Publication Cover
AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Latest Articles
83
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Negative clinic experiences as a barrier to care for people with HIV and their impact on patient preferences for intervention support: a qualitative study in Cape Town, South Africa

, , , , , , , , & show all
Received 01 May 2023, Accepted 17 Apr 2024, Published online: 27 Apr 2024

References

  • Avert, At a glance: HIV in South Africa. (n.d.). Be in the KNOW. Retrieved August 25, 2022, from https://www.beintheknow.org/understanding-hiv-epidemic/data/glance-hiv-south-africa.
  • Bemelmans, M., Baert, S., Goemaere, E., Wilkinson, L., Vandendyck, M., van Cutsem, G., Silva, C., Perry, S., Szumilin, E., Gerstenhaber, R., Kalenga, L., Biot, M., & Ford, N. (2014). Community-supported models of care for people on HIV treatment in sub-Saharan Africa. Tropical Medicine & International Health, 19(8), 968–977. https://doi.org/10.1111/tmi.12332
  • Bogart, L. M., Chetty, S., Giddy, J., Sypek, A., Sticklor, L., Walensky, R. P., Losina, E., Katz, J. N., & Bassett, I. V. (2013). Barriers to care among people living with HIV in South Africa: Contrasts between patient and healthcare provider perspectives. AIDS Care, 25(7), 843–853. https://doi.org/10.1080/09540121.2012.729808
  • Dramowski, A., Cotton, M. F., & Whitelaw, A. (2017). A framework for preventing healthcare-associated infection in neonates and children in South Africa. South African Medical Journal, 107(3), 192–195. https://doi.org/10.7196/SAMJ.2017.v107i3.12035
  • Eshun-Wilson, I., Rohwer, A., Hendricks, L., Oliver, S., & Garner, P. (2019). Being HIV positive and staying on antiretroviral therapy in Africa: A qualitative systematic review and theoretical model. PloS one, 14(1), e0210408. https://doi.org/10.1371/journal.pone.0210408
  • Georgette, N., Siedner, M. J., Zanoni, B., Sibaya, T., Petty, C. R., Carpenter, S., & Haberer, J. E. (2016). The acceptability and perceived usefulness of a weekly clinical SMS program to promote HIV antiretroviral medication adherence in KwaZulu-Natal, South Africa. AIDS and Behavior, 20(11), 2629–2638. https://doi.org/10.1007/s10461-016-1287-z
  • Gilbert, H. N., Wyatt, M. A., Pisarski, E. E., Asiimwe, S., Van Rooyen, H., Seeley, J., Shahmanesh, M., Turyamureeba, B., Van Heerden, A., Adeagbo, O., Celum, C. L., Barnabas, R. V., & Ware, N. C. (2021). How community ART delivery may improve HIV treatment outcomes: Qualitative inquiry into mechanisms of effect in a randomized trial of community-based ART initiation, monitoring and re-supply (DO ART) in South Africa and Uganda. Journal of the International AIDS Society, 24, e25821. https://doi.org/10.1002/jia2.25821
  • Goudge, J., Chirwa, T., Eldridge, S., Gómez-Olivé, F. X., Kabudula, C., Limbani, F., et al. (2018). Can lay health workers support the management of hypertension? Findings of a cluster randomised trial in South Africa. BMJ Global Health, 3(1), e000577. https://doi.org/10.1136/bmjgh-2017-000577
  • Grimsrud, A., Sharp, J., Kalombo, C., Bekker, L.-G., & Myer, L. (2015). Implementation of community-based adherence clubs for stable antiretroviral therapy patients in Cape Town, South Africa. Journal of the International AIDS Society, 18(1), 19984. https://doi.org/10.7448/IAS.18.1.19984
  • Heestermans, T., Browne, J. L., Aitken, S. C., Vervoort, S. C., & Klipstein-Grobusch, K. (2016). Determinants of adherence to antiretroviral therapy among HIV-positive adults in sub-Saharan Africa: A systematic review. BMJ Global Health, 1(4), e000125. https://doi.org/10.1136/bmjgh-2016-000125
  • Julien, A., Anthierens, S., Van Rie, A., West, R., Maritze, M., Twine, R., Kahn, K., Lippman, S. A., Pettifor, A., & Leslie, H. H. (2021). Health care providers’ challenges to high-quality HIV care and antiretroviral treatment retention in rural South Africa. Qualitative Health Research, 31(4), 722–735. https://doi.org/10.1177/1049732320983270
  • Katz, I. T., Kaplan, R., Fitzmaurice, G., Leone, D., Bangsberg, D. R., Bekker, L.-G., & Orrell, C. (2017). Treatment guidelines and early loss from care for people living with HIV in Cape Town, South Africa: A retrospective cohort study. PLOS Medicine, 14(11), e1002434. https://doi.org/10.1371/journal.pmed.1002434
  • Lippman, S. A., El Ayadi, A. M., Grignon, J. S., Puren, A., Liegler, T., Venter, W. D. F., Ratlhagana, M. J., Morris, J. L., Naidoo, E., Agnew, E., Barnhart, S., & Shade, S. B. (2019). Improvements in the South African HIV care cascade: Findings on 90-90-90 targets from successive population-representative surveys in North West Province. Journal of the International AIDS Society, 22(6), e25295. https://doi.org/10.1002/jia2.25295
  • Maphumulo, W. T., & Bhengu, B. R. (2019). Challenges of quality improvement in the healthcare of South Africa post-apartheid: A critical review. Curationis, 42(1), 1901. https://doi.org/10.4102/curationis.v42i1.1901
