The impact of obstacles to health and rehabilitation services on functioning and disability: a prospective survey on the 12-months after discharge from specialist rehabilitation for acquired brain injury

References

• Bryan-Hancock C, Harrison J. The global burden of disease project 2005 methods utilised by the injury expert group for estimating world-wide incidence and prevalence rates. Injury Prev. 2010;16(1):A99.
   Google Scholar
• Roozenbeek B, Maas AI, Menon DK. Changing patterns in the epidemiology of traumatic brain injury. Nat Rev Neurol. 2013;9(4):231–236.
   PubMed Web of Science ®Google Scholar
• O’Rance L, Fortune N. Acquired brain injury. Bruce (Australia): Australian Institute of Health and Welfare; 2007.
   Google Scholar
• Schretlen DJ, Shapiro AM. A quantitative review of the effects of traumatic brain injury on cognitive functioning. Int Rev Psychiatry. 2003;15(4):341–349.
   PubMed Web of Science ®Google Scholar
• Fleminger S, Ponsford J. Long term outcome after traumatic brain injury. London (UK): British Medical Journal Publishing Group; 2005.
   Google Scholar
• Malec J. The Mayo Portland Adaptability Inventory: the center for outcome measurement in brain injury; 2005 [cited 2020 Jan 20]. Available from: http://www.tbims.org/combi/mpai.
   Google Scholar
• World Health Organization. International classification of functioning, disability and health. Geneva (Switzerland): World Health Organization; 2001.
   Google Scholar
• Nalder E, Fleming J, Foster M, et al. Identifying factors associated with perceived success in the transition from hospital to home after brain injury. J Head Trauma Rehabil. 2012;27(2):143–153.
   PubMed Web of Science ®Google Scholar
• Pickelsimer EE, Selassie AW, Sample PL, et al. Unmet service needs of persons with traumatic brain injury. J Head Trauma Rehabil. 2007;22(1):1–13.
   PubMed Web of Science ®Google Scholar
• Nakase-Richardson R, Whyte J, Giacino JT, et al. Longitudinal outcome of patients with disordered consciousness in the NIDRR TBI Model Systems Programs. J Neurotrauma. 2012;29(1):59–65.
   PubMed Web of Science ®Google Scholar
• Caplan B, Bogner J, Brenner L, et al. Long-term motor recovery after severe traumatic brain injury: beyond established limits. J Head Trauma Rehabil. 2016;31(5):E50–E58.
   PubMed Web of Science ®Google Scholar
• Tran S, Kenny B, Power E, et al. Cognitive-communication and psychosocial functioning 12 months after severe traumatic brain injury. Brain Inj. 2018;32(13–14):1700–1711.
   PubMed Web of Science ®Google Scholar
• Graham SK, Cameron ID. A survey of rehabilitation services in Australia. Aust Health Rev. 2008;32(3):392–399.
   PubMed Web of Science ®Google Scholar
• Beatty PW, Hagglund KJ, Neri MT, et al. Access to health care services among people with chronic or disabling conditions: patterns and predictors. Arch Phys Med Rehabil. 2003;84(10):1417–1425.
   PubMed Web of Science ®Google Scholar
• Jourdan C, Bayen E, Darnoux E, et al. Patterns of post-acute health care utilization after a severe traumatic brain injury: results from the PariS-TBI cohort. Brain Inj. 2015;29(6):701–708.
   PubMed Web of Science ®Google Scholar
• Collie A, Prang K-H. Patterns of healthcare service utilisation following severe traumatic brain injury: an idiographic analysis of injury compensation claims data. Injury. 2013;44(11):1514–1520.
   PubMed Web of Science ®Google Scholar
• Kreutzer J. The Service Obstacles Scale: the center for outcome measurement in brain injury [Internet]. 2000 [cited 2020 Mar 11]. Available from: http://www.tbims.org/combi/sos.
