1,578
Views
17
CrossRef citations to date
0
Altmetric
Original Article

Views and experience of communication when receiving a serious mental health diagnosis: satisfaction levels, communication preferences, and acceptability of the SPIKES protocol

&
Pages 395-404 | Received 15 Mar 2015, Accepted 26 Apr 2016, Published online: 05 Aug 2016

References

  • Adams JR, Drake RE. (2006). Shared decision-making and evidence-based practice. Comm Ment Health J, 42, 87–105
  • Baile W, Buckman R, Lenzi R, et al. (2000). SPIKES-A six-step protocol for delivering bad news: Application to the patient with cancer. Oncologist, 5, 302–11
  • Baile WF, Kudelka AP, Beale EA, et al. (1999). Communication skills training in oncology. Description and preliminary outcomes of workshops on breaking bad news and managing patient reactions to illness. Cancer, 86, 887–97
  • Barclay JS, Blackhall LJ, Tulsky JA. (2007). Communication strategies and cultural issues in the delivery of bad news. J Palliat Med, 10, 958–77
  • Belcher M, Jones LK. (2009). Graduate nurses experiences of developing trust in the nurse-patient relationship. Contemp Nurse, 31, 142–52
  • Blenkiron P, Hammill CA. (2003). What determines patients’ satisfaction with their mental health care and quality of life? Postgrad Med J, 79, 337–40
  • Bond GR, Drake RE, Mueser KT, Latimer E. (2001). Assertive community treatment for people with severe mental illness. Dis Manage Health Outc, 9, 141–59
  • Cleary M, Hunt G, Escott P, Walter G. (2010a). Receiving difficult news: Views of patients in an inpatient setting. J Psychosoc Nurs Ment Health Serv, 48, 40–8
  • Cleary M, Hunt G, Horsfall J. (2009). Delivering difficult news in psychiatric settings. Harv Rev Psychiatry, 17, 315–21
  • Cleary M, Hunt G, Walter G. (2010b). Delivering difficult news. Views of mental health staff in inpatient settings. J Psychosoc Nurs Ment Health Serv, 48, 32–9
  • Commonwealth Government of Australia. (2000). National medicines policy. Canberra: Commonweatlh Government of Australia. Available from: http://www.health.gov.au/internet/main/publishing.nsf/Content/0241A32640D477CACA256F18004685E4/$File/NMP2000.pdf
  • Commonwealth Government of Australia. (2013). Better access to mental health care. Published online: Commonweatlh Government of Australia. Available from: http://www.health.gov.au/internet/main/publishing.nsf/Content/40C645359E58A388CA257A6F0014FCDE/$File/patients2.pdf
  • Corrigan PW. (2007). How clinical diagnosis might exacerbate the stigma of mental illness. Soc Work, 52, 31–9
  • Department of Health. (2013). Mental health payment by results guidance for 2013-14. Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/232162/Mental_Health_PbR_Guidance_for_2013-14.pdf [last accessed 31 Jan 2015]
  • Eisenthal S, Koopman C, Lazare A. (1983). Process analysis of two dimensions of the negotiated approach in relation to satisfaction in the initial interview. J Nerv Ment Dis, 17, 49–54
  • Epstein RM, Peters E. (2009). Beyond information: Exploring patients’ preferences. JAMA, 302, 195–7
  • Eriksson I, Nilsson K. (2008). Preconditions needed for establishing a trusting relationship during health counselling – An interview study. J Clin Nurs, 17, 2352–9
  • Frances A. (2013). Essentials of psychiatric diagnosis, revised edition: Responding to the challenge of DSM-5®. New York: Guilford Publications
  • Fukui S, Ogawa K, Yamagishi A. (2011). Effectiveness of communication skills training of nurses on the quality of life and satisfaction with healthcare professionals among newly diagnosed cancer patients: A preliminary study. Psycho-Oncology, 20, 1285–91
  • Gaetano J. (2013). Holm-Bonferroni sequential correction: An EXCEL calculator – Ver. 1.2. Available from: http://www.researchgate.net/profile/Justin_Gaetano2/ [last accessed 10 Apr 2016]
  • Gallagher A, Arber A, Chaplin R, Quirk A. (2010). Service users’ experience of receiving bad news about their mental health. J Ment Health, 19, 34–42
