Implementation of the C-BiLLT, an accessible instrument to assess language comprehension in children with limited motor and speech function: an international clinician survey

References

• Andersen, G. L., Mjøen, T., & Vik, T. (2010). Prevalence of speech problems and the use of augmentative and alternative communication in children with cerebral palsy: A registry-based study in Norway. Perspectives on Augmentative and Alternative Communication, 19(1), 1–28. doi:10.1044/aac19.1.12
   Google Scholar
• Barker, R. M., Akaba, S., Brady, N. C., & Thiemann-Bourque, K. (2013). Support for AAC use in preschool, and growth in language skills, for young children with developmental disabilities. Augmentative and Alternative Communication, 29(4), 334–346. doi:10.3109/07434618.2013.848933
   PubMed Web of Science ®Google Scholar
• Bates, R., Istance, J., Oosthuizen, L., Majaranta, P. (2005). Survey of de-facto standards in eye tracking. Retrieved June 6, 2022, from http://wiki.cogain.org/images/1/1b/COGAIN-D2.1.pdf
   Google Scholar
• Branson, D., & Demchak, M. (2009). The use of augmentative and alternative communication methods with infants and toddlers with disabilities: A research review. Augmentative and Alternative Communication, 25(4), 274–286. doi:10.3109/07434610903384529
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• Campbell, W. N., & Douglas, N. F. (2017). Supporting evidence-based practice in speech-language pathology: A review of implementation strategies for promoting health professional behavior change. Evidence-Based Communication Assessment and Intervention, 11(3–4), 72–81. doi:10.1080/17489539.2017.1370215
   Google Scholar
• Clarke, M., Newton, C., Griffiths, T., Price, K., Lysley, A., & Petrides, K. V. (2011). Factors associated with the participation of children with complex communication needs. Research in Developmental Disabilities, 32(2), 774–780. doi:10.1016/J.RIDD.2010.11.002
   PubMed Web of Science ®Google Scholar
• Clarke, M., Newton, C., Petrides, K., Griffiths, T., Lysley, A., & Price, K. (2012). An examination of relations between participation, communication and age in children with complex communication needs. Augmentative and Alternative Communication, 28(1), 44–51. doi:10.3109/07434618.2011.653605
   PubMed Web of Science ®Google Scholar
• Colquhoun, H. L., Lamontagne, M. E., Duncan, E. A. S., Fiander, M., Champagne, C., & Grimshaw, J. M. (2017). A systematic review of interventions to increase the use of standardized outcome measures by rehabilitation professionals. Clinical Rehabilitation, 31(3), 299–309. doi:10.1177/0269215516644309
   PubMed Web of Science ®Google Scholar
• de Veer, A. J. E., Fleuren, M. A. H., Bekkema, N., & Francke, A. L. (2011). Successful implementation of new technologies in nursing care: A questionnaire survey of nurse-users. BMC Medical Informatics and Decision Making, 11(1), 67. doi:10.1186/1472-6947-11-67
   PubMedGoogle Scholar
• de Vet, H. C., Terwee, C. B., Mokkink, L. B., & Knol, D. L. (2011). Measurement in medicine: A practical guide. Cambridge University Press.
