Potential benefits of the cognitive orientation to daily occupational performance approach in young adults with spina bifida or cerebral palsy: a feasibility study

References

• Stubberud J, Riemer G. Problematic psychosocial adaptation and executive dysfunction in women and men with myelomeningocele. Disabil Rehabil. 2012;34:740–746.
   PubMed Web of Science ®Google Scholar
• Lindsay S, McPherson AC, Maxwell J. Perspectives of school-work transitions among youth with spina bifida, their parents and health care providers. Disabil Rehabil. 2017;39:641–652.
   PubMed Web of Science ®Google Scholar
• Sandstrom K. The lived body: experiences from adults with cerebral palsy. Clin Rehabil. 2007;21:432–441.
   PubMed Web of Science ®Google Scholar
• Bergqvist L, Ohrvall AM, Himmelmann K, et al. When I do, I become someone: experiences of occupational performance in young adults with cerebral palsy. Disabil Rehabil. 2017. DOI:10.1080/09638288.2017.1390696
   PubMed Web of Science ®Google Scholar
• Cameron D, Craig T, Edwards B, et al. Cognitive orientation to daily occupational performance (CO-OP): a new approach for children with cerebral palsy. Phys Occup Ther Pediatr. 2017;37:183–198.
   PubMed Web of Science ®Google Scholar
• van der Slot WMA, Nieuwenhuijsen C, van den Berg-Emons RJG, et al. Participation and health-related quality of life in adults with spastic bilateral cerebral palsy and the role of self-efficacy. J Rehabil Med. 2010;42:528.
   PubMed Web of Science ®Google Scholar
• Andren E, Grimby G. Dependence in daily activities and life satisfaction in adult subjects with cerebral palsy or spina bifida: a follow-up study. Disabil Rehabil. 2004;26:528–536.
   PubMed Web of Science ®Google Scholar
• Law MC, Darrah J, Pollock N, et al. Focus on function: a cluster, randomized controlled trial comparing child- versus context-focused intervention for young children with cerebral palsy. Dev Med Child Neurol. 2011;53:621–629.
   PubMed Web of Science ®Google Scholar
• Bodimeade HL, Whittingham K, Lloyd O, et al. Executive function in children and adolescents with unilateral cerebral palsy. Dev Med Child Neurol. 2013;55:926–933.
   PubMed Web of Science ®Google Scholar
• Bottcher L. Children with spastic cerebral palsy, their cognitive functioning, and social participation: a review. Child Neuropsychol. 2010;16:209–228.
   PubMed Web of Science ®Google Scholar
• Tuminello ER, Holmbeck GN, Olson R. Executive functions in adolescents with spina bifida: relations with autonomy development and parental intrusiveness. Child Neuropsychol. 2012;18:105–124.
   PubMed Web of Science ®Google Scholar
• Dennis M, Barnes MA. The cognitive phenotype of spina bifida meningomyelocele. Dev Disabil Res Rev. 2010;16:31–39.
   PubMed Web of Science ®Google Scholar
• Lezak MD, Howieson DB, Bigler ED, Tranel D. Neuropsychological assessment. 5th ed. Oxford: University Press Inc; 2012.
   Google Scholar
• Peny-Dahlstrand M. A model for the process of task performance to explain difficulties’ in daily life in persons with spina bifida. J Pediatr Rehabil Med. 2017;10:S23–S25.
   PubMedGoogle Scholar
• Harvey S, Goudvis A. Strategies that work: teaching comprehension for understanding and engagement. 2nd ed. Portland (ME): Stenhouse Publishers; 2007.
   Google Scholar
• Toglia JP, Rodger SA, Polatajko HJ. Anatomy of cognitive strategies: a therapist’s primer for enabling occupational performance. Can J Occup Ther. 2012;79:225–236.
   PubMed Web of Science ®Google Scholar
• Novak I, McIntyre S, Morgan C, et al. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Child Neurol. 2013;55:885–910.
   PubMed Web of Science ®Google Scholar
• Lowing K, Bexelius A, Brogren Carlberg E. Activity focused and goal directed therapy for children with cerebral palsy–do goals make a difference? Disabil Rehabil. 2009;31:1808–1816.
