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Perspectives in Rehabilitation

Brain injury, behaviour support, and family involvement: putting the pieces together and looking forward

, , ORCID Icon &
Pages 1305-1315 | Received 12 Apr 2018, Accepted 08 Sep 2018, Published online: 17 Jan 2019

References

  • Kelly G, Brown S, Todd J. Challenging behaviour profiles of people with acquired brain injury living in community settings. Brain Inj. 2008;22:457–470.
  • Anderson MI, Parmenter TR, Mok M. The relationship between neurobehavioural problems of severe traumatic brain injury (TBI), family functioning and the psychological well- being of the spouse/caregiver: path model analysis. Brain Inj. 2002;16:743–757.
  • Murray HM, Maslany GW, Jeffery B. Assessment of family needs following acquired brain injury in Saskatchewan. Brain Inj. 2006;20:575–585.
  • Munce SEP, Laan RV, Levy C, et al. Systems analysis of community and health services for acquired brain injury in Ontario, Canada. Brain Inj. 2014;28:1042–1051.
  • de Koning ME, Spikman JM, Coers A, et al. Pathways of care the first year after moderate and severe traumatic brain injury-Discharge destinations and outpatient follow-up. Brain Inj. 2015;29:423–429.
  • Kitter B, Sharman R. Caregivers' support needs and factors promoting resiliency after brain injury. Brain Inj. 2015;29:1082–1093.
  • Turner B, Fleming J, Ownsworth T, et al. Perceived service and support needs during transition from hospital to home following acquired brain injury. Disabil Rehabil. 2011;33:818–829.
  • Fisher A, Bellon M, Lawn S, et al. Identifying current practices and supports in behaviour management following ABI in South Australian community settings: a Delphi study. Brain Impair. 2017;18:1–15.
  • Feeney TJ, Achilich J. Structured flexibility and context-sensitive behavioral support for the chronically cranky. Neuro Rehabil. 2014;34:709–723.
  • Ponsford JL, Downing MG, Olver J, et al. Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury. J Neurotrauma. 2014;31:64–77.
  • Sabaz M, Simpson GK, Walker AJ, et al. Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: a multicenter study. J Head Trauma Rehabil. 2014;29:E19–E30.
  • Tateno A, Jorge RE, Robinson RG. Clinical correlates of aggressive behavior after traumatic brain injury. Jnp. 2003;15:155–160.
  • Simpson GK, Sabaz M, Daher M. Prevalence, clinical features, and correlates of inappropriate sexual behavior after traumatic brain injury: a multicenter study. J Head Trauma Rehabil. 2013;28:202–210.
  • Mathias JL, Coats JL. Emotional and cognitive sequelae to mild traumatic brain injury. J Clin Exp Neuropsychol. 1999;21:200–215.
  • Gould KR, Ponsford JL, Spitz G. Association between cognitive impairments and anxiety disorders following traumatic brain injury. J Clin Exp Neuropsychol. 2014;36:1–14.
  • Kant R, Duffy JD, Pivovarnik A. Prevalence of apathy following head injury. Brain Inj. 1998;12:87–92.
  • Kersel DA, Marsh NV, Havill JH, et al. Psychosocial functioning during the year following severe traumatic brain injury. Brain Inj. 2001;15:683–696.
  • Gelber DA, Callahan CD. Neurologic examination of the patient with traumatic brain injury. In: Ashley MJ, editor. Traumatic brain injury: rehabilitation, treatment, and case management. 3rd ed. Broca Raton, FL: CRC Press; 2010. p. 3–27.
  • Tittle A, Burgess GH. Relative contribution of attention and memory toward disorientation or post-traumatic amnesia in acute brain injury sample. Brain Inj. 2011;25:933–942.
  • Sherer M, Nakase-Thompson R, Yablon SA, et al. Multidimensional assessment of acute confusion after traumatic brain injury. Arch Phys Med Rehabil. 2005;86:896–904.
  • Kurtz JE, Putnam SH, Stone C. Stability of normal personality traits after traumatic brain injury. J Head Trauma Rehabil. 1998;13:1–14.
