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Articles

The process of identity change following ABI from the perspectives of adolescents and their mothers: A relational grounded theory approach

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Pages 1904-1927 | Received 17 Nov 2021, Accepted 07 Jul 2022, Published online: 20 Jul 2022

References

  • Anderson, V., Catroppa, C., Haritou, F., Morse, S., & Rosenfeld, J. (2005). Identifying factors contributing to child and family outcome 30 months after traumatic brain injury in children. Journal of Neurology, Neurosurgery and Psychiatry, 76(3), 401–408. https://doi.org/10.1136/jnnp.2003.019174
  • Arendell, T. (2000). Conceiving and investigating motherhood: The decade’s scholarship. Journal of Marriage and Family, 62(4), 1192–1207. https://doi.org/10.1111/j.1741-3737.2000.01192.x
  • Beadle, E. J., Ownsworth, T., Fleming, J., & Shum, D. (2016). The impact of traumatic brain injury on self-identity. Journal of Head Trauma Rehabilitation, 31(2), E12–E25. https://doi.org/10.1097/HTR.0000000000000158
  • Ben-Yishay, Y. (2000). Post-avute neuropsychological rehabilitation: A holistic perspectove. In A. L. Christensen & B. P. Uzell (Eds.), Critical issues in neuropsychology, international handbook of neuropsychological rehabilitation (pp. 127–136). Kluwer Academic/Plenum Publishers.
  • Bloom, D. R., Levin, H. S., Ewing-Cobbs, L., Saunders, A. E., Song, J., Fletcher, J. M., & Kowatch, R. A. (2001). Lifetime and novel psychiatric disorders after pediatric traumatic brain injury. Journal of the American Academy of Child and Adolescent Psychiatry, 40(5), 572–579. http://www.scopus.com/inward/record.url?eid=2-s2.0-0035033378&partnerID=40&md5=a497c7e6928031fc465d78b5a631f50b https://doi.org/10.1097/00004583-200105000-00017
  • Bohanek, J., Marin, K., Fivush, R., & Duke, M. (2006). Family narrative interaction and children's sense of self. Family Process, 45(1), 39–54. https://doi.org/10.1111/j.1545-5300.2006.00079.x
  • Braun, V., & Clarke, V. (2014). Successful qualitative research: A practical guide for beginners. Sage.
  • Cantor, J., Ashman, T., Schwartz, M., Gordon, W., Hibbard, M., Brown, M., Spielman, L., Charatz, H. J., & Cheng, Z. (2005). The role of self-discrepancy theory in understanding post–traumatic brain injury affective disorders: A pilot study. Journal of Head Trauma Rehabilitation, 20(6), 527–543. https://doi.org/10.1097/00001199-200511000-00005
  • Charmaz, K. (2014). Constructing grounded theory (2nd ed.). Sage.
  • Compas, B. E., Jaser, S. S., Bettis, A. H., Watson, K. H., Gruhn, M. A., Dunbar, J. P., Williams, E., & Thigpen, J. C. (2017). Coping, emotion regulation, and psychopathology in childhood and adolescence: A meta-analysis and narrative review. Psychological Bulletin, 143(9), 939–991. https://doi.org/10.1037/bul0000110
  • Couchman, G., McMahon, G., Kelly, A., & Ponsford, J. (2014). A new kind of normal: Qualitative accounts of Multifamily Group Therapy for acquired brain injury. Neuropsychological Rehabilitation, 24(6), 809–832. https://doi.org/10.1080/09602011.2014.912957
  • Daly, K. (1992). The fit between qualitative research and characteristics of families. In J. Gilgun, K. Daly, & G. Handel (Eds.), Qualitative methods in family research (pp. 3–12). Sage Publication.
  • Di Battista, A., Catroppa, C., Anderson, V., Godfrey, C., & Soo, C. (2014). “In my before life”: Relationships, coping and post-traumatic growth in adolescent survivors of a traumatic brain injury. Journal of Rehabilitation Medicine, 46(10), 975–983. https://doi.org/10.2340/16501977-1883
  • Ellis-Hill, C., Payne, S., & Ward, C. (2008). Using stroke to explore the life thread model: An alternative approach to understanding rehabilitation following an acquired disability. Disability and Rehabilitation, 30(2), 150–159. https://doi.org/10.1080/09638280701195462
  • Ellis-Hill, C., Thomas, S., Gracey, F., Lamont-Robinson, C., Cant, R., Marques, E. M., Thomas, P. W., Grant, M., Nunn, S., Paling, T., Thomas, C., Werson, A., Galvin, K. T., Reynolds, F., & Jenkinson, D. (2019). HeART of Stroke: randomised controlled, parallel-arm, feasibility study of a community-based arts and health intervention plus usual care compared with usual care to increase psychological well-being in people following a stroke. BMJ Open, 9(3), e021098.
