The experience of upper-limb dysfunction after stroke: a phenomenological study

References

• World Stroke Organization. [cited 2019 Jun]. Available from: https://www.world-stroke.org/component/content/article/16-forpatients/84-facts-and-figures-about-stroke
   Google Scholar
• National Institute for Health and Care Excellence. Stroke rehabilitation: long term rehabilitation after stroke. Clinical guideline 162. London: NICE; 2013.
   Google Scholar
• Intercollegiate Stroke Working Party. National clinical guideline for stroke. 5th ed. London: Royal College of Physicians; 2016.
   Google Scholar
• Schieber MH. Individuated finger movements: rejecting the labeled-line hypothesis. In: Wing AM, Haggard P, Flanagan JR, editors. Hand and brain: the neurophysiology and psychology of hand movements. London: Academic Press; 1996. p. 81–98.
   Google Scholar
• Wiesendanger M, Kazennikov O, Perrig S, et al. Two hands – one action: the problem of bimanual coordination. In: Wing AM, Haggard P, Flanagan JR, editors. Hand and brain: the neurophysiology and psychology of hand movements. London: Academic Press; 1996. p. 283–300.
   Google Scholar
• Rosenbaum DA, Meulenbroek RGJ, Vaughan J. Three approaches to the degrees of freedom problem in reaching. In: Wing AM, Haggard P, Flanagan JR, editors. Hand and brain: the neurophysiology and psychology of hand movements. London: Academic Press; 1996. p. 169–186.
   Google Scholar
• Tubiana R, Thomine J-M, Mackin E. Examination of the hand and wrist. 2nd ed. London: Martin Dunitz; 1996.
   Google Scholar
• Champion J, Barber C, Lynch-Ellerington M. Recovery of upper limb function. In: Raine S, Meadows L, Lynch-Ellerington M, editors. Bobath concept: theory and clinical practice in neurological rehabilitation. Oxford: Blackwell; 2009. p. 154–181.
   Google Scholar
• Yekutiel M. Sensory re-education of the hand after stroke. London: Whurr; 2000.
   Google Scholar
• Raine S. The Bobath concept: developments and current theoretical underpinning. In: Raine S, Meadows L, Lynch-Ellerington M, editors. Bobath concept: theory and clinical practice in neurological rehabilitation. Oxford: Blackwell; 2009. p. 1–22.
   Google Scholar
• Barreca S, Wolf SL, Fasoli S, et al. Treatment interventions for the paretic upper limb of stroke survivors: a critical review. Neurorehabil Neural Repair. 2003;17(4):220–226.
   PubMed Web of Science ®Google Scholar
• Burton CR. Living with stroke: a phenomenological study. J Adv Nurs. 2000;32(2):301–309.
   PubMed Web of Science ®Google Scholar
• Dowswell G, Lawler J, Dowswell T, et al. Investigating recovery from stroke: a qualitative study. J Clin Nurs. 2000;9(4):507–515.
   PubMed Web of Science ®Google Scholar
• Kirkevold M. The unfolding illness trajectory of stroke. Disabil Rehabil. 2002;24(17):887–898.
   PubMed Web of Science ®Google Scholar
• Salter K, Hellings C, Foley N, et al. The experience of living with stroke: a qualitative meta-analysis. J Rehabil Med. 2008;40(8):595–602.
   PubMed Web of Science ®Google Scholar
• Shapiro AB. A story to create: stroke survivors' broken narratives. Top Stroke Rehabil. 2011;18(1):18–23.
   PubMed Web of Science ®Google Scholar
• Williams S, Murray C. The experiences of engaging in occupation following stroke: a qualitative meta-synthesis. Br J Occup Ther. 2013;76(8):370–378.
   Web of Science ®Google Scholar
• Ellis-Hill CS, Horn S. Change in identity and self-concept: a new theoretical approach to recovery following a stroke. Clin Rehabil. 2000;14(3):279–287.
   PubMed Web of Science ®Google Scholar
• Clarke P, Black SE. Quality of life following stroke: negotiating disability, identity and resources. J Appl Gerontol. 2005;24(4):319–336.
   Web of Science ®Google Scholar
• Poltawski L, Allison R, Briscoe S, et al. Assessing the impact of upper limb disability following stroke: a qualitative enquiry using internet-based personal accounts of stroke survivors. Disabil Rehabil. 2016; 38(10):945–951.
