References
- McKevitt C, Fudge N, Redfern J, et al. Self-reported long-term needs after stroke. Stroke. 2011;42(5):1398–1403.
- Department of Health. Cardiovascular disease outcomes strategy: improving outcomes for people with or at risk of cardiovascular disease; 2013. Available from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/217118/9387-2900853-CVD-Outcomes_web1.pdf
- Kirkevold M, Bronken BA, Martinsen R, et al. Promoting psychosocial well-being following a stroke: developing a theoretically and empirically sound complex intervention. Int J Nurs Stud. 2012;49(4):386–397.
- Kirkevold M, Martinsen R, Bronken BA, et al. Promoting psychosocial wellbeing following stroke using narratives and guided self-determination: a feasibility study. BMC Psychol. 2014;2(1):4.
- Department of Health. No health without mental health; 2011. Available from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/213761/dh_124058.pdf
- Improvement NHS. Psychological care after stroke: improving stroke services for people with cognitive and mood disorders; 2011. Available from: https://www.england.nhs.uk/improvement-hub/wp-content/uploads/sites/44/2017/11/Psychological-Care-after-Stroke.pdf
- Mohan KM, Wolfe CD, Rudd AG, et al. Risk and cumulative risk of stroke recurrence: a systematic review and meta-analysis. Stroke. 2011;42(5):1489–1494.
- NICE. Stroke in adults; quality standard; 2010. Available from: https://www.nice.org.uk/guidance/qs2
- Stroke Assocation. State of the nation: stroke statistics; 2017. Available from: https://www.mynewsdesk.com/uk/stroke-association/documents/state-of-the-nation-2017-68765
- Pindus DM, Mullis R, Lim L, et al. Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services – a systematic review and meta-ethnography. PLoS One. 2018;13(2):e0192533.
- Taylor SJC, Pinnock H, Epiphaniou E, et al. Health services and delivery research. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS – practical systematic review of self-management support for long-term conditions. Southampton (UK): NIHR Journals Library; 2014.
- Davies MJ, Heller S, Skinner TC, Diabetes Education and Self Management for Ongoing and Newly Diagnosed Collaborative, et al. Effectiveness of the diabetes education and self-management for ongoing and newly diagnosed (DESMOND) programme for people with newly diagnosed type 2 diabetes: cluster randomised controlled trial. BMJ. 2008;336(7642):491–495.
- Skinner TC, Carey ME, Cradock S, DESMOND Collaborative, et al. Diabetes education and Self-Management for ongoing and newly diagnosed (DESMOND): process modelling of pilot study. Patient Educ Couns. 2006;64(1–3):369–377.
- Lennon S, McKenna S, Jones F. Self-management programmes for people post stroke: a systematic review. Clin Rehabil. 2013;27(10):867–878.
- Warner G, Packer T, Villeneuve M, et al. A systematic review of the effectiveness of stroke self-management programs for improving function and participation outcomes: self-management programs for stroke survivors. Disabil Rehabil. 2015;37(23):2141–2163.
- Fryer CE, Luker JA, McDonnell MN, Cochrane Stroke Group, et al. Self management programmes for quality of life in people with stroke. Cochrane Database Syst Rev. 2016;(8):CD010442.
- de Silva D. Evidence: helping people to help themselves. London: The Health Foundation; 2011.
- NICE. Type 2 diabetes in adults: management (NG28). 2015. Available from: https://www.nice.org.uk/guidance/ng28/resources/type-2-diabetes-in-adults-management-1837338615493
- Craig P, Dieppe P, Macintyre S, Medical Research Council Guidance, et al. Developing and evaluating complex interventions: the new medical research council guidance. BMJ. 2008;337:a1655.
- Campbell M, Fitzpatrick R, Haines A, et al. Framework for design and evaluation of complex interventions to improve health. BMJ. 2000;321(7262):694–696.
- Troughton J, Chatterjee S, Hill SE, et al. Development of a lifestyle intervention using the MRC framework for diabetes prevention in people with impaired glucose regulation. J Public Health. 2016;38(3):493–501.
- Stone M, Patel N, Daly H, et al. Using qualitative research methods to inform the development of a modified version of a patient education module for non-English speakers with type 2 diabetes: experience from an action research project in two South Asian populations in the UK. Diver Health Social Care. 2008;5:199–206.
- Carey M, Daly H. Developing and piloting a structured, stepped approach to patient education. Prof Nurse. 2004;20(2):37–39.
