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Parents’ Experiences with Implementing Therapy Home Programs for Children with Down Syndrome: A Scoping Review

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Pages 85-98 | Received 30 Apr 2019, Accepted 26 Jan 2020, Published online: 05 Feb 2020

References

  • Akamoglu, Y., & Meadan, H. (2018). Parent-implemented language and communication interventions for children with developmental delays and disabilities: A scoping review. Review Journal of Autism and Developmental Disorders, 5(3), 294–309. doi:10.1007/s40489-018-0140-x
  • American Occupational Therapy Association (AOTA). (2014). Occupational therapy practice framework: Domain and process. American Journal of Occupational Therapy, 68(Suppl 1), S1–S48. doi:10.5014/ajot.2014.682006
  • American Occupational Therapy Association (AOTA). (2017). Vision 2025. American Journal of Occupational Therapy, 71, 7103420010. doi:10.5014/ajot.2017.713002
  • Arksey, H., & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. doi:10.1080/1364557032000119616
  • Aveyard, H. (2010). Doing a literature review in health and social care: A practical guide (2nd ed.). New York: McGraw-Hill.
  • Bruininks, R., & Bruininks, B. (2005). Bruininks– Oseretsky test of motor proficiency (2nd ed.). Minneapolis: Pearson Assessment.
  • Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. doi:10.1111/j.1365-2788.2010.01258.x
  • Evans-Rogers, D. L., Sweeney, J. K., Holden-Huchton, P., & Mullens, P. A. (2015). Short-term, intensive neurodevelopmental treatment program experiences of parents and their children with disabilities. Pediatric Physical Therapy, 27(1), 61–71. doi:10.1097/PEP.0000000000000110
  • Gorgon, E. (2018). Caregiver-provided physical therapy home programs for children with motor delay: A scoping review. Physical Therapy, 98(6), 480–493. doi:10.1093/ptj/pzy009
  • Harrison, C., Romer, T., Simon, M., & Schulze, C. (2007). Factors influencing mothers’ learning from paediatric therapists. Physical & Occupational Therapy in Pediatrics, 27(2), 77–96. doi:10.1080/J006v27n02_06
  • Law, M., Baptiste, S., Carswell, A., McColl, M. A., Polatajko, H., & Pollock, N. (2005). Canadian occupational performance measure (4th ed.). Toronto, ON: CAOT Publications.
  • Levac, D., Colquhoun, H., & O'Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5(1), 1–9. doi:10.1186/1748-5908-5-69
  • McConnell, D., Parakkal, M., Savage, A., & Rempel, G. (2015). Parent-mediated intervention: Adherence and adverse effects. Disability and Rehabilitation, 37(10), 864–872. doi:10.3109/09638288.2014.946157
  • McMahon, S. E. (2013). Enhancing motor development in infants and toddlers: A multidisciplinary process for creating parent education materials. Newborn and Infant Nursing Reviews, 13(1), 35–41. doi:10.1053/j.nainr.2012.12.001
  • Medina-Mirapeix, F., Lillo-Navarro, C., Montilla-Herrador, J., Gacto-Sanchez, M., Franco-Sierra, M.A., & Escolar-Reina, P. (2017). Predictors of parents' adherence to home exercise programs for children with developmental disabilities, regarding both exercise frequency and duration: a survey design. European Journal of Physical and Rehabilitation Medicine, 53(4), 545–555. doi:10.23736/s1973-9087.17.04464-1
  • National Down Syndrome Society. (2015). Down syndrome fact sheet. Retrieved from http://www.ndss.org/wp-content/uploads/2017/08/NDSS-Fact-Sheet-Language-Guide-2015-1.pdf
  • Novak, I. (2011). Parent experience of implementing effective home programs. Physical & Occupational Therapy in Pediatrics, 31(2), 198–213. doi:10.3109/01942638.2010.533746
  • Novak, I., & Berry, J. (2014). Home program intervention effectiveness evidence. Physical & Occupational Therapy in Pediatrics, 34(4), 384–389. doi:10.3109/01942638.2014.964020
  • Ozuah, P. (2016). First, there was pedagogy and then came andragogy. Einstein Journal of Biology and Medicine, 21(2), 83–87. doi:10.23861/EJBM20052190
  • Patton, S., & Hutton, E. (2016). Parent’s perspectives on a collaborative approach to the application of the handwriting without tears program with children with down syndrome. Australian Occupational Therapy Journal, 63(4), 266–276. doi:10.1111/1440-1630.1230
  • Phillips, B. A., Conners, F., & Curtner-Smith, M. (2017). Parenting children with down syndrome: An analysis of parenting styles, parenting dimensions, and parental stress. Research in Developmental Disabilities, 68, 9–19. doi:10.1016/j.ridd.2017.06.010
  • Sanz, M. T., & Menéndez, J. (2010). Parents’ training: Effects of the self-help skills programme with down’s syndrome babies. Early Child Development and Care, 180(6), 735–742. doi:10.1080/03004430802279918
  • Tétreault, S., Parrot, A., & Trahan, J. (2003). Home activity programs in families with children presenting with global developmental delays: Evaluation and parental perceptions. International Journal of Rehabilitation Research, 26(3), 165–173. doi:10.1097/01.mrr.00000088441.78481.56
  • Wuang, Y., Ho, G., & Su, C. (2013). Occupational therapy home program for children with intellectual disabilities: A randomized controlled trial. Research in Developmental Disabilities, 34(1), 528–537. doi:10.1016/j.ridd.2012.09.008
  • Yamkovenko, S. (2013). The role of OT with persons with down syndrome. Retrieved from https://www.aota.org/About-Occupational-Therapy/Professionals/CY/Articles/Down.asp.

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