Rethinking device abandonment: a capability approach focused model

References

• Achmadi, D., Sigafoos, J., van der Meer, L., Sutherland, D., Lancioni, G. E., O’Reilly, M. F., Hodis, F., Green, V. A., McLay, L., & Marschik, P. B. (2014). Acquisition, preference, and follow-up data on the use of three AAC options by four boys with developmental disability/delay. Journal of Developmental and Physical Disabilities, 26(5), 565–583. https://doi.org/10.1007/s10882-014-9379-z
   Web of Science ®Google Scholar
• Anderson, K., Balandin, S., & Stancliffe, R. (2014). Australian parents’ experiences of speech generating device (SGD) service delivery. Developmental Neurorehabilitation, 17(2), 75–83. https://doi.org/10.3109/17518423.2013.857735
   PubMed Web of Science ®Google Scholar
• Baxter, S., Enderby, P., Evans, P., & Judge, S. (2012). Barriers and facilitators to the use of high-technology augmentative and alternative communication devices: A systematic review and qualitative synthesis. International Journal of Language & Communication Disorders, 47(2), 115–129. https://doi.org/10.1111/j.1460-6984.2011.00090.x
   PubMed Web of Science ®Google Scholar
• Beukelman, D. R., & Mirenda, P. (2013). Augmentative and alternative communication: Supporting children and adults with complex communication needs (4th ed.). Paul H. Brookes Pub.
   Google Scholar
• Bickenbach, J. (2014). Reconciling the capability approach and the ICF. Alter, 8(1), 10–23. https://doi.org/10.1016/j.alter.2013.08.003
   Google Scholar
• Binger, C., Ball, L., Dietz, A., Kent-Walsh, J., Lasker, J., Lund, S., McKelvey, M., & Quach, W. (2012). Personnel roles in the AAC assessment process. Augmentative and Alternative Communication, 28(4), 278–288. https://doi.org/10.3109/07434618.2012.716079
   PubMed Web of Science ®Google Scholar
• Bornman, J., & Murphy, J. (2006). Using the ICF in goal setting: Clinical application using talking mats. Disability and Rehabilitation Assistive Technology, 1(3), 145–154. https://doi.org/10.1080/17483100612331392745
   PubMedGoogle Scholar
• Calculator, S. N. (2013). Use and acceptance of AAC systems by children with Angelman syndrome. Journal of Applied Research in Intellectual Disabilities: JARID, 26(6), 557–567. https://doi.org/10.1111/jar.12048
   PubMed Web of Science ®Google Scholar
• Calculator, S. N., & Black, T. (2009). Validation of an inventory of best practices in the provision of augmentative and alternative communication services to students with severe disabilities in general education classrooms. American Journal of Speech-Language Pathology, 18(4), 329–342. https://doi.org/10.1044/1058-0360(2009/08-0065)
   PubMed Web of Science ®Google Scholar
• Caron, J. G. (2015). We Bought an iPad”: Considering family priorities, needs, and preferences as an aac support provider. Perspectives on Augmentative and Alternative Communication, 24(1), 5–11. https://doi.org/10.1044/aac24.1.5
   Google Scholar
• Couper, L., van der Meer, L., Schafer, M. C., McKenzie, E., McLay, L., O'Reilly, M. F., Lancioni, G. E., Marschik, P. B., Sigafoos, J., & Sutherland, D. (2014). Comparing acquisition of and preference for manual signs, picture exchange, and speech-generating devices in nine children with autism spectrum disorder. Developmental Neurorehabilitation, 17(2), 99–109. https://doi.org/10.3109/17518423.2013.870244
   PubMed Web of Science ®Google Scholar
• Doak, L. (2021). Rethinking family (dis)engagement with augmentative & alternative communication. Journal of Research in Special Educational Needs, 21(3), 198–210. https://doi.org/10.1111/1471-3802.12510
   Web of Science ®Google Scholar
• Donaldson, A. L., Corbin, e., & McCoy, J. (2021). Everyone Deserves AAC”: Preliminary study of the experiences of speaking autistic adults who use augmentative and alternative communication. Perspectives of the ASHA Special Interest Groups, 6(2), 315–326. https://doi.org/10.1044/2021_PERSP-20-00220
   Google Scholar
• Goldbart, J., & Marshall, J. (2004). Pushes and pulls" on the parents of children who use AAC. Augmentative and Alternative Communication, 20(4), 194–208. https://doi.org/10.1080/07434610400010960
   Google Scholar
