A qualitative investigation of sense of self and continuity in younger adults with stroke

References

• Arntzen, C., Borg, T., & Hamran, T. (2015). Long-term recovery trajectory after stroke: An ongoing negotiation between body, participation and self. Disability and Rehabilitation, 37, 1626–1634. doi: 10.3109/09638288.2014.972590
   PubMed Web of Science ®Google Scholar
• Clancy, M. (2013). Is reflexivity the key to minimizing problems of interpretation in phenomenological research? Nurse Researcher, 20, 12–16. doi: 10.7748/nr2013.07.20.6.12.e1209
   PubMedGoogle Scholar
• Cramer, P. (2003). Defense mechanisms and physiological reactivity to stress. Journal of Personality, 71, 221–244. doi: 10.1111/1467-6494.7102001
   PubMed Web of Science ®Google Scholar
• Damon, W., & Hart, D. (1982). The development of self-understanding from infancy through adolescence. Child Development, 53, 841–864. doi: 10.2307/1129122
   Web of Science ®Google Scholar
• Damon, W., & Hart, D. (1988). Self-understanding in childhood and adolescence. New York: Cambridge University.
   Google Scholar
• Daniel, K., Wolfe, C. D., Busch, M. A., & McKevitt, C. (2009). What are the social consequences of stroke for working-aged adults? A systematic review. Stroke, 40, e431–e440. doi: 10.1161/STROKEAHA.108.534487
   PubMed Web of Science ®Google Scholar
• Ellis-Hill, C. S., & Horn, S. (2000). Change in identity and self-concept: A new theoretical approach to recovery following a stroke. Clinical Rehabilitation, 14, 279–287. doi:10.1155/2015/970345 doi: 10.1191/026921500671231410
   PubMed Web of Science ®Google Scholar
• Ellis-Hill, C. S., Payne, S., & Ward, C. (2000). Self-body split: Issues of identity in physical recovery following a stroke. Disability and Rehabilitation, 22, 725–733. doi: 10.1080/09638280050191990
   PubMed Web of Science ®Google Scholar
• Erikson, E. H. (1963). Childhood and society (2nd ed.). New York: Norton.
   Google Scholar
• Folkman, S. 1997. Positive psychological states and coping with severe stress. Social Science and Medicine, 45, 1207–1221. doi: 10.1016/S0277-9536(97)00040-3
   PubMed Web of Science ®Google Scholar
• Green, T., & King, K. (2009). Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: A descriptive qualitative study. International Journal of Nursing Studies, 46, 1194–1200. doi: 10.1016/j.ijnurstu.2009.02.008
   PubMed Web of Science ®Google Scholar
• Horne, J., Lincoln, N., Preston, J., & Logan, P. (2014). What does confidence mean to people who have had a stroke? – A qualitative interview study. Clinical Rehabilitation, 28, 1125–1135. doi: 10.1177/0269215514534086
   PubMed Web of Science ®Google Scholar
• Jette, A. M., Keysor, J., Coster, W., Ni, P., & Haley, S. (2005). Beyond function: Predicting participation in a rehabilitation cohort. Archives of Physical Medicine and Rehabilitation, 86, 2087–2094. doi: 10.1016/j.apmr.2005.08.001
   PubMed Web of Science ®Google Scholar
• Jones, M., & Morris, R. (2013). Experiences of adult stroke survivors and their parent carers: A qualitative study. Clinical Rehabilitation, 27, 272–280. doi: 10.1177/0269215512455532
   PubMed Web of Science ®Google Scholar
• Jun, E. M., Roh, Y. H., & Kim, M. J. (2013). The effect of music-movement therapy on physical and psychological states of stroke patients. Journal of Clinical Nursing, 22, 22–31. doi: 10.1111/j.1365-2702.2012.04243.x
   PubMed Web of Science ®Google Scholar
• Kitzmuller, G., Haggstrom, T., & Asplund, K. (2013). Living an unfamiliar body: The significance of the long-term influence of bodily changes on the perception of self after stroke. Medicine, Health Care and Philosophy, 16, 19–29. doi: 10.1007/s11019-012-9403-y
   PubMed Web of Science ®Google Scholar
• Kongkasuwan, R., Voraakhom, K., Pisolayabutra, P., Maneechai, P., Boonin, J., & Kuptniratsaikul, V. (2015). Creative art therapy to enhance rehabilitation for stroke patients: A randomized controlled trial. Clinical Rehabilitation. Advance online publication. doi: 10.1177/0269215515607072
   Web of Science ®Google Scholar
• Kuenemund, A., Zwick, S., Rief, W., & Exner, C. (2014). (Re)defining the self – Enhanced posttraumatic growth and event centrality in stroke survivors: A mixed-method approach and control comparison study. Journal of Health Psychology. Advance online publication. doi: 10.1177/135910531435457
   PubMed Web of Science ®Google Scholar
• Kuluski, K., Dow, C., Locock, L., Lyons, R., & Lasserson, D. (2014). Life interrupted and life regained? Coping with stroke at a young age. International Journal of Qualitative Studies on Health and Wellbeing, 9, 1–12. doi: 10.3402/qhw.v9.22252
   Web of Science ®Google Scholar
• Kvigne, K., Kirkevold, M., & Gjengedal, E. (2004). Fighting back – Struggling to continue life and preserve the self following a stroke. Health Care for Women International, 25, 370–387. doi: 10.1080/07399330490278376
   PubMedGoogle Scholar
• Lawrence, M. (2010). Young adults’ experience of stroke: A qualitative review of the literature. British Journal of Nursing, 19, 241–248. doi: 10.12968/bjon.2010.19.4.46787
   PubMedGoogle Scholar
• Lincoln, N. B., Kneebone, I. I., Macniven, J. A. B., & Morris, R. C. (2011). Psychological management of stroke (2nd ed.). Hoboken, NJ, USA: John Wiley & Sons.
