1,415
Views
13
CrossRef citations to date
0
Altmetric
Note

The use of social media by adults with acquired conditions who use AAC: current gaps and considerations in research

Pages 23-31 | Received 25 Sep 2016, Accepted 18 Dec 2016, Published online: 20 Feb 2017

References

  • Ball, L., Beukelman, D.R., & Pattee, G. (2004). Communication effectiveness of individuals with amyotrophic lateral sclerosis. Journal of Communication Disorders, 37, 197–215. doi:10.1016/j.jcomdis.2003.09.002
  • Bartlett, G., Blais, R., Tamblyn, R., Clermont, R.J., & MacGibbon, B. (2008). Impact of patient communication problems on the risk of preventable adverse events in acute care settings. Canadian Medical Association Journal, 178, 1555–1562. doi:10.1503/cmaj.071388
  • Beukelman, D.R., Fager, S., Ball, L., & Dietz, A. (2007). AAC for adults with acquired neurological conditions: A review. Augmentative and Alternative Communication, 23, 230–242. doi:10.1080/07434610701553668
  • Bloch, S., & Wilkinson, R. (2013). Multiple troubles and repair in voice output communication aid-mediated interaction. In N. Noren, C. Samuelsson, & C. Plejart (Eds.), Aided communication in everyday interaction (pp. 95–126). Guildford, Surrey: J & R Press Limited.
  • Brunner, M. (2016). Twitter Mind Study 1 and Study 2: Twitter use by people with communication disabilities after traumatic brain injury (TBI) [Web log post]. Retrieved from https://melissabrunner.wordpress.com/
  • Brunner, M., Hemsley, B., Palmer, S., Dann, S., & Togher, L. (2015). Review of the literature on the use of social media by people with traumatic brain injury (TBI). Disability and Rehabilitation, 37, 1511–1521. doi:10.3109/09638288 (2015). 1045992
  • Buhr, H.R., Hoepner, J.K., Miller, H., & Johnson, C. (2016). AphasiaWeb: Development and evaluation of an aphasia-friendly social networking application. Aphasiology. Advance online publication. doi:10.1080/02687038.2016.1232361
  • Burdea, G.C., Polistico, K., House, G.P., Liu, R.R., Muniz, R., Macaro, N.A., & Slater, L.M. (2015). Novel integrative virtual rehabilitation reduces symptomatology of primary progressive aphasia: A case report. International Journal of Neuroscience, 125, 949–958. doi:10.3109/00207454 (2014). 993392
  • Caron, J., & Light, J. (2015). "My world has expanded even though I’m stuck at home": Experiences of individuals with amyotrophic lateral sclerosis who use augmentative and alternative communication and social media. American Journal of Speech-Language Pathology, 24, 680–695. doi:10.1044/2015_AJSLP-15-0010
  • Caron, J., & Light, J. (2016). "Social media has opened a world of ‘Open communication:’" Experiences of adults with cerebral palsy who use augmentative and alternative communication and social media. Augmentative and Alternative Communication, 32, 25–40. doi:10.3109/07434618 (2015). 1052887
  • Cohen, K., & Light, J. (2009). Use of electronic communication to develop mentor-protégé relationships between adolescent and adults AAC users: Pilot study. Augmentative and Alternative Communication, 16, 227–238. doi:10.1080/07434610012331279084
  • Department of Health (2012). Long term conditions compendium of information: Third edition. London: Author. Retrieved from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/216528/dh_134486.pdf
  • Fineburg, N.A., Haddad, P.M., Carpenter, L., Gannon, B., Sharpe, R., Young, A.H., …Sahakian, B.J. (2013). The size, burden and cost of disorders of the brain in the UK. Journal of Psychopharmacology, 9, 761–770. doi:10.1177/0269881113495118
  • Foley, A., & Ferri, B.A. (2012). Technology for people, not disabilities: Ensuring access and inclusion. Journal of Research in Special Educational Needs, 12, 192–200. doi:10.1111/j.1471-3802.2011.01230.x
