References
- Stadskleiv K. Cognitive functioning in children with cerebral palsy. Dev Med Child Neurol. 2020;62(3):283–289.
- American Psychiatric Association. Diagnostic and statistical manual of mental disorders (DSM-5®). Washington D.C.: American Psychiatric Pub; 2013.
- World Health Organization. International classification of diseases for mortality and morbidity statistics (11th Revision) 2018.
- The National Board of Health and Welfare. Swedish disability policy: service and care for people with functional impairments 2009. p. 126–88.
- Cummins D, Kerr C, McConnell K, et al. Risk factors for intellectual disability in children with spastic cerebral palsy. Arch Dis Child. 2021;106(10):975–980.
- Stadskleiv K, Jahnsen R, Andersen GL, et al. Neuropsychological profiles of children with cerebral palsy. Dev Neurorehabil. 2018;21(2):108–120.
- Andersen GL, Irgens LM, Haagaas I, et al. Cerebral palsy in Norway: prevalence, subtypes and severity. Eur J Paediatr Neurol. 2008;12(1):4–13.
- Himmelmann K, Beckung E, Hagberg G, et al. Gross and fine motor function and accompanying impairments in cerebral palsy. Dev Med Child Neurol. 2006;48(6):417–423.
- Sigurdardottir S, Eiriksdottir A, Gunnarsdottir E, et al. Cognitive profile in young icelandic children with cerebral palsy. Dev Med Child Neurol. 2008;50(5):357–362.
- Knudsen M, Stadskleiv K, O’Regan E, et al. The implementation of systematic monitoring of cognition in children with cerebral palsy in Sweden and Norway. Disab Rehab. 2022;1–10. doi: 10.1080/09638288.2022.2094477.
- Bøttcher L, Stadskleiv K, Berntsen T, et al. Systematic cognitive monitoring of children with cerebral palsy–the development of an assessment and follow-up protocol. Scand J Disab Res. 2016;18(4):304–315.
- CPUP. CPUP -Uppföljningsprogram för personer med cerebral pares (CP) CPUP. 2021. https://cpup.se/vad-ar-cpup/
- Wechsler D. Wechsler preschool and primary scale of intelligence. 4th ed. Swedish version. Bromma: Pearson Clinical; 2014.
- Wechsler D. Wechsler intelligence scale for children. 5th ed. Swedish version. Bromma, Sweden: Pearson Clinical; 2016.
- Beery KE, Buktenica NA, Beery NA. Beery-Buktenica developmental test of Visual-Motor integration. 6th ed. (Beery VMI). Indianapolis: The Psychological Corporation, Harcourt Brace; 2010.
- Gioia GA, Isquith PK, Roth RM. Behavior rating inventory for executive function. In: Kreutzer JS, DeLuca J, Caplan B, editors. Encyclopedia of clinical neuropsychology. Cham: Springer International Publishing; 2018. p. 532–538.
- Kurmanaviciute R, Stadskleiv K. Assessment of verbal comprehension and non-verbal reasoning when standard response mode is challenging: a comparison of different response modes and an exploration of their clinical usefulness. Cogent Psychol. 2017;4(1):1275416.
- Geytenbeek JJ, Mokkink LB, Knol DL, et al. Reliability and validity of the C-BiLLT: a new instrument to assess comprehension of spoken language in young children with cerebral palsy and complex communication needs. Augment Altern Commun. 2014;30(3):252–266.
- Von Tetzchner S, Martinsen H. Introduction to augmentative and alternative communication: Sign teaching and the use of communication aids for children, adolescents and adults with developmental disorders: Whurr London. 2000.
- Carone DA, Strauss E, Sherman EMS, et al. A compendium of neuropsychological tests: administration, norms, and commentary: a review of: “oxford university press, New York, 2006”. Lezak, New York: Taylor & Francis; 2007.
- Lezak MD, Howieson DB, Loring DW, et al. Neuropsychological assessment. USA: Oxford University Press; 2004.
- International Test Commission. The ITC guidelines for translating and adapting tests 2017. www.InTestCom.org
- Andersen G, Mjøen TR, Vik T. Prevalence of speech problems and the use of augmentative and alternative communication in children with cerebral palsy: a registry-based study in Norway. Perspect Augment Altern Commun. 2010;19(1):12–20.
- Batorowicz B, Stadskleiv K, Renner G, et al. Assessment of aided language comprehension and use in children and adolescents with severe speech and motor impairments. Augment Altern Commun. 2018;34(1):54–67.
- Spillane MM, Ross KK, Vasa SF. A comparison of eye‐gaze and standard response mode on the PPVT‐R. Psychol Schs. 1996;33(4):265–271.
- Westbom L, Hägglund G. Refugee/immigrant children with cerebral palsy in the Swedish health care organization. Lakartidningen. 2019;116:FL9L.
- Westbom L, Hagglund G, Nordmark E. Cerebral palsy in a total population of 4–11 year olds in Southern Sweden. Prevalence and distribution according to different CP classification systems. BMC Pediatr. 2007;7(1):1–8.
- Petersen TG, Forthun I, Lange T, et al. Cerebral palsy among children of immigrants in Denmark and the role of socioeconomic status. Eur J Paediatr Neurol. 2019;23(3):507–516.
- Josenby AL, Czuba T, Alriksson-Schmidt AI. Gender differences in treatments and interventions received by children and adolescents with cerebral palsy. BMC Pediatr. 2020;20(1):45.
