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Research Papers

Perceptions of ability among adults with upper limb absence: impacts of learning, identity, and community

ORCID Icon, , & ORCID Icon
Pages 3306-3315 | Received 05 Feb 2018, Accepted 05 Mar 2019, Published online: 18 Apr 2019

References

  • Smith DG, Michael JW, Bowker JH. Atlas of amputations and limb deficiencies. 3rd edition. Rosemont, IL: American Academy of Orthopaedic; 2004.
  • Østlie K, Lesjø IM, Franklin RJ, et al. Prosthesis rejection in acquired major upper-limb amputees: a population-based survey. Disabil Rehabil Assist Technol. 2012;7:294–303.
  • Postema K, van der Donk V, van Limbeek J, et al. Prosthesis rejection in children with a unilateral congenital arm defect. Clin Rehabil. 1999;13:243–249.
  • Biddiss E, Chau T. Upper-limb prosthetics: critical factors in device abandonment. Am J Phys Med Rehabil. 2007;86:977–987.
  • Biddiss EA, Chau TT. Upper limb prosthesis use and abandonment: a survey of the last 25 years. Prosthet Orthot Int. 2007;31:236–257.
  • Biddiss E, Beaton D, Chau T. Consumer design priorities for upper limb prosthetics. Disabil Rehabil Assist Technol. 2007;2:346–357.
  • Burger H, Marincek C. Upper limb prosthetic use in Slovenia. Prosthet Orthot Int. 1994;18:25–33.
  • McFarland L, Winkler S, Heinemann A, et al. Unilateral upper-limb loss: satisfaction and prosthetic-device use in veterans and service members from Vietnam and OIF/OEF conflicts. J Rehabil Res Dev. 2010;47:299.
  • Biddiss E, Chau T. The roles of predisposing characteristics, established need, and enabling resources on upper extremity prosthesis use and abandonment. Disabil Rehabil Assist Technol. 2007;2:71–84.
  • Kejlaa G. Consumer concerns and the functional value of prostheses to upper limb amputees. Prosthet Orthot Int. 1993;17:157–163.
  • Farina D, Amsüss S. Reflections on the present and future of upper limb prostheses. Expert Rev Med Devices. 2016;13:321–324.
  • Resnik L, Klinger SL, Etter K. The DEKA Arm: its features, functionality, and evolution during the Veterans Affairs Study to optimize the DEKA Arm. Prosthet Orthot Int. 2014;38:492–504.
  • James MA, Bagley AM, Brasington K, et al. Impact of prostheses on function and quality of life for children with unilateral congenital below-the-elbow deficiency. J Bone Jt Surg. 2006;88:2356–2365.
  • Postema SG, Bongers RM, Brouwers MA, et al. Musculoskeletal complaints in transverse upper limb reduction deficiency and amputation in the Netherlands: prevalence, predictors, and effect on health. Arch Phys Med Rehabil. 2016;97:1137–1145.
  • Saylor, T Redifining the engineer: ability, textiles, and engineering at home. Clare Boothe Luce Undergraduate Research Scholars. 2016. Paper 18. http://digitialcommons.olin.edu/clare_boothe_luce/18
  • Buehler E, Branham S, Ali A, et al. Sharing is caring: assistive technology designs on thingiverse. Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems. [Internet]. New York, NY, USA: ACM; 2015 [cited 2017 Nov 1]. p. 525–534. Available from:
  • Burn MB, Ta A, Gogola GR. Three-dimensional printing of prosthetic hands for children. J Hand Surg. 2016;41:e103–109.
  • Hofmann M, Burke J, Pearlman J, et al. Clinical and maker perspectives on the design of assistive technology with rapid prototyping technologies. Proceedings of the 18th International ACM SIGACCESS Conference on Computers and Accessibility. [Internet]. New York, NY, USA: ACM; 2016 [cited 2017 Nov 1]. p. 251–256. Available from:
  • Hofmann M, Harris J, Hudson SE, et al. Helping hands: requirements for a prototyping methodology for upper-limb prosthetics users. Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems. [Internet]. New York, NY, USA: ACM; 2016 [cited 2017 Nov 1]. p. 1769–1780. Available from:
  • Zuniga J, Peck J, Srivastava R, et al. An open source 3D-printed transitional hand prosthesis for children. J Prosthet Orthot. 2016;28:1.
  • Johansen H, Østlie K, Andersen LØ, et al. Health-related quality of life in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study. Disabil Rehabil. 2016;38:2305–2314.