  • Alderman N. Management of challenging behaviour. In: Wood RL, McMillan T, editors. Neurobehavioural disability and social handicap following traumatic brain injury. Hove: Psychology Press; 2001. p. 179–208.
  • Bogner J, Shannon T. Behavioral impairment: recognition and management. In: Zollman FS, editor. Manual of traumatic brain injury assessment and management. 2nd ed. New York: Demos Medical Publishing; 2016. p. 279–288.
  • Gardner RM, Bird FL, Maguire H, et al. Intensive positive behavior supports for adolescents with acquired brain injury: long-term outcomes in community settings. J Head Trauma Rehabil. 2003;18:52–74.
  • Ylvisaker M, Jacobs HE, Feeney T. Positive supports for people who experience behavioral and cognitive disability after brain injury: a review. J Head Trauma Rehabil. 2003;18:7–32.
  • Jumisko E, Lexell J, Söderberg S. Living with moderate or severe traumatic brain injury: the meaning. J Fam Nurs. 2007;13:353–369.
  • Lefebvre H, Cloutier G, Levert MJ. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22:535–543.
  • Sander AM, Caroselli JS, Jr WMH, et al. Relationship between family functioning and patients' progress in post-acute TBI rehabilitation. J Int Neuropsychol Soc. 2002;16:649–657.
  • Sander A, Maestas K, Sherer M, et al. Relationship of caregiver and family functioning to participation outcomes following post-acture rehabilitation for traumatic brain injury: a multicenter investigation. Arch Phys Med Rehabil. 2012;93:842–848.
  • Macaden AS, Chandler BJ, Chandler C, et al. Sustaining employment after vocational rehabilitation in acquired brain injury. Disabil Rehabil. 2010;32:1140–1147.
  • Fisher A, Lennon S, Bellon M, et al. Family involvement in behaviour management following acquired brain injury (ABI) in community settings: a systematic review. Brain Inj. 2015;29:661–675.
  • Quinn M, Carr A, Carroll L, et al. Parents plus programme 1: evaluation of its effectiveness for pre-school children with developmental disabilities and behavioural problems. J Appl Res Int Dis. 2007;20:345–359.
  • Annette H, Rollings CA. Group for the parents and careers of children with severe intellectual disabilities and challenging behavior. Edu Child Psychol. 2009;26:47–54.
  • Gore N, Umizawa H. Challenging behavior training for teaching staff and family carers of children with intellectual disabilities: a preliminary evaluation. J Policy Prac Intell Disabil. 2011;8:266–275.
  • Feeney T, Ylvisaker M. Choice and routine: antecedent behavioural interventions for adolescents with severe traumatic brain injury. J Head Trauma Rehabil. 1995;10:71–86.
  • Feeney T, Ylvisaker M. Context-sensitive behavioral supports for young children with TBI. J Head Trauma Rehabil. 2003;18:33–51.
  • Feeney T, Ylvisaker M. Context-sensitive cognitive-behavioural supports for young children with TBI: a replication study. Brain Inj. 2006;20:629–645.
  • Feeney T, Ylvisaker M. Context-sensitive cognitive-behavioral supports for young children with TBI: a second replication study. J Posit Behav Interv. 2008;10:115–128.
  • Arco L, Bishop J. Single participant studies in positive behaviour support for parents of individuals with brain injuries. Brain Impair. 2009;10:307–319.
  • AIHW. Disability in Australia: acquired brain injury: Australian Institute of Health and Welfare; 2007 [cited 2016 Aug 16]. Available from: www.aihw.gov.au
  • Ponsford J, Sloan S, Snow P, editors. Traumatic brain injury: rehabilitation for everyday adaptive living. 2nd ed. Hove, East Sussex: Psychology Press; 2013.
  • Rao V, Vaishnavi S. The traumatized brain. USA: Johns Hopkins University Press; 2015.
  • Rees R. Interrupted lives: rehabilitation & learning following brain injury. Victoria, Australia: IP Commuications Pty. Ltd; 2005.
