The adaptation and validation of a stigma measure for individuals with multiple sclerosis

References

• Amtmann D, Kim J, Chung H, et al. Comparing CESD-10, PHQ-9, and PROMIS depression instruments in individuals with multiple sclerosis. Rehabil Psychol. 2014;59(2):220–229.
   PubMed Web of Science ®Google Scholar
• NIH: National Institute of Neurological Disorders and Stroke [Internet]. Bethesda (MD): National Health Institute; c2012–2019. Multiple sclerosis: hope through research; 2012 June [updated 2019 March 27; cited 2019 May 19]; [about 23 screens]. Available from: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Hope-Through-Research/Multiple-Sclerosis-Hope-Through-Research
   Google Scholar
• Benedict RH, Wahlig E, Bakshi R, et al. Predicting quality of life in multiple sclerosis: accounting for physical disability, fatigue, cognition, mood disorder, personality, and behavior change. J Neurol Sci. 2005;231(1–2):29–34.
   PubMed Web of Science ®Google Scholar
• Benito-Leon J, Morales JM, Rivera-Navarro J, et al. A review about the impact of multiple sclerosis on health-related quality of life. Disabil Rehabil. 2003;25(23):1291–1303.
   PubMed Web of Science ®Google Scholar
• Mozo-Dutton L, Simpson J, Boot J. MS and me: exploring the impact of multiple sclerosis on perceptions of self. Disabil Rehabil. 2012;34(14):1208–1217.
   PubMed Web of Science ®Google Scholar
• Grytten N, Maseide P. 'When I am together with them I feel more ill.' The stigma of multiple sclerosis experienced in social relationships. Chronic Illn. 2006;2(3):195–208.
   PubMedGoogle Scholar
• Goffman E. Stigma; notes on the management of spoiled identity. Englewood Cliffs, N.J.: Prentice-Hall; 1963.
   Google Scholar
• Scambler G. Health-related stigma. Sociol Health Illn. 2009;31(3):441–455.
   PubMed Web of Science ®Google Scholar
• Berger BE, Ferrans CE, Lashley FR. Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res Nurs Health. 2001;24(6):518–529.
   PubMed Web of Science ®Google Scholar
• Cook JE, Germano AL, Stadler G. An exploratory investigation of social stigma and concealment in patients with multiple sclerosis. Int J MS Care. 2016;18(2):78–84.
   PubMedGoogle Scholar
• Earnshaw VA, Quinn DM. The impact of stigma in healthcare on people living with chronic illnesses. J Health Psychol. 2012;17(2):157–168.
   PubMed Web of Science ®Google Scholar
• Molina Y, Choi SW, Cella D, et al. The stigma scale for chronic illnesses 8-item version (SSCI-8): development, validation and use across neurological conditions. Int J Behav Med. 2013;20(3):450–460.
   PubMed Web of Science ®Google Scholar
• Abolhassani S, Yazdannik A, Taleghani F, et al. Social aspects of multiple sclerosis for Iranian individuals. Disabil Rehabil. 2015;37(4):319–326.
   PubMed Web of Science ®Google Scholar
• Silverman AM, Verrall AM, Alschuler KN, et al. Bouncing back again, and again: a qualitative study of resilience in people with multiple sclerosis. Disabil Rehabil. 2017;39(1):14–22.
   PubMed Web of Science ®Google Scholar
• Dennison L, Yardley L, Devereux A, et al. Experiences of adjusting to early stage Multiple Sclerosis. J Health Psychol. 2011;16(3):478–488.
   PubMed Web of Science ®Google Scholar
• Vickers MH. Illness onset as status passage for people with multiple sclerosis (MS). J Health Hum Serv Adm. 2010;33(2):193–227.
   PubMedGoogle Scholar
• Stuenkel D, Wong VK. In Lubkin IM, Larsen P, editors. Stigma. Chronic Illness: Impact and Intervention, 8th ed. 2013. Chapter 3, Stigma; p. 47–74.
