Agreement and differences regarding family functioning between patients with acquired brain injury and their partners

References

• Turner‐Stokes L, Pick A, Nair A, Disler PB, Wade DT. Multi‐disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database Syst Rev. 2015;(12). doi:10.1002/14651858.CD004170.pub3.
   Web of Science ®Google Scholar
• Miller EL, Murray L, Richards L, Zorowitz RD, Bakas T, Clark P, Billinger SA. Comprehensive overview of nursing and interdisciplinary rehabilitation care of the stroke patient: a scientific statement from the American Heart Association. Stroke. 2010;41(10):2402–48. doi:10.1161/STR.0b013e3181e7512b.
   PubMed Web of Science ®Google Scholar
• Han B, Haley WE. Family caregiving for patients with stroke. Review and analysis. Stroke. 1999;30(7):1478–85. doi:10.1161/01.str.30.7.1478.
   PubMed Web of Science ®Google Scholar
• Murray J, Ashworth R, Forster A, Young J. Developing a primary care-based stroke service: a review of the qualitative literature. Br J Gen Pract. 2003;53(487):137–42.
   PubMed Web of Science ®Google Scholar
• Webster G, Daisley A, King N. Relationship and family breakdown following acquired brain injury: the role of the rehabilitation team. Brain Inj. 1999;13(8):593–603. doi:10.1080/026990599121331.
   PubMed Web of Science ®Google Scholar
• Coombs UE. Spousal caregiving for stroke survivors. J Neurosci Nurs. 2007;39(2):112–19. doi:10.1097/01376517-200704000-00008.
   PubMedGoogle Scholar
• Grant JS, Hunt CW, Steadman L. Common caregiver issues and nursing interventions after a stroke. Stroke. 2014;45(8):e151–153. doi:10.1161/STROKEAHA.114.005094.
   PubMed Web of Science ®Google Scholar
• Godwin KM, Swank PR, Vaeth P, Ostwald SK. The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers. Aging Mental Health. 2013;17(4):423–31. doi:10.1080/13607863.2012.756457.
   PubMed Web of Science ®Google Scholar
• Pucciarelli G, Vellone E, Savini S, Simeone S, Ausili D, Alvaro R, Lee CS, Lyons KS. Roles of changing physical function and caregiver burden on quality of life in stroke: a longitudinal dyadic analysis. Stroke. 2017;48(3):733–39. doi:10.1161/STROKEAHA.116.014989.
   PubMed Web of Science ®Google Scholar
• Visser-Meily A, Post M, Gorter JW, Berlekom SB, Van Den Bos T, Lindeman E. Rehabilitation of stroke patients needs a family-centred approach. Disabil Rehabil. 2006;28(24):1557–61. doi:10.1080/09638280600648215.
   PubMed Web of Science ®Google Scholar
• Staccini L, Tomba E, Grandi S, Keitner GI. The evaluation of family functioning by the family assessment device: a systematic review of studies in adult clinical populations. Fam Process. 2015;54(1):94–115. doi:10.1111/famp.12098.
   PubMed Web of Science ®Google Scholar
• Bakas T, Clark PC, Kelly-Hayes M, King RB, Lutz BJ, Miller EL. Evidence for stroke family caregiver and dyad interventions: a statement for healthcare professionals from the American Heart Association and American Stroke Association. Stroke. 2014;45(9):2836–52. doi:10.1161/STR.0000000000000033.
   PubMed Web of Science ®Google Scholar
• Epstein-Lubow GP, Beevers CG, Bishop DS, Miller IW. Family functioning is associated with depressive symptoms in caregivers of acute stroke survivors. Arch Phys Med Rehabil. 2009;90(6):947–55. doi:10.1016/j.apmr.2008.12.014.
   PubMed Web of Science ®Google Scholar
• King RB, Shade-Zeldow Y, Carlson CE, Feldman JL, Philip M. Adaptation to stroke: a longitudinal study of depressive symptoms, physical health, and coping process. Top Stroke Rehabil. 2002;9(1):46–66. doi:10.1310/KDTA-WELC-T2WR-X51W.
   PubMedGoogle Scholar
• Clark MS, Smith DS. Psychological correlates of outcome following rehabilitation from stroke. Clin Rehabil. 1999;13(2):129–40. doi:10.1191/026921599673399613.