  • Fisher A, Bellon M, Lawn S, et al. Family-directed approach to brain injury management (FAB) model: a preliminary framework to guide family-directed intervention for indviduals with brain injury. Disabil Rehabil. 2017;24:1–7.
  • Turner B, Fleming J, Cornwell P, et al. A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers. Brain Inj. 2007;21:1119–1130.
  • Braine ME. The experience of living with a family member with challenging behavior post acquired brain injury. J Neurosci Nurs. 2011;43:156–164.
  • Kratz AL, Sander AM, Brickell TA, et al. Traumatic brain injury caregivers: a qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychol Rehabil. 2017;27:16–37.
  • Larøi F. Case study: the family systems approach to treating families of persons with brain injury: a potential collaboration between family therapist and brain injury professional. Brain Inj. 2003;17:175–187.
  • Lefebvre H, Pelchat D, Swaine B, et al. The experiences of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum. Brain Inj. 2005;19:585–597.
  • Fleming J, Sampson J, Cornwell P, et al. Brain injury rehabilitation: the lived experience of inpatients and their family caregivers. Scand J Occup Ther. 2012;19:184–193.
  • Degeneffe CE. Family caregiving and traumatic brain injury. Health Soc Work. 2001;26:257.
  • Lezak MD. Brain damage is a family affair. J Clin Exp Neuropsychol. 1988;10:111–123.
  • Lezak MD. Living with the characterologically altered brain injured patient. J Clin Psychiatry. 1978;39:592–598.
  • Livingston MG, Brooks DN. Families of the brain injured (Special issue, J2712). J Head Trauma Rehabil. 1988;3:6–112.
  • McKinlay WW, Brooks DN, Bond MR, et al. The short-term outcome of severe blunt head injury as reported by relatives of the injured persons. J Neurol Neurosurg Psychiatry. 1981;44:527–533.
  • Oddy M, Humphrey M, Uttley D. Stresses upon the relatives of head-injured patients. Br J Psychiatry. 1978;133:507–513.
  • Romano MD. Family response to traumatic head injury. Scand J Rehabil Med. 1974;6:1–4.
  • Thomsen IV. The patient with severe head injury and his family. A follow-up study of 50 patients. Scand J Rehabil Med. 1974;6:180–183.
  • Klonoff PS. Psychotherapy for families after brain injury. New York: Springer; 2014.
  • Brooks N. Head injury and the family. In: Brooks N, editor. Closed head injury: psychological, social, and family consequences. Oxford: Oxford University Press; 1984. p. 123–147.
  • Kreutzer JS, Marwitz JH, Kepler K. Traumatic brain injury: family response and outcome. Arch Phys Med Rehabil. 1992;73:771–778.
  • Marsh NV, Kersel DA, Havill JH, et al. Caregiver burden during the year following severe traumatic brain injury. J Clin Exp Neuropsychol. 2002;24:434–447.
  • Montgomery V, Oliver R, Reisner A, et al. The effect of severe traumatic brain injury on the family. J Trauma. 2002;52:1121–1124.
  • Oddy M, Herbert C. Brain injury and the family: a review. In: Tyerman A, King NS, editors. Psychological approaches to rehabilitation after traumatic brain injury. Malden (MA): Blackwell Publishing Ltd; 2008. p. 431–448.
  • Oddy M, Herbert C. Intervention with families following brain injury: evidence-based practice. Neuropsychol Rehabil. 2003;13:259–273.
  • Piccenna L, Lannin NA, Gruen R, et al. The experience of discharge for patients with an acquired brain injury from the inpatient to the community setting: a qualitative review. Brain Inj. 2016;30:241–251.
  • Acorn S. Assisting families of head-injured survivors through a family support programme. J Adv Nurs. 1995;21:872–877.
  • Albert SM, Im A, Brenner L, et al. Effect of a social work liaison program on family caregivers to people with brain injury. J Head Trauma Rehabil. 2002;17:175–189.
  • Brown R, Pain K, Berwald C, et al. Distance education and caregiver support groups: comparison of traditional and telephone groups. J Head Trauma Rehabil. 1999;14:257–268.
