Exploring the lived experiences of ethnic minority youth with disabilities: a systematic review and meta synthesis of qualitative data

References

• Bjorquist E, Nordmark E, Almasri N, et al. Immigrant youths with disabilities and caregivers from the Middle-East: challenges and needs during the transition to adulthood. Res Health Sci. 2017;2(4):363–385.
   Google Scholar
• Blue-Banning M, Turnbull A, Pereira L. Hispanic youth/young adults with disabilities: parents' visions for the future. Res Pract Persons Severe Disabil. 2002;27(3):204–219.
   Web of Science ®Google Scholar
• Bhugra D, Becker M. Migration, cultural bereavement and cultural identity. World Psychiatry. 2005;4(1):18–24.
   PubMedGoogle Scholar
• Ceri V, Özlü-Erkilic Z, Özer Ü, et al. Mental health problems of second generation children and adolescents with migration background. Int J Psychiatry Clin Pract. 2017;21(2):142–147.
   PubMed Web of Science ®Google Scholar
• Statistics Canada. Visible minority group of persons with and without disabilities aged 15 years and over, by age group and sex, Canada. Ottawa: Statistics Canada; 2021.
   Google Scholar
• United Nations. Youth with disabilities. Geneva: United Nations; 2015.
   Google Scholar
• Education N. Figure 2. Percentage of students ages 3–21 served under the Individuals with Disabilities Education Act (IDEA), by race/ethnicity: school year 2019–20 [cited 2021 Jul 29]. Available from: https://nces.ed.gov/programs/coe/indicator/cgg
   Google Scholar
• Nicols L, Keltner B. Indian family adjustment to children with disabilities. Am Indian Alaskan Native Mental Health Res. 2005;12:22–48.
   PubMed Web of Science ®Google Scholar
• Elder H. Indigenous theory building for Maori children and adolescents with traumatic brain injury and their extended family. Brain Impairments. 2013;14(3):406–414.
   Web of Science ®Google Scholar
• Fuentes M, Lent K. Culture, health, function, and participation among American Indian and Alaska native children and youth with disabilities: an exploratory qualitative analysis. Arch Phys Med Rehabil. 2019;100(9):1688–1694.
   PubMed Web of Science ®Google Scholar
• Akbar S, Woods K. The experiences of minority ethnic heritage parents having a child with SEND: a systematic literature review. Br J Spec Educ. 2019;46(3):292–316.
   Web of Science ®Google Scholar
• Hollingsorth D. Decolonizing indigenous disability in Australia. Disabil Soc. 2013;28(5):601–615.
   Web of Science ®Google Scholar
• Lindsay S, Tétrault S, Desmaris C, et al. The cultural brokerage work of occupational therapists in providing culturally sensitive care. Can J Occup Ther. 2014;81(2):114–123.
   PubMed Web of Science ®Google Scholar
• Eilenberg J, et al. Disparities based on race, ethnicity and socioeconomic status over the transition to adulthood among adolescents and young adults on the autism spectrum: a systematic review. Curr Phsychiatry Rep. 2019;21:1–16.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Cagliostro E, Albarico M, et al. Gender matters in the transition to employment for young adults with physical disabilities. Disabil Rehabil. 2019;41(3):319–332.
   PubMed Web of Science ®Google Scholar
• Theara G, Abbott D. Understanding the experiences of South Asian parents who have a child with autism. Educ Child Psychol. 2015;32(2):47–55.
   Google Scholar
• Fazil Q, Bywaters P, Ali Z, et al. Disadvantage and discrimination compounded: the experience of Pakistani and Bangladeshi parents of disabled children in the UK. Disabil Soc. 2002;17(3):237–253.
   Web of Science ®Google Scholar
• Geenen S, Powers LE, Lopez-Vasquez A. Multicultural aspects of parent involvement in transition planning. Except Child. 2001;67(2):265–282.
   Google Scholar
• Landmark L, Zhang D, Montoya L. Culturally diverse parent's experiences in their children's transition: knowledge and involvement. Career Dev Except Individ. 2007;30(2):68–79.
   Google Scholar
• McCall Z, Skrtic T. Intersectional needs politics: a policy frame for the wicket problem of disproportionality. Mult Voices Ethnic Diverse Except Learn. 2009;11(2):3–23.
