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Original Articles

The lived experience of behaviours of concern: A qualitative study of men with traumatic brain injury

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Pages 376-394 | Received 19 Aug 2016, Accepted 08 Mar 2017, Published online: 10 Apr 2017

References

  • Alderman, N. (2003). Contemporary approaches to the management of irritability and aggression following traumatic brain injury. Neuropsychological Rehabilitation, 13(1–2), 211–240. doi:10.1080/09602010244000327
  • Baguley, I. J., Cooper, J., & Felmingham, K. (2006). Aggressive behavior following traumatic brain injury: How common is common? Journal of Head Trauma Rehabilitation, 21(1), 45–56. doi: 10.1097/00001199-200601000-00005
  • Barbour, R. S. (1998). Mixing qualitative methods: Quality assurance or qualitative quagmire? Qualitative Health Research, 8(3), 352–361. doi:10.1177/104973239800800306
  • Benedictus, M. R., Spikman, J. M., & van der Naalt, J. (2010). Cognitive and behavioral impairment in traumatic brain injury related to outcome and return to work. Archives of Physical Medicine and Rehabilitation, 91(9), 1436–1441. doi:10.1016/j.apmr.2010.06.019
  • Braine, M. E. (2011). The experience of living with a family member with challenging behavior post acquired brain injury. Journal of Neuroscience Nursing, 43(3), 156–164. doi:10.1097/JNN.0b013e3182135bb2
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi:10.1191/1478088706qp063oa
  • Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. London: Sage Publications.
  • Brooks, N., McKinlay, W., Symington, C., Beattie, A., & Campsie, L. (1987). Return to work within the first seven years of severe head injury. Brain Injury, 1(1), 5–19. doi: 10.3109/02699058709034439
  • Carlsson, E., Paterson, B. L., Scott-Findlay, S., Ehnfors, M., & Ehrenberg, A. (2007). Methodological issues in interviews involving people with communication impairments after acquired brain damage. Qualitative Health Research, 17(10), 1361–1371. doi:10.1177/1049732307306926
  • Cattelani, R., Zettin, M., & Zoccolotti, P. (2010). Rehabilitation treatments for adults with behavioral and psychosocial disorders following acquired brain injury: A systematic review. Neuropsychology Review, 20(1), 52–85. doi:10.1007/s11065-009-9125-y
  • Creswell, J. W. (2009). Research design: Qualitative, quantitative, and mixed methods approaches (3rd ed.). California: SAGE Publications.
  • Curtin, M., & Fossey, E. (2007). Appraising the trustworthiness of qualitative studies: Guidelines for occupational therapists. Australian Occupational Therapy Journal, 54(2), 88–94. doi:10.1111/j.1440-1630.2007.00661.x
  • Emerson, E. (1995). Challenging behaviour: Analysis and intervention in people with learning disabilities. New York: Cambridge University Press.
  • Feeney, T. J., & Achilich, J. (2014). Structured flexibility and context-sensitive behavioral support for the chronically cranky. NeuroRehabilitation, 34(4), 709–723. doi:10.3233/NRE-141088
  • Feeney, T. J., & Capo, M. (2010). Making meaning: The use of project-based supports for individuals with brain injury. Journal of Behavioral and Neuroscience Research, 8(1), 70–80.
  • Feeney, T. J., & Ylvisaker, M. (2003). Context-Sensitive behavioral supports for young children with TBI: Short-term effects and long-term outcome. Journal of Head Trauma Rehabilitation, 18(1), 33–51. doi: 10.1097/00001199-200301000-00006
  • Feeney, T. J., Ylvisaker, M., Rosen, B. M., & Greene, P. (2001). Community supports for individuals with challenging behavior after brain injury: An analysis of the New York state behavioral resource project. Journal of Head Trauma Rehabilitation, 16(1), 61–75. doi: 10.1097/00001199-200102000-00008
  • Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough?: An experiment with data saturation and variability. Field Methods, 18(1), 59–82. doi: 10.1177/1525822X05279903
  • Hammond, F. M., Davis, C., Cook, J. R., Philbrick, P., & Hirsch, M. A. (2016). A conceptual model of irritability following traumatic brain injury: A qualitative, participatory research study. Journal of Head Trauma Rehabilitation, 31(2), E1–E11. doi:10.1097/HTR.0000000000000136
  • Hayes, J. P., Bigler, E. D., & Verfaellie, M. (2016). Traumatic brain injury as a disorder of brain connectivity. Journal of the International Neuropsychological Society, 22(2), 120–137. doi:10.1017/S1355617715000740
  • Hicks, A. J., Gould, K. R., Hopwood, M., Kenardy, J., Krivonos, I., & Ponsford, J. L. (in press). Behaviours of concern following moderate to severe traumatic brain injury in individuals living in the community. Brain Injury.
  • Johnson, R., & Balleny, H. (1996). Behaviour problems after brain injury: Incidence and need for treatment. Clinical Rehabilitation, 10(2), 173–180. doi:10.1177/026921559601000215
