Current practices and beliefs regarding supporting dating skills in rehabilitation for traumatic brain injury: a survey study

References

• Murphy K, Howard S, Ashman T, Cantor J.Romantic involvement, sexuality and quality of life in persons with traumatic brain injury. Arch Phys Med Rehabil. 2007;88(10):E14.doi:https://doi.org/10.1016/j.apmr.2007.08.061.
   Google Scholar
• MacKenzie A, Fountain R, Alfred D, Combs D.Quality of life and adaptations for traumatic brain injury survivors: assessment of the disability centrality model. J Rehabil. 2015;81(3):9–20.
   Web of Science ®Google Scholar
• Curtin M, Jones J, Tyson GA, Mitsch V, Alston M, McAllister L.Outcomes of participation objective, participation subjective (POPS) measure following traumatic brain injury. Brain Injury. 2011;25(3):266–73.doi:https://doi.org/10.3109/02699052.2010.542793.
   PubMed Web of Science ®Google Scholar
• Ponsford JL. Sexual changes associated with traumatic brain injury. Neuropsychol Rehabil. 2003;13(1/2):275–89.doi:https://doi.org/10.1080/09602010244000363.
   PubMed Web of Science ®Google Scholar
• Simpson G.Addressing the sexual concerns of persons with traumatic brain injury in rehabilitation settings: a framework for action. Brain Impairment. 2001;2(2):97–108.doi:https://doi.org/10.1375/brim.2.2.97.
   Google Scholar
• Gill CJ, Sander AM, Robins N, Mazzi D, Struchen MA.Exploring experiences of intimacy from the viewpoint of individuals with traumatic brain injury and their partners. Journal of Head Trauma Rehabilitation. 2011;26(1):56–68.
   PubMed Web of Science ®Google Scholar
• Brunsden C, Kiemle G, Mullin S.Male partner experiences of females with an acquired brain injury: an interpretative phenomenological analysis. Neuropsychol Rehabil. 2017;27(6):937–58.doi:https://doi.org/10.1080/09602011.2015.1109525.
   PubMed Web of Science ®Google Scholar
• Hoofien D, Gilboa A, Vakil E, Donovick PJ.Traumatic brain injury (TBI) 10-20 years later: a comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Injury. 2001;15(3):189–209.doi:https://doi.org/10.1080/026990501300005659.
   PubMed Web of Science ®Google Scholar
• Ownsworth T, Fleming J, Strong J, Radel M, Chan W, Clare L.Awareness typologies, log-term emotional adjustment and psychosocial outcomes following acquired brain injury. Neuropsychol Rehabil. 2007;17(2):129–50.doi:https://doi.org/10.1080/09602010600615506.
   PubMed Web of Science ®Google Scholar
• Engberg AW, Teasdale TW.psychosocial outcome following traumatic brain injury in adults: a long-term population-based follow-up. Brain Injury. 2004;18(6):533–545.doi:https://doi.org/10.1080/02699050310001645829.
   PubMed Web of Science ®Google Scholar
• McDonald S.Introducing the model of cognitive-communication competence: a model to guide evidence-based communication interventions after brain injury. Brain Injury. 2017;31(13–14):1760–80.doi:https://doi.org/10.1080/02699052.2017.1379613.
   PubMed Web of Science ®Google Scholar
• Struchen MA, Pappdis MR, Sander A, Burrows, C. S M, Myszka KA.Examining the contribution of social communication abilities and affective/behavioural functioning to social integration outcomes for adults with traumatic brain injury. Journal of Head Trauma Rehabilitation. 2011;26(1):30–42.doi:https://doi.org/10.1097/HTR.0b013e3182048f7c.
   PubMed Web of Science ®Google Scholar
• Salas CE, Casassus M, Rowlands L, Pimm S, Flanagan DAJ.“Relating through sameness”: a qualitative study of friendship and social isolation in chronic traumatic brain injury. Neuropsychol Rehabil. 2018;28(7):1161–78.doi:https://doi.org/10.1080/09602011.2016.1247730.
   PubMed Web of Science ®Google Scholar
• Sander AM, Struchen MA.Interpersonal relationships and traumatic brain injury. Journal of Head Trauma Rehabilitation. 2011;26(1):1–3.doi:https://doi.org/10.1097/HTR.0b013e3182068588.
