Assessment and rehabilitation of acquired communication disorders in Aboriginal and Torres Strait Islander adults with stroke or traumatic brain injury: a retrospective chart review

References

• Engelter S, Gostynski M, Papa S, et al. Epidemiology of aphasia attributable to first ischemic stroke: incidence, severity, fluency, etiology, and thrombolysis. Stroke. 2006;37(6):1379–1384.
   PubMed Web of Science ®Google Scholar
• Ponsford J, Sloan S, Snow P. Traumatic brain injury: rehabilitation for everyday adaptive living. 2nd ed. Hove: Psychology Press; 2013.
   Google Scholar
• Jamieson L, Harrison J, Berry J. Hospitalisation for head injury due to assault among Indigenous and non-Indigenous Australians, July 1999-June 2005. Med J Aust. 2008;188(10):576–579.
   PubMed Web of Science ®Google Scholar
• Katzenellenbogen J, Atkins E, Thompson S, et al. Missing voices: profile and extent of acquired communication disorders in aboriginal and non-Aboriginal adult stroke survivors in Western Australia using linked administrative records. Int J Stroke. 2016;11(1):103–116.
   PubMed Web of Science ®Google Scholar
• Katzenellenbogen J, Atkins E, Thompson S, et al. Missing voices: profile, extent, and 12-month outcomes of nonfatal traumatic brain injury in aboriginal and non-Aboriginal adults in Western Australia using linked administrative records. J Head Trauma Rehabil. 2018;33(6):412–423.
   PubMed Web of Science ®Google Scholar
• Armstrong E, Hersh D, Hayward C, et al. Living with aphasia: Three indigenous australian stories. Int J Speech Lang Pathol. 2012;14(3):271–280.
   PubMed Web of Science ®Google Scholar
• Armstrong E, Hersh D, Hayward C, et al. Communication disorders after stroke in aboriginal australians. Disabil Rehabil. 2015;37(16):1462–1469.
   PubMed Web of Science ®Google Scholar
• Armstrong E, Coffin J, Hersh D, et al. You felt like a prisoner in your own self, trapped”: the experiences of aboriginal people with acquired communication disorders. Disabil Rehabil. 2019;43(13):1903–1916.
   PubMed Web of Science ®Google Scholar
• Geia LK, Hayes B, Usher K. Yarning/aboriginal storytelling: towards an understanding of an indigenous perspective and its implications for research practice. Contemp Nurse. 2013;46(1):13–17.
   PubMed Web of Science ®Google Scholar
• Armstrong E, Coffin J, McAllister M, et al. I’ve got to row the boat on my own, more or less”: aboriginal australian experiences of traumatic brain injury. Brain Impair. 2019;20(2):120–136.
   Web of Science ®Google Scholar
• Cochrane F, Siyambalapitiya S, Brown L, et al. "… Trial and error …": speech-language pathologists' perspectives of working with Indigenous Australian adults with acquired communication disorders…”: . Int J Speech Lang Pathol. 2016;18(5):420–431.
   PubMed Web of Science ®Google Scholar
• Hersh D, Armstrong E, Panak V, et al. Speech-language pathology practices with indigenous Australians with acquired communication disorders. Int J Speech Lang Pathol. 2015;17(1):74–85.
   PubMed Web of Science ®Google Scholar
• Taylor K, Guerin P. Health care and indigenous Australians: cultural safety in practice. 2nd ed. South Yarra (VIC): Palgrave Macmillan; 2014.
   Google Scholar
• Australian Institute of Aboriginal and Torres Strait Islander Languages [AIATSIS] and Federation of Aboriginal and Torres Strait Islander Languages [FATSIL]. National Indigenous languages survey report 2005. 2005. Available from: https://aiatsis.gov.au/sites/default/files/research_pub/nils-report-2005.pdf
   Google Scholar
• MacDonald S. Introducing the model of cognitive-communication competence: a model to guide evidence-based communication interventions after brain injury. Brain INJ. 2017;31(13-14):1760–1780.
   PubMed Web of Science ®Google Scholar
• Armstrong E, Coffin J, Hersh D, et al. You felt like a prisoner in your own self, trapped”: the experiences of aboriginal people with acquired communication disorders. Disabil Rehabil. 2021;43(13):1903–1916.