- Statistics Sweden. Different living conditions for children with Swedish and with foreign background: Statistics Sweden; 2017. https://www.scb.se/en/finding-statistics/statistics-by-subject-area/living-conditions/living-conditions/children-and-their-families/pong/statistical-news/children-and-their-families-2016/
- Kammarkollegiet. Fler auktoriserade tolker - vägen dit: Kammarkollegiet; 2017. https://www.kammarkollegiet.se/download/18.1abda2991677d325932f52a/1551777025426/Fler%20auktoriserade%20tolkar%20-%20v%C3%A4gen%20dit_Kammarkollegiet%20
- Granhagen Jungner J, Tiselius E, Blomgren K, et al. Language barriers and the use of professional interpreters: a national multisite cross-sectional survey in pediatric oncology care. Acta Oncol. 2019;58(7):1015–1020.
- Pergert P, Ekblad S, Enskär K, et al. Obstacles to transcultural caring relationships: experiences of health care staff in pediatric oncology. J Pediatr Oncol Nurs. 2007;24(6):314–328.
- Suurmond J, Lieveld A, Van de Wetering M, et al. Towards culturally competent paediatric oncology care. A qualitative study from the perspective of care providers. Eur J Cancer Care. 2017;26(6):e12680.
- Patriksson K, Wigert H, Berg M, et al. Health care professional’s communication through an interpreter where language barriers exist in neonatal care: a national study. BMC Health Serv Res. 2019;19(1):1–8.
- Norström E, Gustafsson K, Fioretos I. Interpreters in Sweden–a tool for equal rights? Gramma J Theory Critic. 2011;19:59–75.
- Sveriges Riksdag. Patientlag (2014:821): Sveriges Riksdag; 2014. https://www.riksdagen.se/sv/dokument-lagar/dokument/svensk-forfattningssamling/patientlag-2014821_sfs-2014-821
- Angelelli CV. Healthcare interpreting explained. New York, NY: Routledge; 2019.
- Pöchhacker F. Research and methodology in healthcare interpreting: center for translation studies. Vienna: University of Vienna; 2006.
- Major G, Napier J. Interpreting and knowledge mediation in the healthcare setting: what do we really mean by “accuracy”?2012.
- Statistics Sweden. Summary of population statistics 1960–2020: Statistics Sweden 2021. https://www.scb.se/en/finding-statistics/statistics-by-subject-area/population/population-composition/population-statistics/pong/tables-and-graphs/yearly-statistics–the-whole-country/summary-of-population-statistics/.
- CPUP. Årsrapport 2019 Lund, Sweden 2019. https://cpup.se/wp-content/uploads/2019/10/%c3%85rsrapport-CPUP-2019-PDF.pdf
- 1177 Vårdguiden. Hitta vård: 1177. Vårdguiden; 2021. https://www.1177.se/hitta-vard/?st=67842811-d7d9-4b53-bebb-0c7b20f256ed&nearby=false&s=name&g=&lat=&lng=&location=&caretype=Barnhabilitering&q=
- Harris PA, Taylor R, Minor BL, REDCap Consortium, et al. The REDCap consortium: building an international community of software platform partners. J Biomed Inform. 2019;95:103208.
- Palisano R, Rosenbaum P, Walter S, et al. Development and reliability of a system to classify gross motor function in children with cerebral palsy. Dev Med Child Neurol. 1997;39(4):214–223.
- Eliasson AC, Krumlinde‐Sundholm L, Rösblad B, et al. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–554.
- Hidecker MJC, Paneth N, Rosenbaum PL, et al. Developing and validating the communication function classification system for individuals with cerebral palsy. Dev Med Child Neurol. 2011;53(8):704–710.
- Cans C. Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Develop Med Child Neurol. 2007;42(12):816–824.
- Core Team R. R: a language and environment for statistical computing. Vienna: R Foundation for Statistical Computing; 2019.
- RStudio Team. RStudio: Integrated development for R. Boston (MA): R Studio, PBC; 2020.
- Sherwell S, Reid SM, Reddihough DS, et al. Measuring intellectual ability in children with cerebral palsy: can we do better? Res Dev Disabil. 2014;35(10):2558–2567.
- Geytenbeek J, Harlaar L, Stam M, et al. Utility of language comprehension tests for unintelligible or non‐speaking children with cerebral palsy: a systematic review. Dev Med Child Neurol. 2010;52(12):e267–e77.
- NorCP. Årsrapport for 2020 med plan for forbedringstiltak: NorCP; 2020. https://www.siv.no/seksjon/CP-registeret_/Documents/Arsrapporter/NorCP%202020%20Årsrapport.pdf
- Accardo PJ, Capute AJ. Capute & accardo’s neurodevelopmental disabilities in infancy and childhood. The spectrum of neurodevelopmental disabilities. Baltimore, MD: Paul H. Brookes Pub.; 2008.
- Reddihough D. Cerebral palsy in childhood. Aust Fam Physician. 2011;40(4):192–196.
- Rosenbaum P, Paneth N, Leviton A, et al. A report: the definition and classification of cerebral palsy April 2006. Dev Med Child Neurol Suppl. 2007;109(suppl 109):8–14.
- ITC. The ITC guidelines for translating and adapting tests. 2nd ed. 2017. www.InTestCom.org
- Bansal A. Training healthcare professionals to work with interpreters. Br J Gen Pract. 2013;63(609):183–184.
- Ertl A, Pöllabauer S. Training (medical) interpreters—the key to good practice. MedInt: a Joint European Training Perspective. J Special Transl. 2010;14:166–193.
- Woll A, Quick KK, Mazzei C, et al. Working with interpreters as a team in health care (with care) curriculum tool kit for oral health professions. MedEdPORTAL. 2020;16:10894.
- Hadders-Algra M. Early diagnosis and early intervention in cerebral palsy. Front Neurol. 2014;5:185.