   PubMed Web of Science ®Google Scholar
• Dahlberg C, Hawley L, Newman MC, Cusick, C. P J, Harrison-Felix C.Social communication skills in persons with post-acute traumatic brain injury: three perspectives. Brain Injury. 2006;20(4):425–35.doi:https://doi.org/10.1080/02699050600664574.
   PubMed Web of Science ®Google Scholar
• Ponsford JL, Dowing MG, Olver J, Ponsford M, Acher R, Carty M, Spitz G.Longitudinal follow-up of patients with traumatic brain injuries: outcome at two, five- and ten-years post-injury. J Neurotrauma. 2014;31(1):64–77.doi:https://doi.org/10.1089/neu.2013.2997.
   PubMed Web of Science ®Google Scholar
• Tullis CA, Zangrillo AN.Sexuality education for adolescents and adults with autism spectrum disorders. Psychol Sch. 2013;50(9):866–75.doi:https://doi.org/10.1002/pits.21713.
   Web of Science ®Google Scholar
• Ylvisaker M, Feeney T.What I really want is a girlfriend: meaningful social interaction after traumatic brain injury. Brain Injury Source. 2001;5:12.
   Google Scholar
• Chrastina J, Vecerova H (2018). Supporting sexuality in adults with intellectual disability - a short review. sexuality and disability. Available at: https://doi.org/https://doi.org/10.1007/s11195-018-9546-8. (Accessed: 21.September.2019).
   Google Scholar
• Ward KM, Atkinson JP, Smith CA, Windsor R.A friendship and dating programme for adults with intellectual and developmental disabilities: a formative evaluation. Intellect Dev Disabil. 2013;51(1):22–32.doi:https://doi.org/10.1352/1934-9556-51.01.022.
   PubMed Web of Science ®Google Scholar
• Hibbard MR, Gordon WA, Flanagan S, Haddad L, Labinsky E.Sexual dysfunction after traumatic brain injury. Neurorehabilitation. 2000;15(2):107–20.doi:https://doi.org/10.3233/NRE-2000-15204.
   PubMed Web of Science ®Google Scholar
• Knox L, Douglas JM, Bigby C.“The biggest thing is trying to live for two people”: spousal experiences of supporting decision-making participation for partners with TBI. Brain Injury. 2015;29(6):745–57.doi:https://doi.org/10.3109/02699052.2015.1004753.
   PubMed Web of Science ®Google Scholar
• Landau J, Hissett J.Mild traumatic brain injury: impact on identity and ambiguous loss in the family. Families, Symptoms and Health. 2008;26(1):69–85.doi:https://doi.org/10.1037/1091-7527.26.1.69.
   Google Scholar
• Yeates G, Edwards A, Murray C, Creamer NZ, Mahadevan M.The use of emotionally-focused couples therapy (EFT) for survivors of acquired brain injury with social cognition and executive functioning impairments, and their partners: a case series analysis. Neuro-Disability and Psychotherapy. 2013;1(2):151–97.
   Google Scholar
• Backhaus S, Neumann D, Parrot D, Hammond FM, Brownson C, Malec J.Examination of an intervention to enhance relationship satisfaction after brain injury: a feasibility study. Brain Injury. 2016;30(8):975–85.doi:https://doi.org/10.3109/02699052.2016.1147601.
   PubMed Web of Science ®Google Scholar
• Backhaus S, Neumann D, Parrott D, Hammond FM, Brownson C, Malec J.Investigation of a new couples intervention for individuals with brain injury: a randomised controlled trial. Arch Phys Med Rehabil. 2018;100(2):195–204.doi:https://doi.org/10.1016/j.apmr.2018.08.174.
   PubMed Web of Science ®Google Scholar
• Cambridge Dictionary. Meaning of Date in English. Available at: https://dictionary.cambridge.org/dictionary/english/date?q=dating. Accessed 09.May.2021
   Google Scholar
• Rose S, Hanson Frieze I.Young Singles’ contemporary dating scripts. Sex Roles. 1993;28(9/10):499–509.doi:https://doi.org/10.1007/BF00289677.
