285
Views
2
CrossRef citations to date
0
Altmetric
Assessment Procedures

Danish translation, adaptation and validation of the ABILHAND-Kids questionnaire for children with cerebral palsy

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 807-816 | Received 18 Jan 2020, Accepted 06 Jun 2020, Published online: 22 Jun 2020

References

  • Arnould C, Bleyenheuft Y, Thonnard JL. Hand functioning in children with cerebral palsy. Front Neurol. 2014;5:48.
  • Colver A, Fairhurst C, Pharoah P. Cerebral palsy. Lancet. 2014;383(9924):1240–1249.
  • Surveillance of Cerebral Palsy in Europe (SCPE). Prevalence and characteristics of children with cerebral Parese I Europe. Dev Med Child Neurol. 2002;44:633–640.
  • Imms C, Reilly S, Carlin J, et al. Characteristics influencing participation of Australian children with cerebral palsy. Disabil Rehabil. 2009;31(26):2204–2215.
  • Eliasson AC, Forssberg H, Hung YC, et al. Development of hand function and precision grip control in individuals with cerebral palsy: a 13-year follow-up study. Pediatrics. 2006;118(4):e1226–36.
  • Arner M, Eliasson AC, Nicklasson S, et al. Hand function in cerebral palsy. Report of 367 children in a population-based longitudinal health care program. J Hand Surg Am. 2008;33(8):1337–1347.
  • Andersen GL, Irgens LM, Haagaas I, et al. Cerebral palsy in Norway: prevalence, subtypes and severity. Eur J Paediatr Neurol. 2008;12(1):4–13.
  • Eliasson AC. Improving the use of hands in daily activities. Phys Occup Ther Pediatr. 2005;25(3):37–60.
  • Case-Smith J, Exner C. Handfunction evaluation and intervention. In: Case-Smith J, editor. Occupational therapy for children and aldolecents. 7th ed. St. Louis: Elsevier Mosby; 2015.
  • World Health Organiation (WHO) [internet]. International Classification of Functioning, Disability and Health (ICF). Online browser; [cited 2020 Jun 10]. Available from: https://apps.who.int/classifications/icfbrowser/
  • Schiariti V, Selb M, Cieza A, et al. International classification of functioning, disability and health core sets for children and youth with cerebral palsy: a consensus meeting. Dev Med Child Neurol. 2015;57(2):149–158.
  • Elvrum AK, Saether R, Riphagen II, et al. Outcome measures evaluating hand function in children with bilateral cerebral palsy: a systematic review. Dev Med Child Neurol. 2016;58(7):662–671.
  • Klingels K, Jaspers E, Van de Winckel A, et al. A systematic review of arm activity measures for children with hemiplegic cerebral palsy. Clin Rehabil. 2010;24(10):887–900.
  • Hansen AØ, Tromborg H. Increased use of the affected hand one and a half years after surgical correction for cerebral palsy and subsequent intensive hand therapy. Hand Therapy. 2014;19(1):17–25.
  • Novak I, McIntyre S, Morgan C, et al. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Child Neurol. 2013;55(10):885–910.
  • Chien CW, Brown T, McDonald R. Examining content validity and reliability of the Assessment of Children’s Hand Skills (ACHS): a preliminary study. Am J Occup Ther. 2010;64(5):756–767.
  • Chien CW, Brown T. Construct validity of the Children’s Hand-Skills ability Questionnaire (CHSQ) in children with disabilities: a Rasch analysis. Res Dev Disabil. 2012;33(4):1242–1253.
  • Chien CW, Rodger S, Copley J. Development and psychometric evaluation of a new measure for children’s participation in hand-use life situations. Arch Phys Med Rehabil. 2015;96(6):1045–1055.
  • Krumlinde-Sundholm L, Eliasson AC. Development of the assisting hand assessment: a Rasch-built measure intended for children with unilateral upper limb impairments. Scand J Occup Ther. 2003;10:16–26.
  • Arnould C, Penta M, Renders A, et al. ABILHAND-Kids: a measure of manual ability in children with cerebral palsy. Neurology. 2004;63(6):1045–1052.
  • Preston N, Horton M, Levesley M, et al. Development of a parent-reported questionnaire evaluating upper limb activity limitation in children with cerebral palsy. Physiother Res Int. 2018 ;23(1). DOI: https://doi.org/10.1002/pri.1684.
  • Wagner LV, Davids JR. Assessment tools and classification systems used for the upper extremity in children with cerebral palsy. Clin Orthop Relat Res. 2012;470(5):1257–1271.
  • Gilmore R, Sakzewski L, Boyd R. Upper limb activity measures for 5- to 16-year-old children with congenital hemiplegia: a systematic review. Dev Med Child Neurol. 2010;52(1):14–21.
  • Rehab-scales.org [Internet]. ABILHAND-Kids a measure of manual ability for children with upper limb impairment; [cited 2019 Jun 25]. Available from: http://rssandbox.iescagilly.be/abilhand-kids.html
  • Mohammadkhani-Pordanjani E, Arnould C, Raji P, et al. Validity and reliability of the Persian ABILHAND-Kids in a sample of Iranian children with cerebral palsy. Disabil Rehabil. 2019. DOI:https://doi.org/10.1080/09638288.2018.1530307
  • Kamonseki DH, Cedin L, Clemente AF, et al. Translation, cross-cultural adaptation and validation of the ABILHAND-Kids for the Brazilian Portuguese. Fisioter Pesqui. 2017;24(2):176–183.
