‘It’s not a part of me, but it is what it is’: the struggle of becoming en-wheeled after spinal cord injury

References

• Butryn TM. Posthuman podiums: Cyborg narratives of elite track and field athletes. Sociol Sport J. 2003;20(1):17–39.
   Web of Science ®Google Scholar
• Tracy SJ. Qualitative quality: eight “big-tent” criteria for excellent qualitative research. Qual Inq. 2010;16(10):837–851.
   Web of Science ®Google Scholar
• Winance M. Trying out the wheelchair: the mutual shaping of people and devices through adjustment. Sci Tech Hum Val. 2006;31(1):52–72.
   Web of Science ®Google Scholar
• Winance M. Care and disability: Practices of experimenting, tinkering with, and arranging people and technical aids. In: Mol A, Moser P, Pols J, editors. Care and practice: on tinkering in clinics, homes and farms. Bielefeld (Germany): Transcript Verlag; 2010. Available from: https://halshs.archives-ouvertes.fr/halshs-00495614.
   Google Scholar
• Winance M. Don’t touch/push me!’ From disruption to intimacy in relations with one’s wheelchair: an analysis of relational modalities between persons and objects. Sociol Rev. 2019;67(2):428–443.
   Web of Science ®Google Scholar
• Papadimitriou C. Becoming en‐wheeled: the situated accomplishment of re‐embodiment as a wheelchair user after spinal cord injury. Disabil Soc. 2008;23(7):691–704.
   Web of Science ®Google Scholar
• Reeve D. Cyborgs, cripples and iCrip: reflections on the contribution of Haraway to disability studies. In: Goodley D, Hughes B, Davis L, editors. Disability and social theory. London (UK): Palgrave Macmillan; 2012. p. 91–111.
   Google Scholar
• Sparkes AC, Brighton J, Inckle K. It’s a part of me’: an ethnographic exploration of becoming a disabled sporting cyborg following spinal cord injury. Qual Res Sport Exer Health. 2018;10(2):151–166.
   Web of Science ®Google Scholar
• Howe PD. Cyborg and supercrip: the Paralympics technology and the (dis) empowerment of disabled athletes. Sociology. 2011;45(5):868–882.
   Google Scholar
• Norman ME, Moola F. Bladerunner or boundary runner’?: Oscar Pistorius, cyborg transgressions and strategies of containment. Sport Soc. 2011;14(9):1265–1279.
   Google Scholar
• Mazzei LA. A voice without organs: interviewing in posthumanist research. Int J Qual Stud Edu. 2013;26(6):732–740.
   Google Scholar
• Lupton D. ‘I just want it to be done, done, done!’ food tracking apps, affects, and agential capacities. MTI. 2018;2(2):29. Available from: http://www.mdpi.com/2414-4088/2/2/29/htm.
   Google Scholar
• Roehl T. Disassembling the classroom – an ethnographic approach to the materiality of education. Ethnogr Edu. 2012;7(1):109–126.
   Google Scholar
• Pickering A. The mangle of practice: time, agency, and science. Chicago (IL): The University of Chicago Press; 1995.
   Google Scholar
• Freeman M. The analytic rewards of materializing the effects of actor-networks. Qual Res. 2019;19(4):455–470.
   Web of Science ®Google Scholar
• Bennett J. Vibrant matter: a political ecology of things. Durham (NC): Duke University Press; 2010.
   Google Scholar
• Feely M. Disability studies after the ontological turn: a return to the material world and material bodies without a return to essentialism. Disabil Soc. 2016;31(7):863–883.
   Web of Science ®Google Scholar
• Gagnon M, Holmes D. Body-drug assemblages: theorizing the experience of side effects in the context of HIV treatment. Nurs Philos. 2016;17(4):250–261.
   PubMed Web of Science ®Google Scholar
• Monforte J, Pérez-Samaniego V, Smith B. Traveling material↔ semiotic environments of disability, rehabilitation, and physical activity. Qual Health Res. 2018. DOI:10.1177/1049732318820520.
   PubMed Web of Science ®Google Scholar
• Brownlie J, Spandler H. Materialities of mundane care and the art of holding one’s own. Sociol Health Illn. 2018;40(2):256–269.
   PubMed Web of Science ®Google Scholar
• Barad K. Meeting the Universe Halfway. Durham (NC): Duke University Press; 2007.
   Google Scholar
• Walcott BP, Nahed BV, Mohyeldin A, et al. Chordoma: current concepts, management, and future directions. Lancet Oncol. 2012;13(2):e69–e76.
   PubMed Web of Science ®Google Scholar
• Kwasnicka D, Dombrowski SU, White M, et al. Sniehotta FF Data-prompted interviews: using individual ecological data to stimulate narratives and explore meanings. Health Psychol. 2015;34(12):1191–1194.
   PubMed Web of Science ®Google Scholar
• Leo J, Goodwin D. Negotiated meanings of disability simulations in an adapted physical activity course: learning from student reflections. Adapt Phys Act Q. 2014;31(2):144–161.