   Google Scholar
• Drager, K., Light, J., & McNaughton, D. (2010). Effects of AAC interventions on communication and language in young children with complex communication needs. Journal of Pediatric Rehabilitation Medicine, 3(4), 303–310. doi:10.3233/PRM-2010-0141
   PubMedGoogle Scholar
• Duncan, E. A., & Murray, J. (2012). The barriers and facilitators to routine outcome measurement by allied health professionals in practice: A systematic review. BMC Health Services Research, 12, 96–105. doi:10.1186/1472-6963-12-96
   PubMed Web of Science ®Google Scholar
• Engell, T., Follestad, I. B., Andersen, A., & Hagen, K. A. (2018). Knowledge translation in child welfare – improving educational outcomes for children at risk: Study protocol for a hybrid randomized controlled pragmatic trial. Trials, 19(1), 4. doi:10.1186/s13063-018-3079-4
   PubMedGoogle Scholar
• Fiske, S. I., Haddeland, A. L., Skipar, I., Bootsma, J. N., Geytenbeek, J. J., & Stadskleiv, K. (2020). Assessing language comprehension in motor impaired children needing AAC: Validity and reliability of the Norwegian version of the receptive language test C-BiLLT. Augmentative and Alternative Communication, 36(2), 95–106. doi:10.1080/07434618.2020.1786857
   PubMed Web of Science ®Google Scholar
• Geytenbeek, J. J. M., Harlaar, L., Stam, M., Ket, H., Becher, J., Oostrom, K., & Vermeulen, R. J. (2010). Utility of language comprehension tests for unintelligible or non-speaking children with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 52(12), e267–e277. doi:10.1111/j.1469-8749.2010.03807.x
   PubMedGoogle Scholar
• Geytenbeek, J. J. M., Mokkink, L. B., Knol, D. L., Vermeulen, R. J., & Oostrom, K. J. (2014). Reliability and validity of the C-BiLLT: A new instrument to assess comprehension of spoken language in young children with cerebral palsy and complex communication needs. Augmentative and Alternative Communication, 30(3), 252–266. doi:10.3109/07434618.2014.924992
   PubMed Web of Science ®Google Scholar
• Geytenbeek, J. J. M., Vermeulen, R. J., Becher, J. G., & Oostrom, K. J. (2015). Comprehension of spoken language in non-speaking children with severe cerebral palsy: An explorative study on associations with motor type and disabilities. Developmental Medicine and Child Neurology, 57(3), 294–300. doi:10.1111/dmcn.12619
   PubMed Web of Science ®Google Scholar
• Graham, I., Logan, J., Harrison, M., Strauss, S., Tetroe, J., Caswell, W., & Robinson, N. (2006). Lost in knowledge translation: Time for a map? The Journal of Continuing Education in the Health Professions, 26(1), 47. doi:10.1002/chp.47
   Web of Science ®Google Scholar
• Hanna, S. E., Russell, D. J., Bartlett, D. J., Kertoy, M. L., Rosenbaum, P. L., & Wynn, K. (2007). Measurement practices in pediatric rehabilitation: A survey of physical therapists, occupational therapists, and speech-language pathologists in Ontario. Physical & Occupational Therapy in Pedatrics, 27(2), 25–42. doi:10.1300/J006v27n02_03
   PubMedGoogle Scholar
• Harris, P. A., Taylor, R., Minor, B. L., Elliott, V., Fernandez, M., O'Neal, L., McLeod, L., Delacqua, G., Delacqua, F., Kirby, J., & Duda, S. N. (2019). The REDCap consortium: Building an international community of software platform partners. Journal of Biomedical Informatics, 95, 103208. doi:10.1016/j.jbi.2019.103208
   PubMed Web of Science ®Google Scholar
• Hidecker, M. J. C., Paneth, N., Rosenbaum, P. L., Kent, R. D., Lillie, J., Eulenberg, J. B., Chester, K., Johnson, B., Michalsen, L., Evatt, M., & Taylor, K. (2011). Developing and validating the Communication Function Classification System for individuals with cerebral palsy. Developmental Medicine and Child Neurology, 53(8), 704–710. doi:10.1111/j.1469-8749.2011.03996.x
   PubMed Web of Science ®Google Scholar
• Higginbotham, D. J., Shane, H., Russell, S., & Caves, K. (2007). Access to AAC: Present, past, and future. Augmentative and Alternative Communication, 23(3), 243–257. doi:10.1080/07434610701571058