   Web of Science ®Google Scholar
• Lawson HM, Leck K.Dynamics of Internet Dating. Soc Sci Comput Rev. 2006. 24(2):189–208.
   Web of Science ®Google Scholar
• Ylvisaker M, Feeney T.Reflections on dobermanns, poodles and social rehabilitation for difficult-to-serve individuals with traumatic brain injury. Aphasiology. 2000;14(4):407–31.doi:https://doi.org/10.1080/026870300401432.
   Web of Science ®Google Scholar
• Exell R, Hilari K, Behn N.Interventions that support adults with brain injuries, learning disabilities and autistic spectrum disorders in dating or romantic relationships: a systematic review. Disabil Rehabil. 2020;1–14. doi:https://doi.org/10.1080/09638288.2020.1845824.
   Web of Science ®Google Scholar
• Gutman SA, Leger DL.Enhancement of one-to-one interpersonal skills necessary to initiate and maintain intimate relationships: a frame of reference for adults having sustained traumatic brain injury. Occupational Therapy in Mental Health. 1997;13(2):51–67.doi:https://doi.org/10.1300/J004v13n02_04.
   Google Scholar
• Valentich M, Gripton J.Facilitating the sexual integration of the head-inured person in the community. Sex Disabil. 1984;7(1/2):28–42.doi:https://doi.org/10.1007/BF01101828.
   Google Scholar
• Dyer K, das Nair R.Talking about sex after traumatic brain injury: perceptions and experiences of multidisciplinary rehabilitation professionals. Disabil Rehabil. 2014;36(17):1431–38.doi:https://doi.org/10.3109/09638288.2013.859747.
   PubMed Web of Science ®Google Scholar
• Calloway L, Sloan S, Winkler D.Maintaining and developing friendships following severe traumatic brain injury: principles of occupational therapy practice. Aust Occup Ther J. 2005;52:257–60.
   Google Scholar
• Harris P, Brady C.Attitudes of speech and language therapists to intimate relationships among people with learning difficulties: an exploratory study. British Journal of Learning Disabilities. 1995;23(4):160–63.doi:https://doi.org/10.1111/j.1468-3156.1995.tb00188.x.
   Google Scholar
• Blackerby WF.A treatment model for sexuality disturbance following brain injury. Journal of Head Trauma Rehabilitation. 1990;5(2):73–82.doi:https://doi.org/10.1097/00001199-199005020-00012.
   Google Scholar
• Rosenbaum T, Vadas D, Kalichman L.sexual function in post-stroke patients: considerations for rehabilitation. Journal of Sexual Medicine. 2013;11(1):15–21.doi:https://doi.org/10.1111/jsm.12343.
   PubMed Web of Science ®Google Scholar
• Chua KSG, Ng YS, Yap SGM, Bok CW.A brief review of traumatic brain injury rehabilitation. Ann Acad Med Singapore. 2007;36:31–42.
   PubMed Web of Science ®Google Scholar
• Eysenback G.Improving the Quality of Web Surveys: the Checklist for Reporting Results of Internet E-Surveys (CHERRIES). J Med Internet Res. 2004;6(3):1–6.
   Web of Science ®Google Scholar
• Mueser KT, Valenti-Hein D, Yarnold PR.Dating-skills groups for the developmentally disabled: social skills and problem solving versus relaxation training. Behaviour Modification. 1987;11(2):200–28.doi:https://doi.org/10.1177/01454455870112005.
   PubMed Web of Science ®Google Scholar
• Valenti-Hein DC, Yarnold PR, Mueser KT.Evaluation of the dating skills program for improving heterosocial interactions in people with mental retardation. Behaviour Modification. 1994;18(1):32–46.doi:https://doi.org/10.1177/01454455940181003.
   PubMed Web of Science ®Google Scholar
• Cunningham A, Sperry L, Brady MP, Peluso PR, Pauletti RE.The effects of a romantic relationship treatment options for adults with autism spectrum disorder. Counselling Outcome Research and Evaluation. 2016;7(2):99–110.doi:https://doi.org/10.1177/2150137816668561.
   Google Scholar
• Chandler RJ, Swift C, Goodman W.Treating online inappropriate sexualised behaviour. Journal of Intellectual Disabilities. 2016;7(3):151–60.