• Huer, M. B., & Threats, T. T. (2016). Shared responsibilities for full participation in society: Planning further integration of the ICF into AAC. Perspectives of the ASHA Special Interest Groups, 1(12), 83–93. https://doi.org/10.1044/persp1.SIG12.83
   Google Scholar
• Johnson, J. M., Inglebret, E., Jones, C., & Ray, J. (2006). Perspectives of speech language pathologists regarding success versus abandonment of AAC. Augmentative and Alternative Communication (Baltimore, Md. : 1985), 22(2), 85–99. https://doi.org/10.1080/07434610500483588
   PubMed Web of Science ®Google Scholar
• Johnston, S. S., Blue, C., Gevarter, C., Ivy, S., & Stegenga, S. (2020). Opportunity barriers and promising practices for supporting individuals with complex communication needs. Current Developmental Disorders Reports, 7(3), 100–108. https://doi.org/10.1007/s40474-020-00195-w
   Google Scholar
• Judge, S., & Townend, G. (2013). Perceptions of the design of voice output communication aids. International Journal of Language & Communication Disorders, 48(4), 366–381. https://doi.org/10.1111/1460-6984.12012
   PubMed Web of Science ®Google Scholar
• Kagohara, D. M., van der Meer, L., Ramdoss, S., O'Reilly, M. F., Lancioni, G. E., Davis, T. N., Rispoli, M., Lang, R., Marschik, P. B., Sutherland, D., Green, V. A., & Sigafoos, J. (2013). Using iPods® and iPads® in teaching programs for individuals with developmental disabilities: A systematic review. Research in Developmental Disabilities, 34(1), 147–156. https://doi.org/10.1016/j.ridd.2012.07.027
   PubMed Web of Science ®Google Scholar
• Kent-Walsh, J., & Binger, C. (2018). Methodological advances, opportunities, and challenges in AAC research. Augmentative and Alternative Communication, 34(2), 93–103. https://doi.org/10.1080/07434618.2018.1456560
   PubMed Web of Science ®Google Scholar
• Lund, S. K., Quach, W., Weissling, K., McKelvey, M., & Dietz, A. (2017). Assessment with children who need augmentative and alternative communication (AAC): Clinical decisions of AAC specialists. Language, Speech, and Hearing Services in Schools, 48(1), 56–68. https://doi.org/10.1044/2016_LSHSS-15-0086
   PubMed Web of Science ®Google Scholar
• Lund, S. K., Weissling, K., Quach, W., & McKelvey, M. (2021). Finding a voice for individuals with ASD who are minimally verbal through comprehensive communication assessment. Perspectives of the ASHA Special Interest Groups, 6(2), 306–314. https://doi.org/10.1044/2021_PERSP-20-00227
   Google Scholar
• Lynch, Y., Murray, J., Moulam, L., Meredith, S., Goldbart, J., Smith, M., Batorowicz, B., Randall, N., & Judge, S. (2019). Decision-making in communication aid recommendations in the UK: Cultural and contextual influencers. Augmentative and Alternative Communication, 35(3), 180–192. https://doi.org/10.1080/07434618.2019.1599066
   PubMed Web of Science ®Google Scholar
• Mandak, K., O'Neill, T., Light, J., & Fosco, G. M. (2017). Bridging the gap from values to actions: A family systems framework for family-centered AAC services. Augmentative and Alternative Communication, 33(1), 32–41. https://doi.org/10.1080/07434618.2016.1271453
   PubMed Web of Science ®Google Scholar
• McNaughton, D., Light, J., Beukelman, D. R., Klein, C., Nieder, D., & Nazareth, G. (2019). Building capacity in AAC: A person-centred approach to supporting participation by people with complex communication needs. Augmentative and Alternative Communication, 35(1), 56–68. https://doi.org/10.1080/07434618.2018.1556731
   PubMed Web of Science ®Google Scholar
• McNaughton, D., Rackensperger, T., Benedek-Wood, E., Krezman, C., Williams, M. B., & Light, J. (2008). A child needs to be given a chance to succeed”: parents of individuals who use AAC describe the benefits and challenges of learning AAC technologies. Augmentative and Alternative Communication, 24(1), 43–55. https://doi.org/10.1080/07434610701421007
   PubMed Web of Science ®Google Scholar
• Mitra, S. (2006). The Capability Approach and disability. Journal of Disability Policy Studies, 16(4), 236–247. https://doi.org/10.1177/10442073060160040501
   Google Scholar
• Mitra, S., & Shakespeare, T. (2019). Remodeling the ICF. Disability and Health Journal, 12(3), 337–339. https://doi.org/10.1016/j.dhjo.2019.01.008