  • Dallmeijer AJ, van Eck M, Roebroeck M, et al. Validity of the Dutch ABILHAND-Kids in adolescents with cerebral palsy. Dev Med Child Neurol. 2013;55(4):378–384.
  • Öksüz C, Alemdaroglu I, Kilinc M, et al. Reliability and validity of the Turkish version of ABILHAND-Kids’ questionnaire in a group of patients with neuromuscular disorders . Physiother Theory Pract. 2017;33(10):780–787.
  • Alnahdi AH, Alhusaini AA, Alshami A, et al. Cross-cultural adaptation and measurement properties of the Arabic version of the ABILHAND-Kids scale. Disabil Rehabil. 2019;8:1–8.
  • Hasiuk MB, Arnould C, Kushnir AD, et al. Cross-cultural adaptation and validation of the Ukrainian version of the ABILHAND-Kids questionnaire. Disabil Rehabil. 2019. DOI:https://doi.org/10.1080/09638288.2019.1630677
  • Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaption of self-report measures. SPINE. 2000;25(24):3136–3191.
  • de Vet HC, Adèr HJ, Terwee CB, et al. Are factor analytical techniques used appropriately in the validation of health status questionnaires? A systematic review on the quality of factor analysis of the SF-36. Qual Life Res. 2005;14(5):1203–1218.
  • Rasch.org [Internet]. Institute for Objective Measurement, Inc. Sample Size and Item Calibration (or Person Measure) Stability. 2019. [about one screen]; [cited 2019 Jun 25]. Available from https://www.rasch.org/rmt/rmt74m.htm
  • de Vet HC, Terwee CB, Mokkink LB, et al. Measurement Med. 1st ed. Cambridge (UK): Cambridge University Press; 2011.
  • Palisano R, Rosenbaum P, Walter S, et al. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39(4):214–223.
  • Eliasson AC, Krumlinde-Sundholm L, Rösblad B, et al. The Manual Ability Classification System (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–554.
  • Asparouhov T, Muthén B. SRMR in Mplus. Technical Report. May 2. 2018.
  • Hu L, Bentler PM. Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Struct Equ Modeling: Multidiscip J. 1999;6(1):1–55.
  • Masters GN. A rasch model for partial credit scoring. Psychometrika. 1982;47(2):149–174.
  • Andrich D. A rating formulation for ordered response categories. Psychometrika. 1978;43(4):561–573.
  • Shea TL, Tennant A, Pallant JF. Rasch model analysis of the Depression, Anxiety and Stress Scales (DASS). BMC Psychiatry. 2009;9:21.
  • Tennant A, McKenna SP, Hagell P. Application of Rasch analysis in the development and application of quality of life instruments. Value Health. 2004;7(Suppl 1):S22–S6.
  • Christensen KB, Makransky G, Horton M. Critical values for Yen’s Q3: identification of local dependence in the rasch model using residual correlations. Appl Psychol Meas. 2017;41(3):178–194.
  • Tennant A, Conaghan PG. The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one look for in a Rasch paper? Arthritis Rheum. 2007;57(8):1358–1362.
  • van der Velde G, Beaton D, Hogg-Johnston S, et al. Rasch analysis provides new insights into the measurement properties of the neck disability index. Arthritis Rheum. 2009;61(4):544–551.
  • Streiner DL, Norman GR. Health measurement scales. a practical guide to their development and use. 4th ed. In: Streiner DL, Norman GR, editors. Oxford: Oxford Medical Publications; 2008.
  • de Vet HC, Terwee CB, Knol DL, et al. When to use agreement versus reliability measures. J Clin Epidemiol. 2006;59(10):1033–1039.
  • Qin S, Nelson L, McLeod L, et al. Assessing test-retest reliability of patient-reported outcome measures using intraclass correlation coefficients: recommendations for selecting and documenting the analytical formula. Qual Life Res. 2019;28(4):1029–1033.
  • Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1979;86(2):420–428.
  • Davidson M, Keating JL. A comparison of five low back disability questionnaires: reliability and responsiveness. Phys Ther. 2002;82(1):8–24.
  • McHorney CA, Tarlov AR. Individual-patient monitoring in clinical practice: are available health status surveys adequate?. Qual Life Res. 1995; 4(4):293–307.
  • Rehab-scales.org [Internet]. ABILHAND-Kids – Downloads; [cited 2019 Oct 21]. Available from: http://rssandbox.iescagilly.be/abilhand-kids-downloads.html
  • de Jong LD, van Meeteren A, Emmelot CH, et al. Reliability and sources of variation of the ABILHAND-Kids questionnaire in children with cerebral palsy. Disabil Rehabil. 2018;40(6):684–689.
  • CPOP.dk [internet]. National klinisk kvalitetsdatabase og opfølgningsprogram for børn med cerebral parese. Årsrapport; [cited 2019 Jul 18]. Available from: http://www.cpop.dk/materiale-2/arsrapport
  • Öhrvall AM, Krumlinde-Sundholm L, Eliasson AC. The stability of the manual ability classification system over time. Dev Med Child Neurol. 2014;56(2):185–189.
  • CPUP.se [internet]. CPUP uppföljningsprogram för cerebral pares. Årsrapport; [cited 2019 Aug 24]. Available from: https://cpup.se/publikationer/arsrapporter/

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.