   PubMed Web of Science ®Google Scholar
• White JH, MacKenzie L, Magin P, et al. The occupational experience of stroke survivors in a community setting. OTJR (Thorofare NJ). 2008;28(4):161–167.
   Web of Science ®Google Scholar
• Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5(2):168–195.
   PubMedGoogle Scholar
• Owens TJ, Samblanet S. Self and self-concept. In: De Lamater D, Ward A, editors. Handbook of social psychology. 2nd ed. Dordrecht: Springer; 2013. p. 225–250.
   Google Scholar
• Callero PL. The sociology of the self. Annu Rev Sociol. 2003;29(1):115–133.
   Google Scholar
• C. Swain J. Interpersonal communication. In: French S, Sim J, editors. Physiotherapy: a psychosocial approach. 3rd ed. Oxford: Butterworth-Heinemann; 2004. p. 205–219.
   Google Scholar
• Goffman E. The presentation of self in everyday life. New York (NY): Anchor Books; 1959.
   Google Scholar
• Owens TJ. Self and identity. In: Delamater J, editor. Handbook of social psychology. Boston (MA): Springer; 2006. p. 205–232.
   Google Scholar
• Stone GP. Appearance and the self. In: Rose AM, editor. Human behavior and social processes: an interactionist approach. London: Routledge & Kegan Paul; 1962. p. 86–118.
   Google Scholar
• Rosenberg M. Conceiving the self. New York (NY): Basic Books; 1979.
   Google Scholar
• Gecas V, Schwalbe ML. Beyond the looking-glass self: social structure and efficacy-based self-esteem. Soc Psychol Quart. 1983;46(2):77–88.
   PubMed Web of Science ®Google Scholar
• Stets JE, Burke PJ. A sociological approach to self and identity. In: Leary MR, Tangney JP, editors. Handbook of self and identity. New York (NY): Guilford Press; 2003. p. 128–152.
   Google Scholar
• Charmaz K. The self as habit: the reconstruction of self in chronic illness. OTJR (Thorofare NJ). 2002;22(suppl):31S–41S.
   Google Scholar
• Burke PJ. The self: measurement requirements from an interactionist perspective. Soc Psychol Quart. 1980;43(1):18–29.
   Web of Science ®Google Scholar
• Stets JE, Burke PJ. Identity theory and social identity theory. Soc Psychol Quart. 2000;63(3):224–237.
   Web of Science ®Google Scholar
• Pound P, Gompertz P, Ebrahim S. A patient-centred study of the consequences of stroke. Clin Rehabil. 1998;12(4):338–347.
   PubMed Web of Science ®Google Scholar
• Secrest JA, Thomas SP. Continuity and discontinuity: the quality of life following stroke. Rehabil Nurs. 1999;24(6):240–246.
   PubMedGoogle Scholar
• Murray CD, Harrison B. The meaning and experience of being a stroke survivor: an interpretative phenomenological analysis. Disabil Rehabil. 2004;26(13):808–816.
   PubMed Web of Science ®Google Scholar
• Carlsson H, Gard G, Brogårdh C. Upper-limb sensory impairments after stroke: self-reported experiences of daily life and rehabilitation. J Rehabil Med. 2018;50(1):45–51.
   PubMed Web of Science ®Google Scholar
• Finlay L. Phenomenology for therapists; researching the lived world. Chichester: Wiley-Blackwell; 2011.
   Google Scholar
• Hammersley M. Phenomenology. In: Lewis-Beck MS, Bryman A, Liao TF, editors. The SAGE encyclopedia of social science research methods. Vol. 2. Thousand Oaks (CA): Sage; 2004. p. 815–816.
   Google Scholar
• Giorgi A, Giorgi B. Phenomenology. In: Smith JA, editor. Qualitative psychology: a practical guide to research methods. London: Sage; 2003. p. 25–50.
   Google Scholar
• Lopez KA, Willis DG. Descriptive versus interpretive phenomenology: their contributions to nursing knowledge. Qual Health Res. 2004;14(5):726–735.
   PubMed Web of Science ®Google Scholar
• Silverman D. Interpreting qualitative data: methods for analysing talk, text and interaction. 2nd ed. London: Sage; 2001.