  • Michielsen A, Van Wijk I, Ketelaar M. Participation and quality of life in children and adolescents with congenital limb deficiencies: a narrative review. Prosthet Orthot Int. 2010;34:351–361.
  • Bennett CL, Cen K, Steele KM, et al. An intimate laboratory?: prostheses as a tool for experimenting with identity and normalcy. Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems. ACM; 2016. p. 1745–1756.
  • Sedgwick M, Spiers J. The use of videoconferencing as a medium for the qualitative interview. Int J Qual Methods. 2009;8:1–11.
  • Burger H, Franchignoni F, Heinemann A, et al. Validation of the orthotics and prosthetics user survey upper extremity functional status module in people with unilateral upper limb amputation. J Rehabil Med. 2008;40:393–399.
  • Heinemann AW, Bode RK, O’Reilly C. Development and measurement properties of the Orthotics and Prosthetics Users’ Survey (OPUS): a comprehensive set of clinical outcome instruments. Prosthet Orthot Int. 2003;27:191–206.
  • Jarl G, Holmefur M, Hermansson LM. Test–retest reliability of the Swedish version of the Orthotics and Prosthetics Users’ Survey. Prosthet Orthot Int. 2014;38:21–26.
  • Jarl GM, Heinemann AW, Norling Hermansson LM. Validity evidence for a modified version of the Orthotics and Prosthetics Users’ Survey. Disabil Rehabil Assist Technol. 2012;7:469–478.
  • Breakey JW. Body image: the lower-limb amputee. J Prosthet Orthot. 1997;9:58.
  • Gallagher P, Horgan O, Franchignoni F, et al. Body image in people with lower-limb amputation: a Rasch analysis of the Amputee Body Image Scale. Am J Phys Med Rehabil. 2007;86:205–215.
  • Biggerstaff D, Thompson AR. Interpretative Phenomenological Analysis (IPA): a qualitative methodology of choice in healthcare research. Qual Res Psychol. 2008;5:214–224.
  • Murray CD. An interpretative phenomenological analysis of the embodiment of artificial limbs. Disabil Rehabil. 2004;26:963–973.
  • Caelli K. The changing face of phenomenological research: traditional and American phenomenology in nursing. Qual Health Res. 2000;10:366–377.
  • Dromerick AW, Schabowsky CN, Holley RJ, et al. Effect of training on upper-extremity prosthetic performance and motor learning: a single-case study. Arch Phys Med Rehabil. 2008;89:1199–1204.
  • Jang CH, Yang HS, Yang HE, et al. A survey on activities of daily living and occupations of upper extremity amputees. Ann Rehabil Med. 2011;35:907.
  • Dudkiewicz I, Gabrielov R, Seiv-Ner I, et al. Evaluation of prosthetic usage in upper limb amputees. Disabil Rehabil. 2004;26:60–63.
  • Østlie K, Lesjø IM, Franklin RJ, et al. Prosthesis use in adult acquired major upper-limb amputees: patterns of wear, prosthetic skills and the actual use of prostheses in activities of daily life. Disabil Rehabil Assist Technol. 2012;7:479–493.
  • NiMhurchadha S, Gallagher P, MacLachlan M, et al. Identifying successful outcomes and important factors to consider in upper limb amputation rehabilitation: an international web-based Delphi survey. Disabil Rehabil. 2013;35:1726–1733.
  • Deijs M, Bongers RM, Ringeling - van Leusen NDM, et al. Flexible and static wrist units in upper limb prosthesis users: functionality scores, user satisfaction and compensatory movements. J NeuroEngineering Rehabil. 2016;13:26.
  • Desteli EE, İmren Y, Erdoğan M, et al. Comparison of upper limb amputees and lower limb amputees: a psychosocial perspective. Eur J Trauma Emerg Surg. 2014;40:735–739.
  • Gilg AC. The impact of amputation on body image [Honors thesis]. [Hattiesburg, Mississippi]: The University of Southern Mississippi; 2016.
  • Mohammed SA, Shebl AM. Quality of life among Egyptian patients with upper and lower limb amputation: sex differences. Adv Med. 2014;2014:1–8.
  • Wurdeman SR, Stevens PM, Campbell JH. Mobility Analysis of AmpuTees (MAAT I): quality of life and satisfaction are strongly related to mobility for patients with a lower limb prosthesis. Prosthet Orthot Int. 2018;42:498–503.
