psychology Press; 2013. p. 1–33.
   Google Scholar
• Ponsford JL, Downing MG, Olver J, Ponsford M, Acher R, Carty M, Spitz G. Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury. J Neurotrauma. 2014;31(1):64–77. doi:10.1089/neu.2013.2997.
   PubMed Web of Science ®Google Scholar
• Tate R, Broe A, Cameron ID, Hodgkinson AE, Soo CA. Pre-injury, injury and early post-injury predictors of long-term functional and psychosocial recovery after severe traumatic brain injury. Brain Impair. 2005;6(2):75–89. doi:10.1375/brim.2005.6.2.75.
   Google Scholar
• Tate R. Assessing support needs for people with traumatic brain injury: the care and needs scale (CANS). Brain Inj. 2004;18(5):445–60. doi:10.1080/02699050310001641183.
   PubMed Web of Science ®Google Scholar
• Sloan S, Winkler D, Anson K. Long-term outcome following traumatic brain injury. Brain Impair. 2007;8(03):251–61. doi:10.1375/brim.8.3.251.
   Google Scholar
• Anderson M, Simpson G, Morey P. The impact of neurobehavioural impairment on family functioning and the psychological well-being of male versus female caregivers of relatives with severe traumatic brain injury: multigroup analysis. J Head Trauma Rehabil. 2013;28(6):453–63. doi:10.1097/HTR.0b013e31825d6087.
   PubMed Web of Science ®Google Scholar
• Bjork JM, Grant SJ. Does traumatic brain injury increase risk for substance abuse? J Neurotrauma. 2009;26(7):1077–82. doi:10.1089/neu.2008.0849.
   PubMed Web of Science ®Google Scholar
• Chan J, Parmenter T, Stancliffe R. The impact of traumatic brain injury on the mental health outcomes of individuals and their family carers. Aust e-J Advance Ment Health. 2009;8(2):10. doi:10.5172/jamh.8.2.155.
   Google Scholar
• Kreutzer JS, Rapport LJ, Marwitz JH, Harrison-Felix C, Hart T, Glenn M, Hammond F. Caregivers’ well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil. 2009;90(6):939–46. doi:10.1016/j.apmr.2009.01.010.
   PubMed Web of Science ®Google Scholar
• Ponsford J, Schoenberger M. Family functioning and emotional state two and five years after traumatic brain injury. J Int Neuropsychol. 2010;16(02):306–17. doi:10.1017/S1355617709991342.
   PubMedGoogle Scholar
• Anderson MI, Simpson GK, Morey PJ, Mok MMC, Gosling TJ, Gillett LE. Differential pathways of psychological distress in spouses vs. parents of people with severe traumatic brain injury (TBI): multi-group analysis. Brain Inj. 2009;23(12):931–43. doi:10.3109/02699050903302336.
   PubMed Web of Science ®Google Scholar
• Barclay DA. Family functioning, psychosocial stress, and goal attainment in brain injury rehabilitation. J Soc Work Disabil Rehabil. 2013;12(3):159–75. doi:10.1080/1536710X.2013.810093.
   PubMedGoogle Scholar
• Sander AM, Sherer M, Malec JF, High WM, Thompson RN, Moessner AM, Josey J. Preinjury emotional and family functioning in caregivers of persons with traumatic brain injury. Arch Phys Med Rehabil. 2003;84(2):197–203. doi:10.1053/apmr.2003.50105.
   PubMed Web of Science ®Google Scholar
• Lefebvre H, Levert M-J. The close relatives of people who have had a traumatic brain injury and their special needs. Brain Inj. 2012;26(9):1084–97. doi:10.3109/02699052.2012.666364.
   PubMed Web of Science ®Google Scholar
• Sloan S, Callaway L, Winkler D, McKinley K, Ziino C. Accommodation outcomes and transitions following community-based intervention for individuals with acquired brain injury. Brain Impair. 2012;13(1):22–43. doi:10.1017/BrImp.2012.5.
   Web of Science ®Google Scholar
• Gordon R. Service utilisation following TBI or SCI. New South Wales, Australia: University of Wollongong; 2016.
   Google Scholar
• Deloitte Access Economics, Australia C. The economic value of informal care in Australia in 2015. Canberra: Carers Australia; 2015.
   Google Scholar
• WHO. About WHO: world health organization; 2017 http://www.who.int/about/mission/en/.
   Google Scholar
• Perlesz A, Kinsella G, Crowe S. Impact of traumatic brain injury on the family: a critical review. Rehabil Psychol. 1999;44(1):6–35. doi:10.1037/0090-5550.44.1.6.
   Web of Science ®Google Scholar
• Simpson G, Jones K. How important is resilience among family members supporting relatives with traumatic brain injury or spinal cord injury? Clin Rehabil. 2013;27(4):367–77. doi:10.1177/0269215512457961.