   PubMed Web of Science ®Google Scholar
• Moorcroft, A., Allum, J., & Scarinci, N. (2022). Speech language pathologists’ responses to the rejection or abandonment of AAC systems. Disability and Rehabilitation, 44(16), 4257–4265. https://doi.org/10.1080/09638288.2021.1900412
   PubMed Web of Science ®Google Scholar
• Moorcroft, A., Scarinci, N., & Meyer, C. (2019). A systematic review of the barriers and facilitators to the provision and use of low-tech and unaided AAC systems for people with complex communication needs and their families. Disability and Rehabilitation Assistive Technology, 14(7), 710–731. https://doi.org/10.1080/17483107.2018.1499135
   PubMed Web of Science ®Google Scholar
• Moorcroft, A., Scarinci, N., & Meyer, C. (2020). We were just kind of handed it and then it was smoke bombed by everyone’: How do external stakeholders contribute to parent rejection and the abandonment of AAC systems? International Journal of Language & Communication Disorders, 55(1), 59–69. https://doi.org/10.1111/1460-6984.12502
   PubMed Web of Science ®Google Scholar
• Moorcroft, A., Scarinci, N., & Meyer, C. (2021). I’ve had a love-hate, I mean mostly hate relationship with these PODD books”: parent perceptions of how they and their child contributed to AAC rejection and abandonment. Disability and Rehabilitation Assistive Technology, 16(1), 72–82. https://doi.org/10.1080/17483107.2019.1632944
   PubMedGoogle Scholar
• Morris, C. (2009). Measuring participation in childhood disability: How does the capability approach improve our understanding? Developmental Medicine and Child Neurology, 51(2), 92–94. https://doi.org/10.1111/j.1469-8749.2008.03248.x
   PubMed Web of Science ®Google Scholar
• Murray, J., Lynch, Y., Meredith, S., Moulam, L., Goldbart, J., Smith, M., Randall, N., & Judge, S. (2019). Professionals’ decision-making in recommending communication aids in the UK: Competing considerations. Augmentative and Alternative Communication, 35(3), 167–179. https://doi.org/10.1080/07434618.2019.1597384
   PubMed Web of Science ®Google Scholar
• Nussbaum, M. C. (2000). Women and human development: The capabilities approach. (Vol. 3). Cambridge University Press.
   Google Scholar
• O’Neill, T., & Wilkinson, K. M. (2020). Preliminary investigation of the perspectives of parents of children with cerebral palsy on the supports, challenges, and realities of integrating augmentative and alternative communication into everyday life. American Journal of Speech-Language Pathology, 29(1), 238–254. https://doi.org/10.1044/2019_AJSLP-19-00103
   PubMed Web of Science ®Google Scholar
• Ogletree, B. T. (2012). Stakeholders as partners: Making AAC work better. Perspectives on Augmentative and Alternative Communication, 21(4), 151–158. https://doi.org/10.1044/aac21.4.151
   Google Scholar
• Ogletree, B. T., McMurry, S., Schmidt, M., & Evans, K. (2018). The changing world of augmentative and alternative communication (AAC): examining three realities faced by today’s AAC provider. Perspectives of the ASHA Special Interest Groups, 3(12), 113–122. https://doi.org/10.1044/persp3.SIG12.113
   Google Scholar
• Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. https://doi.org/10.1080/09687599.2013.818773
   Web of Science ®Google Scholar
• Pampoulou, E. (2019). Speech and language therapists’ views about AAC system acceptance by people with acquired communication disorders. Disability and Rehabilitation Assistive Technology, 14(5), 471–478. https://doi.org/10.1080/17483107.2018.1463401
   PubMed Web of Science ®Google Scholar
• Paraschivoiu, I., Winkler, A., & Meschtscherjakov, A. (2020). Beyond “assistive” four tensions in the design of AAL based on the capability approach [Paper presentation]. Companion Publication of the 2020 ACM Designing Interactive Systems Conference. https://doi.org/10.1145/3393914.3395859
   Google Scholar
• Parette, H. P., Brotherson, M. J., & Huer, M. B. (2000). Giving families a voice in augmentative and alternative communication decision- making. Education and Training in Mental Retardation and Developmental Disabilities, 35(2), 177–190.