   PubMed Web of Science ®Google Scholar
• Smith B, Sparkes AC. Qualitative research methods in sport, exercise and health: from process to product. London (UK): Routledge; 2014.
   Google Scholar
• Smith B, McGannon KR. Developing rigor in qualitative research: problems and opportunities within sport and exercise psychology. Int. Rev. Sport Exerc Psychol. 2018;11(1):101–121.
   Web of Science ®Google Scholar
• Monforte J, Pérez-Samaniego V, Devís-Devís J. The anabasis of Patrick: travelling an allegorical narrative map of illness and disability. Psychol Sport Exer. 2018;37:235–243.
   Web of Science ®Google Scholar
• Kuby CR. Why a paradigm shift of ‘more than human ontologies’ is needed: putting to work poststructural and posthuman theories in writers’ studio. Int J Qual Stud Edu. 2017;30(9):877–896.
   Web of Science ®Google Scholar
• Feely MA. Assemblage analysis: an experimental new-materialist method for analysing narrative data. Qual Res. 2019. DOI:10.1177/1468794119830641.
   PubMed Web of Science ®Google Scholar
• Gibson BE. Disability, connectivity and transgressing the autonomous body. J Med Humanit. 2006;27(3):187–196.
   PubMedGoogle Scholar
• Gibson BE. Parallels and problems of normalization in rehabilitation and universal design: enabling connectivities. Disabil Rehabil. 2014;36(16):1328–1333.
   PubMed Web of Science ®Google Scholar
• Gibson BE, Carnevale FA, King G. “This is my way”: reimagining disability, in/dependence and interconnectedness of persons and assistive technologies. Disabil Rehabil. 2012;34(22):1894–1899.
   PubMed Web of Science ®Google Scholar
• Frank AW. The wounded storyteller: body, illness, and ethics. Chicago (IL): University of Chicago Press; 2013.
   Google Scholar
• Sparkes AC, Smith B. Men, sport, spinal cord injury and narrative time. Qual Res. 2003;3(3):295–320.
   Google Scholar
• Buse C, Martin D, Nettleton S. Conceptualising ‘materialities of care’: making visible mundane material culture in health and social care contexts. Sociol Health Illn. 2018;40(2):243–255.
   PubMed Web of Science ®Google Scholar
• Goodley D. Dis/ability studies. Theorising disablism and ableism. London (UL): Routledge; 2014.
   Google Scholar
• Brune J, Wilson D. Disability and passing: blurring the lines of identity. Philadelphia (PA): Temple University Press; 2013.
   Google Scholar
• Peers D, Eales L. Moving materiality: people, tools, and this thing called disability. Art/Res Int. 2017;2(2):101–125.
   Google Scholar
• Hayles NK. How we became posthuman: virtual bodies in cybernetics, literature and informatics. Chicago (IL): University of Chicago Press; 1999.
   Google Scholar
• Shildrick M. Some reflections on the socio-cultural and bioscientific limits of bodily integrity. Body Soc. 2010;16(3):11–22.
   Web of Science ®Google Scholar
• Goodley D, Lawthom R, Runswick-Cole K. Posthuman disability studies. Subjectivity. 2014;7(4):342–361.
   Google Scholar
• Nicholls DA, Atkinson K, Bjorbaekmo WS, et al. Connectivity: an emerging concept for physiotherapy practice. Physiother Theory Pract. 2016;32(3):159–170.
   PubMed Web of Science ®Google Scholar
• Apelmo E. Sport and the female disabled body. London (UK): Routledge; 2017.
   Google Scholar
• Frank A. For a sociology of the body: an analytical review. In: Featherstone M, Hepworth M, Turner, B, editors. The body. London: Sage; 1991. p. 36–102.
   Google Scholar
• Goodley D, Lawthom R. Critical disability studies, Brexit & Trump: a time of neoliberal-ableism. 2019;23(2):233–251.
   Google Scholar
• Straus E. The upright posture. Psychiatr Q. 1952;26(4):529–561.
   PubMed Web of Science ®Google Scholar
• Goodley D, Lawthom R, Runswick-Cole K, et al. The desire for new humanism. J Disabil Stud Edu. In press.
   Google Scholar
• Braidotti R. The posthuman. London: Polity; 2013.
   Google Scholar
• Clifton S, Llewellyn G, Shakespeare T. Quadriplegia, virtue theory, and flourishing: a qualitative study drawing on self-narratives. Disabil Soc. 2018;33(1):20–38.
   Web of Science ®Google Scholar
• Ellingson L. Engaging crystallization in qualitative research. Thousand Oaks (CA): Sage; 2009.
   Google Scholar
• Strom KJ. “That’s Not Very Deleuzian”: thoughts on interrupting the exclusionary nature of “high theory”. Edu Philos Theory. 2018;50(1):104–113.
   Web of Science ®Google Scholar