Adding insult to brain injury: young adults’ experiences of residing in nursing homes following acquired brain injury

References

• Strong K, Mathers C, Bonita R. Preventing stroke: saving lives around the world. Lancet Neurol. 2007;6:182–187.
   PubMed Web of Science ®Google Scholar
• Langlois JA, Rutland-Brown W, Wald MM. The epidemiology and impact of traumatic brain injury: a brief overview. J Head Trauma Rehabil. 2006;21:375–378.
   PubMed Web of Science ®Google Scholar
• Strettles B, Bush M, Simpson G, et al. Accommodation in NSW for adults with high care needs after traumatic brain injury. Sydney: Brain Injury Rehabilitation Unit, Liverpool Health Service; 2005.
   Google Scholar
• Entwistle H, Newby G. Prelude: the very basics: definitions, prevalence, and consequences. In: Newby G, Coetzer R, Daisley A, et al., editors. Practical neuropsychological rehabilitation in acquired brain injury: a guide for working clinicians. London (UK): Karnac Books; 2013. p. 3–11.
   Google Scholar
• Lannoo E, Brusselmans W, Eynde LV, et al. Epidemiology of acquired brain injury (ABI) in adults: prevalence of long-term disabilities and the resulting needs for ongoing care in the region of Flanders, Belgium. Brain Inj. 2004;18:203–211.
   PubMed Web of Science ®Google Scholar
• Headway. What is acquired brain injury? [Internet] 2011 [cited 2016 May 10]. Available from: http://issuu.com/headwayireland/docs/what_is_abi/2?e=3080039/3430600.
   Google Scholar
• Glintborg C. Disabled & not normal: identity construction after an acquired brain injury. Narrat Inq Bioeth. 2015;25:1–21.
   Google Scholar
• Thomas EJ, Levack WMM, Taylor WJ. Self-reflective meaning making in troubled times: change in self-identity after traumatic brain injury. Qual Health Res. 2014;24:1033–1047.
   PubMed Web of Science ®Google Scholar
• Ownsworth T, Haslam C. Impact of rehabilitation on self-concept following traumatic brain injury: an exploratory systematic review of intervention methodology and efficacy. Neuropsychol Rehabil. 2016;26:1–35.
   PubMed Web of Science ®Google Scholar
• Walsh RS, Fortune DG, Gallagher S, et al. Acquired brain injury: combining social psychological and neuropsychological perspectives. Health Psychol Rev. 2014;8:458–472.
   PubMed Web of Science ®Google Scholar
• Walsh RS, Muldoon OT, Gallagher S, et al. Affiliative and “self-as-doer” identities: relationships between social identity, social support, and emotional status amongst survivors of acquired brain injury (ABI). Neuropsychol Rehabil. 2015;25:555–573.
   PubMed Web of Science ®Google Scholar
• Tajfel H. Social psychology of intergroup relations. Annu Rev Psychol. 1982;33:1–39.
   Web of Science ®Google Scholar
• Parvaneh S, Cocks E. Framework for describing community integration for people with acquired brain injury. Aust Occup Ther J. 2012;59:131–137.
   PubMed Web of Science ®Google Scholar
• Breakwell GM. Coping with threatened identities. London (UK): Methuen; 1986.
   Google Scholar
• Jaspal R, Breakwell GM. Identity process theory: identity, social action and social change. Cambridge (UK): Cambridge University Press; 2014.
   Google Scholar
• Vignoles V, Regalia C, Manzi C, et al. Beyond self-esteem: influence of multiple motives on identity construction. J Pers Soc Psychol. 2006;90:308–333.
   PubMed Web of Science ®Google Scholar
• Cicerone KD, Mott T, Azulay J, et al. A randomized controlled trial of holistic neuropsychologic rehabilitation after traumatic brain injury. Arch Phys Med Rehabil. 2008;89:2239–2249.
   PubMed Web of Science ®Google Scholar
• Van Heugten C, Gregório GW, Wade D. Evidence-based cognitive rehabilitation after acquired brain injury: a systematic review of content of treatment. Neuropsychol Rehabil. 2012;22:653–673.