   PubMed Web of Science ®Google Scholar
• Hustad, K. C., Allison, K., McFadd, E., & Riehle, K. (2014). Speech and language development in 2-year-old children with cerebral palsy. Developmental Neurorehabilitation, 17(3), 167–175. doi:10.3109/17518423.2012.747009
   PubMed Web of Science ®Google Scholar
• Jacob, R. K. (1991). The use of eye movements in human-computer interaction techniques. ACM Transactions of Information Systems, 9, 152–169. doi:10.1145/123078.128728
   Web of Science ®Google Scholar
• Kothari, A., & Wathen, C. N. (2017). Integrated knowledge translation: Digging deeper, moving forward. Journal of Epidemiology and Community Health, 71(6), 619–623. doi:10.1136/JECH-2016-208490
   PubMed Web of Science ®Google Scholar
• Lancioni, G. E., O’Reilly, M. F., Oliva, D., Severini, L., Singh, N. N., Sigafoos, J., & Groeneweg, J. (2007). Eye-and mouth-opening movements replacing head and hand responses in a microswitch program for an adolescent with deteriorating motor condition. Perceptual and Motor Skills, 105(1), 107–114. doi:10.2466/pms.105.1.107-114
   PubMed Web of Science ®Google Scholar
• Machalicek, W., Sanford, A., Lang, R., Rispoli, M., Molfenter, N., & Mbeseha, M. K. (2010). Literacy interventions for students with physical and developmental disabilities who use aided AAC devices: A systematic review. Journal of Developmental and Physical Disabilities, 22(3), 219–240. doi:10.1007/s10882-009-9175-3
   Web of Science ®Google Scholar
• McHugh, M. L. (2012). Interrater reliability: The kappa statistic. Biochemia Medica, 22(3), 276–282. doi:10.11613/bm.2012.031
   PubMed Web of Science ®Google Scholar
• Mei, C., Reilly, S., Reddihough, D., Mensah, F., Pennington, L., & Morgan, A. (2016). Language outcomes of children with cerebral palsy aged 5 years and 6 years: A population-based study. Developmental Medicine and Child Neurology, 58(6), 605–611. doi:10.1111/dmcn.12957
   PubMed Web of Science ®Google Scholar
• Nederlandse Vereniging van Revalidatieartsen. (2015, April 01). Richtlijn Spastische Cerebrale parese bij kinderen. https://richtlijnendatabase.nl/richtlijn/spastische_cerebrale_parese_bij_kinderen/spastische_cerebrale_parese_-_startpagina.html
   Google Scholar
• Noyek, S., Vowles, C., Batorowicz, B., Davies, C., & Fayed, N. (2020). Direct assessment of emotional well-being from children with severe motor and communication impairment: A systematic review. Disability and Rehabilitation, 2020, 1–14. doi:10.1080/17483107.2020.1810334
   Google Scholar
• O’Connor, B., Kerr, C., Shields, N., & Imms, C. (2016). A systematic review of evidence-based assessment practices by allied health practitioners for children with cerebral palsy. Developmental Medicine and Child Neurology, 58(4), 332–347. doi:10.1111/dmcn.12973
   PubMed Web of Science ®Google Scholar
• Olswang, L. B., & Prelock, P. A. (2015). Bridging the gap between research and practice: Implementation science. Journal of Speech Language and Hearing Research, 58(6), 1818–1826. doi:10.1044/2015
   PubMed Web of Science ®Google Scholar
• Orlandi, S., House, S. C., Karlsson, P., Saab, R., & Chau, T. (2021). Brain-computer interfaces for children with complex communication needs and limited mobility: A systematic review. Frontiers in Human Neuroscience, 15, 643294. doi:10.3389/fnhum.2021.643294
   PubMed Web of Science ®Google Scholar
• Oskoui, M., Coutinho, F., Dykeman, J., Jetté, N., & Pringsheim, T. (2013). An update on the prevalence of cerebral palsy: A systematic review and meta-analysis. Developmental Medicine and Child Neurology, 55(6), 509–519. doi:10.1111/dmcn.12080
   PubMed Web of Science ®Google Scholar
• Paley, J. (2007). Distributed cognition and the education reflex. In E. Drummond & P. Standish (Eds.), The philosophy of nurse education (pp. 129–142). Mcmillan Education UK.