   Google Scholar
• Patel, R., & Threats, T. T. (2016). One’s voice: A central component of personal factors in augmentative and alternative communication. Perspectives of the ASHA Special Interest Groups, 1(12), 94–98. https://doi.org/10.1044/persp1.SIG12.94
   Google Scholar
• Paterson, H., & Carpenter, C. (2015). Using different methods to communicate: How adults with severe acquired communication difficulties make decisions about the communication methods they use and how they experience them. Disability and Rehabilitation, 37(17), 1522–1530. https://doi.org/10.3109/09638288.2015.1052575
   PubMed Web of Science ®Google Scholar
• Ripat, J., Verdonck, M., Gacek, C., & McNicol, S. (2019). A qualitative metasynthesis of the meaning of speech-generating devices for people with complex communication needs. Augmentative and Alternative Communication, 35(2), 69–79. https://doi.org/10.1080/07434618.2018.1513071
   PubMed Web of Science ®Google Scholar
• Ripat, J., Woodgate, R. L., & Bennett, L. (2020). Attitudes faced by young adults using assistive technology as depicted through photovoice. Disability and Rehabilitation Assistive Technology, 15(3), 314–321. https://doi.org/10.1080/17483107.2019.1571118
   PubMed Web of Science ®Google Scholar
• Robeyns, I. (2005). The capability approach: A theoretical survey. Journal of Human Development, 6(1), 93–117. https://doi.org/10.1080/146498805200034266
   Google Scholar
• Robeyns, I. (2017). Wellbeing, freedom and social justice: The capability approach re-examined. Open Book Publishers.
   Google Scholar
• Sanders, E. J., Page, T. A., & Lesher, D. (2021). School-based speech-language pathologists: Confidence in augmentative and alternative communication assessment. Language, Speech, and Hearing Services in Schools, 52(2), 512–528. https://doi.org/10.1044/2020_LSHSS-20-00067
   PubMed Web of Science ®Google Scholar
• Schlosser, R. W., & Raghavendra, P. (2004). Evidence-based practice in augmentative and alternative communication. Augmentative and Alternative Communication, 20(1), 1–21. https://doi.org/10.1080/07434610310001621083
   Google Scholar
• Sen, A. (1980). Equality of what? In S. McMurrin (Ed.), The tanner lectures on human values (pp. 196–220). University of Utah Press.
   Google Scholar
• Siegel-Causey, E., & Bashinski, S. M. (1997). Enhancing initial communication and responsiveness of learners with multiple disabilities. Focus on Autism and Other Developmental Disabilities, 12(2), 105–120. https://doi.org/10.1177/108835769701200206
   Google Scholar
• Terzi, L. (2005). Beyond the dilemma of difference: The capability approach to disability and special educational needs. Journal of Philosophy of Education, 39(3), 443–459. https://doi.org/10.1111/j.1467-9752.2005.00447.x
   Web of Science ®Google Scholar
• Trani, J.-F., Bakhshi, P., Bellanca, N., Biggeri, M., & Marchetta, F. (2011). Disabilities through the Capability Approach lens: Implications for public policies. Alter, 5(3), 143–157. https://doi.org/10.1016/j.alter.2011.04.001
   Google Scholar
• Uthoff, S. A. K., Zinkevich, A., Boenisch, J., Sachse, S. K., Bernasconi, T., & Ansmann, L. (2021). Collaboration between stakeholders involved in augmentative and alternative communication (AAC) care of people without natural speech. Journal of Interprofessional Care, 35(6), 821–831. https://doi.org/10.1080/13561820.2020.1860918
   PubMed Web of Science ®Google Scholar
• Waller, A. (2019). Telling tales: Unlocking the potential of AAC technologies. International Journal of Language & Communication Disorders, 54(2), 159–169. https://doi.org/10.1111/1460-6984.12449
   PubMed Web of Science ®Google Scholar
• Wickenden, M. (2011). Whose voice is that?: Issues of identity, voice and representation arising in an ethnographic study of the lives of disabled teenagers who use Augmentative and Alternative Communication (AAC). Disability Studies Quarterly, 31(4), https://doi.org/10.18061/dsq.v31i4.1724
   Google Scholar
• World Health Organization (2001). International Classification of Functioning, Disability and Health: (ICF). World Health Organization.
   Google Scholar
• World Health Organization (2002). Towards a common language for functioning, disability, and health: ICF. The international classification of functioning, disability and health. https://www.who.it/classifications/icf/icfbeginnersguide.pdf
   Google Scholar
• Zabala, J. S. (2020). The SETT Framework: A model for selection and use of assistive technology tools and more. In D. Chambers (Ed.), Assistive technology to support inclusive education (Vol. 14, pp. 17–36). Emerald Publishing Limited.
   Google Scholar