   PubMed Web of Science ®Google Scholar
• Sady MD, Sander AM, Clark AN, Sherer M, Nakase-Richardson R, Malec JF. Relationship of preinjury caregiver and family functioning to community integration in adults with traumatic brain injury. Arch Phys Med Rehabil. 2010;91(10):1542–50. doi:10.1016/j.apmr.2010.07.012.
   PubMed Web of Science ®Google Scholar
• Anderson MI, Simpson GK, Morey PJ, Mok MM, Gosling TJ, Gillett LE. Differential pathways of psychological distress in spouses vs. parents of people with severe traumatic brain injury (TBI): multi-group analysis. Brain Inj. 2009;23(12):931–43. doi:10.3109/02699050903302336.
   PubMed Web of Science ®Google Scholar
• Clark PC, Dunbar SB, Shields CG, Viswanathan B, Aycock DM, Wolf SL. Influence of stroke survivor characteristics and family conflict surrounding recovery on caregivers’ mental and physical health. Nurs Res. 2004;53(6):406–13. doi:10.1097/00006199-200411000-00009.
   PubMed Web of Science ®Google Scholar
• King RB, Carlson CE, Shade-Zeldow Y, Bares KK, Roth EJ, Heinemann AW. Transition to home care after stroke: depression, physical health, and adaptive processes in support persons. Res Nurs Health. 2001;24(4):307–23. doi:10.1002/nur.1032.
   PubMed Web of Science ®Google Scholar
• Ponsford J, Schonberger M. Family functioning and emotional state two and five years after traumatic brain injury. J Int Neuropsychol Soc. 2010;16(2):306–17. doi:10.1017/S1355617709991342.
   PubMed Web of Science ®Google Scholar
• Guo Y-L, Liu Y-J. Family functioning and depression in primary caregivers of stroke patients in China. Int J Nurs Sci. 2015;2(2):184–89. doi:10.1016/j.ijnss.2015.05.002.
   Web of Science ®Google Scholar
• Green TL, King KM. Functional and psychosocial outcomes 1 year after mild stroke. J Stroke Cerebrovascular Dis. 2010;19(1):10–16. doi:10.1016/j.jstrokecerebrovasdis.2009.02.005.
   PubMed Web of Science ®Google Scholar
• Cox VCM, Schepers VPM, Ketelaar M, van Heugten CM, Visser-Meily JMA. Evaluating the CARE4Carer blended care intervention for partners of patients with acquired brain injury: protocol for a randomized controlled trial. JMIR Res Protoc. 2018;7(2):e60. doi:10.2196/resprot.9108.
   PubMed Web of Science ®Google Scholar
• Vloothuis J, Mulder M, Nijland RH, Konijnenbelt M, Mulder H, Hertogh CM, van Tulder M, Kwakkel G, van Wegen E. Caregiver-mediated exercises with e-health support for early supported discharge after stroke (CARE4STROKE): study protocol for a randomized controlled trial. BMC Neurol. 2015;15:193. doi:10.1186/s12883-015-0440-z.
   PubMed Web of Science ®Google Scholar
• Vloothuis J, de Bruin J, Mulder M, Nijland R, Kwakkel G, van Wegen EEH. Description of the CARE4STROKE programme: a caregiver-mediated exercises intervention with e-health support for stroke patients. Physiother Res Int. 2018;23(3):e1719. doi:10.1002/pri.1719.
   PubMed Web of Science ®Google Scholar
• von Elm E, Altman DG, Egger M, Pocock SJ, Gotzsche PC, Vandenbroucke JP, Initiative S. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: guidelines for reporting observational studies. Int J Surg. 2014;12(12):1495–99. doi:10.1016/j.ijsu.2014.07.013.
   PubMed Web of Science ®Google Scholar
• Epstein NB, Baldwin LM, Bishop DS. The McMaster family assessment device. J Marital Fam Ther. 1983;9(2):171–80. doi:10.1111/j.1752-0606.1983.tb01497.x.
   Web of Science ®Google Scholar
• Miller IW, Epstein NB, Bishop DS, Keitner GI. The McMaster family assessment device: reliability and validity. J Marital Fam Ther. 1985;11(4):345–56. doi:10.1111/j.1752-0606.1985.tb00028.x.