  • Kreutzer JS, Stejskal TM, Ketchum JM, et al. A preliminary investigation of the brain injury family intervention: impact on family members. Brain Inj. 2009;23:535–547.
  • Rivera PA, Elliott TR, Berry JW, et al. Problem-solving training for family caregivers of persons with traumatic brain injuries: a randomized controlled trial. Arch Phys Med Rehabil. 2008;89:931.
  • Sinnakaruppan I, Downey B, Morrison S. Head injury and family carers: a pilot study to investigate an innovative community-based educational programme for family carers and patients. Brain Inj. 2005;19:283–308.
  • Smith LM, Godfrey HPD. Family support programs and rehabilitation: a cognitive-behavioral approach to traumatic brain injury. New York: Plenum Press; 1995.
  • Kreutzer JS, Marwitz JH, Sima AP, et al. Efficacy of the brain injury family intervention: impact on family members. J Head Trauma Rehabil. 2015;30:249–260.
  • Carnevale GJ, Anselmi V, Johnston MV, et al. A natural setting behavior management program for persons with acquired brain injury: a randomized controlled trial. Arch Phys Med Rehabil. 2006;87:1289–1297.
  • Wade SL, Walz NC, Carey JC, et al. Preliminary efficacy of a web-based family problem-solving treatment program for adolescents with traumatic brain injury. J Head Trauma Rehabil. 2008;23:369–378.
  • Fisher A, Bellon M, Lawn S, et al. The development of a positive behaviour support program for families following acquired brain injury. Int J Ther Rehabil. 2018;25:2–15.
  • Carr EG, Dunlap G, Horner RH, et al. Positive behavior support: evolution of an applied science. J Positiv Behav Interv. 2002;4:4–16.
  • Fisher A, Bellon M, Lawn S, et al. Family-directed positive behaviour support following brain injury: a pilot study of the FAB-PBS program. Brain Impair. 2018;Under Review.
  • Foster AM, Armstrong J, Buckley A, et al. Encouraging family engagement in the rehabilitation process: a rehabilitation provider's development of support strategies for family members of people with traumatic brain injury. Disabil Rehabil. 2012;34:1855–1862.
  • Gagnon A, Lin J, Stergiou-Kita M. Family members facilitating community re-integration and return to productivity following traumatic brain injury - motivations, roles, and challenges. Disabil Rehabil. 2016;38:433–441.
  • Boschen K, Gargaro J, Gan C, et al. Family interventions after acquired brain injury and other chronic conditions: a critical appraisal of the quality of the evidence. Neuro Rehabil. 2007;22:19–41.
  • Turner-Stokes L, Wade D. Rehabilitation following acquired brain injury: concice guidance. Clin Med. 2004;4:61–65.
  • Wade SL, Walz NC, Carey JC, et al. Brief report: description of feasibility and satisfaction findings from an innovative online family problem-solving intervention for adolescents following traumatic brain injury. J Pediatr Psychol. 2009;34:517–522.
  • Woods DT, Catroppa C, Eren S, et al. Helping families to manage challenging behaviour after paediatric traumatic brain injury (TBI): a model approach and review of the literature. Soc Care Neurodisability. 2013;4:94–104.
  • Gan C, Gargaro J, Kreutzer JS, et al. Development and preliminary evaluation of a structured family system intervention for adolescents with brain injury and their families. Brain Inj. 2010;24:651–663.
  • Khan F, Baguley IJ, Cameron I. 4: rehabilitation after traumatic brain injury. Med J Aust. 2003;178:290–295.
  • Arciniegas DB, McAllister TW. Neurobehavioral management of traumatic brain injury in the critical care setting. Crit Care Clin. 2008;24:737–765.
  • Raskin SA. Current approaches to rehabilitation. In: Raskin SA, editor. Neuroplasticity and rehabilitation. New York, USA: The Guilford Press; 2011. p. 1–9.
  • Kolb B, Cioe J, Williams P. Neuronal organization and change after brain injury. In: Raskin SA, editor. Neuroplasticity and rehabilitation. New York, USA: The Guilford Press; 2011. p. 13–37.