   Google Scholar
• Palisano, R. J., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine and Child Neurology, 39(4), 214–223. doi:10.1111/j.1469-8749.1997.tb07414.x
   PubMed Web of Science ®Google Scholar
• Pennington, L., Goldbart, J., & Marshall, J. (2004). Speech and language therapy to improve the communication skills of children with cerebral palsy. Cochrane Database of Systematic Reviews, 2, CD003466 doi:10.1002/14651858.CD003466.pub2
   Google Scholar
• Philip, S. S., & Dutton, G. N. (2014). Identifying and characterising cerebral visual impairment in children: A review. Clinical & Experimental Optometry, 97(3), 196–208. doi:10.1111/CXO.12155
   PubMed Web of Science ®Google Scholar
• Pirila, S., van der Meere, J., Pentikainen, T., Ruusu-Niemi, P., Korpela, R., Kilpinen, J., & Nieminen, P. (2007). Language and motor speech skills in children with cerebral palsy. Journal of Communication Disorders, 40(2), 116–128. doi:10.1016/j.jcomdis.2006.06.002
   PubMed Web of Science ®Google Scholar
• Proctor, E., Silmere, H., Raghavan, R., Hovmand, P., Aarons, G., Bunger, A., Griffey, R., & Hensley, M. (2011). Outcomes for implementation research: Conceptual distinctions, measurement challenges, and research agenda. Administration and Policy in Mental Health, 38(2), 65–76. doi:10.1007/s10488-010-0319-7
   PubMed Web of Science ®Google Scholar
• Raghavendra, P., Olsson, C., Sampson, J., Mcinerney, R., & Connell, T. (2012). School participation and social networks of children with complex communication needs, physical disabilities, and typically developing peers. Augmentative and Alternative Communication, 28(1), 33–43. doi:10.3109/07434618.2011.653604
   PubMed Web of Science ®Google Scholar
• Romski, M., Sevcik, R. A., Barton-Hulsey, A., & Whitmore, A. S. (2015). Early intervention and AAC: What a difference 30 years makes. Augmentative and Alternative Communication, 31(3), 181–202. doi:10.3109/07434618.2015.1064163
   PubMed Web of Science ®Google Scholar
• Rosenbaum, P., Paneth, N., Leviton, A., Goldstein, M., Bax, M., Damiano, D., Dan, B., & Jacobsson, B. (2007). A report: The definition and classification of cerebral palsy April 2006. Developmental Medicine and Child Neurology. Supplement, 109(suppl 109), 8–14. doi: 10.1111/j.1469-8749.2007.tb12610.x
   PubMedGoogle Scholar
• Schenk-Rootlieb, A. J., Van Nieuwenhuizen, O., Van Waes, P. F., & Van der Graaf, Y. (1994). Cerebral visual impairment in Cerebral Palsy: Relation to structural abnormalities of the cerebrum. Neuropediatrics, 25(2), 68–72. doi:10.1055/s-2008-1071588
   PubMed Web of Science ®Google Scholar
• Sennott, S. C., Light, J. C., & Mcnaughton, D. (2016). AAC modeling intervention research review. Research and Practice for Persons with Severe Disabilities, 41(2), 101–115. doi:10.1177/1540796916638822
   Web of Science ®Google Scholar
• Sigurdardottir, S., & Vik, T. (2011). Speech, expressive language, and verbal cognition of preschool children with cerebral palsy in Iceland. Developmental Medicine and Child Neurology, 53(1), 74–80. doi:10.1111/j.1469-8749.2010.03790.x
   PubMed Web of Science ®Google Scholar
• Simon, J. D. H. P., Dalington, A. S., & Grootenhuis, M. A. (n.d.). Dutch translation of the acceptability of intervention measure (AIM), intervention appropriateness measure (IAM), and feasibility of intervention measure (FIM).