   PubMed Web of Science ®Google Scholar
• Keightley M, Kendall V, Jang S, et al. From health care to home community: an aboriginal community-based ABI transition strategy. Brain Inj. 2011;25(2):142–152.
   PubMed Web of Science ®Google Scholar
• Ciccone N, Armstrong E, Hersh D, et al. The Wangi (talking) project: a feasibility study of a rehabilitation model for aboriginal people with acquired communication disorders after stroke. Int J Speech Lang Pathol. 2019;21(3):305–316.
   PubMed Web of Science ®Google Scholar
• Cochrane F, Siyambalapitiya S, Cornwell P. Clinical profile of aboriginal and Torres strait islander adults with stroke and traumatic brain injury at a regional Australian hospital: a retrospective chart audit. Brain Impair. 2021;22:1–13.
   Web of Science ®Google Scholar
• National Health and Medical Research Council. Ethical conduct in research with Aboriginal and Torres Strait Islander peoples and communities: guidelines for researchers and stakeholders. 2018. Available from: https://www.nhmrc.gov.au/about-us/resources/ethical-conduct-research-aboriginal-and-torres-strait-islander-peoples-and-communities
   Google Scholar
• Laycock A, Walker D, Harrison N, et al. Researching Indigenous health: a practical guide for researchers. 2011. Available from: https://www.lowitja.org.au/content/Document/Lowitja-Publishing/Researchers-Guide_0.pdf
   Google Scholar
• Von Elm E, Altman D, Egger M, et al.; STROBE Initiative. The strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Epidemiology. 2007;18(6):800–804.
   PubMed Web of Science ®Google Scholar
• Gearing R, Mian I, Barber J, et al. A methodology for conducting retrospective chart review research in child and adolescent psychiatry. J Can Acad Child Adolesc Psychiatry. 2006;15(3):126–134.
   PubMedGoogle Scholar
• Vassar M, Holzmann M. The retrospective chart review: important methodological considerations. J Educ Eval Health Prof. 2013;10:12–17.
   PubMedGoogle Scholar
• Papathanasiou I, Coppens P. Aphasia and related neurogenic communication disorders. 2nd ed. Burlington (MA): Jones & Bartlett Learning; 2017.
   Google Scholar
• Stroke Foundation. Clinical Guidelines for Stroke Management. 2019. Available from: https://informme.org.au/en/Guidelines/Clinical-Guidelines-for-Stroke-Management
   Google Scholar
• Vogel A, Maruff P, Morgan A. Evaluation of communication assessment practices during the acute stages post stroke. J Eval Clin Pract. 2010;16(6):1183–1188.
   PubMed Web of Science ®Google Scholar
• Stroke Foundation. National stroke audit: acute services report 2017. Available from: https://informme.org.au/-/media/7D1480925C2046BA914F3F66D392B83A.ashx?la=en
   Google Scholar
• Stroke Unit Trialists' Collaboration. Organised inpatient (stroke unit) care for stroke. Cochr Database Syst Rev. 2013;(9):CD000197.
   PubMed Web of Science ®Google Scholar
• Barker-Collo S, Jones K, Theadom A, BIONIC Research Group, et al. Neuropsychological outcome and its correlates in the first year after adult mild traumatic brain injury: a population-based New Zealand study. Brain INJ. 2015;29(13-14):1604–1616.
   PubMed Web of Science ®Google Scholar
• Knollman-Porter K, Brown J, Wallace T, et al. First-line health care Providers' Reported Knowledge of and Referrals to Speech-Language Pathologists for Clients With Mild Traumatic Brain Injury. Am J Speech Lang Pathol. 2021;30(5):2214–2227.
   PubMed Web of Science ®Google Scholar
• Theadom A, Starkey N, Barker-Collo S, on behalf of the BIONIC4you Research Group, et al. Population-based cohort study of the impacts of mild traumatic brain injury in adults four years post-injury. PLoS One. 2018;13(1):e0191655.
   PubMed Web of Science ®Google Scholar
• McMahon P, Hricik A, Yue J, TRACK-TBI Investigators, et al. Symptomatology and functional outcome in mild traumatic brain injury: results from the prospective TRACK-TBI study. J Neurotrauma. 2014;31(1):26–33.