  • Meier MJ, Strauman S, Thompson WG. Individual differences in neuropsychological recovery: an overview. In: Meier MJ, Benton AL, Diller L, editors. Neuropsychological rehabilitation. New York: Churchill Livingstone; 1987. p. 71–111.
  • Morris DM, Bickel CS. Activity-based interventions for neurorehabilitation. In: Raskin SA, editor. Neuroplasticity and rehabilitation. New York, USA: The Guilford Press; 2011. p. 117–148.
  • Fleminger S, Ponsford J. Long term outcome after traumatic brain injury. Bmj. 2005;331:1419–1420.
  • Cattelani R, Zettin M, Zoccolotti P. Rehabilitation treatments for adults with behavioral and psychosocial disorders following acquired brain injury: a systematic review. Neuropsychol Rev. 2010;20:52–85.
  • Nash S, Luaute J, Bar JY, et al. Cognitive and behavioural post-traumatic impairments: what is the specificity of a brain injury ? A study within the ESPARR cohort. Ann Phys Rehabil Med. 2014;57:600–617.
  • Arciniegas DB, Wortzel HS. Emotional and behavioral dyscontrol after traumatic brain injury. Psychiatr Clin North Am. 2014;37:31–53.
  • Worthington A, Wood RL, McMillan TM. Neurobehavioural disability over the past four decades. In: McMillan TM, Wood RL, editors. Neurobehavioural disability and social handicap following traumatic brain injury. 2nd ed. Oxon: Routledge Taylor & Francis Group; 2017. p. 3–14.
  • Starkstein S, Robinson R. Mechanism of disinhibition after brain lesions. J Nerv Ment Dis. 1997;185:108–114.
  • Pryor J. What environmental factors irritate people with acquired brain injury? Disabil Rehabil. 2004;26:974–980.
  • McMillan TM. Outcome of rehabilitation for neurobehavioural disorders. Neuro Rehabil. 2013;32:791–801.
  • Yody BB, Schaub C, Conway J, et al. Applied behavior management and acquired brain injury: approaches and assessment. J Head Trauma Rehabil. 2000;15:1041–1060.
  • Alderman N, Knight C, Brooks J. Rehabilitation approaches to the management of aggressive behaviour disorders after acquired brain injury. Brain Impair. 2013;14:5–20.
  • Kelly G, Todd J, Simpson G, et al. The overt behaviour scale (OBS): a tool for measuring challenging behaviours following ABI in community settings. Brain Inj. 2006;20:307–319.
  • Lucyshyn JM, Dunlap G, Freeman EA. A historical perspective on the evolution of positive behavior support as a science-based discipline. In: Brown F, Anderson JL, De Pry RL, editors. Individual positive behaviour supports: a standards-based guide to practices in school and community settings. Baltimore (MD): Paul H Brookes Publishing Co.; 2015. p. 3–25.
  • Rahman B, Oliver C, Alderman N. Descriptive analysis of challenging behaviours shown by adults with acquired brain injury. Neuropsychol Rehabil. 2010;20:212–238.
  • Bhalerao SU, Geurtjens C, Thomas GR, et al. Understanding the neuropsychiatric consequences associated with significant traumatic brain injury. Brain Inj. 2013;27:767–774.
  • Fleminger S, Greenwood RRJ, Oliver DL. Pharmacological management for agitation and aggression in people with acquired brain injury. Cochr Collab. 2008;4:1–28.
  • Wiart L, Luaute J, Stefan A, et al. Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Ann Phys Rehabil Med. 2016;59:31–41.
  • Wood RL, Thomas RH. Impulsive and episodic disorders of aggressive behaviour following traumatic brain injury. Brain Inj. 2013;27:253–261.
  • Alderman N. Contemporary approaches to the management of irritability and aggression following traumatic brain injury. Neuropsychol Rehabil. 2003;13:211–240.
  • Demark J, Gemeinhardt M. Anger and it's management for survivors of acquired brain injury. Brain Inj. 2002;16:91–108.