   Google Scholar
• Kolakowsky-Hayner SA, Kreutzer JS, Miner KD. Validation of the Service Obstacles Scale for the traumatic brain injury population. NeuroRehabilitation. 2000;14(3):151–158.
   PubMed Web of Science ®Google Scholar
• Dams-O’Connor K, Landau A, Hoffman J, et al. Patient perspectives on quality and access to healthcare after brain injury. Brain Inj. 2018;32(4):431–441.
   PubMed Web of Science ®Google Scholar
• Levesque J-F, Harris MF, Russell G. Patient-centred access to health care: conceptualising access at the interface of health systems and populations. Int J Equity Health. 2013;12(1):18.
   PubMed Web of Science ®Google Scholar
• Muenchberger H, Kendall E, Collings C. Beyond crisis care in brain injury rehabilitation in australia: a conversation worth having. J Prim Care Community Health. 2011;2(1):60–64.
   PubMedGoogle Scholar
• The Australian Institute of Health and Welfare. Australia’s health 2018. Canberra (Australia): AIHW; 2018.
   Google Scholar
• National Disability Insurance Agency. National disability insurance scheme. [cited 2020 Mar 11]. Available from: https://www.ndis.gov.au/
   Google Scholar
• National injury insurance scheme Queensland. [cited 2020 Jan 20]. Available from: https://niis.qld.gov.au/.
   Google Scholar
• Australian Government. My aged care. [cited 2020 Mar 11]. Available from: https://www.myagedcare.gov.au/.
   Google Scholar
• Queensland Government. Workcover queensland. [cited 2020 Mar 11]. Available from: https://www.worksafe.qld.gov.au/.
   Google Scholar
• Tune D. Review of the National Disability Insurance Scheme Act 2013 2019. [cited 2020 Jan 20]. Available from: https://www.dss.gov.au/sites/default/files/documents/01_2020/ndis-act-review-final-accessibility-and-prepared-publishing1.pdf.
   Google Scholar
• Liang P, Gustafsson L, Liddle J, et al. Family members’ needs and experiences of driving disruption due to health conditions or ageing. Disabil Rehabil. 2015;37(22):2114–2129.
   PubMed Web of Science ®Google Scholar
• Liang P, Gustafsson L, Liddle J, et al. Family members’ needs and experiences of driving disruption over time following an acquired brain injury: an evolving issue. Disabil Rehabil. 2017;39(14):1398–1407.
   PubMed Web of Science ®Google Scholar
• Michael L. Unfair NDIS transport funding causing chaos for participants. 2018 [cited 2020 Mar 11]. Available from: https://probonoaustralia.com.au/news/2018/05/unfair-ndis-transport-funding-causing-chaos-participants/
   Google Scholar
• Baptiste B, Dawson D, Streiner D. Predicting use of case management support services for adolescents and adults living in community following brain injury: a longitudinal Canadian database study with implications for life care planning. NeuroRehabilitation. 2015;36(3):301–312.
   PubMed Web of Science ®Google Scholar
• Prvu Bettger J, McCoy L, Smith EE, et al. Contemporary trends and predictors of postacute service use and routine discharge home after stroke. JAHA. 2015;4(2):e001038.
   Google Scholar
• Dillahunt-Aspillaga C, Becker M, Haynes D, et al. Predictors of behavioural health service use and associated expenditures: individuals with TBI in Pinellas County. Brain Inj. 2015;29(5):644–650.
   PubMed Web of Science ®Google Scholar
• Kumar A, Resnik L, Karmarkar A, et al. Use of hospital-based rehabilitation services and hospital readmission following ischemic stroke in the United States. Arch Phys Med Rehabil. 2019;100(7):1218–1225.
   PubMed Web of Science ®Google Scholar
• Parikh S, George P, Wilson K, et al. Alcohol use and hospital readmissions following stroke: a safety net hospital experience. J Neurol Sci. 2018;385:83–86.