  • Fotiadou, D., Northcott, S., Chatzidaki, A., & Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships? Aphasiology, 28, 1281–1300. doi:10.1080/02687038.2014.928664
  • Frost, J.H., & Massagli, M.P. (2008). Social uses of personal health information within patients like me, an online patient community: What can happen when patients have access to one another’s data. Journal of Medical Internet Research, 10, 1–9. doi:10.2196/jmir.1053
  • Grieve, R., Indian, M., Witteveen, K., Tolan, A.G., & Marrington, J. (2013). Face-to-face or Facebook: Can social connectedness be derived online? Computers in Human Behaviour, 29, 604–609.doi: https://doi.org/10.1016/j.chb.2012.11.017
  • Hemsley, B., Dann, S., Palmer, S., Allan, M., & Balandin, S. (2015). "We definitely need an audience": Experiences of Twitter, Twitter networks and tweet content in adults with severe communication disabilities who use augmentative and alternative communication (AAC). Disability and Rehabilitation, 37, 1531–1542. doi:10.3109/09638288.2015.1045990
  • Hemsley, B., & Murray, J. (2015). [Editorial] Distance and proximity: Research on social media connections in the field of communication disability. Disability and Rehabilitation, 37, 1509–1510. doi:10.3109/09638288.2015.1057031
  • Hemsley, B., & Palmer, S. (2016). Two studies on Twitter Networks and Tweet content in relation to Amyotrophic Lateral Sclerosis (ALS): Conversation, information, and ‘Diary of a daily life’. In Digital Health Innovation for Consumers, Clinicians, Connectivity and Community: Selected papers from the 24th Australian National Health Informatics Conference (HIC 2016) 227, 41–47. doi:10.3233/978-1-61499-666-8-41
  • Hemsley, B., Werninck, M., & Worrall, L. (2013). "That really shouldn’t have happened": People with aphasia and their spouses narrate adverse events in hospital. Aphasiology, 27, 706–722. doi:10.1080/02687038.2012.748181
  • Higginbotham, J., Fulcher, K., & Seale, J. (2016). Time and timing in interactions involving individuals with ALS, their unimpaired partners and their speech generating devices. In M.M. Smith & J. Murray (Eds.), The silent partner? Language, interaction and aided communication (pp. 199–227) Guildford, Surrey: J & R Press Limited.
  • Hynan, J., Murray, J., & Goldbart, J. (2014). "Happy and excited": Perceptions of using digital technology and social media by young people who use augmentative and alternative communication. Child Language Teaching and Therapy, 30, 175–186. doi:10.1177/0265659013519258
  • Light, J. (1997). "Communication is the essence of human life": Reflections on communicative competence. Augmentative and Alternative Communication, 13, 61–70.doi: https://doi.org/10.1080/07434619712331277848
  • Marshall, J., Booth, T., Devane, N., Galiers, J., Greenwood, H., Hilari, K., …Woolf, C. (2016). Evaluating the benefits of aphasia intervention delivered in virtual reality: Results of a quasi-randomized study. PLoS ONE, 11, 1–18. doi:10.1371/journal.pone.0160381
  • McKelvey, M., Evans, D.M., Kawai, N., & Beukelman, D. (2012). Communication styles of persons with ALS as recounted by surviving partners. Augmentative and Alternative Communication, 28, 232–242. doi:10.3109/07434618.2012.737023
  • McNaughton, D., & Light, J. (2015). What we write about when we write about AAC: The past 30 years of research and future directions. Augmentative and Alternative Communication, 31, 261–270. doi:10.3109/07434618.2015.1099736
  • McNaughton, D., Light, J.L., & Groszyk, L. (2001). "Don’t give up": employment experiences of individuals with amyotrophic lateral sclerosis who use augmentative and alternative communication. Augmentative and Alternative Communication, 17, 179–194. doi:10.1080/aac.17.3.179.195