  • Gantt A, Green R. (1985). Telling the diagnosis: Implications for social work practice. Soc Work Health Care, 11, 1985–6
  • Garg A, Buckman R, Kason Y. (1997). Teaching medical students how to break bad news. CMAJ, 156, 1159–64
  • Green R, Gantt A. (1987). Telling patients and families the psychiatric diagnosis: A survey of psychiatrists. Hosp Comm Psychiatry, 38, 666–8
  • Harrison ME, Walling A. (2010). What do we know about giving bad news? A review. Clin Pediatr, 49, 619–26
  • Holm-Denoma J, Gordon K, Donohue K, et al. (2008). Patients’ affective reactions to receiving diagnostic feedback. J Soc Clin Psychol, 27, 555–75
  • Holm S. (1979). A simple sequentially rejective multiple test procedure. Scand J Stat, 6, 65–70
  • Hwang W. (2008). Diagnostic nondisclosure of schizophrenia to Chinese American patients. Asian J Counsel, 15, 1–31
  • IBM Corp. (2012). IBM SPSS Statistics for Windows (Version 21.0). Armonk, NY: IBM Corp
  • Institute of Medicine. (2006). Improving the quality of health care for mental and substance-use conditions. Washington (DC): National Academy Press
  • Jha A, Tabet N, Orrell M. (2001). To tell or not to tell-comparison of older patients’ reaction to their diagnosis of dementia and depression. Int J Geriatr Psychiatry, 16, 879–85
  • Jones S, Howard L, Thornicroft G. (2008). ‘Diagnostic overshadowing’: Worse physical health care for people with mental illness. Acta Psychiatr Scand, 118, 169–71
  • Kane RL, Maciejewski M, Finch M. (1997). The relationship of patient satisfaction with care and clinical outcomes. Med Care, 35, 714–30
  • Kim SH, Choi YS, Lee YM, et al. (2006). Teaching ‘breaking bad news’ based on SPIKES protocol during family medicine clerkship. Korean J Med Educ, 18, 55–64
  • Lequesne E, Hersh R. (2004). Disclosure of a diagnosis of borderline personality disorder. J Psychiatr Pract, 10, 170–6
  • Levin T, Kelly B, Cohen M, et al. (2011). Case studies in public-sector leadership: Using a psychiatry e-list to develop a model for discussing a schizophrenia diagnosis. Psychiatr Serv, 62, 244–6
  • Lewis I. (2007). Foreword: Independence, choice and risk: A guide to best practice in supported decision making. London: Department of Health
  • Link BG. (1987). Understanding labeling effects in the area of mental disorders: An assessment of the effects of expectations of rejection. Am Sociol Rev, 52, 96–112
  • Link BG, Cullen FT, Struening E, et al. (1989). A modified labeling theory approach to mental disorders: An empirical assessment. Am Sociol Rev, 54, 400–23
  • Link BG, Mirotznik J, Cullen FT. (1991). The effectiveness of stigma coping orientations: Can negative consequences of mental illness labeling be avoided? J Health Soc Behav, 32, 302–20
  • Link BG, Struening EL, Rahav M, et al. (1997). On stigma and its consequences: Evidence from a longitudinal study of men with dual diagnoses of mental illness and substance abuse. J Health Soc Behav, 38, 177–90
  • Lino CA, Augusto KL, Oliveira R A S d, et al. (2011). Using the Spikes protocol to teach skills in breaking bad news. Rev Brasil Educ Méd, 35, 52–7
  • Lloyd C, King R. (2003). Consumer and carer participation in mental health services. Austral Psychiatry, 11, 180–4
  • Magliano L, Fiorillo A, Malangone C, et al. (2008). Views of persons with schizophrenia on their own disorder: An Italian participatory study. Psychiatr Serv, 59, 795–9
  • Markowitz FE. (1998). The effects of stigma on the psychological well-being and life satisfaction of persons with mental illness. J Health Soc Behav, 39, 335–47
  • Marwaha S, Balachandra S, Johnson S. (2009). Clinicians’ attitudes to the employment of people with psychosis. Soc Psychiatry Psychiatric Epidemiol, 44, 349–60
  • Marwaha S, Johnson S. (2005). Views and experiences of employment among people with psychosis: A qualitative descriptive study. Int J Soc Psychiatry, 51, 302–16
  • Marzanski M, Jainer A, Avery C. (2002). What have you been told about your illness? Information about diagnosis among psychiatric inpatients. Int J Psychiatry Clin Pract, 6, 103–6