   Google Scholar
• Achola E, Greene G. Person-family centered transition planning: improving post-school outcomes to culturally diverse youth and families. JVR. 2016;45(2):173–183.
   PubMedGoogle Scholar
• Wagner M, et al. Perceptions and expectations of youth with disabilities. A special topic report on findings from the national longitudinal study-2. J Vocat Spec Needs Educ. 2007;30(1):18–27.
   Google Scholar
• Bilaver LA, Havlicek J. Racial and ethnic disparities in autism-related health and educational services. J Dev Behav Pediatr. 2019;40(7):501–510.
   PubMed Web of Science ®Google Scholar
• Trainor AA, Lindstrom L, Simon-Burroughs M, et al. From marginalized to maximized opportunities for diverse youths with disabilities: a position paper of the division on career development and transition. Career Dev Except Individ. 2008;31(1):56–64.
   Google Scholar
• Geenen S, Powers L, Vasquez AL, et al. Understanding and promoting the transition of minority adolescents. Career Dev Except Individ. 2003;26(1):27–46.
   Google Scholar
• Capella M. Inequities in the VR system: do they still exist? Rehabil Counsel Bull. 2002;45(3):143–153.
   Web of Science ®Google Scholar
• Hair E, et al. Youth who are disconnected and those who then reconnect: assessing the influence of family, programs, peers and communities. Child Trends. 2009;37:1–8.
   Google Scholar
• Emerson E, et al. The wellbeing of working-age adults with and without disability in the UK: associations with age, gender, ethnicity, partnership status, educational attainment and employment status. Disabil Health. 2020;13:1–7.
   Web of Science ®Google Scholar
• Achola E. Practicing what we preach: reclaiming the promise of multicultural transition programming. Career Dev Transit Except Individ. 2019;42(3):188–193.
   Web of Science ®Google Scholar
• Blanchett WJ, Klingner JK, Harry B. The intersection of race, culture, language, and disability: implications for urban education. Urban Educ. 2009;44(4):389–409.
   Web of Science ®Google Scholar
• Blanchett W. Disproportionate representation of African Americans in special education: acknowledging the role of white privilege and racism. Educ Res. 2006;35(6):24–28.
   Google Scholar
• Kim K, Morningstar M. Transition planning involving culturally and linguistically diverse families. Career Dev Except Individ. 2005;28(2):92–103.
   Google Scholar
• Huer M, Saenz T, Huong D. Understanding the Vietnamese American community: implications for training educational personnel providing services to children with disabilities. Commun Disord Q. 2001;23(1):27–39.
   Google Scholar
• Alverson CY, Yamamoto SH. Employment outcomes of vocational rehabilitation clients with autism spectrum disorders. Career Dev Transit Except Individ. 2017;40(3):144–155.
   Web of Science ®Google Scholar
• Kaya C, Chan F, Rumrill P, et al. Vocational rehabilitation services and competitive employment for transition-age youth with autism spectrum disorders. JVR. 2016;45(1):73–83.
   Google Scholar
• Chiang H-M, Cheung YK, Li H, et al. Factors associated with participation in employment for high school leavers with autism. J Autism Dev Disord. 2013;43(8):1832–1842.
   PubMed Web of Science ®Google Scholar
• Banks B, et al. Disclosure of a psychiatric disability in supported employment: an exploratory study. Int J Psychosoc Rehabil. 2006;11(1):66–80.
   Google Scholar
• Makarova E, Birman D. Minority students' psychological adjustment in the school context: an integrative review of qualitative research on acculturation. Intercult Educ. 2016;27(1):1–21.
   Web of Science ®Google Scholar
• Ju S, Zhang D, Landmark L. Culturally and linguistically diverse family involvement in transition planning: a research synthesis. J Spec Educ Leadersh. 2018;31(1):16–26.
   Google Scholar
• Alsharaydeh EA, Alqudah M, Lee RLT, et al. Challenges, coping, and resilience among immigrant parents caring for a child with a disability: an integrative review. J Nurs Scholarsh. 2019;51(6):670–679.
   PubMed Web of Science ®Google Scholar
• Grandpierre V, Milloy V, Sikora L, et al. Barriers and facilitators to cultural competence in rehabilitation services: a scoping review. BMC Health Serv Res. 2018;18(1):14.
