Family caregivers: never underestimate the power of hope

References

• Cuijpers P. The effects of family interventions on relatives’ burden: a meta-analysis. Journal of Mental Health. 1999;8(3):275–285.
   Google Scholar
• Sartorius N, Leff J, L ́opez-Ibor JJ, et al. 2005. Families and mental disorders: from burden to empowerment. John Wiley & Sons. doi:10.1002/0470024712.ch3
   Google Scholar
• Saunders JC. Families living with severe mental illness: a literature review. Issues Ment Health Nurs. 2003;24(2):175–198. 2003.
   PubMedGoogle Scholar
• Fekadu W, Mihiretu A, Craig TKJ, et al. Multidimensional impact of severe mental illness on family members: systematic review. BMJ Open. 2019;9(12):e032391.
   PubMed Web of Science ®Google Scholar
• Awad AG, Voruganti LN. The burden of schizophrenia on caregivers: a review. Pharmacoeconomics. 2008;26(2):149–162.
   PubMed Web of Science ®Google Scholar
• Thorup AAE, Laursen TM, Munk-Olsen T, et al. Incidence of child and adolescent mental disorders in children aged 0-17 with familial high risk for severe mental illness – A Danish register study. Schizophr Res. 2018;197:298–304.
   PubMed Web of Science ®Google Scholar
• Singh A, Mattoo SK, Grover S. Stigma associated with mental illness: conceptual issues and focus on stigma perceived by the patients with schizophrenia and their caregivers. Indian J Soc Psychiatry. 2016;32(2):134–142.
   Google Scholar
• Ostman M, Kjellin L. 2002. Stigma by association. Psychological factors in relatives of people with mental illness British journal of psychiatry, 1 8 1, 4 9 4 4 9 8.
   Google Scholar
• Larson JE, Corrigan P. The stigma of families with mental illness. Acad Psychiatry. 2008;32(2):87–91.
   PubMed Web of Science ®Google Scholar
• Angermeyer MC, Schulze B, Dietrich S. Courtesy stigma. Soc Psychiatry Psychiatr Epidemiol. 2003;38(10):593–602.
   PubMed Web of Science ®Google Scholar
• Laursen TM, Munk-Olsen T, Nordentoft M, et al. Increased mortality among patients admitted with major psychiatric disorders: a register-based study comparing mortality in unipolar depressive disorder, bipolar affective disorder, schizoaffective disorder, and schizophrenia. J Clin Psychiatry. 2007;68(6):899–907.
   PubMed Web of Science ®Google Scholar
• Hastrup LH, Simonsen E, Ibsen R, et al. Societal costs of schizophrenia in Denmark: a nationwide matched controlled study of patients and spouses before and after initial diagnosis. Schizophr Bull. 2020; 46(1) :68–77.
   PubMed Web of Science ®Google Scholar
• Hastrup LH, Jennum P, Ibsen R, et al. Societal costs of borderline personality disorders: a matched-controlled nationwide study of patients and spouses. Acta Psychiatr Scand. 2019;140(5):458–467.
   PubMed Web of Science ®Google Scholar
• Svendsen ML, Ellegaard T, Jeppesen KA, et al. Family involvement and patient-experienced improvement and satisfaction with care: a nationwide cross-sectional study in Danish psychiatric hospitals. BMC Psychiatry. 2021;21(1):190.
   PubMed Web of Science ®Google Scholar
• Ashcroft K, Kim E, Elefant E, et al. Meta-analysis of caregiver-directed psychosocial interventions for schizophrenia. Community Ment Health J. 2018;54(7):983–991.
   PubMed Web of Science ®Google Scholar
• Pharoah F, Mari J, Rathbone J, et al. Family intervention for schizophrenia. Cochrane Database Syst Rev. 2010;(12):CD000088. doi: 10.1002/14651858.CD000088.pub3
   PubMed Web of Science ®Google Scholar
• Bighelli I, Rodolico A, García-Mieres H, et al. Psychosocial and psychological interventions for relapse prevention in schizophrenia: a systematic review and network meta-analysis. Lancet Psychiatry. 2021;8(11):969–980.
   PubMed Web of Science ®Google Scholar
• Yesufu-Udechuku A, Harrison B, Mayo-Wilson E, et al. Interventions to improve the experience of caring for people with severe mental illness: systematic review and meta-analysis. Br J Psychiatry. 2015;206(4):268–274.