   Web of Science ®Google Scholar
• Qualtrics. Qualtrics version XM. Provo, Utah: Qualtrics, 2019. Available at: https://www.qualtrics.com/
   Google Scholar
• IBM Corp. IBM SPSS Statistics for Windows, Version 25.0. Armonk, NY: IBM Corp; 2017.
   Google Scholar
• QSR International Pty Ltd (2018) NVivo QSR International, version 12.
   Google Scholar
• Hsieh H, Shannon SE.Three approaches to content analysis. Qual Health Res. 2005;15(9):1277–88.doi:https://doi.org/10.1177/1049732305276687.
   PubMed Web of Science ®Google Scholar
• The Brain Injury Group. What is case management? What do case managers do? Available at http://www.braininjurygroup.co.uk/news/what-is-case-management-what-do-case-managers-do/ Accessed 09.May.2021.
   Google Scholar
• The Scottish Executive,2000 The Same as You? A Review of Services for People with Learning Disabilities. Available at: https://www2.gov.scot/resource/doc/1095/0001661.pdf. (Accessed: 2.09. 2019
   Google Scholar
• Krantz G, Tolan V, Pontarelli K, Cahill SM.What do adolescents with developmental disabilities learn about sexuality and dating? A potential role for occupational therapy. The Open Journal of Occupational Therapy. 2016;4(2):1–15.
   Google Scholar
• Larkin BM, Worrall LE, Hickson M.Stakeholder opinion of functional communication activities following traumatic brain injury. Brain Injury. 2004;18(7):691–706. doi:https://doi.org/10.1080/02699050310001617389.
   PubMed Web of Science ®Google Scholar
• Fleming J, Strong J.A Lingitudinal study of self-awareness: functional deficits underestimated by persons with brain injury. The Occupational Therapy Journal of Research. 1999;19(1):3–17.doi:https://doi.org/10.1177/153944929901900101.
   Web of Science ®Google Scholar
• Annon JS.The PLISSIT model: a proposed conceptual scheme for the behavioral treatment of sexual problems. J Sex Educ Ther. 1976;2(1):1–15.
   Google Scholar
• McCarthy K.Dating as an occupation: swipe right for occupational therapy. Collected Faculty and Staff Scholarship, Dominican University of California. 2018;329:12–15.
   Google Scholar
• Hillier SL, Metzer J.Awareness and perceptions of outcomes after traumatic brain injury. Brain Injury. 1997;11(7):525–36.doi:https://doi.org/10.1080/bij.11.7.525.536.
   PubMed Web of Science ®Google Scholar
• Sbordone RJ, Seyranian GD, Ruff RM.Are the subjective complaints of traumatically brain injured patients reliable? Brain Injury. 1998;12(6):505–15.doi:https://doi.org/10.1080/026990598122467.
   PubMed Web of Science ®Google Scholar
• Togher L, Wiseman-Hakes C, Douglas J, Stergiou-Kita M, Ponsford J, Teasell R, Bayley M, Turkstra LS, the INCOG Expert Panel. INCOG recommendations for management of cognition following traumatic brain injury, part iv: cognitive communication. Journal of Head Trauma Rehabilitation. 2014;29(4):353–68. doi:https://doi.org/10.1097/HTR.0000000000000071.
   PubMed Web of Science ®Google Scholar
• Tate R, Kennedy M, Ponsford J, Douglas J, Velikonja D, Bayley M, Stergiou-Kita M.INCOG recommendations for management of cognition following traumatic brain injury, part iii: executive function and self-awareness. Journal of Head Trauma Rehabilitation. 2014;29(4):338–52.doi:https://doi.org/10.1097/HTR.0000000000000068.
   PubMed Web of Science ®Google Scholar
• Corrigan P.How stigma interferes with mental health care. American Psychologists. 2004;59(7):614–25.doi:https://doi.org/10.1037/0003-066X.59.7.614.
   PubMed Web of Science ®Google Scholar
• McClure J, Buchanan S, McDowall J, Wade K.Attributions for behaviour of persons with brain injury: the role of perceived severity and time since injury. Brain Injury. 2008;22(9):639–48.doi:https://doi.org/10.1080/02699050802255585.
   PubMed Web of Science ®Google Scholar