   PubMed Web of Science ®Google Scholar
• Miller C, Bauman J. Goal setting: an integral component of effective diabetes care. Curr Diab Rep. 2014;14:509.
   PubMed Web of Science ®Google Scholar
• Barker RN, Sealey CJ, Polley ML, et al. Impact of a person-centred community rehabilitation service on outcomes for individuals with a neurological condition. Disabil Rehabil. 2017;39:1136–1142.
   PubMed Web of Science ®Google Scholar
• Stubberud J, Langenbahn D, Levine B, et al. Goal Management Training improves everyday executive functioning for persons with spina bifida: self-and informant reports six months post-training. Neuropsychol Rehabil. 2014;24:26–60.
   PubMed Web of Science ®Google Scholar
• Donlau M, Mattsson S, Glad-Mattsson G. Children with myelomeningocele and independence in the toilet activity: a pilot study. Scand J Occup Ther. 2013;20:64–70.
   PubMed Web of Science ®Google Scholar
• Polatajko HJ, Mandich AD. Enabling occupation in children: the Cognitive Orientation to daily Occupational Performance (CO-OP) approach. Ottawa, Canada: CAOT Publications ACE; 2004.
   Google Scholar
• Martini R, Polatajko HJ. Verbal self-guidance as a treatment approach for children with developmental coordination disorder: a systematic replication study. OTJR Occup Part Health. 1998;18:157–181.
   Google Scholar
• Jokic CS, Polatajko H, Whitebread D. Self-regulation as a mediator in motor learning: the effect of the cognitive orientation to occupational performance approach on children with DCD. Adap Phys Act Quart. 2013;30:103–126.
   PubMed Web of Science ®Google Scholar
• Thornton A, Licari M, Reid S, et al. Cognitive Orientation to (Daily) Occupational Performance intervention leads to improvements in impairments, activity and participation in children with Developmental Coordination Disorder. Disabil Rehabil. 2016;38:979–986.
   PubMed Web of Science ®Google Scholar
• McEwen S, Polatajko H, Baum C, et al. Combined cognitive-strategy and task-specific training improve transfer to untrained activities in subacute stroke: an exploratory randomized controlled trial. Neurorehabil Neural Repair. 2015;29:526–536.
   PubMed Web of Science ®Google Scholar
• Poulin V, Korner-Bitensky N, Bherer L, et al. Comparison of two cognitive interventions for adults experiencing executive dysfunction post-stroke: a pilot study. Disabil Rehabil. 2017;39:1–13.
   PubMed Web of Science ®Google Scholar
• Wolf TJ, Polatajko H, Baum C, et al. Combined cognitive-strategy and task-specific training affects cognition and upper-extremity function in subacute stroke: an exploratory randomized controlled trial. Am J Occup Ther. 2016;70:7002290010p1–7002290010p1-p10.
   PubMed Web of Science ®Google Scholar
• Dawson DR, Binns MA, Hunt A, et al. Occupation-based strategy training for adults with traumatic brain injury: a pilot study. Arch Phys Med Rehabil. 2013;94:1959–1963.
   PubMed Web of Science ®Google Scholar
• Gharebaghy S, Rassafiani M, Cameron D. Effect of cognitive intervention on children with ADHD. Phys Occup Ther Pediatr. 2015;35:13–23.
   PubMed Web of Science ®Google Scholar
• Jackman M, Novak I, Lannin N, et al. Parents’ experience of undertaking an intensive cognitive orientation to daily occupational performance (CO-OP) group for children with cerebral palsy. Disabil Rehabil. 2017;39:1018–1024.
   PubMed Web of Science ®Google Scholar
• Scammell EM, Bates SV, Houldin A, et al. The cognitive orientation to daily occupational performance (CO-OP): a scoping review. Can J Occup Ther. 2016;83:216–225.
   PubMed Web of Science ®Google Scholar
• Bowen DJ, Kreuter M, Spring B, et al. How we design feasibility studies. Am J Prev Med. 2009;36:452–457.