   PubMed Web of Science ®Google Scholar
• Callaway L, Winkler D, Sloan S, et al. Models of supported accommodation for people with traumatic brain injury: a systematic review. Melbourne: Institute for Safety, Compensation and Recovery Research; 2013.
   Google Scholar
• Martin R, Levack WMM, Sinnott KA. Life goals and social identity in people with severe acquired brain injury: an interpretative phenomenological analysis. Disabil Rehabil. 2015;37:1234–1241.
   PubMed Web of Science ®Google Scholar
• Sloan S, McKinley K, Ziino C, et al. Accommodation outcomes and transitions following community-based intervention for individuals with acquired brain injury. Brain Impair. 2012;13:24–43.
   Web of Science ®Google Scholar
• McDermott GL, McDonnell AM. Acquired brain injury services in the Republic of Ireland: experiences and perceptions of families and professionals. Brain Inj. 2014;28:81–91
   PubMed Web of Science ®Google Scholar
• Bigby C, Webber R, Bowers B, et al. A survey of people with intellectual disabilities living in residential aged care facilities in Victoria. J Intellect Disabil Res. 2008;52:404–414.
   PubMed Web of Science ®Google Scholar
• Persson DI, Ostwald S. Younger residents in nursing homes. J Gerontol Nurs. 2009;35:22–31.
   PubMed Web of Science ®Google Scholar
• Marshall I, Baffour TD. Lives deferred? Exploring social disconnection and perceived quality of life among young adults residing in a long-term care facility. Social Work Health Care. 2011;50:259–273.
   PubMed Web of Science ®Google Scholar
• Erikson EH. Childhood and society. 2nd ed. New York (NY): Norton; 1963.
   Google Scholar
• Peterson BE. Longitudinal analysis of midlife generativity, intergenerational roles, and caregiving. Psychol Aging. 2002;17:161–168.
   PubMed Web of Science ®Google Scholar
• Morfei M, Hooker K, Carpenter J, et al. Agentic and communal generative behavior in four areas of adult life: implications for psychological well-being. J Adult Dev. 2004;11:55–58.
   Web of Science ®Google Scholar
• Winkler D, Farnworth L, Sloan S, et al. Moving from aged care facilities to community-based accommodation: outcomes and environmental factors. Brain Inj. 2011;25:153–168.
   PubMed Web of Science ®Google Scholar
• O'Reilly K, Pryor J. Young people with brain injury in nursing homes: not the best option!. Aust Health Rev. 2002;25:46–51.
   PubMedGoogle Scholar
• Winkler D, Sloan S, Callaway L. Younger people in residential aged care: support needs, preferences and future directions. Melbourne: Summer Foundation Ltd.; 2007.
   Google Scholar
• Cameron G, Pirozzo S, Tooth L. Long-term care of people below age 65 with severe acquired brain injury: appropriateness of aged care facilities. Aust N Z J Public Health. 2001;25:261–264.
   PubMed Web of Science ®Google Scholar
• Muenchberger H, Sunderland N, Kendall E, et al. A long way to Tipperary? Young people with complex health conditions living in residential aged care: a metaphorical map for understanding the call for change. Disabil Rehabil. 2011;33:1190–1202.
   PubMed Web of Science ®Google Scholar
• McMillan TM, Laurie M. Young adults with acquired brain injury in nursing homes in Glasgow. Clin Rehabil. 2004;18:132–138.
   PubMed Web of Science ®Google Scholar
• Winkler D, Farnworth L, Sloan S. People under 60 living in aged care facilities in Victoria. Aust Health Rev. 2006;30:100–108.
   PubMedGoogle Scholar
• Winkler D, Farnworth L, Sloan S, et al. Young people in aged care: progress of the current national program. Aust Health Rev. 2011;35:320–326.
   PubMed Web of Science ®Google Scholar
• Smith M. Under the circumstances: the experiences of younger people living in residential aged care facilities. Contemp Nurse. 2004;16:188–198.
   Google Scholar
• Watt A, Konnert C. Quality of life in the nursing home: perspectives of younger and older residents. Can J Aging. 2007;26:403–410.