   Google Scholar
• Shudak NJ. Phenomenology. In: Frey BB, editor. The SAGE encyclopedia of education research, measurement, and evaluation. Vol. 3. Thousand Oaks (CA): Sage; 2018. p. 1246–1249.
   Google Scholar
• Finlay L. “Outing” the researcher: the provenance, process and practice of reflexivity. Qual Health Res. 2002;12(4):531–545.
   PubMed Web of Science ®Google Scholar
• Hunt D, Smith JA. The personal experience of carers of stroke survivors: an interpretative phenomenological analysis. Disabil Rehabil. 2004;26(16):1000–1011.
   PubMed Web of Science ®Google Scholar
• Emmel N. Sampling and choosing cases in qualitative research: a realist approach. London: Sage; 2003.
   Google Scholar
• National Institute of Health Stroke Scale (NIHSS) [Internet]. Rockville (MD): National Institute of Neurological Disorders and Stroke; 2010 [cited 2019 Jun]. Available from: https://www.ninds.nih.gov/sites/default/files/NIH_Stroke_Scale_Booklet.pdf
   Google Scholar
• Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: Bryman A, Burgess RG, editors. Analyzing qualitative data. London: Routledge; 1994. p. 173–194.
   Google Scholar
• Gale NK, Heath G, Cameron E, et al. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13(1):117.
   PubMed Web of Science ®Google Scholar
• Becker G. Continuity after stroke: implications of life course disruption in old age. Gerontologist. 1993;33(2):148–158.
   PubMed Web of Science ®Google Scholar
• Hilton EL. The meaning of stroke in elderly women: a phenomenological investigation. J Gerontol Nurs. 2002;28(7):19–26.
   PubMedGoogle Scholar
• Ch’ng AM, French D, McLean N. Coping with the challenges of recovery from stroke: long term perspectives of stroke support group members. J Health Psychol. 2008;13(8):1136–1146.
   PubMed Web of Science ®Google Scholar
• Leder D. The absent body. Chicago (IL): University of Chicago Press; 1990.
   Google Scholar
• Carel H. Phenomenology of illness. Oxford: Oxford University Press; 2016.
   Google Scholar
• Svenaeus F. The hermeneutics of medicine and the phenomenology of health: steps towards a philosophy of medical practice. Dordrecht: Kluwer; 2001.
   Google Scholar
• Bury M. Meanings at risk: the experience of arthritis. In: Anderson R, Bury M, editors. Living with chronic illness: the experience of patients and their families. London: Unwin Hyman; 1988. p. 89–116.
   Google Scholar
• Kvigne K, Kirkevold M, Gjengedal E. Fighting back – struggling to continue life and preserve the self following a stroke. Health Care Women Int. 2004;25(4):370–387.
   PubMedGoogle Scholar
• Doyle SD, Bennett S, Dudgeon B. Upper limb post-stroke sensory impairments: the survivor’s experience. Disabil Rehabil. 2014;36(12):993–1000.
   PubMed Web of Science ®Google Scholar
• Pilkington FP. A qualitative study of life after stroke. J Neurosci Nurs. 1999;31(6):336–347.
   PubMedGoogle Scholar
• Kvigne K, Kirkevold M. Living with bodily strangeness: women’s experiences of their changing and unpredictable body following a stroke. Qual Health Res. 2003;13(9):1291–1310.
   PubMed Web of Science ®Google Scholar
• Robison J, Wiles R, Ellis-Hill C, et al. Resuming previously valued activities post-stroke: who or what helps?. Disabil Rehabil. 2009;31(19):1555–1566.
   PubMed Web of Science ®Google Scholar
• Wallenbert I, Jonsson H. Waiting to get better: a dilemma regarding habits in daily occupations after stroke. Am J Occup Ther. 2005;59(2):218–224.
   PubMed Web of Science ®Google Scholar
• Barker RN, Brauer SG. Upper limb recovery after stroke: the stroke survivors’ perspective. Disabil Rehabil. 2005;27(20):1213–1223.
   PubMed Web of Science ®Google Scholar
• Christiansen CH. The 1999 Eleanor Clarke Slagle Lecture. Defining lives: occupation as identity: an essay on competence, coherence and the creation of meaning. Am J Occup Ther. 1999;53(6):547–558.
