A longitudinal study of support needs after severe traumatic brain injury

References

• Bailey EK, Nakase-Richardson R, Patel N, Dillahunt-Aspillaga C, Ropackie SA, Sander A,M, Stevens L, Tang X. Supervision needs following veteran and service member moderate to severe traumatic brain injury: A VA TBI model systems study. J Head Trauma Rehabil. 2017;32(4):245–54.doi:10.1097/HTR.0000000000000317.
   PubMed Web of Science ®Google Scholar
• Masel BE, DeWitt DS. Traumatic brain injury: A disease process, not an event. J Neurotrauma. 2010;27(8):1529–40.
   PubMed Web of Science ®Google Scholar
• deGuise E, LeBlanc J, Feyz M, Meyer KS, Duplantie J, Thomas H, … Roger E. Long-term outcome after severe traumatic brain injury: the McGill interdisciplinary perspective study. J Head Trauma Rehabilit. 2008;23(5):294–303.
   PubMed Web of Science ®Google Scholar
• Hammond FM, Grattan KD, Sasser H, Corrigan J, Bushnik T, Zafonte RD. Long-term recovery course after traumatic brain injury: a comparison of the functional independence measure and disability rating scale. J Head Trauma Rehabilit. 2001;16(4):318–29.
   PubMed Web of Science ®Google Scholar
• Olver J, Ponsford J, Curran C. Outcome following traumatic brain injury: a comparison between 2 and 5 years after injury. Brain Inj. 1996;10(11):841–48.
   PubMed Web of Science ®Google Scholar
• Ponsford J, Downing MG, Olver J, Ponsford M, Acher R, Carty M, Spitz G. Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five and ten years post-injury. J Neurotrauma. 2014;31(1):64–77.
   PubMed Web of Science ®Google Scholar
• Corrigan J. Conducting statewide needs assessments for persons with traumatic brain injury. J Head Trauma Rehabilit. 2001;16(1):1–19.
   PubMed Web of Science ®Google Scholar
• Drag L, Renninger C, King R, Hoblyn J. Predictors of inpatient and outpatient healthcare utilization in veterans with traumatic brain injury. J Head Trauma Rehabilit. 2013;28(1):39–47.
   PubMed Web of Science ®Google Scholar
• Leith KH, Phillips L, Sample PL. Exploring the service needs and experiences of persons with TBI and their families: the South Carolina experience. Brain Inj. 2004;18(12):1191–208.
   PubMed Web of Science ®Google Scholar
• Pickelsimer EE, Selassie AW, Sample PL, Heinemann W, Gu JK, Veldheer LC. Unmet service needs of persons with traumatic brain injury. J Head Trauma Rehabilit. 2007;22(1):1–13.
   PubMed Web of Science ®Google Scholar
• Sample PL, Langlois JA. Linking people with traumatic brain injury to services: successes and challenges in Colorado. J Head Trauma Rehabilit. 2005;20(3):270–78.
   PubMed Web of Science ®Google Scholar
• Toor GK, Harris JE, Escobar M, Yoshida K, Velikonja D, Rizoli S, … Colantonio A. Long-term health service outcomes among women with traumatic brain injury. Arch Phys Med Rehabil. 2015. doi:10.1016/j.apmr.2015.02.010.
   PubMed Web of Science ®Google Scholar
• Lefebvre H, Cloutier G, Levert MJ. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22(7–8):535–43.
   PubMed Web of Science ®Google Scholar
• Brickell TA, Lippa SM, French LM, Gartner RL, Driscoll AE, Wright MM, Lange RT. Service needs and health outcomes among caregivers of service members and veterans following TBI. Rehabil Psychol. 2019;64(1):72–86.
   PubMed Web of Science ®Google Scholar
• Marsh NV, Kersel DA, Havill JH, Sleigh JW. Caregiver burden at 1 year following severe traumatic brain injury. Brain Inj. 1998;12(12):1045–59.
   PubMed Web of Science ®Google Scholar
• Langlois JA, Rutland-Brown W, Wald MM. The epidemiology and impact of traumatic brain injury. J Head Trauma Rehabilit. 2006;21(5):375–78.
   PubMed Web of Science ®Google Scholar
• Ponsford J. Mechanism, recovery and sequelae of traumatic brain injury: A foundation for the REAL approach. In: Ponsford J, Sloan S, Snow P, editors. Traumatic brain injury: rehabilitation for everyday adaptive living. 2nd. Hove: Psychology Press; 2013, pp. 1-33 .
   Google Scholar
• Tate RL, Godbee K, Sigmundsdottir L. A systematic review of Level of disability was measured with the Disability Ratingassessment tools for adults used in traumatic brain injury research. NeuroRehabilitation. 2013;32:729–50.
   PubMed Web of Science ®Google Scholar
• Boake C. Supervision rating scale: a measure of functional outcome from brain injury. Arch Phys Med Rehabil. 1996;77:765–72.
   PubMed Web of Science ®Google Scholar
• Tate RL. Assessing support needs for people with traumatic brain injury: the Care and Needs Scale (CANS). Brain Inj. 2004;18(5):445–60.
   PubMed Web of Science ®Google Scholar
• Soo C, Tate RL, Aird V, Allaous J, Browne S, Carr B, … Hummell J. Validity and responsiveness of the care and needs scale for assessing support needs after traumatic brain injury. Arch Phys Med Rehabil. 2010;91(6):905–12.