  • McCabe R, Priebe S. (2004). The therapeutic relationship in the treatment of severe mental illness: A review of methods and findings. Int J Soc Psychiatry, 50, 115–28
  • McCluskey L, Casarett D, Siderowf A. (2004). Breaking the news: A survey of ALS patients and their caregivers. Amyotroph Lateral Scler Other Motor Neuron Disord, 5, 131–5
  • McDonald-Scott P, Machizawa S, Satoh H. (1992). Diagnostic disclosure: A tale in two cultures. Psychol Med, 22, 147–57
  • McGorry P, Nelson B, Goldstone S, Yung A. (2010). Clinical staging: A heuristic and practical strategy for new research and better health and social outcomes for psychotic and related mood disorders. Can J Psychiatry, 55, 486–97
  • Mead M, Hohenshil T, Singh K. (1997). How the DSM system is used by clinical counselors: A national study. J Ment Health Counsel, 19, 383–401
  • Medicaid. (2011). ICD-10 Overview. Available from: http://www.medicaid.gov/medicaid-chip-program-information/by-topics/data-and-systems/icd-coding/icd.html [last accessed 31 Jan 2015]
  • Milton A, Mullan B. (2014a). Communication of a mental health diagnosis: A systematic synthesis and narrative review. J Ment Health, 23, 261–70
  • Milton A, Mullan B. (2014b). Diagnosis telling in people with psychosis. Curr Opin Psychiatry, 27, 302–7
  • Milton A, Mullan B. (2015). A qualitative exploration of service users’ information needs and preferences when receiving a serious mental health diagnosis. Commun Ment Health J, 51, 459–66
  • Mueser KT, Corrigan PW, Hilton DW, et al. (2002). Illness management and recovery: A review of the research. Vol. 53. Arlington (VA): American Psychiatric Association
  • Murray B, McCrone S. (2015). An integrative review of promoting trust in the patient-primary care provider relationship. J Adv Nurs, 71, 3–23
  • Powell J, Clarke A. (2006). Internet information-seeking in mental health: Population survey. Br J Psychiatry, 189, 273–277
  • Powell J, Inglis N, Ronnie J, Large S. (2011). The characteristics and motivations of online health information seekers: Cross-sectional survey and qualitative interview study. J Med Intern Res, 13, e20
  • Rea CA, Rea DM. (2002). Managing performance and performance management: Information strategy and service user involvement. J Manage Med, 16, 78–93
  • Rose D, Thornicroft G. (2010). Service user perspectives on the impact of a mental illness diagnosis. Epidemiol Psichiatr Soc, 19, 140–7
  • Rosenfield S. (1997). Labeling mental illness: The effects of received services and perceived stigma on life satisfaction. Am Sociol Rev, 62, 660–72
  • Seeman M. (2010). Breaking Bad News: Schizophrenia. J Psychiatr Pract, 16, 269–76
  • Seifart C, Hofmann M, Bär T, et al. (2014). Breaking bad news – What patients want and what they get: Evaluating the SPIKES protocol in Germany. Ann Oncol, 25, 707–11
  • Shergill S, Barker D, Greenberg M. (1998). Communication of psychiatric diagnosis. Soc Psychiatry Psychiatr Epidemiol, 33, 32–8
  • Sibitz I, Provaznikova K, Lipp M, et al. (2013). The impact of recovery-oriented day clinic treatment on internalized stigma: Preliminary report. Psychiatry Res, 209, 326–32
  • Siriwardena AN, Edwards AG, Campion P, et al. (2006). Involve the patient and pass the MRCGP: Investigating shared decision making in a consulting skills examination using a validated instrument. Br J Gen Pract, 56, 857–62
  • Sparks L, Villagran M, Parker-Raley J, Cunningham C. (2007). A patient-centered approach to breaking bad news: Communication guidelines for health care providers. J Appl Commun Res, 35, 177–96
  • Wang P, Gilman S, Guardino M, et al. (2000). Initiation of and adherence to treatment for mental disorders: Examination of patient advocate group members in 11 countries. Med Care, 38, 926–36
  • Widiger TA. (2001). What can be learned from taxometric analyses? Clin Psychol Sci Pract, 8, 528–33

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.