   PubMed Web of Science ®Google Scholar
• Yin RK. Case study research design and methods. 5th ed. London: SAGE Publications, Inc; 2013.
   Google Scholar
• Curtin M, Fossey E. Appraising the trustworthiness of qualitative studies: guidelines for occupational therapists. Aust Occ Ther J. 2007;54:88–94.
   Web of Science ®Google Scholar
• Polatajko HJ, Mandich AD, Missiuna C, et al. Cognitive orientation to daily occupational performance (CO-OP): part III–the protocol in brief. Phys Occup Ther Pediatr. 2001;20:107–123.
   PubMedGoogle Scholar
• Skidmore ER, Holm MB, Whyte EM, et al. The feasibility of meta-cognitive strategy training in acute inpatient stroke rehabilitation: case report. Neuropsychol Rehabil. 2011;21:208–223.
   PubMed Web of Science ®Google Scholar
• Law M, Baptiste S, Carswell A, et al. COPM Canadian occupational performance measure. 5th ed. Ottawa, Canada: CAOT Publications ACE; 2014.
   Google Scholar
• Martini R, Rios J, Polatajko H, et al. The performance quality rating scale (PQRS): reliability, convergent validity, and internal responsiveness for two scoring systems. Disabil Rehabil. 2015;37:231–238.
   PubMed Web of Science ®Google Scholar
• Eliasson AC, Krumlinde-Sundholm L, Rosblad B, et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48:549–554.
   PubMed Web of Science ®Google Scholar
• Law M, Baptiste S, Carswell A, et al. COPM Canadian occupational performance measure. 4th ed. Nacka, Sweden: Förbundet Sveriges Arbetsterapeuter; 2006.
   Google Scholar
• World Health Organization. International classification of functioning, disability and health: children & youth version: ICF-CY. Geneva: World Health Organization; 2007.
   Google Scholar
• Baron K, Kielhofner G, Goldhammar V, et al. Min Mening: ett självskattningsinstrument med fokus på aktivitetsförmåga, fysisk och social miljö, värderingar och prioriteringar. 2.2 ed. In: Sjöberg EM, editor. Nacka, Sweden: Förbundet Sveriges Arbetsterapeuter; 2012.
   Google Scholar
• Baron K, Kielhofner G, Goldhammar V, et al. Occupational self assessment (OSA). Chicago (IL): University of Illinois; 2006.
   Google Scholar
• Kielhofner G, Forsyth K. Measurement properties of a client self-report for treatment planning and documenting therapy outcomes. Scand J Occup Ther. 2001;8:131–139.
   Google Scholar
• Kielhofner G, Dobria L, Forsyth K, et al. The occupational self assessment: stability and the ability to detect change over time. OTJR. 2010;30:11–19.
   Web of Science ®Google Scholar
• Fisher AG, K. BJ Assessments of motor and process skills: volume 1 - development, standardization, and administration manual. 7th ed. Fort Collins, Colorado: Three Star Press Inc; 2011.
   Google Scholar
• Kottorp A, Bernspang B, Fisher AG. Validity of a performance assessment of activities of daily living for people with developmental disabilities. J Intellect Disabil Res. 2003;47:597–605.
   PubMed Web of Science ®Google Scholar
• Wilson BA, Alderman N, Burgess PW, et al. Behavioural assessment of the dysexecutive syndrome manual. Bury St Edmunds, England: Thames Valley Test Company; 1996.
   Google Scholar
• Delis D, Kaplan D, Kramer JH. Delis-kaplan executive function system, D-KEFS, examiners manual. San Antonio (TX): Psychological Corporation; 2001.
   Google Scholar
• Wechsler D. WAIS-IV technical and interpretive manual. 4 ed. San Antonio (TX): Pearson; 2008.