   PubMed Web of Science ®Google Scholar
• Whalley-Hammell K. Dimensions of meaning in the occupations of daily life. Can J Occup Ther. 2004;71(5):296–305.
   PubMedGoogle Scholar
• Bourland ELR, Neville MA, Pickens ND. Loss, gain and the re-framing of perspectives in long-term stroke survivors: a dynamic experience of quality of life. Top Stroke Rehabil. 2011;18(5):437–449.
   PubMed Web of Science ®Google Scholar
• Wolf TJ, Baum CM. Improving participation and quality of life through occupation. In: Gillen G, editor. Stroke rehabilitation: a function-based approach. St Louis (MO): Elsevier Mosby; 2016. p. 46–58.
   Google Scholar
• Vickery CD, Sherer M, Evans CC, et al. The relationship between self-esteem and functional outcome in the acute stroke rehabilitation setting. Rehabil Psychol. 2008;53(1):101–109.
   Web of Science ®Google Scholar
• Bylund SH, Ahlgren C. Experiences and consequences for women with hand-arm vibration injuries. Work. 2010;35(4):431–439.
   PubMedGoogle Scholar
• Chan J, Spencer J. Adaptation to hand injury: an evolving experience. Am J Occup Ther. 2004;58(2):128–139.
   PubMed Web of Science ®Google Scholar
• Kingston GA, Judd J, Gray MA. The experience of living with a traumatic hand injury in a rural and remote location: an interpretative, phenomenological analysis. Rural Remote Health. 2014;14(3):2764–2776.
   PubMed Web of Science ®Google Scholar
• Meyer TM. Psychological aspects of mutilating hand injuries. Hand Clin. 2003;19(1):41–49.
   PubMed Web of Science ®Google Scholar
• Goffman E. Stigma: notes on the management of spoiled identity. London: Penguin; 1963.
   Google Scholar
• Kelly MP, Field D. Medical sociology, chronic illness and the body. Sociol Health & Illness. 1996;18(2):241–257.
   Web of Science ®Google Scholar
• Hoppe S. Visibility and invisibility in chronic illness. Medische Antropologie. 2010;22(2):361–373.
   Google Scholar
• Garner J. Identity and Alzheimer’s disease. In: Kelleher D, Leavey G, editors. Identity and health. London: Routledge; 2004. p. 59–77.
   Google Scholar
• Fox KR, Wilson PM. Self-perceptual systems and physical activity. In: Horn TS, editor. Advances in sport psychology. 3rd ed. Champaign (IL): Human Kinetics; 2008. p. 49–64.
   Google Scholar
• Ellis-Hill CS, Payne S, Ward C. Self-body split: issues of identity in physical recovery following a stroke. Disabil Rehabil. 2000;22(16):725–733.
   PubMed Web of Science ®Google Scholar
• Baumeister RF. The self in social psychology. Hove: Psychology Press; 1999.
   Google Scholar
• Rittman M, Boylstein C, Hinojosa R, et al. Transition experiences of stroke survivors following discharge home. Top Stroke Rehabil. 2007;14(2):21–31.
   PubMed Web of Science ®Google Scholar
• Eilertsen G, Kirkevold M, Bjørk IT. Recovering from a stroke: a longitudinal, qualitative study of older Norwegian women. J Clin Nurs. 2010;19(13-14):2004–2013.
   PubMed Web of Science ®Google Scholar
• Eklund M, Orban K, Argentzell E, et al. The linkage between daily occupations and occupational balance: applications within occupational science and occupational therapy practice. Scand J Occup Ther. 2017;24(1):41–56.
   PubMed Web of Science ®Google Scholar
• Prigatano GP. The importance of the patient’s subjective experience in stroke rehabilitation. Top Stroke Rehabil. 2011;18(1):30–34.
   PubMed Web of Science ®Google Scholar
• Firestone WA. Alternative arguments for generalizing from data as applied to qualitative research. Educ Res. 1993;22(4):16–23.
   Google Scholar
• Sim J. Collecting and analysing qualitative data: issues raised by the focus group. J Adv Nurs. 1998;28(2):345–352.
   PubMed Web of Science ®Google Scholar
• Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. London: Sage; 2009.
   Google Scholar