  • Meder, A., & Wegner, J. (2015). iPads, mobile technologies, and communication applications: A survey of family wants, needs and preferences. Augmentative and Alternative Communication, 31, 27–36. doi:10.3109/07434618.2014.995223
  • Mendez, M.F., Joshi, A., & Jimenez, E. (2015). Virtual reality for the assessment of frontotemporal dementia, a feasibility study. Disability and Rehabilitation: Assistive Technology, 10, 160–164.doi: https://doi.org/10.3109/17483107.2014.889230
  • National Institute for Clinical Excellence (2016). Motor neurone disease: Assessment and management. London: Author. Retrieved from https://www.nice.org.uk/guidance/ng42?unlid=94254730020168117325
  • Neurological Alliance (2003). Neuro numbers: A brief review of the numbers of people in the UK with a neurological condition. London: Author. Retrieved from http://www.neural.org.uk/store/assets/files/20/original/NeuroNumbers.pdf
  • NHS Employers (2016). A social media toolkit for the NHS. London: Author. Retrieved from http://www.nhsemployers.org//media/Employers/Publications/Social%20Media%20Toolkit.pdf
  • Niemeijer, D., Donnellan, A., & Robledo, J. (2012). Taking the pulse of augmentative and alternative communication on iOS. Amsterdam: Assistiveware. Retrieved from http://www.assistiveware.com/taking-pulse-augmentative-and-alternative-communication-ios
  • Office for National Statistics (2016). Internet users in the UK: 2016. London: Author. Retrieved from https://www.ons.gov.uk/businessindustryandtrade/itandinternetindustry/bulletins/internetusers/2016
  • Ofcom (2016). Adults’ media use and attitudes: Report 2016. London: Ofcom. Retrieved from http://stakeholders.ofcom.org.uk/binaries/research/media-literacy/adults-literacy-2016/2016-Adults-media-use-and-attitudes.pdf
  • Oxford Dictionaries (2016). Definition of social media in English. Retrieved from http://www.oxforddictionaries.com/definition/english/social-media
  • Paterson, H., & Carpenter, C. (2015). Using different methods to communicate: how adults with severe acquired communication difficulties make decisions about the communication methods they use and how they experience them. Disability and Rehabilitation: Special Issue: Social Media and Communication, 37, 1522–1530. doi:10.3109/09638288.2015.1052575
  • Phillips, W., Shannon, K.M., & Barker, R.A. (2008). The current clinical management of Huntington’s disease. Movement Disorders, 23, 1491–1504. doi:10.1002/mds.21971
  • Raghavendra, P., Newman, L., Grace, E., & Wood, D. (2013). “I could never do that before”: Effectiveness of a tailored Internet support intervention to increase the social participation of youth with disabilities. Child Care Health and Development, 39, 552–561. doi:10.1111/cch.12048
  • Raghavendra, P., Newman, L., Grace, E., & Wood, D. (2015). Enhancing social participation in young people with communication disabilities living in rural Australia: Outcomes of a home-based intervention using social media. Disability and Rehabilitation, 37, 1576–1590. doi:10.3109/09638288.2015.1052578
  • Rains, S.A., & Brunner, S.R. (2015). What can we learn about social network sites by studying Facebook? A call for research on social network sites. New Media and Society, 17, 114–131. doi:10.1177/1461444814546481
  • Rehabilitation Engineering Research Center on Communication Enhancement (2011). Mobile devices and communication apps: An AAC-RERC white paper. Retrieved from http://aac-rerc.psu.edu/index.php/pages/show/id/46
  • Rose McGrory (2016). UK social media statistics for 2016. Retrieved from http://www.rosemcgrory.co.uk/2016/01/04/social-media-statistics-2016/
  • Royal College of General Practitioners (2013). The 2022 GP: A vision for general practice in the future NHS. London: Author.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.