   PubMed Web of Science ®Google Scholar
• New South Wales Ministry of Health. Adult trauma clinical practice guidelines: initial management of closed health injury in adults. 2nd ed. North Sydney (NSW): Agency for Clinical Innovation; 2011. Available from: https://aci.health.nsw.gov.au/__data/assets/pdf_file/0003/195150/Closed_Head_Injury_CPG_2nd_Ed_Full_document.pdf
   Google Scholar
• Steel J, Togher L. Social communication assessment after traumatic brain injury: a narrative review of innovations in pragmatic and discourse assessment methods. Brain Inj. 2019;33(1):48–61.
   Web of Science ®Google Scholar
• New Zealand Guidelines Group. Traumatic brain injury: diagnosis, acute management and rehabilitation. 2006. Available from: https://www.moh.govt.nz/notebook/nbbooks.nsf/0/B8738C 3605889A6ACC257A6D00809243/$file/traumatic-brain-injury-acc.pdf
   Google Scholar
• Fitts M, Bird K, Gilroy J, et al. A qualitative study on the transition support needs of indigenous australians following traumatic brain injury. Brain Impair. 2019;20(2):137–159.
   Web of Science ®Google Scholar
• Katzenellenbogen J, Sanfilippo F, Hobbs M, et al. Voting with their feet-predictors of discharge against medical advice in Aboriginal and non-Aboriginal ischaemic heart disease inpatients in Western Australia: an analytic study using data linkage. BMC Health Serv Res. 2013;13(330):330–310.
   PubMedGoogle Scholar
• Choi M, Kim H, Qian H, et al. Readmission rates of patients discharged against medical advice: a matched cohort study. PLoS One. 2011;6(9):e24459.
   PubMed Web of Science ®Google Scholar
• Alfandre D. I’m going home”: discharges against medical advice. Mayo Clin Proc. 2009;84(3):255–260.
   PubMed Web of Science ®Google Scholar
• Coelho C, Ylvisaker M, Turkstra L. Nonstandardized assessment approaches for individuals with traumatic brain injuries. Semin Speech Lang. 2005;26(4):223–241.
   PubMedGoogle Scholar
• Armstrong E, McAllister M, Hersh D, et al. A screening tool for acquired communication disorders in aboriginal australians after brain injury: lessons learned from the pilot phase. Aphasiology. 2020;34(11):1388–1412.
   Web of Science ®Google Scholar
• Cochrane F, Siyambalapitiya S, Cornwell P. Speech-language pathology services for indigenous australian adults with acquired communication disorders: a systematic quantitative literature review. Speech Lang Hear. 2020;23(2):79–90.
   Google Scholar
• Frith M, Togher L, Ferguson A, et al. Assessment practices of speech-language pathologists for cognitive communication disorders following traumatic brain injury in adults: an international survey. Brain Inj. 2014;28(13-14):1657–1666.
   PubMed Web of Science ®Google Scholar
• Rohde A, Worral L, Godecke E, et al. Diagnosis of aphasia in stroke populations: a systematic review of language tests. PLoS One. 2018;13(3):e0194143–17.
   PubMed Web of Science ®Google Scholar
• Verna A, Davidson B, Rose M. Speech-language pathology services for people with aphasia: a survey of current practice in Australia. Int J Speech-Lang. 2009;11(3):191–205.
   Web of Science ®Google Scholar
• Lorenzen B, Murray L. Bilingual aphasia: a theoretical and clinical review. Am J Speech Lang Pathol. 2008;17(3):299–317.
   PubMed Web of Science ®Google Scholar
• Huang A, Siyambalapitiya S, Cornwell P. Speech pathologists and professional interpreters managing culturally and linguistically diverse adults with communication disorders: a systematic review. Int J Lang Commun Disord. 2019;54(5):689–704.
   PubMed Web of Science ®Google Scholar
• Morgan D, Harris T, Gidgup R, et al. Identifying the cultural heritage of patients during clinical handover and in hospital medical records. Med J Aust. 2019;210(5):220–226.
   PubMed Web of Science ®Google Scholar
• Dingwall K, Lindeman MA, Cairney S. You’ve got to make it relevant”: barriers and ways forward for assessing cognition in aboriginal clients. BMC Psychol. 2014;2(1):1–11.
   Google Scholar
• Ralph A, Lowell A, Murphy J, et al. Low uptake of aboriginal interpreters in healthcare: exploration of current use in Australia's Northern Territory. BMC Health Serv Res. 2017;17(1):733–712.