  • Maughan-Brown, B., Kuo, C., Galárraga, O., Smith, P., Lurie, M. N., Bekker, L.-G., & Harrison, A. (2018). Stumbling blocks at the clinic: Experiences of seeking HIV treatment and care in South Africa. AIDS and Behavior, 22(3), 765–773. https://doi.org/10.1007/s10461-017-1877-4
  • Moosa, A., Gengiah, T. N., Lewis, L., & Naidoo, K. (2019). Long-term adherence to antiretroviral therapy in a South African adult patient cohort: A retrospective study. BMC Infectious Diseases, 19(1), 775. https://doi.org/10.1186/s12879-019-4410-8
  • Mukumbang, F. C., Marchal, B., Van Belle, S., & van Wyk, B. (2018). “Patients are not following the [adherence] club rules anymore”: A realist case study of the antiretroviral treatment adherence club, South Africa. Qualitative Health Research, 28(12), 1839–1857. https://doi.org/10.1177/1049732318784883
  • Mukumbang, F. C., Ndlovu, S., & van Wyk, B. (2022). Comparing patients’ experiences in three differentiated service delivery models for HIV treatment in South Africa. Qualitative Health Research, 32(2), 238–254. https://doi.org/10.1177/10497323211050371
  • Nhemachena, T., Späth, C., Arendse, K. D., et al. (2023). Between empathy and anger: Healthcare workers’ perspectives on patient disengagement from antiretroviral treatment in Khayelitsha, South Africa - a qualitative study. BMC Primary Care, 24(1), 34. https://doi.org/10.1186/s12875-022-01957-8
  • Orrell, C., Cohen, K., Leisegang, R., Bangsberg, D. R., Wood, R., & Maartens, G. (2017). Comparison of six methods to estimate adherence in an ART-naïve cohort in a resource-poor setting: Which best predicts virological and resistance outcomes? AIDS Research and Therapy, 14(1), 20. https://doi.org/10.1186/s12981-017-0138-y
  • Orrell, C., Cohen, K., Mauff, K., Bangsberg, D. R., Maartens, G., & Wood, R. (2015). A randomized controlled trial of real-time electronic adherence monitoring with text message dosing reminders in people starting first-line antiretroviral therapy. JAIDS Journal of Acquired Immune Deficiency Syndromes, 70(5), 495–502. https://doi.org/10.1097/QAI.0000000000000770
  • Sabin, L. L., Gifford, A. L., Haberer, J. E., Harvey, K., Sarkisova, N., Martin, K., West, R. L., Stephens, J., Killian, C., Halim, N., Berkowitz, N., Jennings, K., Jennings, L., & Orrell, C. (2022). Patients’ and providers’ views on optimal evidence-based and scalable interventions for individuals at high risk of HIV treatment failure: Sequential explorations among key stakeholders in Cape Town, South Africa. AIDS and Behavior, 26(8), 2783–2797. https://doi.org/10.1007/s10461-022-03623-7
  • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
  • Tshuma, N., Mosikare, O., Yun, J. A., Alaba, O. A., Maheedhariah, M. S., Muloongo, K., & Nyasulu, P. S. (2017). Acceptability of community-based adherence clubs among health facility staff in South Africa: A qualitative study. Patient Preference and Adherence, 11, 1523–1531. https://doi.org/10.2147/PPA.S116826
  • UNAIDS. (2022). Global HIV & AIDS statistics – Fact sheet. From https://www.unaids.org/en/resources/fact-sheet.
  • UNAIDS. (2022). In Danger: UNAIDS Global AIDS Update 2022.
  • United Nations. (n.d.). Goal 3 | department of economic and social affairs. United Nations. https://sdgs.un.org/goals/goal3#targets_and_indicators.
  • Ware, N. C., Pisarski, E. E., Tam, M., Wyatt, M. A., Atukunda, E., Musiimenta, A., Bangsberg, D. R., & Haberer, J. E. (2016). The Meanings in the messages: How SMS reminders and real-time adherence monitoring improve antiretroviral therapy adherence in rural Uganda. AIDS (London, England), 30(8), 1287–1293. https://doi.org/10.1097/QAD.0000000000001035
  • Ware, N. C., Wyatt, M. A., Geng, E. H., Kaaya, S. F., Agbaji, O. O., Muyindike, W. R., Chalamilla, G., & Agaba, P. A. (2013). Toward an understanding of disengagement from HIV treatment and care in sub-saharan Africa: A qualitative study. PLoS Medicine, 10(1), e1001369. https://doi.org/10.1371/journal.pmed.1001369
  • West, R. L., Lippman, S. A., Twine, R., Maritze, M., Kahn, K., & Leslie, H. H. (2021). Providers’ definitions of quality and barriers to providing quality care: A qualitative study in rural Mpumalanga Province, South Africa. Journal of Global Health Science, 3(1), e1. https://doi.org/10.35500/jghs.2021.3.e1
  • Zanolini, A., Sikombe, K., Sikazwe, I., Eshun-Wilson, I., Somwe, P., Bolton Moore, C., Topp, S. M., Czaicki, N., Beres, L. K., Mwamba, C. P., Padian, N., Holmes, C. B., & Geng, E. H. (2018). Understanding preferences for HIV care and treatment in Zambia: Evidence from a discrete choice experiment among patients who have been lost to follow-up. PLoS Medicine, 15(8), e1002636. doi:10.1371/journal.pmed.1002636

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.