   Google Scholar
• Person B, Bartholomew LK, Gyapong M, et al. Health-related stigma among women with lymphatic filariasis from the Dominican Republic and Ghana. Soc Sci Med. 2009;68(1):30–38.
   PubMed Web of Science ®Google Scholar
• Mak WW, Cheung RY, Law RW, et al. Examining attribution model of self-stigma on social support and psychological well-being among people with HIV+/AIDS. Soc Sci Med. 2007;64(8):1549–1559.
   PubMed Web of Science ®Google Scholar
• Major B, O'Brien LT. The social psychology of stigma. Annu Rev Psychol. 2005;56:393–421.
   PubMed Web of Science ®Google Scholar
• Markowitz FE. The effects of stigma on the psychological well-being and life satisfaction of persons with mental illness. J Health Soc Behav. 1998;39(4):335–347.
   PubMed Web of Science ®Google Scholar
• Ritsher JB, Otilingam PG, Grajales M. Internalized stigma of mental illness: psychometric properties of a new measure. Psychiatry Res. 2003;121(1):31–49.
   PubMed Web of Science ®Google Scholar
• Rao D, Choi SW, Victorson D, et al. Measuring stigma across neurological conditions: the development of the stigma scale for chronic illness (SSCI). Qual Life Res. 2009;18(5):585–595.
   PubMed Web of Science ®Google Scholar
• Looper KJ, Kirmayer LJ. Perceived stigma in functional somatic syndromes and comparable medical conditions. J Psychosom Res. 2004;57(4):373–378.
   PubMed Web of Science ®Google Scholar
• Browne JL, Ventura AD, Mosely K, et al. Measuring the stigma surrounding type 2 Diabetes: development and validation of the type 2 Diabetes stigma assessment scale (DSAS-2). Diabetes Care. 2016;39(12):2141–2148.
   PubMed Web of Science ®Google Scholar
• Reece M. HIV-related mental health care: factors influencing dropout among low-income, HIV-positive individuals. AIDS Care. 2003;15(5):707–716.
   PubMed Web of Science ®Google Scholar
• Sowell RL, Seals BF, Moneyham L, et al. Quality of life in HIV-infected women in the south-eastern United States. AIDS Care. 1997;9(5):501–512.
   PubMed Web of Science ®Google Scholar
• Joachim G, Acorn S. Stigma of visible and invisible chronic conditions. J Adv Nursing. 2000;32(1):243–248.
   PubMed Web of Science ®Google Scholar
• Stepleman LM, Floyd RM, Valvano-Kelley A, et al. Developing a measure to assess identity reconstruction in patients with multiple sclerosis. Rehabil Psychol. 2017;62(2):165–177.
   PubMed Web of Science ®Google Scholar
• Downing SM. Validity: on the meaningful interpretation of assessment data. Med Edu. 2003;37(9):830–837.
   PubMed Web of Science ®Google Scholar
• Yudkowsky R, Downing SM, Sandlow LJ. Developing an institution-based assessment of resident communication and interpersonal skills. Acad Med. 2006;81(12):1115–1122.
   PubMed Web of Science ®Google Scholar
• Fluit C, Bolhuis S, Grol R, et al. Evaluation and feedback for effective clinical teaching in postgraduate medical education: validation of an assessment instrument incorporating the CanMEDS roles. Med Teacher. 2012;34(11):893–901.
   PubMed Web of Science ®Google Scholar
• Sedlack RE, Baron TH, Downing SM, et al. Validation of a colonoscopy simulation model for skills assessment. Am J Gastroenterol. 2007;102(1):64.
   PubMed Web of Science ®Google Scholar
• Plant JL, van Schaik SM, Sliwka DC, et al. Validation of a self-efficacy instrument and its relationship to performance of crisis resource management skills. Adv Health Sci Edu. 2011;16(5):579–590.