  • Erikson, E. H. (1959). Identity and the life cycle: Selected papers. Psychological Issues, 1(1), 1–171.
  • Glaser, B. G., & Strauss, A. L. (1968). The discovery of grounded theory.
  • Gracey, F., Evans, J., & Malley, D. (2009). Capturing process and outcome in complex rehabilitation interventions: A “Y-shaped” model. Neuropsychological Rehabilitation, 19(6), 867–890. https://doi.org/10.1080/09602010903027763
  • Gracey, F., Palmer, S., Rous, B., Psaila, K., Shaw, K., O’Dell, J., Cope, J., & Mohamed, S. (2008). “Feeling part of things”: Personal construction of self after brain injury. Neuropsychological Rehabilitation, 18(5–6), 627–650. https://doi.org/10.1080/09602010802041238
  • Harter, S. (2015). Self-processes and developmental psychopathology. In Developmental psychopathology (Vol. 1, pp. 370–418). John Wiley & Sons, Inc. https://doi.org/10.1002/9780470939383.ch11
  • Haslam, C., Holme, A., Haslam, S., Iyer, A., Jetten, J., & Williams, W. (2008). Maintaining group memberships: Social identity continuity predicts well-being after stroke. Neuropsychological Rehabilitation, 18(5-6), 671–691. https://doi.org/10.1080/09602010701643449
  • James, W. (1890). The principles of psychology. Holt and company.
  • King, G., Seko, Y., Chiarello, L. A., Thompson, L., & Hartman, L. (2020). Building blocks of resiliency: A transactional framework to guide research, service design, and practice in pediatric rehabilitation. Disability and Rehabilitation, 42(7), 1031–1040. https://doi.org/10.1080/09638288.2018.1515266
  • Kreutzer, J., Mills, A., & Marwitz, J. (2016). Ambiguous loss and emotional recovery after traumatic brain injury. Journal of Family Theory & Review, 8(3), 386–397. https://doi.org/10.1111/jftr.12150
  • Levack, W., Boland, P., Taylor, W., Siegert, R., Kayes, N., Fadyl, J., & McPherson, K. (2014). Establishing a person-centred framework of self-identity after traumatic brain injury: A grounded theory study to inform measure development. BMJ Open, 4(5), e004630. https://doi.org/10.1136/bmjopen-2013-004630
  • Lincoln, Y. S., & Guba, E. G.. (1985). Naturalistic inquiry (pp. 289–331). SAGE.
  • Lyon, I., Fisher, P., & Gracey, F. (2021). Putting a new perspective on life”: A qualitative grounded theory of posttraumatic growth following acquired brain injury. Disability and Rehabilitation, 43(22), 3225–3233. https://doi.org/10.1080/09638288.2020.1741699
  • Marcia, J. (1980). Identity in adolescence. In J. Adelson (Ed.), Handbook of adolescent psychology (pp. 159–187). Wiley.
  • Micklewright, J., King, T., O'Toole, K., Henrich, C., & Floyd, F. (2012). Parental distress, parenting practices, and child adaptive outcomes following traumatic brain injury. Journal of the International Neuropsychological Society, 18(2), 343–350. https://doi.org/10.1017/S1355617711001792
  • Moscato, E. L., Peugh, J., Taylor, H. G., Stancin, T., Kirkwood, M. W., & Wade, S. L. (2021). Bidirectional effects of behavior problems and parenting behaviors following adolescent brain injury. Rehabilitation Psychology, 66(3), 273.
  • Muenchberger, H., Kendall, E., & Neal, R. (2008). Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance. Brain Injury, 22(12), 979–992. https://doi.org/10.1080/02699050802530532
  • Newman, B., Lohman, B., & Newman, P. (2007). Peer group membership and a sense of belonging: Their relationship to adolescent behavior problems. Adolescence, 42(166), 241–264.
  • Nochi, M. (1998). “Loss of self” in the narratives of people with traumatic brain injuries: A qualitative analysis. Social Science & Medicine, 46(7), 869–878. https://doi.org/10.1016/S0277-9536(97)00211-6
  • Nochi, M. (2000). Reconstructing self-narratives in coping with traumatic brain injury. Social Science and Medicine, 51(12), 1795–1804.
  • Ownsworth, T. (2014). Self-identity after brain injury. Psychology Press.