  • Demet K, Martinet N, Guillemin F, et al. Health related quality of life and related factors in 539 persons with amputation of upper and lower limb. Disabil Rehabil. 2003;25:480–486.
  • Saradjian A, Thompson AR, Datta D. The experience of men using an upper limb prosthesis following amputation: positive coping and minimizing feeling different. Disabil Rehabil. 2008;30:871–883.
  • Murray CD. Being like everybody else: the personal meanings of being a prosthesis user. Disabil Rehabil. 2009;31:573–581.
  • Brenner CD, Brenner JK. The use of preparatory/evaluation/training prostheses in developing evidenced-based practice in upper limb prosthetics. J Prosthet Orthot. 2008;20:70.
  • Kanas JL, Holowka M. Adaptive upper extremity prostheses for recreation and play. J Pediatr Rehabil Med. 2009;2:181–187.
  • Vasluian E, de Jong IGM, Janssen WGM, et al. Opinions of youngsters with congenital below-elbow deficiency, and those of their parents and professionals concerning prosthetic use and rehabilitation treatment. PLOS ONE. 2013;8:e67101.
  • Johnson SS, Mansfield E. Prosthetic training: upper limb. Phys Med Rehabil Clin North Am. 2014;25:133–151.
  • Mitchell M, Gorelick M, Anderson DI, et al. Prosthetic education: are occupational therapy students’ needs being met? Open J Ther Rehabil. 2014;2:5–11.
  • U.S. Bureau of Labor. Orthotists and Prosthetists : Occupational Outlook Handbook: [Internet]. 2014 [cited 2016 Mar 10]. Available from: http://www.bls.gov/ooh/healthcare/orthotists-and-prosthetists.htm.
  • Phillips MJ. “Try harder”: the experience of disability and the dilemma of normalization. Soc Sci J. 1985;22:45–57.
  • Louise-Bender PT, Kim J, Weiner B. The shaping of individual meanings assigned to assistive technology: a review of personal factors. Disabil Rehabil. 2002;24:5–20.
  • Hilhorst M. ‘Prosthetic fit’: on personal identity and the value of bodily difference. Med Health Care Philos. 2005;7:303–310.
  • Kuyper MA, Breedijk M, Mulders AH, et al. Prosthetic management of children in the Netherlands with upper limb deficiencies. Prosthet Orthot Int. 2001;25:228–234.
  • Scotland TR, Galway HR. A long-term review of children with congenital and acquired upper limb deficiency. Bone Jt J. 1983;65-B:346–349.
  • Huizing K, Reinders-Messelink H, Maathuis C, et al. Age at first prosthetic fitting and later functional outcome in children and young adults with unilateral congenital below-elbow deficiency: a cross-sectional study. Prosthet Orthot Int. 2010;34:166–174.
  • Meurs M, Maathuis CGB, Lucas C, et al. Prescription of the first prosthesis and later use in children with congenital unilateral upper limb deficiency: a systematic review. Prosthet Orthot Int. 2006;30:165–173.
  • de Jong IGM, Reinders-Messelink HA, Janssen WGM, et al. Mixed feelings of children and adolescents with unilateral congenital below elbow deficiency: an online focus group study. PLOS ONE. 2012;7:e37099.
  • Yiİĝiİter K, Ülger Ö, Şener G, et al. Demography and function of children with limb loss. Prosthet Orthot Int. 2005;29:131–138.
  • Dunne S, Coffey L, Gallagher P, et al. “If I can do it I will do it, if I can’t, I can’t”: a study of adaptive self-regulatory strategies following lower limb amputation. Disabil Rehabil. 2014;36:1990–1997.
  • Horgan O, MacLachlan M. Psychosocial adjustment to lower-limb amputation: a review. Disabil Rehabil. 2004;26:837–850.
  • Kuehn BM. Clinicians embrace 3D printers to solve unique clinical challenges. J Am Med Assoc. 2016;315:333.
  • Lettl C, Herstatt C, Gemuenden HG. Users’ contributions to radical innovation: evidence from four cases in the field of medical equipment technology. RD Manag. 2006;36:251–272.
  • Troncossi M, Parenti-Castelli V, Davalli A. Design of upper limb prostheses: a new subject-oriented approach. J Mech Med Biol. 2005;5:383–390.
  • Resnik L, Latlief G, Klinger SL, et al. Do users want to receive a DEKA Arm and why? Overall findings from the Veterans Affairs Study to optimize the DEKA Arm. Prosthet Orthot Int. 2014;38:456–466.

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