   PubMedGoogle Scholar
• Khanlou N, Mustafa N, Vazquez LM, et al. Stressors and barriers to services for immigrant fathers raising children with developmental disabilities. Int J Ment Health Addict. 2015;13(6):659–674.
   PubMed Web of Science ®Google Scholar
• Ali Z, Fazil Q, Bywaters P, et al. Disability, ethnicity and childhood: a critical review of research. Disabil Soc. 2001;16(7):949–967.
   Web of Science ®Google Scholar
• Lindsay S. A qualitative synthesis of adolescents' experiences of living with spina bifida. Qual Health Res. 2014;24(9):1298–1309.
   PubMed Web of Science ®Google Scholar
• Lindsay S. Child and youth experiences and perspectives of living with cerebral palsy: a qualitative systematic review. Child Care Health Dev. 2016;42(2):153–175.
   PubMed Web of Science ®Google Scholar
• Saini M, Shlonsky A. Systematic synthesis of qualitative research. Oxford: Oxford University Press; 2012.
   Google Scholar
• Tong A, Jones J, Craig JC, et al. Children's experiences of living with juvenile idiopathic arthritis: a thematic synthesis of qualitative studies. Arthritis Care Res. 2012;64(9):1392–1404.
   PubMed Web of Science ®Google Scholar
• World Health Organization. Disabilities. Geneva: World Health Organization; 2015. Available from: http://www.who.int/topics/disabilities/en/
   Google Scholar
• Lindsay S, McDougall C, Sanford R, et al. Exploring employment readiness through mock job interview and workplace role-play exercises: comparing youth with physical disabilities to their typically developing peers. Disabil Rehabil. 2015;37(18):1651–1663.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Varahra A, Ahmed H, et al. Exploring the relationships between race and ethnicity on school and work outcomes among youth and young adults with disabilities: a scoping review. Disabil Rehabil. 2021. DOI:10.1080/09638288.2021.2001056.
   Google Scholar
• Doncliff B. The peer-review process in scholarly writing. Whitireia Nurs Health J. 2016;23:55–60.
   Google Scholar
• Kreiman J. On peer review. J Speech Lang Hear Res. 2016;59(3):480–483.
   PubMed Web of Science ®Google Scholar
• Bellefontaine S, Lee C. Between black and white: examining grey literature in meta-analyses of psychological research. J Child Fam Stud. 2014;23(8):1378–1388.
   Web of Science ®Google Scholar
• Adams J, Hillier-Brown FC, Moore HJ, et al. Searching and synthesising ‘grey literature’ and ‘grey information’ in public health: critical reflections on three case studies. Syst Rev. 2016;5(1):1–11.
   PubMedGoogle Scholar
• Sandelowski M, Barroso J, Voils CI. Using qualitative metasummary to synthesize qualitative and quantitative descriptive findings. Res Nurs Health. 2007;30(1):99–111.
   PubMed Web of Science ®Google Scholar
• Kmet LM, Lee RC, Cook LS. Standard quality assessment criteria for evaluating primary research papers from a variety of fields. Vol. 22. Edmonton: Alberta Heritage Foundation for Medical Research; 2004.
   Google Scholar
• Liberati A, Altman DG, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. PLOS Med. 2009;6(7):e1000100.
   PubMed Web of Science ®Google Scholar
• Kmet LM, Cook LS, Lee RC. Standard quality assessment criteria for evaluating primary research papers from a variety of fields; 2004.
   Google Scholar
• Hussain Y. Transitions into adulthood: disability, ethnicity and gender among British South Asians. DSQ. 2003;23(2):1–12.
   Google Scholar
• Bjarnason D. New voices in Iceland young adults with disabilities in Iceland: the importance of relationships and natural supports. Scand J Disabil Res. 2002;4(2):156–189.
   Google Scholar
• Ngo AD, Brolan C, Fitzgerald L, et al. Voices from Vietnam: experiences of children and youth with disabilities, their families, from an agent orange affected rural region. Disabil Soc. 2013;28(7):955–969.
   Web of Science ®Google Scholar
• Povenmire-Kirk T, Lindstrom L, Bullis M. De escuela a la vida adulta/from school to adult life: transition needs for Latino youth with disabilities and their families. Career Dev Except Individ. 2010;33(1):41–51.
