“The things that people can’t see” The impact of TBI on relationships: an interpretative phenomenological analysis

References

• Dewan MC, Rattani A, Gupta S, Baticulon RE, Hung YC, Punchak M, Agrawal A, Adeleye AO, Shrime MG, Rubiano AM, et al. Estimating the global incidence of traumatic brain injury. J Neurosurg. 2018;1:1–8.
   Google Scholar
• Lewis FD, Horn GJ.Traumatic brain injury: analysis of functional deficits and posthospital rehabilitation outcomes. J Spec Oper Med. 2013;13(3):56–61.
   PubMedGoogle Scholar
• Godwin E, Chappell B, Kreutzer J. Relationships after TBI: A grounded research study. Brain Inj. 2014;28(4):398–413. doi:10.3109/02699052.2014.880514.
   PubMed Web of Science ®Google Scholar
• Wood RL, Rutterford NA. Psychosocial adjustment 17 years after severe brain injury. J Neurol Neurosurg Psychiatry. 2006;77(1):71–73. doi:10.1136/jnnp.2005.065540.
   PubMed Web of Science ®Google Scholar
• Thomsen IV. Late outcome of very severe blunt head trauma: a 10–15 year second follow-up. J Neurol Neurosurg Psychiatry. 1984;47(3):260–68. doi:10.1136/jnnp.47.3.260.
   PubMed Web of Science ®Google Scholar
• Godwin EE, Kreutzer JS, Arango-Lasprilla JC, Lehan TJ. Marriage after brain injury: review, analysis, and research recommendations. J Head Trauma Rehabil. 2011;26(1):43–55. doi:10.1097/HTR.0b013e3182048f54.
   PubMed Web of Science ®Google Scholar
• Peters LC, Stambrook M, Moore AD, Esses L. Psychosocial sequelae of closed head injury: effects on the marital relationship. Brain Inj. 1990;4(1):39–47. doi:10.3109/02699059009026147.
   PubMedGoogle Scholar
• Bowen C, Yeates G, Palmer S. A relational approach to rehabilitation: thinking about relationships after brain injury. London (UK): Karnac Books; 2010.
   Google Scholar
• Arguello JL After the silent epidemic: marital satisfaction in long term spousal caregivers of individuals with severe traumatic brain injury [doctoral dissertation]. Iowa City: University of Iowa; 2013. p. 83.
   Google Scholar
• Oddy M. Sexual relationships following brain injury. Sex Relation Ther. 2001;16(3):247–59. doi:10.1080/14681990125256.
   Google Scholar
• Moreno JA, Arango Lasprilla JC, Gan C, McKerral M. Sexuality after traumatic brain injury: a critical review. NeuroRehabilitation. 2013;32(1):69–85. doi:10.3233/NRE-130824.
   PubMed Web of Science ®Google Scholar
• Bracy CA, Douglas JM. Marital dyad perceptions of injured partners’ communication following severe traumatic brain injury. Brain Impair. 2005;6(1):1–2. doi:10.1375/brim.6.1.1.65476.
   Google Scholar
• Burridge AC, Huw Williams W, Yates PJ, Harris A, Ward C. Spousal relationship satisfaction following acquired brain injury: the role of insight and socio-emotional skill. Neuropsychol Rehabil. 2007;17(1):95–105. doi:10.1080/09602010500505070.
   PubMed Web of Science ®Google Scholar
• Edwards A, Murray C, Creamer N, Mahadevan M, Yeates G.The use of emotionally-focused couples therapy (EFT) for survivors of acquired brain injury with social cognition and executive functioning impairments, and their partners: a case series analysis. Neuro-Disability Psychotherapy. 2013;1(2):151–97.
   Google Scholar
• Oyebode J. Assessment of carers’ psychological needs. Adv Psychiatr Treat. 2003;9(1):45–53. doi:10.1192/apt.9.1.45.
   Google Scholar
• Kreutzer JS, Gervasio AH, Camplair PS. Patient correlates of caregivers’ distress and family functioning after traumatic brain injury. Brain Inj. 1994;8(3):211–30. doi:10.3109/02699059409150974.
   PubMed Web of Science ®Google Scholar
• Blais MC, Boisvert JM. Psychological adjustment and marital satisfaction following head injury. Which critical personal characteristics should both partners develop? Brain Inj. 2007;21(4):357–72. doi:10.1080/02699050701311075.
   PubMed Web of Science ®Google Scholar
• Yeates G.Towards the neuropsychological foundations of couples therapy following acquired brain injury (ABI): a review of empirical evidence and relevant concepts. Neuro-Disability Psychotherapy. 2013;1(1):108–50.
   Google Scholar
• Bodley-Scott SE, Riley GA. How partners experience personality change after traumatic brain injury–its impact on their emotions and their relationship. Brain Impair. 2015;16(3):205–20. p. 117. doi:10.1017/BrImp.2015.22.
