669
Views
5
CrossRef citations to date
0
Altmetric
Research Papers

Balance confidence and physical activity participation of independently ambulatory youth with cerebral palsy: an exploration of youths’ and parents’ perspectives

, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 2305-2316 | Received 10 Dec 2019, Accepted 25 Sep 2020, Published online: 13 Nov 2020

References

  • World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001.
  • Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol. 2007;49(s109):8–14.
  • Ferdjallah M, Harris GF, Smith P, et al. Analysis of postural control synergies during quiet standing in healthy children and children with cerebral palsy. Clin Biomech (Bristol, Avon). 2002;17(3):203–210.
  • Rose J, Wolff DR, Jones VK, et al. Postural balance in children with cerebral palsy. Dev Med Child Neurol. 2002;44(01):58–63.
  • Chen J, Woollacott MH. Lower extremity kinetics for balance control in children with cerebral palsy. J Mot Behav. 2007;39(4):306–316.
  • Crenshaw JR, Petersen DA, Conner BC, et al. Anteroposterior balance reactions in children with spastic cerebral palsy. Dev Med Child Neurol. 2020;62(6):700–709.
  • dos Santos Soares LM, Savazzi Geraldini Rozane JM, de Paula Carvalho R. Motor performance of children with cerebral palsy in anterior reach. Clin Biomech (Bristol, Avon). 2019;68:158–162.
  • Kenis-Coskun O, Giray E, Eren B, et al. Evaluation of postural stability in children with hemiplegic cerebral palsy. J Phys Ther Sci. 2016;28(5):1398–1402.
  • Malone A, Kiernan D, French H, et al. Obstacle crossing during gait in children with cerebral palsy: cross-sectional study with kinematic analysis of dynamic balance and trunk control. Phys Ther. 2016;96(8):1208–1215.
  • Palluel E, Chauvel G, Bourg V, et al. Effects of dual tasking on postural and gait performances in children with cerebral palsy and healthy children. Int J Dev Neurosci. 2019;79:54–64.
  • Shiratori T, Girolami GL, Aruin AS. Anticipatory postural adjustments associated with a loading perturbation in children with hemiplegic and diplegic cerebral palsy. Exp Brain Res. 2016;234(10):2967–2978.
  • Donker SF, Ledebt A, Roerdink M, et al. Children with cerebral palsy exhibit greater and more regular postural sway than typically developing children. Exp Brain Res. 2008;184(3):363–370.
  • Reilly DS, Woollacott MW, van Donkelaar P, et al. The interaction between executive attention and postural control in dual-task conditions: children with cerebral palsy. Arch Phys Med Rehabil. 2008;89(5):834–842.
  • Powell LE, Myers AM. The Activities-specific Balance Confidence (ABC) scale. J Gerontol A Biol Sci Med Sci. 1995;50A(1):M28–M34.
  • Bandura A. Self-efficacy: the exercise of control. New York (NY): Worth Publishers; 1997.
  • Liu TW, Ng SS, Kwong PW, et al. Fear avoidance behavior, not walking endurance, predicts the community reintegration of community-dwelling stroke survivors. Arch Phys Med Rehabil. 2015;96(9):1684–1690.
  • Durcan S, Flavin E, Horgan F. Factors associated with community ambulation in chronic stroke. Disabil Rehabil. 2016;38(3):245–249.
  • French MA, Moore MF, Pohlig R, et al. Self-efficacy mediates the relationship between balance/walking performance, activity, and participation after stroke. Top Stroke Rehabil. 2016;23(2):77–83.
  • Kasser SL, Kosma M. Social cognitive factors, physical activity, and mobility impairment in adults with multiple sclerosis. Behav Med. 2018;44(4):306–313.
  • Zukowski LA, Feld JA, Giuliani CA, et al. Relationships between gait variability and ambulatory activity post stroke. Top Stroke Rehabil. 2019;26(4):255–260.
  • Nogueira LAC, Teixeira L, Sabino P, et al. Gait characteristics of multiple sclerosis patients in the absence of clinical disability. Disabil Rehabil. 2013;35(17):1472–1478.
  • Danks KA, Pohlig RT, Roos M, et al. Relationship between walking capacity, biopsychosocial factors, self-efficacy, and walking activity in persons poststroke. J Neurol Phys Ther. 2016;40:232–238.
  • Landers MR, Lopker M, Newman M, et al. A cross-sectional analysis of the characteristics of individuals with Parkinson disease who avoid activities and participation due to fear of falling. J Neurol Phys Ther. 2017;41:31–42.
  • Engel-Yeger B, Jarus T, Anaby D, et al. Differences in patterns of participation between youths with cerebral palsy and typically developing peers. Am J Occup Ther. 2009;63(1):96–104.
  • Imms C, Reilly S, Carlin J, et al. Diversity of participation in children with cerebral palsy. Dev Med Child Neurol. 2008;50(5):363–369.