   PubMed Web of Science ®Google Scholar
• Hays RD. The Medical Outcomes Study (MOS) measures of patient adherence. 1994. [cited 2018 Jun 1]. Available from: http://www.rand.org/health/surveys_tools/mos/mos_adherence.html
   Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–370.
   PubMed Web of Science ®Google Scholar
• Ford HL, Gerry E, Tennant A, et al. Developing a disease-specific quality of life measure for people with multiple sclerosis. Clin Rehabil. 2001;15(3):247–258.
   PubMed Web of Science ®Google Scholar
• Lorig K, Chastain RL, Ung E, et al. Development and evaluation of a scale to measure perceived self-efficacy in people with arthritis. Arthritis Rheum. 1989;32(1):37–44.
   PubMed Web of Science ®Google Scholar
• Cann A, Calhoun LG, Tedeschi RG, et al. A short form of the Posttraumatic Growth Inventory. Anxiety Stress Coping. 2010;23(2):127–137.
   PubMed Web of Science ®Google Scholar
• Shrive FM, Stuart H, Quan H, et al. Dealing with missing data in a multi-question depression scale: a comparison of imputation methods. BMC Med Res Method. 2006;6(1):57.
   PubMedGoogle Scholar
• Kang H. The prevention and handling of the missing data. Korean J Anesthesiol. 2013;64(5):402–406.
   PubMedGoogle Scholar
• Sinharay S, Stern HS, Russell D. The use of multiple imputation for the analysis of missing data. Psych Methods. 2001;6(4):317.
   PubMed Web of Science ®Google Scholar
• Costello AB, Osborne JW. Best practices in exploratory factor analysis: four recommendations for getting the most from your analysis. Prac Assessment Res Eval. 2005;10(7):1–9.
   Google Scholar
• Costello AB, Osborne J. Best practices in exploratory factor analysis: four recommendations for getting the most from your analysis. Prac Assessment. 2005;10(7):1–9.
   Google Scholar
• IBM Corp Armonk. SPSS for Windows, version 24. NY: IBM Corp Armonk; 2016.
   Google Scholar
• Rodriguez A, Reise SP, Haviland MG. Evaluating bifactor models: calculating and interpreting statistical indices. Psychol Methods. 2016;21(2):137.
   PubMed Web of Science ®Google Scholar
• Downing SM. Validity: on meaningful interpretation of assessment data. Med Educ. 2003;37(9):830–837.
   PubMed Web of Science ®Google Scholar
• Henningsen P, Zimmermann T, Sattel H. Medically unexplained physical symptoms, anxiety, and depression: a meta-analytic review. Psychosom Med. 2003;65(4):528–533.
   PubMed Web of Science ®Google Scholar
• Shacham E, Rosenburg N, Onen NF, et al. Persistent HIV-related stigma among an outpatient US clinic population. Int J STD AIDS. 2015;26(4):243–250.
   PubMed Web of Science ®Google Scholar
• Kwon OY, Park SP. Depression and anxiety in people with epilepsy. J Clin Neurol. 2014;10(3):175–188.
   PubMed Web of Science ®Google Scholar
• Katz IT, Ryu AE, Onuegbu AG, et al. Impact of HIV-related stigma on treatment adherence: systematic review and meta-synthesis. J Int AIDS Soc. 2013;16(3S2):18640.
   PubMedGoogle Scholar
• Yanos PT, Lysaker PH, Roe D. Internalized stigma as a barrier to improvement in vocational functioning among people with schizophrenia-spectrum disorders. Psych Res. 2010;178(1):211–213.
   PubMed Web of Science ®Google Scholar
• Chaplin JE, Wester A, Tomson T. Factors associated with the employment problems of people with established epilepsy. Seizure - Eur J Epilepsy. 1998;7(4):299–303.
   PubMed Web of Science ®Google Scholar
• Valvano A, Floyd RM, Penwell-Waines L, et al. The relationship between cognitive fusion, stigma, and well-being in people with multiple sclerosis. J Contextual Behav Sci. 2016;5:266–270.
   Web of Science ®Google Scholar