   Google Scholar
• Banks J. Barriers and supports to postsecondary transition: case studies of African American students with disabilities. Remed Spec Educ. 2014;35(1):28–39.
   Web of Science ®Google Scholar
• Atkin K, Ahmad W, Jones L. Young South Asian deaf people and their families: negotiating relationships and identities. Sociol Health Illness. 2002;24(1):21–45.
   Web of Science ®Google Scholar
• Murray C, Naranjo J. Poor, black, learning disabled and graduating. Remed Spec Educ. 2008;29(3):145–160.
   Web of Science ®Google Scholar
• Petersen A. Ain't nobody gonna get me down: an examination of the educational experiences of four African American women labeled with disabilities. Equity Excell Educ. 2009;42(4):428–442.
   Google Scholar
• Ayantoye C, Luckner J. Successful students who are deaf or hard of hearing and culturally and/or linguistically diverse in inclusive settings. Am Ann Deaf. 2016;160(5):453–466.
   PubMed Web of Science ®Google Scholar
• Islam Z. Negotiating identities: the lives of Pakistani and Bangladeshi young disabled people. Disabil Soc. 2008;23(1):41–52.
   Web of Science ®Google Scholar
• Almotiri A. Saudi deaf students post-secondary transitioning experience: a grounded theory study. Deafness Educ Int. 2017;19(3–4):162–170.
   Web of Science ®Google Scholar
• Leake D, Boone R. Multicultural perspectives on a self-determination from youth, parent and teacher focus groups. Career Dev Except Individ. 2007;30(2):104–115.
   Google Scholar
• Keel J, Cushing S, Awsumb J. Post-school visions and expectations of Latino students with learning disabilities, their parents and teachers. Career Dev Transit Except Individ. 2018;41(2):88–98.
   Web of Science ®Google Scholar
• Torres F. Facing and overcoming academic challenges: perspectives from deaf Latino/a first-generation college students. Am Ann Deaf. 2019;164(1):10–36.
   PubMed Web of Science ®Google Scholar
• Baker S, Scott J. Sociocultural and academic considerations for school-aged/deaf and hard of hearing multilingual learners: a case study of a deaf Latina. Am Ann Deaf. 2016;161(1):43–55.
   PubMed Web of Science ®Google Scholar
• Hogansen JM, Powers K, Geenen S, et al. Transition goals and experience of females with disabilities: youth, parents and professionals. Except Child. 2008;74(2):215–231.
   Web of Science ®Google Scholar
• Banks J, Hughes M. Double consciousness: postsecondary experiences of African American males with disabilities. J Negro Educ. 2013;82(4):368–381.
   Google Scholar
• McDonald K, Keys C, Balcazar F. Disability, race/ethnicity and gender: themes of cultural oppression, acts of individual resistance. Am J Commun Psychol. 2007;39(1–2):145–161.
   PubMed Web of Science ®Google Scholar
• Cardoso E, et al. Experiences of minority college students with disabilities in STEM. J Postsec Educ Disabil. 2016;29(4):375–388.
   Google Scholar
• Daudji A, Eby S, Foo T, et al. Perceptions of disability among South Asian immigrant mothers of children with disabilities in Canada: implications for rehabilitation service delivery. Disabil Rehabil. 2011;33(6):511–521.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Tetrault S, Desmaris C, et al. Social workers as cultural brokers in providing culturally sensitive care to immigrant families raising a child with a physical disability. Health Soc Work. 2014;39(2):e10–e20.
   Web of Science ®Google Scholar
• Ripat J, Woodgate R. The intersection of culture, disability and assistive technology. Disabil Rehabil Assist Technol. 2011;6(2):87–96.
   PubMedGoogle Scholar
• Cavendish W. The role of gender, race/ethnicity, and disability status on the relationship between student perceptions of school and family support and self-determination. Career Dev Transit Except Individ. 2017;40(2):113–122.
   Web of Science ®Google Scholar
• Vernon A. The dialects of multiple identities and the disabled people's movement. Disabil Soc. 1999;14(3):385–398.
   Web of Science ®Google Scholar
• Maroto M, Pettinicchio D, Patterson AC. Hierarchies of categorical disadvantage: economic insecurity at the intersection of disability, gender and race. Gender Soc. 2019;33(1):64–93.
   Web of Science ®Google Scholar