   PubMed Web of Science ®Google Scholar
• Pretz CR, Graham JE, Middleton A, et al. Longitudinal investigation of rehospitalization patterns in spinal cord injury and traumatic brain injury among Medicare beneficiaries. Arch Phys Med Rehabil. 2017;98(5):997–1003.
   PubMed Web of Science ®Google Scholar
• Saverino C, Swaine B, Jaglal S, et al. Rehospitalization after traumatic brain injury: a population-based study. Arch Phys Med Rehabil. 2016;97(2):S19–S25.
   PubMed Web of Science ®Google Scholar
• Skolarus LE, Meurer WJ, Burke JF, et al. Effect of insurance status on postacute care among working age stroke survivors. Neurology. 2012;78(20):1590–1595.
   PubMed Web of Science ®Google Scholar
• Prang K-H, Ruseckaite R, Collie A. Healthcare and disability service utilization in the 5-year period following transport-related traumatic brain injury. Brain Inj. 2012;26(13–14):1611–1620.
   PubMed Web of Science ®Google Scholar
• Freburger JK, Li D, Johnson AM, et al. Physical and occupational therapy from the acute to community setting after stroke: predictors of use, continuity of care, and timeliness of care. Arch Phys Med Rehabil. 2018;99(6):1077–1089.
   PubMed Web of Science ®Google Scholar
• Laursen B, Helweg-Larsen K. Health service use in adults 20–64 years with traumatic brain injury, spinal cord injury or pelvic fracture. A cohort study with 9-year follow-up. BMJ Open. 2012;2(5):e001521.
   PubMed Web of Science ®Google Scholar
• Caplan B, Bogner J, Brenner L, et al. Comparing the injury profile, service use, outcomes, and comorbidities of people with severe TBI across urban, regional, and remote populations in New South Wales: a multicentre study. J Head Trauma Rehabil. 2016;31(2):E26–E38.
   PubMed Web of Science ®Google Scholar
• Jumisko E, Lexell J, Söderberg S. The experiences of treatment from other people as narrated by people with moderate or severe traumatic brain injury and their close relatives. Disabil Rehabil. 2007;29(19):1535–1543.
   PubMed Web of Science ®Google Scholar
• Rotondi AJ, Sinkule J, Balzer K, et al. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil. 2007;22(1):14–25.
   PubMed Web of Science ®Google Scholar
• Turner BJ, Fleming J, Ownsworth T, et al. Perceived service and support needs during transition from hospital to home following acquired brain injury. Disabil Rehabil. 2011;33(10):818–829.
   PubMed Web of Science ®Google Scholar
• Perenboom RJM, Wijlhuizen GJ, Garre FG, et al. An empirical exploration of the relations between the health components of the International Classification of Functioning, Disability and Health (ICF). Disabil Rehabil. 2012;34(18):1556–1561.
   PubMed Web of Science ®Google Scholar
• Pollard B, Johnston M, Dieppe P. Exploring the relationships between International Classification of Functioning, Disability and Health (ICF) constructs of impairment, activity limitation and participation restriction in people with osteoarthritis prior to joint replacement. BMC Musculoskelet Disord. 2011;12(1):97.
   PubMedGoogle Scholar
• Rouquette A, Badley EM, Falissard B, et al. Moderators, mediators, and bidirectional relationships in the International Classification of Functioning, Disability and Health (ICF) framework: an empirical investigation using a longitudinal design and Structural Equation Modeling (SEM). Soc Sci Med. 2015;135:133–142.
   PubMed Web of Science ®Google Scholar
• Sullivan KJ, Cen SY. Model of disablement and recovery: knowledge translation in rehabilitation research and practice. Physical Therapy. 2011;91(12):1892–1904.
   PubMed Web of Science ®Google Scholar
• Baron RM, Kenny DA. The moderator–mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. J Personality Social Psychol. 1986;51(6):1173–1182.
