88
Views
0
CrossRef citations to date
0
Altmetric
Articles

The usefulness of a condition-specific measure (child-report) for the evaluation of the adaptation of children with asthma

&

References

  • Bacharier, L. B., Boner, A., Carlsen, K. H., Eigenmann, P. A., Frischer, T., Gotz, M., & Wildhaber, J. (2008). Diagnosis and treatment of asthma in childhood: A PRACTALL consensus report. Allergy, 63(1), 5–34. doi:10.1111/j.1398-9995.2007.01586.x
  • Coyne, I., & Gallagher, P. (2011). Participation in communication and decision making: Children and young people’s experiences in a hospital setting. Journal of Clinical Nursing, 20(15–16), 2334–2343. doi:10.1111/j.1365-2702.2010.03582.x
  • Crespo, C., Carona, C., Silva, N., Canavarro, M., & Dattilio, F. (2011). Understanding the quality of life for parents and their children who have asthma: Family resources and challenges. Contemporary Family Therapy, 33(2), 179–196. doi:10.1007/s10591-011-9155-5
  • Everhart, R. S., & Fiese, B. H. (2009). Asthma severity and child quality of life in pediatric asthma: A systematic review. Patient Education and Counseling, 75(2), 162–168. doi:10.1016/j.pec.2008.10.001
  • Feng, L., Zhang, Y., Chen, R., & Hao, Y. (2011). The Chinese version of the Pediatric Quality of Life Inventory (PedsQL) 3.0 Asthma module: Reliability and validity. Health and Quality of Life Outcomes, 9: 64. doi:10.1186/1477-7525-9-64
  • Lahaye, M., Fantini-Hauwel, C., van Broeck, N., Bodart, E., & Luminet, O. (2011). Emotional competence and quality of life of children with asthma: The mediating effect of coping strategies. Psychology & Health, 26(12), 1678–1695. doi:10.1080/08870446.2011.562606
  • Lima, L., Guerra, M. P., & de Lemos, M. S. (2010). The psychological adjustment of children with asthma: Study of associated variables. The Spanish Journal of Psychology, 13(1), 353–363. doi:10.1017/S1138741600003917
  • Lima, L., Guerra, P. M., & Lemos, M. S. (2009). Adaptação da escala genérica do Inventário Pediátrico de Qualidade de vida—Pediatric Quality of Life Inventory 4.0—PedsQL, a uma população portuguesa. Revista Portuguesa de Saúde Pública, 8, 83–95.
  • Lima, L., Lemos, M., & Guerra, M. (2010). Adaptação do Inventário de temperamento para crianças em idade escolar—SATI a uma população portuguesa. Psicologia, Saúde & Doenças, 11(1), 55–70.
  • Lima, L., Lemos, M., & Guerra, M. (2014). Avaliação da qualidade específica da asma [abstract]. Psicologia, Saúde E Doenças, 15, 236.
  • Marsac, M. L., Funk, J. B., & Nelson, L. (2007). Coping styles, psychological functioning and quality of life in children with asthma. Child: Care, Health and Development, 33(4), 360–367. doi:10.1111/j.1365-2214.2006.00701.x
  • McCabe, M. A. (1996). Involving children and adolescents in medical decision making: Developmental and clinical considerations. Journal of Pediatric Psychology, 21(4), 505–516. doi:10.1093/jpepsy/21.4.505
  • McClowry, S. G. (1995). The development of the School-Age Temperament Inventory. Merril Palmer Quarterly, 41(3), 271–285.
  • McQuaid, E. L., Kopel, S. J., & Nassau, J. H. (2001). Behavioral adjustment in children with asthma: A meta-analysis. Journal of Developmental & Behavioral Pediatrics, 22(6), 430–439. doi:10.1097/00004703-200112000-00011
  • McQuaid, E. L., Walders, N., Kopel, S. J., Fritz, G. K., & Klinnert, M. D. (2005). Pediatric asthma management in the family context: The family asthma management system scale. Journal of Pediatric Psychology, 30(6), 492–502. doi:10.1093/jpepsy/jsi074
  • Pearce, N., Ait-Khaled, N., Beasley, R., Mallol, J., Keil, U., Mitchell, E., & Robertson, C. (2007). Worldwide trends in the prevalence of asthma symptoms: Phase III of the International Study of Asthma and Allergies in Childhood (ISAAC). Thorax, 62(9), 758–766. doi:10.1136/thx.2006.070169
  • Peeters, Y., Boersma, S. N., & Koopman, H. M. (2008). Predictors of quality of life: A quantitative investigation of the stress-coping model in children with asthma. Health and Quality of Life Outcomes, 6: 24. doi:10.1186/1477-7525-6-24
  • Raymond, K. P., Fiese, B. H., Winter, M. A., Knestel, A., & Everhart, R. S. (2012). Helpful hints: Caregiver-generated asthma management strategies and their relation to pediatric asthma symptoms and quality of life. Journal of Pediatric Psychology, 37(4), 414–423. doi:10.1093/jpepsy/jss001