   PubMedGoogle Scholar
• Wotherspoon C, Williams C. Exploring the experiences of aboriginal and torres strait islander patients admitted to a metropolitan health service. Aust Health Rev. 2019;43(2):217–223.
   PubMed Web of Science ®Google Scholar
• Lin I, Green C, Bessarab D. 'Yarn with me': applying clinical yarning to improve clinician-patient communication in Aboriginal health care”. Aust J Prim Health. 2016;22(5):377–382.
   PubMed Web of Science ®Google Scholar
• Bohanna I, Stephens A, Wargent R, et al. Assessment of acquired brain injury in Aboriginal and Torres Strait Islander Australians: guidance for disability care Australia. 2013. Available from: https://www.braininjuryaustralia.org.au/wp-content/uploads/PDF_Project_Report_9Jul13_FINALx.pdf
   Google Scholar
• Bessarab D, Ng'andu B. Yarning about yarning as a legitimate method in indigenous research. IJCIS. 2010;3(1):37–50.
   Google Scholar
• Armstrong E, Ciccone N, Hersh D, et al. Development of the aboriginal communication assessment after brain injury (ACAABI): a screening tool for identifying acquired communication disorders in aboriginal Australians. Int J Speech Lang Pathol. 2017;19(3):297–308.
   PubMed Web of Science ®Google Scholar
• Lewis T, Hill A, Bond C. Yarning: assessing proppa ways. JCPSLP. 2017;19(1):14–18.
   Google Scholar
• Gibson C, Crockett J, Dudgeon P, et al. Sharing and valuing older aboriginal people's voices about social and emotional wellbeing services: a strength-based approach for service providers. Aging Ment Health. 2020;24(3):481–488.
   PubMed Web of Science ®Google Scholar
• Steel J, Ferguson A, Spencer E, et al. Language and cognitive communication disorder during post-traumatic amnesia: profiles of recovery after TBI from three cases. Brain Inj. 2017;31(13-14):1889–1902.
   PubMed Web of Science ®Google Scholar
• Riedeman S, Turkstra L. Knowledge, confidence, and practice patterns of speech-language pathologists working with adults with traumatic brain injury. Am J Speech Lang Pathol. 2018;27(1):181–191.
   PubMed Web of Science ®Google Scholar
• Australian Bureau of Statistics [ABS]. Estimates of Aboriginal and Torres Strait Islander Australians. 2018. Available from: https://www.abs.gov.au/ausstats/[email protected]/mf/3238.0.55.001
   Google Scholar
• Queensland Government. Aboriginal and Torres Strait Islander peoples in Queensland, Census 2016. 2017. Available from: www.qgso.qld.gov.au/products/reports/atsi-pop-qld-c16/atsi-pop-qld-c16.pdf
   Google Scholar
• Hersh D, Armstrong E, McAllister M, et al. General practitioners' perceptions of their communication with Australian Aboriginal patients with acquired neurogenic communication disorders. Patient Educ Couns. 2019;102(12):2310–2317.
   PubMed Web of Science ®Google Scholar
• Shahid S, Finn L, Bessarab D, et al. 'Nowhere to room … nobody told them': logistical and cultural impediments to Aboriginal peoples' participation in cancer treatment”. Aust Health Rev. 2011;35(2):235–241.
   PubMed Web of Science ®Google Scholar
• Kelly J, Dwyer J, Willis E, et al. Travelling to the city for hospital care: access factors in country aboriginal patient journeys. Aust J Rural Health. 2014;22(3):109–113.
   PubMed Web of Science ®Google Scholar
• Worrall-Carter L, Daws K, Rahman M, et al. Exploring aboriginal patients' experiences of cardiac care at a major metropolitan hospital in Melbourne. Aust Health Rev. 2016;40(6):696–704.
   PubMed Web of Science ®Google Scholar
• Coffin J. Rising to the challenge in aboriginal health by creating cultural security. AIHWJ. 2007;31:22–24.
   Google Scholar
• Rose M, Ferguson A, Power E, et al. Aphasia rehabilitation in Australia: current practices, challenges and future directions. Int J Speech Lang Pathol. 2014;16(2):169–180.
   PubMed Web of Science ®Google Scholar
• Kelly M, McDonald S, Frith M. Assessment and rehabilitation of social cognition impairment after brain injury: surveying practices of clinicians. Brain Imp. 2017;18(1):11–35.
   Web of Science ®Google Scholar