   PubMed Web of Science ®Google Scholar
• Legg M, Foster M, Parekh S, et al. Trajectories of rehabilitation across complex environments (TRaCE): design and baseline characteristics for a prospective cohort study on spinal cord injury and acquired brain injury. BMC Health Serv Res. 2019;19(1):1–9.
   PubMed Web of Science ®Google Scholar
• Honan CA, McDonald S, Tate R, et al. Outcome instruments in moderate-to-severe adult traumatic brain injury: recommendations for use in psychosocial research. Neuropsychol Rehabil. 2019;29(6):896–916.
   PubMed Web of Science ®Google Scholar
• Tate R, Hodgkinson A, Veerabangsa A, et al. Measuring psychosocial recovery after traumatic brain injury: psychometric properties of a new scale. J Head Trauma Rehabil. 1999;14(6):543–557.
   PubMed Web of Science ®Google Scholar
• McColl MA, Davies D, Carlson P, et al. The community integration measure: development and preliminary validation. Arch Phys Med Rehabil. 2001;82(4):429–434.
   PubMed Web of Science ®Google Scholar
• Hayes AF. PROCESS: a versatile computational tool for observed variable mediation, moderation, and conditional process modeling. 2012. [cited 2020 Mar 11]. Available from: http://www.afhayes.com/public/process2012.pdf.
   Google Scholar
• Bennett DA. How can I deal with missing data in my study? Australian New Zealand J Public Health. 2001;25(5):464–469.
   PubMed Web of Science ®Google Scholar
• Goranson TE, Graves RE, Allison D, et al. Community integration following multidisciplinary rehabilitation for traumatic brain injury. Brain Inj. 2003;17(9):759–774.
   PubMed Web of Science ®Google Scholar
• Winkler D, Unsworth C, Sloan S. Factors that lead to successful community integration following severe traumatic brain injury. J Head Trauma Rehabil. 2006;21(1):8–21.
   PubMed Web of Science ®Google Scholar
• Ponsford J, Janzen S, McIntyre A, et al. INCOG recommendations for management of cognition following traumatic brain injury, part I: posttraumatic amnesia/delirium. J Head Trauma Rehabil. 2014;29(4):307–320.
   PubMed Web of Science ®Google Scholar
• Borg DN, Foster MM, Legg M, et al. The effect of health service use, unmet need, and service obstacles on quality of life and psychological well-being in the first year after discharge from spinal cord injury rehabilitation. Arch Phys Med Rehabil. 2020;101(7):1162–1169.
   PubMed Web of Science ®Google Scholar
• Purcal C, Fisher KR, Meltzer A. Social insurance for individualised disability support–implementing the Australian National Disability Insurance Scheme (NDIS). Social Policy Rev. 2016;28:173–190.
   Google Scholar
• Harrison M. Evidence-free policy: the case of the National Injury Insurance scheme. Agenda. 2013;20(1):55–69.
   Google Scholar
• Foster M, Henman P, Tilse C, et al. Reasonable and necessary care: the challenge of operationalising the NDIS policy principle in allocating disability care in Australia. Aus J Social Issues. 2016;51(1):27–46.
   Web of Science ®Google Scholar
• Fleming J, Liddle J, Nalder E, et al. Return to driving in the first 6 months of community integration after acquired brain injury. NeuroRehabilitation. 2014;34(1):157–166.
   PubMed Web of Science ®Google Scholar
• Gao F, Foster M, Liu Y. Disability concentration and access to rehabilitation services: a pilot spatial assessment applying geographic information system analysis. Disabil Rehabil. 2019;41(20):2468–2476.
   PubMed Web of Science ®Google Scholar
• Stiekema AP, Winkens I, Ponds R, et al. Finding a new balance in life: a qualitative study on perceived long-term needs of people with acquired brain injury and partners. Brain Inj. 2020;34(3):421–429.
   PubMed Web of Science ®Google Scholar