   PubMed Web of Science ®Google Scholar
• Syed Hassan ST, Jamaludin H, Abd Raman R, Mohd Riji H, Wan Fei K. Mental trauma experienced by caregivers of patients with diffuse axonal injury or severe traumatic brain injury. Trauma Mon. 2013;18(2):56–61. doi:10.5812/traumamon.11522.
   PubMedGoogle Scholar
• Baker A, Barker S, Sampson A, Martin C. Caregiver outcomes and interventions: a systematic scoping review of the traumatic brain injury and spinal cord injury literature. Clin Rehabil. 2016;31(1):45–60. doi:10.1177/0269215516639357.
   PubMed Web of Science ®Google Scholar
• Simpson G, Winstanley J. Family Outcome Measure: FOM-40 user manual 1.0. Sydney NSW: Sydney South West Area Health; 2012.
   Google Scholar
• Perlesz A, O’Loughlan M. Changes in stress and burden in families seeking therapy following traumatic brain injury: a follow-up study. Int J Rehabil Res. 1998;21(4):339–54.
   PubMed Web of Science ®Google Scholar
• COAG. 2010-2020 National disability strategy. Canberra: Council of Australian Governments; 2011.
   Google Scholar
• NDIS. COAG disability reform council quarterly report. Canberra: National Disability Insurance Scheme Launch Transition Agency 2017; December 2016.
   Google Scholar
• Middleton JW, Simpson GK, De Wolf A, Quirk R, Descallar J, Cameron ID. Psychological distress, quality of life, and burden in caregivers during community reintegration after spinal cord injury. Arch Phys Med Rehabil. 2014;95(7):1312–19. doi:10.1016/j.apmr.2014.03.017.
   PubMed Web of Science ®Google Scholar
• Migliorini C, Enticott J, Callaway L, Moore S, Willer B. Community integration questionnaire: outcomes of people with traumatic brain injury and high support needs compared with multiple matched controls. Brain Inj. 2016;30(10):1201–07. doi:10.1080/02699052.2016.1175666.
   PubMed Web of Science ®Google Scholar
• Oakley F, Kielhofner G, Barris R, Reichler RK. The role checklist: development and empirical assessment of reliability. Otjr. 1986;6(3):157–70.
   Google Scholar
• Fleminger S, Leigh E, Eames P, Langrell L, Nagraj R, Logsdail S. HoNOS—ABI: a reliable outcome measure of neuropsychiatric sequelae to brain injury? Psychiatr Bull. 2005;29(2):53–55. doi:10.1192/pb.29.2.53.
   Google Scholar
• Coetzer R, DuToit PL. HoNOS—ABI; a clinically useful outcome measure? Psychiatr Bull. 2001;25(11):421–22. doi:10.1192/pb.25.11.421.
   Google Scholar
• Tate R. Manual for the Care and Needs Scale (CANS) Unpublished manuscript.  Sydney: John Walsh Centre for Rehabilitation Research, University of Sydney; 2011.
   Google Scholar
• Anderson MI, Simpson GK, Daher M, Matheson L. The relationship between coping and psychological adjustment in family caregivers of individuals with traumatic brain injury. Annu Rev Nurs Res. 2015;33:219–47. doi:10.1891/0739-6686.33.219.
   PubMedGoogle Scholar
• Katz S, Kravetz S, Grynbaum F. Wives’ coping flexibility, time since husbands’ injury and the perceived burden of wives of men with traumatic brain injury. Brain Inj. 2005;19(1):59–66.
   PubMed Web of Science ®Google Scholar
• Knight RG, Devereux R, Godfrey HPD. Caring for a family member with a traumatic brain injury. Brain Inj. 1998;12(6):467–81. doi:10.1080/026990598122430.
   PubMed Web of Science ®Google Scholar
• Tarter SB. Factors affecting adjustment of parents of head trauma victims. Arch Clin Neuropsychol. 1990;5(1):15–22.
   PubMedGoogle Scholar
• Godwin EE, Lukow HR, Lichiello S. Promoting resilience following traumatic brain injury: application of an interdisciplinary, evidence-based model for intervention. Fam Relations. 2015;64(3):347–62. doi:10.1111/fare.12122.
   Web of Science ®Google Scholar
• White B, Driver S, Warren A-M. Considering resilience in the rehabilitation of people with traumatic disabilities. Rehabil Psychol. 2008;53(1):9–17. doi:10.1037/0090-5550.53.1.9.
   Web of Science ®Google Scholar
• Hobfoll SE, Spielberger CD. Family stress: integrating theory and measurement. J Fam Psychol. 1992;6(2):99–112. doi:10.1037/0893-3200.6.2.99.
   Google Scholar
• Ergh TCMA, Rapport LJP, Coleman RDP, Hanks RAP. Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress. J Head Trauma Rehabil. 2002;17(2):155–74.
   PubMed Web of Science ®Google Scholar
• Alway Y, McKay A, Ponsford J, Schönberger M. Expressed emotion and its relationship to anxiety and depression after traumatic brain injury. Neuropsychol Rehabil. 2012;22(3):374–90. doi:10.1080/09602011.2011.648757.