  • Rueda, M. R., & Rothbart, M. K. (2009). The influence of temperament on the development of coping: The role of maturation and experience. New Directions For Child And Adolescent Development, 2009(124), 19–31. doi:10.1002/cd.240
  • Rydstrom, I., Dalheim-Englund, A. C., Holritz-Rasmussen, B., Moller, C., & Sandman, P. O. (2005). Asthma–quality of life for Swedish children. Journal of Clinical Nursing, 14(6), 739–749. doi:10.1111/j.1365-2702.2005.01135.x
  • Sawyer, M. G., Spurrier, N., Whaites, L., Kennedy, D., Martin, A. J., & Baghurst, P. (2000). The relationship between asthma severity, family functioning and the health-related quality of life of children with asthma. Quality of Life Research, 9(10), 1105–1115. doi:10.1023/A:1016655511879
  • Silva, C. M., & Barros, L. (2013). Asthma knowledge, subjective assessment of severity and symptom perception in parents of children with asthma. Journal of Asthma, 50(9), 1002–1009. doi:10.3109/02770903.2013.822082
  • Silva, C. M., & Barros, L. (2014). Pediatric asthma management: Study of the Family Asthma Management System Scale with a Portuguese sample. Children’s Health Care, 43(3), 203–220. doi:10.1080/02739615.2013.837822
  • Silva, C. M., Barros, L., & Simões, F. (2015). Health-related quality of life in paediatric asthma: Children’s and parents’ perspectives. Psychology, Health & Medicine, 20(8), 940–954. doi:10.1080/13548506.2014.969745
  • Silva, N., Carona, C., Crespo, C., Bullinger, M., & Canavarro, M. C. (2014). The Portuguese DISABKIDS Asthma Module: A global index of asthma-specific quality of life for children and adolescents. Journal of Asthma, 51(6), 645–651. doi:10.3109/02770903.2014.885042
  • Silva, N., Carona, C., Crespo, C., & Canavarro, M. C. (2015). Quality of life in pediatric asthma patients and their parents: A meta-analysis on 20 years of research. Expert Review Pharmacoeconomics & Outcomes Research, 15, 499–519. doi:10.1586/14737167.2015.1008459
  • Solans, M., Pane, S., Estrada, M. D., Serra-Sutton, V., Berra, S., Herdman, M., & Rajmil, L. (2008). Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease-specific instruments. Value in Health, 11(4), 742–764. doi:10.1111/j.1524-4733.2007.00293.x
  • Thissen, D., Varni, J. W., Stucky, B. D., Liu, Y., Irwin, D. E., & Dewalt, D. A. (2011). Using the PedsQL 3.0 asthma module to obtain scores comparable with those of the PROMIS pediatric asthma impact scale (PAIS). Quality of Life Research, 20(9), 1497–1505. doi:10.1007/s11136-011-9874-y.
  • Thompson, R. J., Gustafson, K. E., Hamlett, K. W., & Spock, A. (1992). Stress, coping, and family functioning in the psychological adjustment of mothers of children and adolescents with cystic fibrosis. Journal of Pediatric Psychology, 17(5), 573–585. doi:10.1093/jpepsy/17.5.573.
  • van den Bemt, L., Kooijman, S., Linssen, V., Lucassen, P., Muris, J., Slabbers, G., & Schermer, T. (2010). How does asthma influence the daily life of children? Results of focus group interviews. Health and Quality of Life Outcomes, 8: 5. doi:10.1186/1477-7525-8-5
  • Varni, J. W., Burwinkle, T. M., Rapoff, M. A., Kamps, J. L., & Olson, N. (2004). The PedsQL™in pediatric asthma: Reliability and validity of the Pediatric Quality of Life Inventory™ generic core scales and Asthma module. Journal of Behavioral Medicine, 27(3), 297–318. doi:10.1023/B:JOBM.0000028500.53608.2c
  • Wade, S. L., Holden, G., Lynn, H., Mitchell, H., & Ewart, C. (2000). Cognitive-behavioral predictors of asthma morbidity in inner-city children. Journal of Developmental & Behavioral Pediatrics, 21(5), 340–346. doi:10.1097/00004703-200010000-00004
  • Wiebe, S., Guyatt, G., Weaver, B., Matijevic, S., & Sidwell, C. (2003). Comparative responsiveness of generic and specific quality-of-life instruments. Journal of Clinical Epidemiology, 56(1), 52–60. doi:10.1016/S0895-4356(02)00537-1
  • Williams, J., & Williams, K. (2003). Asthma-specific quality of life questionnaires in children: Are they useful and feasible in routine clinical practice? Pediatric Pulmonology, 35(2), 114–118. doi:10.1002/ppul.10206
  • Wilson, S. R., Rand, C. S., Cabana, M. D., Foggs, M. B., Halterman, J. S., Olson, L., & Taggart, V. (2012). Asthma outcomes: Quality of life. Journal of Allergy and Clinical Immunology, 129(3 Suppl), S88–123. doi:10.1016/j.jaci.2011.12.988

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.