SPORTS STARS: a practitioner-led, peer-group sports intervention for ambulant, school-aged children with cerebral palsy. Parent and physiotherapist perspectives

References

• Reedman SE, Boyd RN, Trost SG, et al. Efficacy of participation-focused therapy on performance of physical activity participation goals and habitual physical activity in children with cerebral palsy: a randomized controlled trial. Arch Phys Med Rehabil. 2018;100(4):676–686.
   PubMed Web of Science ®Google Scholar
• Te Velde S, Lankhorst K, Zwinkels M, et al. Associations of sport participation with self-perception, exercise self-efficacy and quality of life among children and adolescents with a physical disability or chronic disease—a cross-sectional study. Sports Med Open. 2018;4(1):1–11.
   PubMedGoogle Scholar
• Wind WM, Schwend RM, Larson J. Sports for the physically challenged child. J Am Acad Orthop Surg. 2004;12(2):126–137.
   PubMed Web of Science ®Google Scholar
• Carroll K, Leiser J, Paisley T. Cerebral palsy: physical activity and sport. Curr Sports Med Rep. 2006;5(6):319–322.
   PubMedGoogle Scholar
• Michelsen SI, Flachs EM, Damsgaard MT, et al. European study of frequency of participation of adolescents with and without cerebral palsy. Eur J Paediatr Neurol. 2014;18(3):282–294.
   PubMed Web of Science ®Google Scholar
• Imms C, Reilly S, Carlin J, et al. Diversity of participation in children with cerebral palsy. Dev Med Child Neurol. 2008;50(5):363–369.
   PubMed Web of Science ®Google Scholar
• Molin I, Alricsson M. Physical activity and health among adolescents with cerebral palsy in Sweden. Int J Adolesc Med Health. 2009;21(4):623–634.
   PubMedGoogle Scholar
• Adair B, Ullenhag A, Keen D, et al. The effect of interventions aimed at improving participation outcomes for children with disabilities: a systematic review. Dev Med Child Neurol. 2015;57(12):1093–1104.
   PubMed Web of Science ®Google Scholar
• Imms C, Adair B, Rosenbaum P, et al. Participation’: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Dev Med Child Neurol. 2016;58(1):29–38.
   PubMed Web of Science ®Google Scholar
• Maxwell G, Alves I, Granlund M. Participation and environmental aspects in education and the ICF and the ICF-CY: findings from a systematic literature review. Dev Neurorehabil. 2012;15(1):63–78.
   PubMed Web of Science ®Google Scholar
• Australian Sports Commission. The Australian physical literacy framework. In: Australia S, editor. Physical literacy and sport. Canberra: Australian Government; 2019.
   Google Scholar
• Carlon SL, Taylor NF, Dodd KJ, et al. Differences in habitual physical activity levels of young people with cerebral palsy and their typically developing peers: a systematic review. Disabil Rehabil. 2013;35(8):647–655.
   PubMed Web of Science ®Google Scholar
• Keawutan P, Bell K, Davies PS, et al. Systematic review of the relationship between habitual physical activity and motor capacity in children with cerebral palsy. Res Dev Disabil. 2014;35(6):1301–1309.
   PubMed Web of Science ®Google Scholar
• Jones DB. Denied from a lot of places” barriers to participation in community recreation programs encountered by children with disabilities in maine: perspectives of parents. Leisure/Loisir. 2003;28(1–2):49–69.
   Web of Science ®Google Scholar
• de Joya A. Barriers to physical activity following traumatic brain injury: a cognitive mapping study. Birmingham: The University of Alabama; 2012.
   Google Scholar
• Wright A, Roberts R, Bowman G, et al. Barriers and facilitators to physical activity participation for children with physical disability: comparing and contrasting the views of children, young people, and their clinicians. Disabil Rehabil. 2018;41(13):1499–1507.
   PubMed Web of Science ®Google Scholar
• Jaarsma E, Dijkstra P, De Blcourt A, et al. Barriers and facilitators of sports in children with physical disabilities: a mixed-method study. Disabil Rehabil. 2015;37(18):1617–1625.
   PubMed Web of Science ®Google Scholar
• Shields N, Synnot AJ, Barr M. Perceived barriers and facilitators to physical activity for children with disability: a systematic review. Br J Sports Med. 2012;46(14):989–997.
   PubMed Web of Science ®Google Scholar
• Clutterbuck G, Auld M, Johnston LM. Active exercise interventions improve gross motor function of ambulant/semi-ambulant children with cerebral palsy: a systematic review. Disabil Rehabil. 2018;41(10):1131–1151.
   PubMed Web of Science ®Google Scholar
• Mockford M, Caulton JM. Systematic review of progressive strength training in children and adolescents with cerebral palsy who are ambulatory. Pediatr Phys Ther. 2008;20(4):318–333.
   PubMedGoogle Scholar
• Dewar R, Love S, Johnston LM. Exercise interventions improve postural control in children with cerebral palsy: a systematic review. Dev Med Child Neurol. 2015;57(6):504–520.
   PubMed Web of Science ®Google Scholar
• Reedman SE, Boyd RN, Sakzewski L. The efficacy of interventions to increase physical activity participation of children with cerebral palsy: a systematic review and meta-analysis. Dev Med Child Neurol. 2017;59(10):1011–1018.