   Google Scholar
• Smits, D. W., Ketelaar, M., Gorter, J. W., Van Schie, P. E., Becher, J. G., Lindeman, E., & Jongmans, M. J. (2011). Development of non-verbal intellectual capacity in school-age children with cerebral palsy. Journal of Intellectual Disability Research, 55(6), 550–562. doi:10.1111/j.1365-2788.2011.01409.x
   PubMed Web of Science ®Google Scholar
• Solomon-Rice, P. L., & Soto, G. (2014). Facilitating vocabulary in toddlers using AAC: A preliminary study comparing focused stimulation and augmented Input. Communication Disorders Quarterly, 35(4), 204–215. doi:10.1177/1525740114522856
   Web of Science ®Google Scholar
• Stadskleiv, K. (2020). Cognitive functioning in children with cerebral palsy. Developmental Medicine and Child Neurology, 62(3), 283–289. doi:10.1111/dmcn.14463
   PubMed Web of Science ®Google Scholar
• Stadskleiv, K., Jahnsen, R., Andersen, G. L., & von Tetzchner, S. (2018). Neuropsychological profiles of children with cerebral palsy. Developmental Neurorehabilitation, 21(2), 108–120. doi:10.1080/17518423.2017.1282054
   PubMed Web of Science ®Google Scholar
• Straus, S., Tetroe, J. & Graham, I. D. (Eds.). (2013). Knowledge translation in health care: Moving from evidence to practice (2nd ed.). John Wiley & Sons.
   Google Scholar
• Tai, K., Blain, S., Chau, T. (2008). A Review of Emerging Access Technologies for Individuals With Severe Motor Impairments. Assistive Technology, 20(4), 204–221. doi: 10.1080/10400435.2008.10131947
   PubMed Web of Science ®Google Scholar
• Vaillant, E., Geytenbeek, J. J. M., Jansma, E. P., Oostrom, K. J., Vermeulen, R. J., & Buizer, A. I. (2020). Factors associated with spoken language comprehension in children with cerebral palsy: A systematic review. Developmental Medicine and Child Neurology, 62(12), 1363–1373. doi:10.1111/DMCN.14651
   PubMed Web of Science ®Google Scholar
• von Tetzchner, S., & Stadskleiv, K. (2016). Constructing a language in alternative forms. In M. M. Smith & J. Murray (Eds.), The silent partner? Language, interaction and aided communication (pp. 17–34). J&R Press Limited.
   Google Scholar
• Voorman, J. M., Dallmeijer, A. J., Van Eck, M., Schuengel, C., & Becher, J. G. (2010). Social functioning and communication in children with cerebral palsy: Association with disease characteristics and personal and environmental factors. Developmental Medicine and Child Neurology, 52(5), 441–447. doi:10.1111/j.1469-8749.2009.03399.x
   PubMed Web of Science ®Google Scholar
• Vos, R. C., Dallmeijer, A., Verhoef, M., Van Schie, P., Voorman, J. M., Wiegerink, D. J. H., Geytenbeek, J. J. M., Roebroeck, M., & Becher, J. G. (2014). Developmental trajectories of receptive and expressive communication in children and young adults with cerebral palsy. Developmental Medicine and Child Neurology, 56(10), 951–959. doi:10.1111/dmcn.12473
   PubMed Web of Science ®Google Scholar
• Weiner, B. J., Lewis, C. C., Stanick, C., Powell, B. J., Dorsey, C. N., Clary, A. S., Boynton, M. H., & Halko, H. (2017). Psychometric assessment of three newly developed implementation science outcome measures. Implementation Science, 12(1), 1–12. doi:10.1186/s13012-017-0635-3
   PubMedGoogle Scholar
• Zhang, J., Jadavji, Z., Zewdie, E., & Kirton, A. (2019). Evaluating if children can use simple brain computer interfaces. Frontiers in Human Neuroscience, 13, 24. doi:10.3389/fnhum.2019.00024.
   PubMed Web of Science ®Google Scholar