  • Michelsen SI, Flachs EM, Damsgaard MT, et al. European study of frequency of participation of adolescents with and without cerebral palsy. Eur J Paediatr Neurol. 2014;18(3):282–294.
  • Bedell G, Coster W, Law M, et al. Community participation, supports, and barriers of school-afe children with and without disabilities. Arch Phys Med Rehabil. 2013;94(2):315–323.
  • Bjornson KF, Belza B, Deborah K, et al. Ambulatory physical activity performance in youth with cerebral palsy and youth who are developing typically. Phys Ther. 2007;87(3):248–257.
  • Colver A, Thyen U, Arnaud C, et al. Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: a cross-sectional multicenter European study. Arch Phys Med Rehabil. 2012;93(12):2154–2164.
  • Coster W, Law M, Bedell G, et al. School participation, supports and barriers of students with and without disabilities. Child Care Health Dev. 2013;39(4):535–543.
  • Badia M, Longo E, Orgaz MB, et al. The influence of participation in leisure activities on quality of life in Spanish children and adolescents with cerebral palsy. Res Dev Disabil. 2013;34(9):2864–2871.
  • Calley A, Williams S, Reid S, et al. A comparison of activity, participation and quality of life in children with and without spastic diplegia cerebral palsy. Disabil Rehabil. 2012;34(15):1306–1310.
  • Earde PT, Praipruk A, Rodpradit P, et al. Facilitators and barriers to performing activities and participation in children with cerebral palsy: Caregivers’ Perspective. Pediatr Phys Ther. 2018;30(1):27–32.
  • Mei C, Reilly S, Reddihough D, et al. Activities and participation of children with cerebral palsy: parent perspectives. Disabil Rehabil. 2015;37(23):2164–2173.
  • Schiariti V, Sauve K, Klassen AF, et al. ‘He does not see himself as being different’: the perspectives of children and caregivers on relevant areas of functioning in cerebral palsy. Dev Med Child Neurol. 2014;56(9):853–861.
  • Verschuren O, Wiart L, Hermans D, et al. Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. J Pediatr. 2012;161(3):488–494.
  • Tinetti ME, Richman D, Powell L. Falls efficacy as a measure of fear of falling. J Gerontol. 1990;45:239–243.
  • Yardley L, Beyer N, Hauer K, et al. Development and initial validation of the Falls Efficacy Scale-International (FES-I). Age Ageing. 2005;34(6):614–619.
  • Palisano RJ, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised Gross Motor Function Classification System. Dev Med Child Neurol. 2008;50(10):744–750.
  • Sandelowski M. What ever happened to qualitative description? Res Nurs Health. 2000;23(4):334–340.
  • Denkinger MD, Lukas A, Nikolaus T, et al. Factors associated with fear of falling and associated activity restriction in community-dwelling older adults: a systematic review. Am J Geriatr Psychiatry. 2015;23(1):72–86.
  • Greenberg SA, Sullivan-Marx E, Sommers MS, et al. Measuring fear of falling among high-risk, urban, community-dwelling older adults. Geriatr Nurs. 2016;37(6):489–495.
  • Kalron A, Aloni R, Givon U, et al. Fear of falling, not falls, impacts leisure-time physical activity in people with multiple sclerosis. Gait Posture. 2018;65:33–38.
  • Schinkel-Ivy A, Inness EL, Mansfield A. Relationships between fear of falling, balance confidence, and control of balance, gait, and reactive stepping in individuals with sub-acute stroke. Gait Posture. 2016;43:154–159.
  • King S, Teplicky R, King G, et al. Family-centered service for children with cerebral palsy and their families: a review of the literature. Semin Pediatr Neurol. 2004;11(1):78–86.
  • Bamm EL, Rosenbaum P. Family-centered theory: origins, development, barriers, and supports to implementation in rehabilitation medicine. Arch Phys Med Rehabil. 2008;89(8):1618–1624.
  • Rosenbaum P, Gorter JW. The ‘F-words’ in childhood disability: I swear this is how we should think!. Child Care Health Dev. 2012;38(4):457–463.
  • Gustafson SL, Rhodes RE. Parental correlates of physical activity in children and early adolescents. Sports Med. 2006;36(1):79–97.
  • Trost SG, Sallis JF, Pate RR, et al. Evaluating a model of parental influence on youth physical activity. Am J Prev Med. 2003;25(4):277–282.
  • Dunn N, Shields N, Taylor NF, et al. Comparing the self concept of children with cerebral palsy to the perceptions of their parents. Disabil Rehabil. 2009;31(5):387–393.