   Web of Science ®Google Scholar
• Hammond FM, Davis CS, Whiteside OY, Philbrick P, Hirsch MA. Marital adjustment and stability following traumatic brain injury: a pilot qualitative analysis of spouse perspectives. J Head Trauma Rehabil. 2011;26(1):69–78. doi:10.1097/HTR.0b013e318205174d.
   PubMed Web of Science ®Google Scholar
• Brunsden C, Kiemle G, Mullin S. Male partner experiences of females with an acquired brain injury: an interpretative phenomenological analysis. Neuropsychol Rehabil. 2017;27(6):937–58. p. 6. doi:10.1080/09602011.2015.1109525.
   PubMed Web of Science ®Google Scholar
• Gill CJ, Sander AM, Robins N, Mazzei D, Struchen MA. Exploring experiences of intimacy from the viewpoint of individuals with traumatic brain injury and their partners. J Head Trauma Rehabil. 2011;26(1):56–68. doi:10.1097/HTR.0b013e3182048ee9.
   PubMed Web of Science ®Google Scholar
• Seamark DA, Blake SD, Seamark CJ, Halpin DM. Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers: an interpretative phenomenological analysis. Palliat Med. 2004;18(7):619–25. doi:10.1191/0269216304pm928oa.
   PubMed Web of Science ®Google Scholar
• Wawrziczny E, Antoine P, Ducharme F, Kergoat MJ, Pasquier F. Couples’ experiences with early-onset dementia: an interpretative phenomenological analysis of dyadic dynamics. Dementia. 2016;15(5):1082–99. doi:10.1177/1471301214554720.
   PubMedGoogle Scholar
• Smith LJ, Shaw RL. Learning to live with Parkinson’s disease in the family unit: an interpretative phenomenological analysis of well-being. Med Health Care Philos. 2017;20(1):13–21. doi:10.1007/s11019-016-9716-3.
   PubMed Web of Science ®Google Scholar
• Larkin M, Shaw R, Flowers P. Multiperspectival designs and processes in interpretative phenomenological analysis research. Qual Res Psychol. 2019 Apr 3;16(2):182–98. doi:10.1080/14780887.2018.1540655.
   Web of Science ®Google Scholar
• Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. London: Sage; 2012.
   Google Scholar
• Yardley L. Dilemmas in qualitative health research. Psychol Health. 2000;15(2):215–28. doi:10.1080/08870440008400302.
   Web of Science ®Google Scholar
• Prendergast S The loss experiences of individuals whose partners have sustained acquired brain injuries [doctoral dissertation]. Dublin (Ireland): University of Dublin, Trinity College; 2012.
   Google Scholar
• Boss P. Ambiguous loss: learning to live with unresolved grief. Cambridge (MA): Harvard University Press; 1999.
   Google Scholar
• Kratz AL, Sander AM, Brickell TA, Lange RT, Carlozzi NE. Traumatic brain injury caregivers: a qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychol Rehabil. 2017;27(1):16–37. p. 2. doi:10.1080/09602011.2015.1051056.
   PubMed Web of Science ®Google Scholar
• Lezak MD. Brain damage is a family affair. J Clin Exp Neuropsychol. 1988;10(1):111–23. doi:10.1080/01688638808405098.
   PubMed Web of Science ®Google Scholar
• McDonald S. Impairments in social cognition following severe traumatic brain injury. J Int Neuropsychol Soc. 2013;19(3):231–46. doi:10.1017/S1355617712001506.
   PubMed Web of Science ®Google Scholar
• Henry JD, Von Hippel W, Molenberghs P, Lee T, Sachdev PS. Clinical assessment of social cognitive function in neurological disorders. Nat Rev Neurol. 2016;12(1):28. doi:10.1038/nrneurol.2015.229.
   PubMed Web of Science ®Google Scholar
• Brooks N, Campsie L, Symington C, Beattie A, McKinlay W. The five year outcome of severe blunt head injury: a relative’s view. J Neurol Neurosurg Psychiatry. 1986 Jul 1;49(7):764–70. doi:10.1136/jnnp.49.7.764.
   PubMed Web of Science ®Google Scholar
• Bowlby J. The nature of the child’s tie to his mother. Int J Psychoanal. 1958;39:350–73.
   PubMed Web of Science ®Google Scholar
• Mikulincer M, Shaver PR. Attachment in adulthood: structure, dynamics, and change. New York (NY): Guilford Press; 2007.
   Google Scholar
• Cloute K, Mitchell A, Yates P. Traumatic brain injury and the construction of identity: A discursive approach. Neuropsychol Rehabil. 2008;18(5–6):651–70. doi:10.1080/09602010701306989.
