Individual and family experiences of loss after acquired brain injury: A multi-method investigation

References

• Boss, P. (1999). Ambiguous loss: Learning to live with unresolved grief. Cambridge: Harvard University.
   Google Scholar
• Brooks, D. N. (1991). The head-injured family. Journal of Clinical and Experimental Neuropsychology, 13(1), 155–188. doi: 10.1080/01688639108407214
   Web of Science ®Google Scholar
• Bryman, A. (2008). Social research methods (3rd ed). Oxford: Oxford University Press.
   Google Scholar
• Bushnik, T., Kreutzer, J. S., Marwitz, J. H., Sima, A. P., & Godwin, E. E. (2015). Efficacy of the brain injury family intervention: Impact on family members. Journal of Head Trauma Rehabilitation, 30(4), 249–260. doi: 10.1097/HTR.0000000000000144
   PubMed Web of Science ®Google Scholar
• Carroll, E., & Coetzer, R. (2011). Identity, grief and self-awareness after traumatic brain injury. Neuropsychological Rehabilitation, 21(3), 289–305. doi: 10.1080/09602011.2011.555972
   PubMed Web of Science ®Google Scholar
• Cattell, R. B., & Cattell, A. K. S. (2008). Test of "g": Culture fair Scale 2, Form A [Measurement instrument]. Oxford: Hogrefe.
   Google Scholar
• Coetzer, R. (2004). Grief, self-awareness, and psychotherapy following brain injury. Illness, Crisis & Loss, 12(2), 171–186. doi: 10.1177/1054137303262216
   Google Scholar
• Coetzer, B. R., Vaughan, F. L., & Ruddle, J. A. (2003). The brain injury grief inventory. Unpublished Manuscript. North Wales Brain Injury Service, Conwy & Denbighshire NHS Trust.
   Google Scholar
• Colantonio, A. (2016). Sex, gender, and traumatic brain injury: A commentary. Archives of Physical Medicine and Rehabilitation, 97, S1–S4. doi: 10.1016/j.apmr.2015.12.002
   PubMed Web of Science ®Google Scholar
• De Luca, R., Calabrò, R. S., & Bramanti, P. (2018). Cognitive rehabilitation after severe acquired brain injury: Current evidence and future directions. Neuropsychological Rehabilitation, 28(6), 879–898. doi: 10.1080/09602011.2016.1211937
   PubMed Web of Science ®Google Scholar
• Douglas, J. M. (2013). Conceptualizing self and maintaining social connection following severe traumatic brain injury. Brain Injury, 27(1), 60–74. doi: 10.3109/02699052.2012.722254
   PubMed Web of Science ®Google Scholar
• Dupuis, S. L. (2002). Understanding ambiguous loss in the context of dementia care. Journal of Gerontological Social Work, 37(2), 93–115. doi: 10.1300/J083v37n02_08
   Google Scholar
• Fellows, L. K., & Farah, M. J. (2005). Dissociable elements of human foresight: A role for the ventromedial frontal lobes in framing the future, but not in discounting future rewards. Neuropsychologia, 43, 1214–1221. doi: 10.1016/j.neuropsychologia.2004.07.018
   PubMed Web of Science ®Google Scholar
• Godwin, E., Chappell, B., & Kreutzer, J. (2014). Relationships after TBI: A grounded research study. Brain Injury, 28(4), 1–16. doi: 10.3109/02699052.2014.880514
   PubMed Web of Science ®Google Scholar
• Gracey, F., Palmer, S., Rous, B., Psaila, K., Shaw, K., O’Dell, J., … Mohamed, S. (2008). “Feeling part of things”: Personal construction of self after brain injury. Neuropsychological Rehabilitation, 18, 627–650. doi: 10.1080/09602010802041238
   PubMed Web of Science ®Google Scholar
• Holloway, M., Orr, D., & Clark-Wilson, J. (2019). Experiences of challenges and support among family members of people with acquired brain injury: A qualitative study in the UK. Brain Injury, 33(4), 401–411. doi: 10.1080/02699052.2019.1566967
   PubMed Web of Science ®Google Scholar
• Huebner, A. J., Mancini, J. A., Wilcox, R. M., Grass, S. R., & Grass, G. A. (2007). Parental deployment and youth in military families: Exploring uncertainty and ambiguous loss. Family Relations, 56(2), 112–122. doi: 10.1111/j.1741-3729.2007.00445.x
   Web of Science ®Google Scholar
• IBM Corp. (2016). IBM SPSS statistics for windows, version 24.0. Armonk, NY: Author.
   Google Scholar
• Kean, S. (2010). The experience of ambiguous loss in families of brain injured ICU patients. Nursing in Critical Care, 15(2), 66–75. doi: 10.1111/j.1478-5153.2010.00379.x
   PubMed Web of Science ®Google Scholar
• Kreutzer, J. S., Mills, A., & Marwitz, J. H. (2016). Ambiguous loss and recovery after traumatic brain injury. Journal of Family Theory and Review, 8, 386–397. doi: 10.1111/jftr.12150
   Web of Science ®Google Scholar
• Mioshi, E., Dawson, K., Mitchell, J., Arnold, R., & Hodges, J. R. (2006). The Addenbrooke's cognitive examination revised (ACE-R): A brief cognitive test battery for dementia screening. International Journal of Geriatric Psychiatry: A Journal of the Psychiatry of Late Life and Allied Sciences, 21(11), 1078–1085. doi: 10.1002/gps.1610
   Google Scholar
• Munivenkatappa, A., Agrawal, A., Shukla, D. P., Kumaraswamy, D., & Devi, B. I. (2016). Traumatic brain injury: Does gender influence outcomes? International Journal of Critical Illness and Injury Science, 6(2), 70–73. doi: 10.4103/2229-5151.183024
   PubMedGoogle Scholar
• Nochi, M. (1998). “Loss of self” in the narratives of people with traumatic brain injuries: A qualitative analysis. Social Science and Medicine, 46(7), 869–878. doi: 10.1016/S0277-9536(97)00211-6
   PubMed Web of Science ®Google Scholar
• O’Cathain, A., Murphy, E., & Nicholl, J. (2007). Why, and how, mixed methods research is undertaken in health services research in England: A mixed methods study. BMC Health Services Research, 7(1), 85. doi: 10.1186/1472-6963-7-85
   PubMedGoogle Scholar
• Ownsworth, T. (2014). Self-identity after brain injury. Hove: Psychology Press.
   Google Scholar
• Persinger, M. A. (1993). Personality changes following brain injury as a grief response to the loss of sense of self: Phenomenological themes as indices of local lability and neurocognitive structuring as psychotherapy. Psychological Reports, 72(3_suppl), 1059–1068. doi: 10.2466/pr0.1993.72.3c.1059
   PubMed Web of Science ®Google Scholar
• Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. doi: 10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• Tuli, F. (2010). The basis of distinction between qualitative and quantitative research in social science: Reflection on ontological, epistemological and methodological perspectives. Ethiopian Journal of Education and Sciences, 6, 97–108.
   Google Scholar
• Turner, B., Ownsworth, T., Cornwell, P., & Fleming, J. (2009). Reengagement in meaningful occupations during the transition from hospital to home for people with acquired brain injury and their family caregivers. American Journal of Occupational Therapy, 63, 609–620. doi: 10.5014/ajot.63.5.609
   PubMed Web of Science ®Google Scholar