   PubMed Web of Science ®Google Scholar
• Hoofien D, Gilboa A, Vakil E, Donovick PJ. Traumatic brain injury (TBI) 10-20 years later: A comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Inj. 2001;15(3):189–209.
   PubMed Web of Science ®Google Scholar
• Jennekens N, de Casterle BD, Dobbels F. A systematic review of care needs of people with traumatic brain injury (TBI) on a cognitive, emotional and behavioural level. J Clin Nurs. 2010;19(9–10):1198–206.
   PubMed Web of Science ®Google Scholar
• Corrigan J, Whiteneck G, Mellick D. Perceived needs following traumatic brain injury. J Head Trauma Rehabilit. 2004;19(3):205–16.
   PubMed Web of Science ®Google Scholar
• Heinemann AW, Sokol K, Garvin L, Bode RK. Measuring unmet needs and services among persons with traumatic brain injury. Arch Phys Med Rehabil. 2002;83(8):1052–59.
   PubMed Web of Science ®Google Scholar
• Clark-Wilson J, Giles GM, Seymour S, Tasker R, Baxter DM, Holloway M. Factors influencing community case management and care hours for clients with traumatic brain injury living in the UK, Brain Injury. Brain Inj. 2016;30(7):872–82.
   PubMed Web of Science ®Google Scholar
• Sabaz M, Simpson GK, Walker AJ, Rogers JM, Gillis I. Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: A multi-center study. J Head Trauma Rehabilit. 2014;29(2):E19–30.
   PubMed Web of Science ®Google Scholar
• Sloan S, Winkler D, Anson K. Long-term outcome following traumatic brain injury. Brain Impairment. 2007;8(3):251–61.
   Google Scholar
• Tate RL, Harris RD, Cameron ID, Myles BM, Winstanley JB, Hodgkinson A, … Harradine PG. Recovery of impairments after severe traumatic brain injury: findings from a prospective, multicentre study. Brain Impairment. 2006;7(1):1–15.
   Google Scholar
• Soo C, Tate R, Hopman K, Forman M, Secheny T, Aird V, … Coulston C. Reliability of the Care and Needs Scale for assessing support needs after traumatic brain injury. J Head Trauma Rehabilit. 2007;22(5):288–95.
   PubMed Web of Science ®Google Scholar
• Rappaport M, Hall KM, Hopkins HK, Belleza T, Cope DN. Disability rating scale for severe head trauma: coma to community. Arch Phys Med Rehabil. 1982;63:118–23.
   PubMed Web of Science ®Google Scholar
• Teasdale G, Jennett B. Assessment of coma and impaired consciousness. Lancet. 1974;304(7872):81–84.
   Google Scholar
• Tate RL. A compendium of tests, scales and questionnaires. The practitioners guide to measuring outcomes after acquired brain impairment. Hove, UK: Psychology Press; 2010.
   Google Scholar
• Wright J. The disability rating scale. The Center for Outcome Measurement in Brain Injury. 2000. http://www.tbims.org/combi/drs
   Google Scholar
• Hall KM, Hamilton BB, Gordon WA, Zasler ND. Characteristics and comparisons of functional assessment indices: disability rating scale, functional independence measure, and functional assessment measure. J Head Trauma Rehabilit. 1993;8(2):60–74.
   Google Scholar
• Hall KM, Mann N, High WM, Wright J, Kreutzer JS, Wood D. Functional measures after traumatic brain injury: ceiling effects of FIM, FIM + FAM, DRS, and CIQ. J Head Trauma Rehabilit. 1996;11(5):27–39.
   Web of Science ®Google Scholar
• Millar K, Nicoll JAR, Thornhill S, Murray GD, Teasdale G. Long term neuropsychological outcome after head injury: relation to APOE genotype. J Neurol Neurosurg Psychiatry. 2003;74(8):1047–52.
   PubMed Web of Science ®Google Scholar
• Whitnall L, McMillan TM, Murray GD, Teasdale G. Disability in young people and adults after head injury: 5-7 year follow up of a prospective cohort study. J Neurol Neurosurg Psychiatry. 2006;77:640–45.
   PubMed Web of Science ®Google Scholar
• Wood RL, McCrea JD, Wood LM, Merriman RN. Clinical and cost effectiveness of post-acute neurobehavioural rehabilitation. Brain Inj. 1999;13(2):69–88.
   PubMed Web of Science ®Google Scholar
• Hodgkinson A, Veerabangsa A, Drane D, McCluskey A. Service utilization following traumatic brain injury. J Head Trauma Rehabilit. 2000;15(6):1208–26.
   PubMed Web of Science ®Google Scholar
• Thompson HJ, Weir S, Rivara FP, Wang J, Sullivan SD, Salkever D, MacKenzie EJ. Utilization and costs of health care after geriatric traumatic brain injury. J Neurotrauma. 2012;29:1864–71.
   PubMed Web of Science ®Google Scholar
• Bombardier CH, Fann JR, Temkin NR, Esselman PC, Barber J, Dikmen SS. Rates of major depressive disorder and clinical outcomes following traumatic brain injury. JAMA. 2010;19;303(19):1938–45.
   Web of Science ®Google Scholar
• Corrigan J, Harrison-Felix C, Bogner J, Dijkers M, Terrill MS, Whiteneck GG. Systematic bias in traumatic brain injury outcome studies because of loss to follow-up. Arch Phys Med Rehabil. 2003;84(2):153–60.
   PubMed Web of Science ®Google Scholar