   PubMed Web of Science ®Google Scholar
• Clutterbuck G, Auld ML, Johnston LM. SPORTS STARS study protocol: a randomised, controlled trial of the effectiveness of a physiotherapist-led modified sport intervention for ambulant school-aged children with cerebral palsy.(Report).BMC Pediatr. 2018;18(1):258.
   PubMedGoogle Scholar
• Palisano R, Rosenbaum P, Bartlett D, et al. Gross Motor Function Classification System: Expanded & Revised (GMFCS-E&R). 2007 [cited 2007 Feb 23]. Available from: http://www.canchild.ca
   Google Scholar
• Clutterbuck G, Auld M, Johnston LM. SPORTS STARS: a practitioner-led, peer-group sports intervention for ambulant children with cerebral palsy. Activity and participation outcomes of a randomised-controlled trial. In press. Disabil Rehabil.
   Google Scholar
• Australian Sports Commission. AusPlay participation data for the sport sector. Summary of key national findings, October 2015- September 2016 data. 2016.
   Google Scholar
• IMB corporation. SPSS Statistics. 25. Armonk (NY): IMB corporation; 2017.
   Google Scholar
• Jackman M, Novak I, Lannin N, et al. Parents’ experience of undertaking an intensive cognitive orientation to daily occupational performance (CO-OP) group for children with cerebral palsy. Disabil Rehabil. 2017;39(10):1018–1024.
   PubMed Web of Science ®Google Scholar
• Sorsdahl A, Moe-Nilssen R, Kaale H, et al. Change in basic motor abilities, quality of movement and everyday activities following intensive, goal-directed, activity-focused physiotherapy in a group setting for children with cerebral palsy. BMC Pediatr. 2010;10(1):26.
   PubMedGoogle Scholar
• Zverev Y, Kurnikova M. Adapted community-based group aquatic program for developing balance: A pilot intervention study involving children and adolescents with cerebral palsy. J Phys Educa Sport. 2016;16(4):1258–1265.
   Google Scholar
• Wright V, Beveridge B, Struyf J, et al. Parents of children with cerebral palsy’s experiences with robotic gait training: ‘you gotta try it all’. Arch Phys Med Rehabil. 2014;95(10):e104–e104.
   Google Scholar
• Gilmore R, Ziviani J, Sakzewski L, et al. A balancing act: children’s experience of modified constraint-induced movement therapy. Dev Neurorehabil. 2010;13(2):88–94.
   PubMed Web of Science ®Google Scholar
• Thomas R, Johnston L, Sakzewski L, et al. Evaluation of group versus individual physiotherapy following lower limb intra-muscular botulinum toxin-type A injections for ambulant children with cerebral palsy: a single-blind randomized comparison trial. Res Dev Disabil. 2016;53-54:267–278.
   PubMed Web of Science ®Google Scholar
• Camden C, Swaine B, Levasseur M. Did waiting times really decrease following a service reorganization? Results from a retrospective study in a pediatric rehabilitation program in Québec. Disabil Rehabil. 2013;35(9):719–724.
   PubMed Web of Science ®Google Scholar
• Gibson N, Chappell A, Blackmore AM, et al. The effect of a running intervention on running ability and participation in children with cerebral palsy: a randomized controlled trial. Disabil Rehabil. 2017;40(25):1–9.
   Web of Science ®Google Scholar
• Sterba JA. Adaptive downhill skiing in children with cerebral palsy: effect on gross motor function. Pediatr Phys Ther. 2006;18(4):289–296.
   PubMedGoogle Scholar
• Walsh SF, Scharf MG. Effects of a recreational ice skating program on the functional mobility of a child with cerebral palsy. Physiother Theory Pract. 2014;30(3):189–195.
   PubMed Web of Science ®Google Scholar
• Cook O, Frost G, Twose D, et al. CAN-flip: a pilot gymnastics program for children with cerebral palsy. Adapt Phys Activ Q. 2015;32(4):349–370.
   PubMed Web of Science ®Google Scholar
• Auld M, Johnston LM. “Strong and steady”: a community-based strength and balance exercise group for children with cerebral palsy. Disabil Rehabil. 2014;36(24):2065–2071.
   PubMed Web of Science ®Google Scholar
• Anaby D, Korner-Bitensky N, Steven E, et al. Current rehabilitation practices for children with cerebral palsy: focus and gaps. Phys Occup Ther Pediatr. 2017;37(1):1–15.
   PubMed Web of Science ®Google Scholar
• Willis CE, Reid S, Elliott C, et al. ‘It’s important that we learn too’: empowering parents to facilitate participation in physical activity for children and youth with disabilities. Scand J Occup Ther. 2017;26(2):1–14.
   PubMed Web of Science ®Google Scholar
• Longo E, Badia M, Begoña Orgaz M, et al. Comparing parent and child reports of health-related quality of life and their relationship with leisure participation in children and adolescents with Cerebral Palsy. Res Dev Disabil. 2017;71:214–222.
   PubMed Web of Science ®Google Scholar
• Gates P, Otsuka N, Sanders J, et al. Functioning and health-related quality of life of adolescents with cerebral palsy: self versus parent perspectives. Dev Med Child Neurol. 2010;52(9):843–849.
   PubMed Web of Science ®Google Scholar