   PubMed Web of Science ®Google Scholar
• Alway Y, Ponsford J, McKay A. The relationship between family expressed emotion, perceived criticism and criticism sensitivity and psychiatric outcomes following traumatic brain injury. Psychiatry Res. 2016;246:827–32. doi:10.1016/j.psychres.2016.10.019.
   PubMed Web of Science ®Google Scholar
• Moos RH, Moos BS. Family environment scale manual. 3rd ed. Palo Alto, CA: Consulting Psychologists Press; 1994.
   Google Scholar
• Boyle GJ, Haines S. Severe traumatic brain injury: some effects on family caregivers. Psychological Rep. 2002;90(2):415–25. doi:10.2466/pr0.2002.90.2.415.
   PubMed Web of Science ®Google Scholar
• Douglas J. Indicators of long term family functioning after traumatic brain injury in adults. Brain Inj. 1996;10:819–39.
   PubMed Web of Science ®Google Scholar
• Windle G, Bennett KM, Noyes J. A methodological review of resilience measurement scales. Health Qual Life Outcomes. 2011;9(1):8. doi:10.1186/1477-7525-9-40.
   PubMed Web of Science ®Google Scholar
• Gaugler JE. The longitudinal ramifications of stroke caregiving: a systematic review. Rehabil Psychol. 2010;55(2):108–25. doi:10.1037/a0019023.
   PubMed Web of Science ®Google Scholar
• Simpson G, Pfeiffer D, Keogh S, Lane B. Describing an early social work intervention program for families after severe traumatic brain injury. J Soc Work Disabil Rehabil. 2016;15(3–4):213–33. doi:10.1080/1536710X.2016.1220888.
   PubMed Web of Science ®Google Scholar
• Walsh F. Family resilience: a framework for clinical practice. Fam Process. 2003;42(1):1–18.
   PubMed Web of Science ®Google Scholar
• Butera-Prinzi F, Charles N, Story K. Holding resilience in trust: working systematically with families following an acquired brain injury. In: Simpson GK, Yuen FKO, editors. Contemporary perspectives on social work in acquired brain injury. New York NY: Routledge; 2018. p. 117–36.
   Google Scholar
• Wells R, Dywan J, Dumas J. Life satisfaction and distress in family caregivers as related to specific behavioural changes after traumatic brain injury. Brain Inj. 2005;19(13):1105–15. doi:10.1080/02699050500150062.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Gervasio AH, Camplair PS. Patient correlates of caregivers’ distress and family functioning after traumatic brain injury. Brain Inj. 1994;8(3):211–30.
   PubMed Web of Science ®Google Scholar
• Simpson GK, Sabaz M, Daher M, Gordon R, Strettles B. Challenging behaviours, co-morbidities, service utilisation and service access among community-dwelling adults with severe traumatic brain injury: a multicentre study. Brain Impair. 2014;15(1):28–42. doi:10.1017/BrImp.2014.7.
   Web of Science ®Google Scholar
• Verhaeghe S, Defloor T, Grypdonck M. Stress and coping among families of patients with traumatic brain injury: a review of the literature. J Clin Nurs. 2005;14(8):1004–12. doi:10.1111/j.1365-2702.2005.01126.x.
   PubMed Web of Science ®Google Scholar
• Heinemann AW, Sokol K, Garvin L, Bode RK. Measuring unmet needs and services among persons with traumatic brain injury. Arch Phys Med Rehabil. 2002;83(8):1052–59.
   PubMed Web of Science ®Google Scholar
• Glenn, ND. Age, period, and cohort effects. In: Ritzer G, editor. Blackwell Encyclopedia of Sociology. Blackwell Publishing, Blackwell Reference Online; 2007 [ cited 2014 Oct 14]. Available from: http://www.blackwellreference.com.ezproxy.lib.monash.edu.au/subscriber/tocnode.html?id=g9781405124331_chunk_g97814051243317_ss1-22
   Google Scholar
• Degeneffe CE, Olney MF. Future concerns of adult siblings of persons with traumatic brain injury. Rehabil Couns Bull. 2008;51(4):240–50. doi:10.1177/0034355207311319.
   Web of Science ®Google Scholar
• Tam S, McKay A, Sloan S, Ponsford J. The experience of challenging behaviours following severe TBI: A family perspective. Brain Inj. 2015;29(7–8):813–21. doi:10.3109/02699052.2015.1005134.
   PubMed Web of Science ®Google Scholar
• National Disability Insurance Agency. Specialist disability accommodationC2016 May 29th 2017. https://www.ndis.gov.au/specialist-disability-accommodation.
   Google Scholar
• Transport Accident Commission. Residential independence projectC2016 May 29th 2017. http://www.tac.vic.gov.au/clients/home-and-family/about-the-ripl-project.
   Google Scholar
• Perneger TV. What’s wrong with Bonferroni adjustments. BMJ. 1998;316(7139):1236–38.
   PubMed Web of Science ®Google Scholar