  • Ylvisaker M, Turkstra L, Coehl C, et al. Behavioural interventions for children and adults with behaviour disorders after TBI: a systematic review of the evidence. Brain Inj. 2007;21:769–805.
  • Alderman N, Williams C, Knight C, et al. Neurobehavioural approaches to the rehabilitation of challenging behaviour. Neuro Rehabil. 2017;32:951–770.
  • Worthington A, Alderman N. Neurobehavioural rehabilitation: a developing paradigm. In: McMillan TM, Wood RL, editors. Neurobehavioural disability and social handicap following traumatic brain injury. 2nd ed. Oxon: Routledge Taylor & Francis Group; 2017. p. 15–29.
  • Lewis T. Applied behavior analysis as a conceptual framework for understanding positive behaviour support. In: Brown F, Anderson JL, De Pry RL, editors. Individual positive behaviour support: a standards-based guide to practices in school and community settings. Baltimore, Maryland: Paul H. Brookes Publishing Co., Inc.; 2015. p. 107–122.
  • Horner RH. Positive behavior support. Focus Autism Other Dev Disabl. 2000;15:97–105.
  • Loman SL, Sanford AK. Antecedent strategies to change behavior. In: Brown F, Anderson JL, De Pry RL, editors. Individual positive behaviour supports: a standards-based guide to practices in school and community settings. Baltimore, Maryland: Paul H. Brookes Publishing Co. Inc.; 2015. p. 123–143.
  • Alderman N, Knight C. The effectiveness of DRL in the management and treatment of severe behaviour disorders following brain injury. Brain Inj. 1997;11:79–101.
  • Wood RL, Alderman N. Applications of operant learning theory to the management of challenging behavior after traumatic brain injury. J Head Trauma Rehabil. 2011;26:202–211.
  • Wood RL. Brain injury rehabilitation: a neurobehavioural approach. London: Croom Helm; 1987.
  • Stewart I, Alderman N. Active versus passive management of post-acquired brain injury challenging behaviour: a case study analysis of multiple operant procedures in the treatment of challenging behaviour maintained by negative reinforcement. Brain Inj. 2010;24:1616–1627.
  • McDonnell A. Managing aggressive behaviour in care settings: understanding and applying low arousal approaches. Chichester, UK: Wiley Blackwell; 2010.
  • Borgmeier C, Rodriguez BJ. Consequence strategies to change behavior. In: Brown F, Anderson JL, De Pry RL, editors. Individual positive behavior supports: a standards-based guide to practices in school and community settings. Baltimore, Maryland: Paul H. Brookes Publishing Co.; 2015. p. 145–179.
  • Giles GM, Wilson J, Dailey W. Non-aversive treatment of repetitive absconding behaviour in clients with severe neuropsychiatric disorders. Neuropsychol Rehabil. 2009;19:28–40.
  • Ylvisaker M, Turkstra LS, Coelho C. Behavioral and social interventions for individuals with traumatic brain injury: a summary of the research with clinical implications. Semin Speech Lang. 2005;26:256–267.
  • Johnston JM, Foxx RM, Jacobson JW, et al. Positive behavior support and applied behavior analysis. Behav Analyst. 2006;29:51–74.
  • Janney R, Snell ME. Behavioral support. Baltimore: Paul H. Brookes Publishing Co.; 2008.
  • LaVigna GW, Willis TJ. The efficacy of positive behaivoural support with the most challenging behaviour: the evidence and its implications. J Intellect Dev Disabil. 2012;37:185–195.
  • McIntosh K. Positive behavioral interventions and supports–soutien au comportement positif (PBIS-SCP) in Canada: deep history, promising future. Can J Sch Psychol. 2014;29:155–160.
  • Carr EG, Horner RH. Expanding vision of positive behavior support: research perspectives on happiness, helpfulness, hopefulness. J Positiv Behav Interv. 2007;9:3–14.
  • Damasio AR. Descartes' error: emotion, reason, and the human brain. New York: Avon Books; 1994.
