4,389
Views
32
CrossRef citations to date
0
Altmetric
Research Papers

Patient perspectives on navigating the field of traumatic brain injury rehabilitation: a qualitative thematic analysis

, , &
Pages 926-934 | Received 22 Jun 2016, Accepted 06 Jan 2017, Published online: 27 Jan 2017

References

  • Ulfarsson T, Lundgren-Nilsson A, Blomstrand C, et al. Ten-year mortality after severe traumatic brain injury in western Sweden: a case control study. Brain Injury. 2014;28:1675–1681.
  • Olesen J, Gustavsson A, Svensson M, et al. The economic cost of brain disorders in Europe. Eur J Neurol. 2012;19:155–162.
  • Engberg AW, Teasdale TW. Epidemiology and treatment of head injuries in Denmark 1994-2002, illustrated with hospital statistics. Ugeskrift Læger 2007;169:199–203.
  • Dikmen SS, Machamer JE, Powell JM, et al. Outcome 3 to 5 years after moderate to severe traumatic brain injury. Arch Phys Med Rehabil. 2003;84:1449–1457.
  • Benedictus MR, Spikman JM, van der Naalt J. Cognitive and behavioral impairment in traumatic brain injury related to outcome and return to work. Arch Phys Med Rehabil. 2010;91:1436–1441.
  • Engberg AW, Teasdale TW. Psychosocial outcome following traumatic brain injury in adults: a long-term population-based follow-up. Brain Injury. 2004;18:533–545.
  • Dikmen SS, Corrigan JD, Levin HS, et al. Cognitive outcome following traumatic brain injury. J Head Trauma Rehabil. 2009;24:430–438.
  • Colantonio A, Ratcliff G, Chase S, et al. Long-term outcomes after moderate to severe traumatic brain injury. Disabil Rehabil. 2004;26:253–261.
  • Carroll LJ, Cassidy JD, Cancelliere C, et al. Systematic review of the prognosis after mild traumatic brain injury in adults: cognitive, psychiatric, and mortality outcomes: results of the International Collaboration on Mild Traumatic Brain Injury Prognosis. Arch Phys Med Rehabil. 2014;95:S152–S173.
  • Sigurdardottir S, Andelic N, Roe C, et al. Post-concussion symptoms after traumatic brain injury at 3 and 12 months post-injury: a prospective study. Brain Injury. 2009;23:489–497.
  • Dean PJ, O'Neill D, Sterr A. Post-concussion syndrome: prevalence after mild traumatic brain injury in comparison with a sample without head injury. Brain Injury. 2012;26:14–26.
  • Sundhedsstyrelsen (The Danish Health Authority). Forløbsprogram for rehabilitering af voksne med erhvervet hjerneskade [Internet]. Copenhagen: 2011; Available from: http://sundhedsstyrelsen.dk/∼/media/425B29A5B3CF4C69B2E7E8F3B7D520BC.ashx.
  • Nalder E, Fleming J, Cornwell P, et al. Reflections on life: experiences of individuals with brain injury during the transition from hospital to home. Brain Injury. 2013;27:1294–1303.
  • Carroll E, Coetzer R. Identity, grief and self-awareness after traumatic brain injury. Neuropsychol Rehabil. 2011;21:289–305.
  • Levack WM, Kayes NM, Fadyl JK. Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research. Disabil Rehabil. 2010;32:986–999.
  • Jumisko E, Lexell J, Soderberg S. The meaning of living with traumatic brain injury in people with moderate or severe traumatic brain injury. J Neurosci Nurs. 2005;37:42.
  • Grace JJ, Kinsella EL, Muldoon OT, et al. Post-traumatic growth following acquired brain injury: a systematic review and meta-analysis: a systematic review and meta-analysis. Front Psychol. 2015;6:1162.
  • Lefebvre H, Cloutier G, Josee Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Injury. 2008;22:535–543.
  • Rotondi AJ, Sinkule J, Balzer K, et al. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil. 2007;22:14–25.
  • Leith KH, Phillips L, Sample PL. Exploring the service needs and experiences of persons with TBI and their families: the South Carolina experience. Brain Injury. 2004;18:1191–1208.
  • Turner BJ, Fleming JM, Ownsworth TL, et al. The transition from hospital to home for individuals with acquired brain injury: a literature review and research recommendations. Disabil and Rehabil. 2008;30:1153–1176.
  • Engstrom A, Soderberg S. Transition as experienced by close relatives of people with traumatic brain injury. J Neurosci Nurs. 2011;43:253–260.
  • Turner BJ, Fleming J, Ownsworth T, et al. Perceived service and support needs during transition from hospital to home following acquired brain injury. Disabil Rehabil. 2011;33:818–829.
  • Koton S, Schneider AL, Rosamond WD, et al. Stroke incidence and mortality trends in US communities, 1987 to 2011. Jama. 2014;312:259–268.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