   PubMed Web of Science ®Google Scholar
• Ponsford J. Sexual changes associated with traumatic brain injury. Neuropsychol Rehabil. 2003;13(1–2):275–89. doi:10.1080/09602010244000363.
   PubMed Web of Science ®Google Scholar
• Gosling J, Oddy JG. Rearranged marriages: marital relationships after head injury. Brain Inj. 1999;13(10):785–96. doi:10.1080/026990599121179.
   PubMed Web of Science ®Google Scholar
• Tam S, McKay A, Sloan S, Ponsford J. The experience of challenging behaviours following severe TBI: a family perspective. Brain Inj. 2015;29(7–8):813–21. doi:10.3109/02699052.2015.1005134.
   PubMed Web of Science ®Google Scholar
• Littleton H, Horsley S, John S, Nelson DV. Trauma coping strategies and psychological distress: A meta‐analysis. J Trauma Stress. 2007;20(6):977–88. doi:10.1002/jts.20276.
   PubMed Web of Science ®Google Scholar
• Nochi M. Reconstructing self-narratives in coping with traumatic brain injury. Soc Sci Med. 2000;51(12):1795–804. doi:10.1016/S0277-9536(00)00111-8.
   PubMed Web of Science ®Google Scholar
• Kabat-Zinn J. Coming to our senses: healing ourselves and the world through mindfulness. New York (NY): Hyperion; 2005.
   Google Scholar
• Weatherhead S, Todd D. Narrative approaches to brain injury. London (UK): Karnac Books; 2014.
   Google Scholar
• Wilson-Barnett J. Prevention and alleviation of stress in patients. Nursing. 1980;10:432–36.
   Google Scholar
• Linge FR. Faith, hope, and love: nontraditional therapy in recovery from serious head injury, a personal account. Can J Psychol. 1990;44(2):116. doi:10.1037/h0084383.
   PubMed Web of Science ®Google Scholar
• Soundy A, Smith B, Dawes H, Pall H, Gimbrere K, Ramsay J. Patient’s expression of hope and illness narratives in three neurological conditions: a meta-ethnography. Health Psychol Rev. 2013;7(2):177–201. doi:10.1080/17437199.2011.568856.
   Web of Science ®Google Scholar
• Wang S, Xu X, Zhou M, Chen T, Yang X, Chen G, Gong Q. Hope and the brain: trait hope mediates the protective role of medial orbitofrontal cortex spontaneous activity against anxiety. Neuroimage. 2017;157:439–47. doi:10.1016/j.neuroimage.2017.05.056.
   PubMed Web of Science ®Google Scholar
• Gilbert P. Overcoming depression: A self-guide using cognitive behavior techniques. 3rd ed. London (UK): Constable & Robinson Ltd; 2000.
   Google Scholar
• Wahl A, Hanestad BR, Wiklund I, Moum T. Coping and quality of life in patients with psoriasis. Qual Life Res. 1999;8(5):427–33. doi:10.1023/A:1008944108101.
   PubMed Web of Science ®Google Scholar
• Powell T, Ekin-Wood A, Collin C. Post-traumatic growth after head injury: A long-term follow-up. Brain Inj. 2007;21(1):31–38. doi:10.1080/02699050601106245.
   PubMed Web of Science ®Google Scholar
• Lazarus R, Folkman S. Stress, appraisal and coping. New York (NY): Springer; 1984.
   Google Scholar
• Wills TA. Downward comparison principles in social psychology. Psychol Bull. 1981;90(2):245. doi:10.1037/0033-2909.90.2.245.
   Web of Science ®Google Scholar
• Moskowitz J, Folkman S, Acree M. Do positive psychological states shed light on recovery from bereavement? Findings from a 3 year longitudinal study. Death Stud. 2003;27:471–500. doi:10.1080/07481180302885.
   PubMed Web of Science ®Google Scholar
• Backhaus S, Neumann D, Parrot D, Hammond FM, Brownson C, Malec J. Examination of an intervention to enhance relationship satisfaction after brain injury: a feasibility study. Brain Inj. 2016;30(8):975–85. doi:10.3109/02699052.2016.1147601.
   PubMed Web of Science ®Google Scholar
• Green RJ, Mitchell V. Gay and lesbian couples in therapy: minority stress, relational ambiguity, and families of choice. In: Gurman AS, editor. Clinical handbook of couple therapy. New York (NY): The Guilford Press; 2008. p. 662–80.
   Google Scholar
• Farace E, Alves WM. Do women fare worse: a metaanalysis of gender differences in traumatic brain injury outcome. J Neurosurg. 2000;93(4):539–45. doi:10.3171/jns.2000.93.4.0539.
   PubMed Web of Science ®Google Scholar
• Allen K, Linn RT, Gutierrez H, Willer BS. Family burden following traumatic brain injury. Rehabil Psychol. 1994;39(1):29. doi:10.1037/h0080313.
   Web of Science ®Google Scholar