  • Ownsworth, T., & Haslam, C. (2016). Impact of rehabilitation on self-concept following traumatic brain injury: An exploratory systematic review of intervention methodology and efficacy. Neuropsychological Rehabilitation, 26(1), 1–35. Routledge. https://doi.org/10.1080/09602011.2014.977924
  • Patton, G., Sawyer, S., Santelli, J., Ross, D., Afifi, R., Allen, N., Arora, M., Azzopardi, P., Baldwin, W., Bonell, C., Kakuma, R., Kennedy, E., Mahon, J., McGovern, T., Mokdad, A. H., Patel, V., Petroni, S., Reavley, N., Taiwo, K., … Viner, R. (2016). Our future: A Lancet commission on adolescent health and wellbeing. The Lancet, 387(10036), 2423–2478. Lancet Publishing Group. https://doi.org/10.1016/S0140-6736(16)00579-1
  • Pidgeon, N., & Henwood, K. (1997). Using grounded theory in psychological research. In N. Hayes (Ed.), Doing qualitative analysis in psychology (pp. 245–273). Psychology Press.
  • Rashid, M., Goez, H. R., Mabood, N., Damanhoury, S., Yager, J. Y., Joyce, A. S., & Newton, A. S. (2014). The impact of pediatric traumatic brain injury (TBI) on family functioning: A systematic review. Journal of Pediatric Rehabilitation Medicine, 7(3), 241–254.
  • Roscigno, C., & Swanson, K. (2011). Parents’ experiences following children’s moderate to severe traumatic brain injury: A clash of cultures. Qualitative Health Research, 21(10), 1413–1426. https://doi.org/10.1177/1049732311410988
  • Roscigno, C. I., Swanson, K. M., Vavilala, M. S., & Solchany, J. (2011). Children's longing for everydayness: Life following traumatic brain injury in the USA. Brain Injury, 25(9), 882–894.
  • Sharp, N. L., Bye, R. A., Llewellyn, G. M., & Cusick, A. (2006). Fitting back in: Adolescents returning to school after severe acquired brain injury. Disability and Rehabilitation, 28, 767–778. https://doi.org/10.1080/09638280500386668
  • Tajfel, H., & Turner, J. (1986). The social identity theory of intergroup behavior. In S. Worchel & W. Austin (Eds.), Psychology of intergroup relations (2nd ed., pp. 7–24). Nelson-Hall.
  • Van Leer, E., & Turkstra, L. (1999). The effect of elicitation task on discourse coherence and cohesion in adolescents with brain injury. Journal of Communication Disorders, 32(5), 327–348. https://doi.org/10.1016/S0021-9924(99)00008-8
  • Wade, S. L., Taylor, H. G., Drotar, D., Stancin, T., Yeates, K. O., & Minich, N. M. (2003). Parent-adolescent interactions after traumatic brain injury: Their relationship to family adaptation and adolescent adjustment. The Journal of Head Trauma Rehabilitation, 18(2), 164–176.
  • Walsh, R. S., Muldoon, O. T., Gallagher, S., & Fortune, D. G. (2015). Affiliative and ‘self-as-doer’ identities: Relationships between social identity, social support, and emotional status amongst survivors of acquired brain injury (ABI). Neuropsychological Rehabilitation, 25(4), 555–573. https://doi.org/10.1080/09602011.2014.993658
  • Whiffin, C., Ellis-Hill, C., Bailey, C., Jarrett, N., & Hutchinson, P. (2019). We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury. Neuropsychological Rehabilitation, 29(8), 1256–1272. https://doi.org/10.1080/09602011.2017.1387577
  • Whiffin, C. J., Ellis-Hill, C., Bailey, C., Jarrett, N., & Hutchinson, P. J. (2019). We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury. Neuropsychological Rehabilitation, 29(8), 1256–1272. https://doi.org/10.1080/09602011.2017.1387577
  • Whiffin, C. J., Gracey, F., & Ellis-Hill, C. (2021). The experience of families following traumatic brain injury in adult populations: A meta-synthesis of narrative structures. International Journal of Nursing Studies, 123, 104043. https://doi.org/10.1016/J.IJNURSTU.2021.104043
  • Yardley, L. (2000). Dilemmas in qualitative health research. Psychology and Health, 15(2), 215–228. https://doi.org/10.1080/08870440008400302
  • Yeates, G., Henwood, K., Gracey, F., & Evans, J. (2007). Awareness of disability after acquired brain injury and the family context. Neuropsychological Rehabilitation, 17(2), 151–173. https://doi.org/10.1080/09602010600696423
  • Yeates, K., Taylor, H., Walz, N., Stancin, T., & Wade, S. (2010). The family environment as a moderator of psychosocial outcomes following traumatic brain injury in young children. Neuropsychology, 24(3), 345–356. https://doi.org/10.1037/a0018387