   Web of Science ®Google Scholar
• Kabacoff RI, Miller IW, Bishop DS, Epstein NB, Keitner GI. A psychometric study of the McMaster Family Assessment Device in psychiatric, medical, and nonclinical samples. J Family Psychol. 1990;3(4):431. doi:10.1037/0893-3200.3.4.431.
   Google Scholar
• Byles J, Byrne C, Boyle MH, Offord DR. Ontario Child Health Study: reliability and validity of the general functioning subscale of the McMaster Family Assessment Device. Fam Process. 1988;27(1):97–104. doi:10.1111/j.1545-5300.1988.00097.x.
   PubMed Web of Science ®Google Scholar
• De Wachter DV S, Vansteelandt K, Vanderlinden J, Lange A. Een psychometrische verkenning van de Nederlandse versie van de Family Assessment Device [A psychometric exploration of the Dutch version of the Family Assessment Device]. Directieve Ther. 2006;26(1):43–57. doi:10.1007/bf03060406.
   Google Scholar
• Schepers VP, Visser-Meily AM, Ketelaar M, Lindeman E. Prediction of social activity 1 year poststroke. Arch Phys Med Rehabil. 2005;86(7):1472–76. doi:10.1016/j.apmr.2004.11.039.
   PubMed Web of Science ®Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–70. doi:10.1111/j.1600-0447.1983.tb09716.x.
   PubMed Web of Science ®Google Scholar
• Robinson BC. Validation of a Caregiver Strain Index. J Gerontol. 1983;38(3):344–48. doi:10.1093/geronj/38.3.344.
   PubMedGoogle Scholar
• van Exel NJ, Scholte Op Reimer WJ, Brouwer WB, van den Berg B, Koopmanschap MA, van den Bos GA. Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden. Clin Rehabil. 2004;18(2):203–14. doi:10.1191/0269215504cr723oa.
   PubMed Web of Science ®Google Scholar
• Koo TK, Li MY. A Guideline of Selecting and Reporting Intraclass Correlation Coefficients for Reliability Research. J Chiropr Med. 2016;15(2):155–63. doi:10.1016/j.jcm.2016.02.012.
   PubMed Web of Science ®Google Scholar
• Bland JM, Altman DG. Statistical methods for assessing agreement between two methods of clinical measurement. Lancet. 1986;1(8476):307–10. doi:10.1016/S0140-6736(86)90837-8.
   PubMed Web of Science ®Google Scholar
• Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33(1):159–74. doi:10.2307/2529310.
   PubMed Web of Science ®Google Scholar
• Wang J, Mansfield AK, Zhao X, Keitner G. Family functioning in depressed and non-clinical control families. Int J Social Psychiatry. 2013;59(6):561–69. doi:10.1177/0020764012445260.
   PubMed Web of Science ®Google Scholar
• King RB, Hartke RJ, Houle TT. Patterns of relationships between background characteristics, coping, and stroke caregiver outcomes. Top Stroke Rehabil. 2010;17(4):308–17. doi:10.1310/tsr1704-308.
   PubMed Web of Science ®Google Scholar
• Hochstenbach J, Prigatano G, Mulder T. Patients’ and relatives’ reports of disturbances 9 months after stroke: subjective changes in physical functioning, cognition, emotion, and behavior. Arch Phys Med Rehabil. 2005;86(8):1587–93. doi:10.1016/j.apmr.2004.11.050.
   PubMed Web of Science ®Google Scholar
• Carod-Artal FJ, Ferreira Coral L, Stieven Trizotto D, Menezes Moreira C. Self- and proxy-report agreement on the Stroke Impact Scale. Stroke. 2009;40(10):3308–14. doi:10.1161/STROKEAHA.109.558031.
   PubMed Web of Science ®Google Scholar
• Ryan CE, Epstein NB, Keitner GI, Miller IW, Bishop DS. Evaluation and treating families: the McMaster approach. New York (NY): Routledge/Taylor & Francis Group; 2005.
   Google Scholar
• Vloothuis J, Depla M, Hertogh C, Kwakkel G, van Wegen E. Experiences of patients with stroke and their caregivers with caregiver-mediated exercises during the CARE4STROKE trial. Disabil Rehabil. 2018;1–7. doi:10.1080/09638288.2018.1507048.
   PubMed Web of Science ®Google Scholar