  • Walker A, Colquitt G, Elliott S, et al. Using participatory action research to examine barriers and facilitators to physical activity among rural adolescents with cerebral palsy. Disabil Rehabil. 2019. DOI:https://doi.org/10.1080/09638288.2019.1611952
  • Shimmell LJ, Gorter JW, Jackson D, et al. “It’s the participation that motivates him”: physical activity experiences of youth with cerebral palsy and their parents. Phys Occup Ther Pediatr. 2013;33(4):405–420.
  • Morris A, Imms C, Kerr C, et al. Sustained participation in community-based physical activity by adolescents with cerebral palsy: a qualitative study. Disabil Rehabil. 2019;41(25):3043–3051.
  • Malterud K, Siersma VE, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
  • Rebok G, Riley A, Forrest C, et al. Elementary school-aged children’s reports of their health: a cognitive interviewing study. Qual Life Res. 2001;10(1):59–70.
  • Thomas DR. A general inductive approach for analyzing qualitative evaluation data. Am J Eval. 2006;27(2):237–246.
  • Boeije H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant. 2002;36(4):391–409.
  • Bradley EH, Curry LA, Devers KJ. Qualitative data analysis for health services research: developing taxonomy, themes, and theory. Health Serv Res. 2007;42(4):1758–1772.
  • Glaser BG, Strauss AL. Discovery of grounded theory: strategies for qualitative research. New York (NY): Routledge; 2017.
  • Hallberg L. The “core strategy” of grounded theory: making constant comparisons. Int J Qual Stud Health Well-Being. 2006;1(3):141–148.
  • Boyatzis R. Transforming qualitative information: thematic and code development. Thousand Oaks (CA): Sage Publications; 1998.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.
  • Cohen DJ, Crabtree BF. Evaluative criteria for qualitative research in health care: controversies and recommendations. Ann Fam Med. 2008;6(4):331–339.
  • Thompson P, Beath T, Bell J, et al. Test-retest reliability of the 10-metre fast walk test and 6-minute walk test in ambulatory school-aged children with cerebral palsy. Dev Med Child Neurol. 2008;50(5):370–376.
  • Wright FV, Rosenbaum P, Fehlings D, et al. The Quality Function Measure: reliability and discriminant validity of a new measure of gross motor movement in ambulatory children with cerebral palsy. Dev Med Child Neurol. 2014;56(8):770–778.
  • McPhee PG, Brunton LK, Timmons BW, et al. Fatigue and its relationship with physical activity, age, and body composition in adults with cerebral palsy. Dev Med Child Neurol. 2017;59(4):367–373.
  • Lauruschkus K, Westbom L, Hallström I, et al. Physical activity in a total population of children and adolescents with cerebral palsy. Res Dev Disabil. 2013;34(1):157–167.
  • Schmid AA, Van Puymbroeck M, Altenburger PA, et al. Balance and balance self-efficacy are associated with activity and participation after stroke: a cross-sectional study in people with chronic stroke. Arch Phys Med Rehabil. 2012;93(6):1101–1107.
  • Pavao SL, Barbosa KAF, de Oliveira Sato T, et al. Functional balance and gross motor function in children with cerebral palsy. Res Dev Disabil. 2014;35(10):2278–2283.
  • Martin Ginis KA, Ma JK, Latimer-Cheung AE, et al. A systematic review of review articles addressing factors related to physical activity participation among children and adults with physical disabilities. Health Psychol Rev. 2016;10(4):478–494.
  • Wing EK, Belanger M, Brunet J. Linking parental influences and youth participation in physical activity in- and out-of-school: the mediating role of self-efficacy and enjoyment. Am J Hlth Behav. 2016;40(1):31–37.
  • Evans MB, Shirazipour CH, Allan V, et al. Integrating insights from the parasport community to understand optimal experiences: the Quality Parasport Participation Framework. Psychol Sport Exerc. 2018;37:79–90.
  • Shikako-Thomas K, Shevell M, Schmitz N, et al. Determinants of participation in leisure activities among adolescents with cerebral palsy. Res Dev Disabil. 2013;34(9):2621–2634.
  • French DP, Olander EK, Chisholm A, et al. Which behaviour change techniques are most effective at increasing older adults’ self-efficacy and physical activity behaviour? A systematic review. Ann Behav Med. 2014;48(2):225–234.
  • Albuquerque de Araujo P, Pimenta Starling JM, Oliveira VC, et al. Combining balance-training interventions with other active interventions may enhance effects on postural control in children and adolescents with cerebral palsy: a systematic review and meta-analysis. Braz J Phys Ther. 2020;24(4):295–305.
  • Chiu H-C, Ada L, Lee S-D. Balance and mobility training at home using Wii Fit in Children with cerebral palsy: a feasibility study. BMJ Open. 2018;8(5):e019624.
  • O'Halloran PD, Shields N, Blackstock F, et al. Motivational interviewing increases physical activity and self-efficacy in people living in the community after hip fracture: a randomized controlled trial. Clin Rehabil. 2016;30(11):1108–1119.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.