   Google Scholar
• Markus, H., & Nurius, P. (1986). Possible selves. American Psychologist, 41, 954–969. doi: 10.1037/0003-066X.41.9.954
   Web of Science ®Google Scholar
• Martinsen, R., Kirkevold, M., & Sveen, U. (2012). Younger stroke survivors’ experiences of family life in a long-term perspective: A narrative hermeneutic phenomenological study. Nursing Research and Practice, 1, 1–11. doi: 10.1155/2012/948791
   Google Scholar
• Ownsworth, T. (2014). Self-identity after brain injury. East Sussex: Psychology Press.
   Google Scholar
• Patton, M. (2002). Qualitative research and evaluation methods. (3rd ed.). California: Sage Publications Inc.
   Google Scholar
• Peacock, E.J., & Wong, P.T. (1990). The stress appraisal measure (SAM): A multidimensional approach to cognitive appraisal. Stress Medicine, 6, 227–236. doi: 10.1002/smi.2460060308
   Google Scholar
• Rochette, A., Bravo, G., Desrosiers, J., St-Cyr Tribble, D., & Bourget, A. (2007). Adaptation process, participation and depression over six months in first-stroke individuals and spouses. Clinical Rehabilitation, 21, 554–562. doi: 10.1177/0269215507073490
   PubMed Web of Science ®Google Scholar
• Secrest, J., & Thomas, S. P. (1999). Continuity and discontinuity: The quality of life following stroke. Rehabilitation Nursing, 24, 240–246. Retrieved from http://onlinelibrary.wiley.com/journal/10.1002/(ISSN)2048-7940 doi: 10.1002/j.2048-7940.1999.tb02190.x
   PubMedGoogle Scholar
• Secrest, J., & Zeller, R. (2003). Measuring continuity and discontinuity following stroke. Journal of Nursing Scholarship, 35, 243–247. doi: 10.1111/j.1547-5069.2003.00243.x
   PubMed Web of Science ®Google Scholar
• Secrest, J., & Zeller, R. (2007). The relationship of continuity and discontinuity, functional ability, depression, and quality of life over time in stroke survivors. Rehabilitation Nursing, 32, 158–164. doi: 10.1002/j.2048-7940.2007.tb00170.x
   PubMed Web of Science ®Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. London: Sage.
   Google Scholar
• Smith, J. A., & Osborn, M. (2003). Interpretative phenomenological analysis. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 53–80). London: Sage.
   Google Scholar
• Tedeschi, G., & Calhoun, L.G. (2004). Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry, 15, 1–18. doi: 10.1207/s15327965pli1501_01
   Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19, 349–357. doi: 10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Varona, J. F., Bermejo, F., Guerra, J. M., & Molina, J. A. (2004). Long-term prognosis of ischaemic stroke in young adults: Study of 272 cases. Journal of Neurology, 251, 1507–1514. doi: 10.1007/s00415-004-0583-0
   PubMed Web of Science ®Google Scholar
• Wechsler, D. (2009). Wechsler memory scale – fourth edition. San Antonio, TX: Pearson.
   Google Scholar
• Wolfenden, B., & Grace, M. (2012). Identity continuity in the face of biographical disruption: ‘It’s the same me’. Brain Impairment, 13, 203–211. doi: 10.1017/BrImp.2012.16
   Web of Science ®Google Scholar
• Wu, M., Lee, S., Su, H., & Pai, Z. H. (2015). The effect of cognitive appraisal in middle-aged women stroke survivors and the psychological health of their caregivers: A follow-up study. Journal of Clinical Nursing, 24, 3155–3164. doi: 10.1111/jocn.12926
   PubMed Web of Science ®Google Scholar
• Zahavi, D. (2005). Subjectivity and selfhood: Investigating the first-person perspective. Cambridge, MA: MIT Press.
   Google Scholar