   Google Scholar
• McEwen S, Polatajko H, Wolf T, et al. CO-OP fidelity checklist: CO-OP academy; 2012 [updated 2015 Feb; cited 2017 Aug 21]. Available from: http://co-opacademy.ca/wp-content/uploads/2016/03/CO-OPFidelityChecklistApril92015FINAL.pdf
   Google Scholar
• S. Riksdag Patientlagen (SFS 2014:821) [Internet] Stockholm: Socialdepartementet; 2014 [cited 2017 Nov 02]. Available from: https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/patientlag-2014821_sfs-2014-821
   Google Scholar
• United Nations. United nations convention on the rights of persons with disabilities: united nations; 2006 [updated 2017 Nov 02]. Available from: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
   Google Scholar
• Habilitering-&-Hälsa. Habiliteringen [internet] Göteborg: Habilitering & Hälsa Västra Götalandsregionen; [updated 2017 Oct 18]. Available from: http://www.vgregion.se/f/habilitering-och-halsa/om-habilitering-halsa/verksamhet/habiliteringen/
   Google Scholar
• Habilitering-&-Hälsa. Habilitering och andra insatser [internet] Stockholm: Habilitering & Hälsa Stockholms läns landsting; 2016 [updated Jun 29]. Available from: http://habilitering.se/habilitering-och-andra-insatser
   Google Scholar
• Föreningen Sveriges Habiliteringschefer. Habilitering Stockholm: Föreningen Sveriges Habiliteringschefer; [Internet] 2007–2017. Available from: http://habiliteringisverige.se/habilitering/om-hab
   Google Scholar
• Cieza A, Geyh S, Chatterji S, et al. ICF linking rules: an update based on lessons learned. J Rehabil Med. 2005;37:212–218.
   PubMed Web of Science ®Google Scholar
• Hammell KW. Dimensions of meaning in the occupations of daily life. Can J Occup Ther. 2004;71:296–305.
   PubMedGoogle Scholar
• Kingsnorth S, Healy H, Macarthur C. Preparing for adulthood: a systematic review of life skill programs for youth with physical disabilities. J Adolesc Health. 2007;41:323–332.
   PubMed Web of Science ®Google Scholar
• Jacobson LA, Tarazi RA, McCurdy MD, et al. The Kennedy Krieger Independence Scales-Spina Bifida Version: a measure of executive components of self-management. Rehabil Psychol. 2013;58:98–105.
   PubMed Web of Science ®Google Scholar
• Toglia J, Johnston MV, Goverover Y, et al. A multicontext approach to promoting transfer of strategy use and self regulation after brain injury: an exploratory study. Brain Inj. 2010;24:664–677.
   PubMed Web of Science ®Google Scholar
• McEwen SE, Polatajko HJ, Davis JA, et al. ‘There’s a real plan here, and I am responsible for that plan’: participant experiences with a novel cognitive-based treatment approach for adults living with chronic stroke. Disabil Rehabil. 2010;32:541–550.
   Web of Science ®Google Scholar
• Muir T, Beswick K, Williamson J. Approaches to problem solving: developing an understanding of naive, routine and sophisticated problem solving behaviours, The psychology of problem solving: an interdisciplinary approach. New York (NY): Nova Science Publishers, Inc; 2013.
   Google Scholar
• Kim YR, Park MS, Moore TJ, et al. Multiple levels of metacognition and their elicitation through complex problem-solving tasks. J Math Behav. 2013;32:377–396.
   Google Scholar
• Powell J, Heslin J, Greenwood R. Community based rehabilitation after severe traumatic brain injury: a randomised controlled trial. J Neurol Neurosurg Psychiatry. 2002;72:193–202.
   PubMed Web of Science ®Google Scholar
• Schwartz CE, Andresen EM, Nosek MA, et al. Response shift theory: important implications for measuring quality of life in people with disability. Arch Phys Med Rehabil. 2007;88:529–536.
   PubMed Web of Science ®Google Scholar
• Bandura A. Self-efficacy the exercise of control. New York (NY): W.H Freeman and Company; 1997.
   Google Scholar
• Barclay-Goddard R, Epstein JD, Mayo NE. Response shift: a brief overview and proposed research priorities. Qual Life Res. 2009;18:335–346.
   PubMed Web of Science ®Google Scholar
• Dawson DR, Gaya A, Hunt A, et al. Using the cognitive orientation to occupational performance (CO-OP) with adults with executive dysfunction following traumatic brain injury. Can J Occup Ther. 2009;76:115–127.
   PubMed Web of Science ®Google Scholar