492
Views
1
CrossRef citations to date
0
Altmetric
Perspectives in Rehabilitation

From conversation starters in the front yard to talking to God: the sensory ethnography of communication access

ORCID Icon
Pages 3264-3270 | Received 30 Jan 2020, Accepted 10 Feb 2020, Published online: 27 Feb 2020

References

  • Hewetson R, Cornwell P, Shum D. Cognitive-communication disorder following right hemisphere stroke: exploring rehabilitation access and outcomes. Top Stroke Rehabil. 2017;24(5):330–336.
  • Capute and Accardo’s neurodevelopmental disabilities in infancy and childhood. 3rd ed. In: Accardo PJ, editor. Baltimore (MD): Paul H. Brookes Publishing Co; 2008. p. 17.
  • National Guideline Alliance (UK). Cerebral palsy in under 25s: assessment and management. (NICE Guideline, No. 62.) 15, Improving speech, language and communication: speech intelligibility. London (UK): National Institute for Health and Care Excellence; 2017. Available from: https://www.ncbi.nlm.nih.gov/books/NBK533237/
  • Devadiga DN, Varghese AL, Bhat JS. Epidemiology of communication disorders and its role in rehabilitation. Int J Innov Res Dev. 2014;3(3):469–473.
  • Pearson JC, Nelson PE. An introduction to human communication: understanding and sharing. Boston (MA): McGraw-Hill; 2000.
  • Sigafoos J, O’Reilly MF, Lancioni GE, et al. Augmentative and alternative communication for individuals with autism spectrum disorder and intellectual disability. Curr Dev Disord Rep. 2014;1(2):51–57.
  • Beukelman DR, Mirenda P, Beukelman DR. Augmentative and alternative communication: supporting children and adults with complex communication needs. Baltimore (MD): Paul H. Brookes Publication; 2013.
  • Perry A, Reilly S, Cotton S, et al. A demographic survey of people who have a disability and complex communication needs in Victoria, Australia. Asia Pac J Speech Lang Hear. 2004;9(3):259–271.
  • Iacono T. What it means to have complex communication needs. Res Prac Intellect Dev Disabil. 2014;1(1):82–85.
  • Collier B, Blackstone SW, Taylor A. Communication access to businesses and organizations for people with complex communication needs. Augment Alternat Commun. 2012;28(4):205–218.
  • Johnson H, Solarsh B, Bloomberg K, et al. Supporting people with complex communication needs through community capacity building: the communication access network. Tizard Learn Disabil Rev. 2016;21(3):130–139.
  • Stafford L. What about my voice’: emancipating the voices of children with disabilities through participant-centred methods. Children Geograph. 2017;15(5):600–613.
  • Hodge S. Why is the potential of augmentative and alternative communication not being realized? Exploring the experiences of people who use communication aids. Disabil Soc. 2007;22(5):457–471.
  • Ison NL. Having their say: email interviews for research data collection with people who have verbal communication impairment. Int J Soc Res Methodol. 2009;12(2):161–172.
  • Lloyd V, Gatherer A, Kalsy S. Conducting qualitative interview research with people with expressive language difficulties. Qual Health Res. 2006;16(10):1304–1386.
  • Kent-Walsh J, Binger C. Methodological advances, opportunities, and challenges in AAC research. Augment Alternat Commun. 2018;34(2):93–103.
  • Light J, Mcnaughton D. Designing AAC research and intervention to improve outcomes for individuals with complex communication needs. Augment Alternat Commun. 2015;31(2):85–96.
  • Williams MB, Krezman C, Mcnaughton D. Reach for the stars: five principles for the next 25 years of AAC. Augment Alternat Commun. 2008;24(3):194–206.
  • Dee-Price BJ. Making space for the participant with complex communication (access) needs in social work research. Qual Soc Work. 2019. DOI:https://doi.org/10.1177/1473325019856080
  • McNaughton D, Light J, Beukelman DR, et al. Building capacity in AAC: a person-centred approach to supporting participation by people with complex communication needs. Augment Alternat Commun. 2019;35(1):56–68.
  • Australian Bureau of Statistics. Disability, ageing and carers. Summary of findings. Canberra (Australia): Australian Bureau of Statistics; 2015.
  • Australian Institute of Health and Welfare. Disability in Australia: intellectual disability. Report. Canberra (Australia): Australian Institute of Health and Welfare; 2008.
  • McLeod S. Communication rights: fundamental human rights for all. Int J Speech Lang Pathol. 2018;20(1):3–11.
  • Emerson E, Madden R, Graham H, et al. The health of disabled people and the social determinants of health. Public Health. 2011;125(3):145–147.
  • Oliver M. The individual and social models of disability: paper presented at joint workshop of the living options group and the research unit of the royal college of physicians. 1990.
  • Pink S. Doing sensory ethnology. 2nd ed. Thousand Oaks (CA): Sage Publications; 2015.
  • Pink S. Multimodality, multisensoriality and ethnographic knowing: social semiotics and the phenomenology of perception. Qual Res. 2011;11(3):261–276.
  • Ingold T. The perception of the environment. London: Routledge; 2000.
  • Sunderland N, Bristed H, Gudes O, et al. What does it feel like to live here? Exploring sensory ethnography as a collaborative methodology for investigating social determinants of health in place. Health Place. 2012;18(5):1056–1067.
  • Bendix R. The pleasures of the ear: toward an ethnography of listening. Cult Anal. 2000;1:33–50.
  • Valtonen A, Markuksela V, Moisander J. Doing sensory ethnography in consumer research. Int J Consum Stud. 2010;34(4):375–380.
  • Braddock BA, Pickett C, Ezzelgot J, et al. Potential communicative acts in children with autism spectrum disorders. Dev Neurorehabil. 2015;18(4):260–271.
  • Sigafoos J, Woodyatt G, Keen D, et al. Identifying potential communicative acts in children with developmental and physical disabilities. Commun Disord Quart. 2000;21(2):77–86.
  • Bourgeois M, Fried-Oken M, Rowland C. AAC strategies and tools for persons with dementia. Leader. 2010;15(3):8–11.
  • Mackley KL, Pink S. From emplaced knowing to interdisciplinary knowledge. Sens Soc. 2013;8(3):335–353.
  • Knapp ML, Hall J. Nonverbal communication in human interaction. Southbank, Victoria: Thomson Wadsworth; 2006.
  • Jewitt C, Leder Mackley K. Methodological dialogues across multimodality and sensory ethnography: digital touch communication. Qual Res. 2019;19(1):90–110.
  • Doorn NV. Assembling the affective field. Qual Inq. 2013;19(5):385–396.
  • Clement T, Bigby C. Group homes for people with intellectual disabilities encouraging inclusion and participation. London: Jessica Kingsley Publication; 2010.
  • Goggin G, Newell C. Disability in Australia: exposing a social apartheid. Sydney (Australia): UNSW Press; 2005.
  • Spivakovsky C. Making risk and dangerousness intelligible in intellectual disability. Griffith Law Rev. 2014;23(3):389–404.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.