  • Joint Committee on Interprofessional Relations Between the American Speech-Language-Hearing Association and Division 40 (Clinical Neuropsychology) of the American Psychological Association. (2007). Structure and function of an interdisciplinary team for persons with acquired brain injury.
  • Judd, D., & Wilson, S. L. (2005). Psychotherapy with brain injury survivors: An investigation of the challenges encountered by clinicians and their modifications to therapeutic practice. Brain Injury, 19(6), 437–449. doi:10.1080/02699050400010994
  • Kelly, G., Brown, S., Todd, J., & Kremer, P. (2008). Challenging behaviour profiles of people with acquired brain injury living in community settings. Brain Injury, 22(6), 457–470. doi:10.1080/02699050802060647
  • Kelly, G., Todd, J., Simpson, G., Kremer, P., & Martin, C. (2006). The overt behaviour scale (OBS): A tool for measuring challenging behaviours following ABI in community settings. Brain Injury, 20(3), 307–319. doi:10.1080/02699050500488074
  • Kim, E. (2002). Agitation, aggression, and disinhibition syndromes after traumatic brain injury. NeuroRehabilitation, 17(4), 297–310.
  • Lefebvre, H., Cloutier, G., & Josee Levert, M. (2008). Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury, 22(7–8), 535–543. doi:10.1080/02699050802158243
  • Lloyd, V., Gatherer, A., & Kalsy, S. (2006). Conducting qualitative interview research with people with expressive language difficulties. Qualitative Health Research, 16(10), 1386–1404. doi:10.1177/1049732306293846
  • National Trauma Research Institute. (2012). Developing a research program to address behaviours of concern after traumatic brain injury: Briefing document. Melbourne: Author.
  • Niemeier, J. P., Perrin, P. B., Holcomb, M. G., Rolston, C. D., Artman, L. K., Lu, J., & Nersessova, K. S. (2014). Gender differences in awareness and outcomes during acute traumatic brain injury recovery. Journal of Women’s Health, 23(7), 573–580. doi:10.1089/jwh.2013.4535
  • Paterson, B., & Scott-Findlay, S. (2002). Critical issues in interviewing people with traumatic brain injury. Qualitative Health Research, 12(3), 399–409. doi:10.1177/104973202129119973
  • QSR International Pty Ltd. (2014). NVivo (Version 10).
  • Rahman, B., Oliver, C., & Alderman, N. (2010). Descriptive analysis of challenging behaviours shown by adults with acquired brain injury. Neuropsychological Rehabilitation, 20(2), 212–238. doi:10.1080/09602010903021097
  • Ryan, G. W., & Bernard, H. R. (2003). Techniques to identify themes. Field Methods, 15(1), 85–109. doi:10.1177/1525822x02239569
  • Sabaz, M. (2012). Challenging behaviour project: Adults – using the analysis of prevalence, course, co-morbidity and burden to inform the model of care. Brain Injury Rehabilitation Directorate, NSW Agency for Clinical Innovation. Retrieved from https://www.aci.health.nsw.gov.au/__data/assets/pdf_file/0020/165800/Challenging-Behaviours-Project-Adults.pdf
  • Sabaz, M., Simpson, G. K., Walker, A. J., Rogers, J. M., Gillis, I., & Strettles, B. (2014). Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: A multicenter study. Journal of Head Trauma Rehabilitation, 29(2), E19–E30. doi:10.1097/HTR.0b013e31828dc590
  • Sandelowski, M. (1995). Sample size in qualitative research. Research in Nursing & Health, 18(2), 179–183. doi:10.1002/nur.4770180211
  • Tam, S., McKay, A., Sloan, S., & Ponsford, J. (2015). The experience of challenging behaviours following severe TBI: A family perspective. Brain Injury, 29(7-8), 813–821. doi:10.3109/02699052.2015.1005134
  • Tate, R., Cameron, I., Winstanley, J., Myles, B., & Harris, R. (2004). Brain injury outcomes study: Final report.
  • Tateno, A., Jorge, R. E., & Robinson, R. G. (2003). Clinical correlates of aggressive behavior after traumatic brain injury. The Journal of Neuropsychiatry and Clinical Neurosciences, 15(2), 155–160. doi:10.1176/jnp.15.2.155
  • Todd, J., Loewy, J., Kelly, G., & Simpson, G. (2004). Managing challenging behaviours: Getting interventions to work in nonspecialised community settings. Brain Impairment, 5(1), 42–52. doi: 10.1375/brim.5.1.42.35398
  • Viera, A. J., & Garrett, J. M. (2005). Understanding interobserver agreement: The kappa statistic. Family Medicine, 37(5), 360–363.
  • Wiart, L. (2016). Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Annals of Physical and Rehabilitation Medicine, 59(1), 31–41. doi:10.1016/j.rehab.2015.12.001
  • Ylvisaker, M., Jacobs, H. E., & Feeney, T. (2003). Positive supports for people who experience behavioral and cognitive disability after brain injury: A review. Journal of Head Trauma Rehabilitation, 18(1), 7–32. doi: 10.1097/00001199-200301000-00005
  • Ylvisaker, M., Turkstra, L., Coehlo, C., Yorkston, K., Kennedy, M., Sohlberg, M. M., & Avery, J. (2007). Behavioural interventions for children and adults with behaviour disorders after TBI: A systematic review of the evidence. Brain Injury, 21(8), 769–805. doi:10.1080/02699050701482470

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