- Smith J, Forster A, Young J. A randomized trial to evaluate an education programme for patients and carers after stroke. Clin Rehabil. 2004;18(7):726–736.
- Apps LD, Mitchell KE, Harrison SL, et al. The development and pilot testing of the self-management programme of activity, coping and education for chronic obstructive pulmonary disease (SPACE for COPD). Int J Chron Obstruct Pulmon Dis. 2013;8:317–327.
- Cheng HY, Chair SY, Chau JP. The effectiveness of psychosocial interventions for stroke family caregivers and stroke survivors: a systematic review and meta-analysis. Patient Educ Couns. 2014;95(1):30–44.
- Pfeiffer K, Beische D, Hautzinger M, et al. Telephone-based problem-solving intervention for family caregivers of stroke survivors: a randomized controlled trial. J Consult Clin Psychol. 2014;82(4):628–643.
- Marsden D, Quinn R, Pond N, et al. A multidisciplinary group programme in rural settings for community-dwelling chronic stroke survivors and their carers: a pilot randomized controlled trial. Clin Rehabil. 2010;24(4):328–341.
- Sabariego C, Barrera AE, Neubert S, et al. Evaluation of an ICF-based patient education programme for stroke patients: a randomized, single-blinded, controlled, multicentre trial of the effects on self-efficacy, life satisfaction and functioning. Br J Health Psychol. 2013;18(4):707–728.
- Cadilhac DA, Hoffmann S, Kilkenny M, et al. A phase II multicentered, single-blind, randomized, controlled trial of the stroke self-management program. Stroke. 2011;42(6):1673–1679.
- Jones F, Mandy A, Partridge C. Changing self-efficacy in individuals following a first time stroke: preliminary study of a novel self-management intervention. Clin Rehabil. 2009;23(6):522–533.
- Chow EO. Narrative therapy an evaluated intervention to improve stroke survivors' social and emotional adaptation. Clin Rehabil. 2015;29(4):315–326.
- Chow EO. Responding to lives after stroke: Stroke survivors and caregivers going on narrative journeys. International Journal of Narrative Therapy and Community Work. 2013;(4):38–44. Available from: https://search.informit.org/doi/10.3316/informit.813946639021165
- Anderson RM, Funnell MM. Patient empowerment: myths and misconceptions. Patient Educ Couns. 2010;79(3):277–282.
- Funnell MM, Anderson RM. Empowerment and self-management of diabetes. Clinical Diabetes. 2004;22(3):123–127.
- Bandura A. Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977;84(2):191–215.
- Michie S, van Stralen MM, West R. The behaviour change wheel: a new method for characterising and designing behaviour change interventions. Implement Sci. 2011;6:42.
- Michie S, Richardson M, Johnston M, et al. The behavior change technique taxonomy (v1) of 93 hierarchically clustered techniques: building an international consensus for the reporting of behavior change interventions. Ann Behav Med. 2013;46(1):81–95.
- NICE. Behaviour change: individual approaches (PH49); 2014. Available from: https://www.nice.org.uk/guidance/ph49
- Stroke Association. Accessible information guidelines. London: Stroke Association; 2012.
- Johnson VL, Apps L, Kreit E, et al. The feasibility of a self-management programme (My Life After Stroke; MLAS) for stroke survivors. Disabil Rehabil. 2022. DOI:10.1080/09638288.2022.2029960
- Jones F, Partridge C, Reid F. The stroke self-efficacy questionnaire: measuring individual confidence in functional performance after stroke. J Clin Nurs. 2008;17(7b):244–252.
- Williams LS, Weinberger M, Harris LE, et al. Development of a stroke-specific quality of life scale. Stroke. 1999;30(7):1362–1369.
- Duncan PW, Bode RK, Min Lai S, et al. Rasch analysis of a new stroke-specific outcome scale: the stroke impact scale11No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated. Arch Phys Med Rehab. 2003;84(7):950–963.
- Boger EJ, Hankins M, Demain SH, et al. Development and psychometric evaluation of a new patient-reported outcome measure for stroke self -management: the Southampton stroke self-management questionnaire (SSSMQ). Health Qual Life Outcomes. 2015;13:165–165.
- Mullis R, Aquino MRJ, Dawson SN, IPCAS Investigator Team, et al. Improving primary care after stroke (IPCAS) trial: protocol of a randomised controlled trial to evaluate a novel model of care for stroke survivors living in the community. BMJ Open. 2019;9(8):e030285.