   PubMed Web of Science ®Google Scholar
• Winkler D, Farnworth L, Sloan S, et al. Comparison of people with ABI living in two accommodation settings: shared supported accommodation and residential aged care. Brain Impair. 2010;11:313–325.
   Web of Science ®Google Scholar
• Winkler D, Sloan S, Callaway L. People under 50 with acquired brain injury living in residential aged care. Brain Impair. 2010;11:299–312.
   Web of Science ®Google Scholar
• Farrell M. Old too soon: younger people with disabilities living in nursing homes in the Bray and Greystones areas of Co. Wicklow. Wicklow: Bray Area Partnership Disability Cluster Group; 2013.
   Google Scholar
• ABII. Submission to HIQA on draft National standards for residential care settings for older people in Ireland. 2014.
   Google Scholar
• Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. London (UK): Sage; 2009.
   Google Scholar
• RTÉ News. More than 1000 people with disabilities living in long-term care. [Internet]. 2015. Available from: http://www.rte.ie/news/2015/0820/722424-disability/.
   Google Scholar
• Smith J. Evaluating the contribution of interpretative phenomenological analysis. Health Psychol Rev. 2011;5:9–27.
   Web of Science ®Google Scholar
• Howes H, Benton D, Edwards S. Women's experience of brain injury: an interpretative phenomenological analysis. Psychol Health. 2005;20:129–142.
   Web of Science ®Google Scholar
• Paterson B, Scott-Findlay S. Critical issues in interviewing people with traumatic brain injury. Qual Health Res. 2002;12:399–409.
   PubMed Web of Science ®Google Scholar
• Smith J. Reflecting on the development of interpretative phenomenological analysis and its contribution to qualitative research in psychology. Qual Res Psychol. 2004b;1:39–54.
   Web of Science ®Google Scholar
• Gill IJ, Wall G, Simpson J. Clients perspectives of rehabilitation in one acquired brain injury residential rehabilitation unit: a thematic analysis. Brain Inj. 2012;26:909–920.
   PubMed Web of Science ®Google Scholar
• Callaway L, Sloan S, Winkler D. Maintaining and developing friendships following severe traumatic brain injury: principles of occupational therapy practice. Aust Occ Ther J. 2005;52:257–260.
   Google Scholar
• Goffman E. Asylums: essays on the social situation of mental patients and other inmates. New York (NY): Anchor Books; 1961.
   Google Scholar
• Winkler D, Callaway L, Sloan S, et al. Everyday choice making: outcomes of young people with acquired brain injury after moving from residential aged care to community-based supported accommodation. Brain Impair. 2015;16:221–235.
   Web of Science ®Google Scholar
• United Nations. Convention on the rights of persons with disabilities. 2006.
   Google Scholar
• Harnett T. Seeking exemptions from nursing home routines: residents everyday influence attempts and institutional order. J Aging Stud. 2010;24:292–301.
   Web of Science ®Google Scholar
• Richard M. Goffman revisited: relatives vs. administrators in nursing homes. Qual Sociol. 1986;9:321–338.
   Google Scholar
• Vignoles VL, Chryssochoou X, Breakwell GM. The distinctiveness principle: identity, meaning, and the bounds of cultural relativity. Pers Soc Psychol Rev. 2000;4:337–354.
   Web of Science ®Google Scholar
• Turner-Stokes L, Pick A, Nair A, et al. Multi-disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database Syst Rev. 2015;(12):CD004170.
   PubMed Web of Science ®Google Scholar
• Powell J, Heslin J, Greenwood R. Community based rehabilitation after severe traumatic brain injury: a randomised controlled trial. J Neurol Neurosurg Psychiatr. 2002;72:193–202.
   PubMed Web of Science ®Google Scholar
• Winkler D, Reynolds A, Klein L, et al. Housing for young people in nursing homes: a report from a social finance think tank. [Internet] 2015. Available from: https://www.summerfoundation.org.au/wp-content/uploads/2015/11/social_think_tank_report_oct_2015.pdf.
   Google Scholar