  • Rolls ET. The orbitofrontal cortex and reward. Cereb Cortex. 2000;10:284–294.
  • Schlund MW. The effects of brain injury on choice and sensitivity to remote consequences: deficits in discriminating response-consequences relations. Brain Inj. 2002;16:347–357.
  • Narevic E, Giles GM, Rajadhyax R, et al. The effects of enhanced program review and staff training on the management of aggression among clients in a long-term neurobehavioral rehabilitation program. Aging Ment Health. 2011;15:103–112.
  • Ylvisaker M, Feeney T. Collaborative brain injury intervention: positive everyday routines. Clifton Park, New York: Thomson Delmar Learning; 1998.
  • Kelly G, Parry A. Managing challenging behaviour of people with acquired brain injury in community settings: the first 7 years of a specialist clinical service. Brain Impair. 2008;9:293–304.
  • Kelly G, Simpson G. Remediating serious inappopriate sexual behavior in a male with severe acquired brain injury. Sex Disabil. 2011;29:313–327.
  • Feeney TJ. Structured flexibility: the use of context-sensitive self-regulatory scripts to support young persons with acquired brain injury and behavioral difficulties. J Head Trauma Rehabil. 2010;25:416–425.
  • Feeney TJ, Capo M. Making meaning: the use of project-based supports for individuals with brain injury. J Behav Neurosci Res. 2010;8:70–80.
  • Braga LW, da Paz Júnior AC, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj. 2005;19:819–831.
  • Sohlberg MM, Turkstra L. Optimizing cognitive rehabilitation: effective instructional methods. New York: The Guilford Press; 2011.
  • Sohlberg MM, Glang A, Todis B. Improvement during baseline: three case studies encouraging collaborative research when evaluating caregiver training. Brain Inj. 1998;12:333–346.
  • Kuipers P, Doig E, Kendall M, et al. Hope: a further dimension for engaging family members of people with ABI. Neuro Rehabil. 2014;35:475–480.
  • Coco K, Tossavainen K, Jääskeläinen JE, et al. Support for traumatic brain injury patients' family members in neurosurgical nursing: a systematic review. J Neurosci Nurs. 2011;43:337–348.
  • Degeneffe CE, Lee GK. Brain injury and the family: a guide for rehabilitation counselors. In: Millington MJ, Marini I, editors. Families in rehabilitation counselling: a community-based rehabilitation approach. New York: Springer Publishing Company; 2015. p. 153–170.
  • Jacobs HE. Family and behavioral isues. In: Williams JM, Kay T, editors. Head injury: a family matter. Baltimore: Brookes Publishing; 1991. p. 239–251.
  • Lefebvre H, Levert MJ. The close relatives of people who have had a traumatic brain injury and their special needs. Brain Inj. 2012;26:1084–1097.
  • Carnevale GJ, Anselmi V, Busichio K, et al. Changes in ratings of caregiver burden following a community-based behavior management program for persons with traumatic brain injury. J Head Trauma Rehabil. 2002;17:83–95.
  • McIntyre LL. Adapting webster-stratton's incredible years parent training for children with developmental delay: findings from a treatment group only study. J Intellect Disabil Res. 2008;52:1176–1192.
  • Padden C. Commentary on training in positive behavioural support: increasing staff self-efficacy and positive outcome expectations. Tizard Learning Disability Rev. 2016;21:103–107.
  • Webster-Stratton C. The incredible years: a trouble shooting guide for parents of children aged 3-8. Toronto, Ontario: Umbrella Press; 1992.
  • Soresi S, Nota L, Ferrari L. Considerations on supports that can increase the quality of life of parents of children with disabilities. J Policy Practice in Intell Disabilities. 2007;4:248–251.
  • Todd S, Bromley J, Ioannou K, et al. Using group-based parent training interventions with parents of children with disabilities: a description of process, content and outcomes in clinical practice. Child Adolesc Ment Health. 2010;15:171–175.
  • Reynolds S, Lynch S, Litman S. Training care teams of children with autism spectrum disorders in positive behaviour support: an innovative approach. Hcq. 2011;14:95–99.

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