   PubMed Web of Science ®Google Scholar
• Jin H, Tappenden P, MacCabe JH, et al. Cost and health impacts of adherence to the national institute for health and care excellence schizophrenia guideline recommendations. Br J Psychiatry. 2021;218(4):224–229. doi:10.1192/bjp.2020.241
   PubMed Web of Science ®Google Scholar
• Mihalopoulos C, Magnus A, Carter R, et al. Assessing cost-effectiveness in mental health: family interventions for schizophrenia and related conditions. Aust N Z J Psychiatry. 2004;38(7):511–519.
   PubMed Web of Science ®Google Scholar
• Solomon P. Interventions for families of individuals with schizophrenia. Dis-Manage-Health-Outcomes. 2000;8(4):211–221.
   Google Scholar
• Breitborde NJ, Woods SW, Srihari VH. Multifamily psychoeducation for first-episode psychosis: a cost-effectiveness analysis. Psychiatr Serv. 2009;60(11):1477–1483.
   PubMed Web of Science ®Google Scholar
• Shimodera S, Furukawa TA, Mino Y, et al. Cost-effectiveness of family psychoeducation to prevent relapse in major depression: results from a randomized controlled trial. BMC Psychiatry. 2012;12:40. Published 2012 May 14.
   PubMed Web of Science ®Google Scholar
• Fadden G. Implementation of family interventions in routine clinical practice following staff training programs: a major cause for concern. J Mental Health. 1997;6(6):599–612.
   Google Scholar
• Eassom E, Giacco D, Dirik A, et al. Implementing family involvement in the treatment of patients with psychosis: a systematic review of facilitating and hindering factors. BMJ Open. 2014;4(10):e006108.
   PubMed Web of Science ®Google Scholar
• Bucci S, Berry K, Barrowclough C, et al. Family interventions in psychosis: a review of the evidence and barriers to implementation. Aust Psychol. 2016;51(1):62–68.
   Web of Science ®Google Scholar
• Selick A, Durbin J, Vu N, et al. Barriers and facilitators to implementing family support and education in early psychosis intervention programmes: a systematic review. Early Interv Psychiatry. 2017;11(5):365–374.
   PubMed Web of Science ®Google Scholar
• Landeweer E, Molewijk B, Hem MH, et al. Worlds apart? A scoping review addressing different stakeholder perspectives on barriers to family involvement in the care for persons with severe mental illness. BMC Health Serv Res. 2017;17(1):349.
   PubMedGoogle Scholar
• Hansson KM, Romøren M, Pedersen R, et al. Barriers and facilitators when implementing family involvement for persons with psychotic disorders in community mental health centres – a nested qualitative study. BMC Health Serv Res. 2022;22(1):1153. Published 2022 Sep 12.
   PubMed Web of Science ®Google Scholar
• Kaas MJ, Lee S, Peitzman C. Barriers to collaboration between mental health professionals and families in the care of persons with serious mental illness. Issues Ment Health Nurs. 2003;24(8):741–756.
   PubMedGoogle Scholar
• Maybery D, Jaffe IC, Cuff R, et al. Mental health service engagement with family and carers: what practices are fundamental? BMC Health Serv Res. 2021;21(1):1073.
   PubMed Web of Science ®Google Scholar
• Dixon LB, Dickerson F, Bellack AS, et al. The 2009 schizophrenia PORT psychosocial treatment recommendations and summary statements. Schizophr Bull. 2010;36(1):48–70.
   PubMed Web of Science ®Google Scholar
• Lukens E, Mcfarlane W. Psychoeducation as evidence-based practice: considerations for practice, research, and policy. Brief Treatment and Crisis Intervention. 2004;4(3):205–225.
   Google Scholar
• Stanley S, Balakrishnan S. Informal caregiving in schizophrenia: correlates and predictors of perceived rewards. Social Work in Mental Health. 2021;19(3):230–247.
   Web of Science ®Google Scholar
• Chan SW. Global perspective of burden of family caregivers for persons with schizophrenia. Arch Psychiatr Nurs. 2011;25(5):339–349.
   PubMed Web of Science ®Google Scholar
• Bland R, Darlington Y. The nature and sources of hope: perspectives of family caregivers of people with serious mental illness. Perspect Psychiatr Care. 2002;38(2):61–68.
   PubMed Web of Science ®Google Scholar
• Sælør KT, Biong S, «Å få lyset til å fortsette å brenne »: En fenomenologisk studie av håp hos pårørende i psykisk helsevern [“To keep the light burning”: a phenomenological study of hope in family members involved in mental health care]. Scand. Psychol. 2017;4:e3.
   Google Scholar
• Marshall S, Deane F, Crowe T, et al. Carers’ hope, wellbeing and attitudes regarding recovery. Community Ment Health J. 2013;49(3):344–353.
   PubMed Web of Science ®Google Scholar