  • Van Manen M. Researching lived experience: human science for an action sensitive pedagogy. London and New York: The Althouse Press; 1997.
  • Magnussen J, Vrangbaek K, Saltman RB. Nordic Health Care Systems. Recent reforms and current policy challenges. England: Open University Press; 20091–53.
  • Rudkjobing A, Olejaz M, Birk HO, et al. Integrated care: a Danish perspective. BMJ. 2012;345:e4451.
  • Olejaz M, Juul Nielsen A, Rudkjobing A, et al. Denmark health system review. Health Syst Transit. 2012;14:i–xxii, 1–192.
  • Sundhedsstyrelsen (The Danish Health Authority). Behandling af traumatiske hjerneskader og tilgrænsende lidelser, Redegørelse. Nuværende og fremtidig organisation [Internet]. Copenhagen: 1997; Available from: http://www.sst.dk/∼/media/F6B9C8FD782A4A30BCDD642219528495.ashx.
  • The Department of Army (DA), Department of Defense (DOD), Department of Veterans Affairs (DVA), the U.S. Navy (USN), U.S. Marine Corps (USMC), the U.S Air Force (USAF) Traumatic Brain Injury Task Force; 2008. p. 1–113.
  • Polit DF, Beck CT. Nursing research. Generating and assessing evidence for nursing practice. 9th ed. Philadelphia: Wolthers Kluwer Health. Lippincott Williams & Wilkins; 2012. p. 486–582.
  • Shenton AK. Strategies for ensuring trustworthiness in qualitative research projects. Educ Inform. 2004;22:63–75.
  • Malterud K. Qualitative research: standards, challenges, and guidelines. Lancet. 2001;358:483–488.
  • Sveen U, Soberg HL, Ostensjo S. Biographical disruption, adjustment and reconstruction of everyday occupations and work participation after mild traumatic brain injury. A focus group study. Disabil Rehabil. 2016;38:2296–2304.
  • Chamberlain DJ. The experience of surviving traumatic brain injury. J Adv Nurs. 2006;54:407–417.
  • Nochi M. Reconstructing self-narratives in coping with traumatic brain injury. Soc Sci Med. 2000;51:1795–1804.
  • Shilling C. Ailing. In: Changing bodies: habit, crisis and creativity. London: Sage; 2008. p. 104–125.
  • Folkman S. Positive psychological states and coping with severe stress. Soc Sci Med. 1997;45:1207–1221.
  • Powell T, Gilson R, Collin C. TBI 13 years on: Factors associated with post-traumatic growth. Disabil Rehabil. 2012; 34:1461–1467.
  • Duff D. Codman Award paper. Family concerns and responses following a severe traumatic brain injury: a grounded theory study. Axone. 2002;24:14–22.
  • Turner B, Fleming J, Ownsworth T, et al. Perceptions of recovery during the early transition phase from hospital to home following acquired brain injury: a journey of discovery. Neuropsychol Rehabil. 2011;21:64–91.
  • Kawachi I, Berkman LF. Social ties and mental health. J Urban Health. 2001;78:458–467.
  • Almeida J, Subramanian SV, Kawachi I, et al. Is blood thicker than water? Social support, depression and the modifying role of ethnicity/nativity status. J Epidemiol Community Health. 2011;65:51–56.
  • Deri C. Social networks and health service utilization. J Health Econ. 2005;24:1076–1107.
  • Turner B, Fleming J, Cornwell P, et al. A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers. Brain Injury. 2007;21:1119–1130.
  • Jumisko E, Lexell J, Soderberg S. The experiences of treatment from other people as narrated by people with moderate or severe traumatic brain injury and their close relatives. Disabil Rehabil. 2007;29:1535–1543.
  • Lefebvre H, Levert MJ. The needs experienced by individuals and their loved ones following a traumatic brain injury. J Trauma Nurs. 2012;19:197–207.
  • Abrahamson V, Jensen J, Springett K, et al. Experiences of patients with traumatic brain injury and their carers during transition from in-patient rehabilitation to the community: a qualitative study. Disabil Rehabil. 2016;24:1–12.
  • O'Reilly K, Pryor J. Young people with brain injury in nursing homes: not the best option! Aust Health Rev. 2002;25:46–51.
  • Dixon-Woods M, Cavers D, Agarwal S, et al. Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BMC Med Res Methodol. 2006;6:35.
  • Diderichsen F, Andersen I, Manuel C, et al. Health inequality- determinants and policies. Scand J Public Health. 2012;40:12–105.
  • Ekholm O, Gundgaard J, Rasmussen NK, et al. The effect of health, socio-economic position, and mode of data collection on non-response in health interview surveys. Scand J Public Health. 2010;38:699–706.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.