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Research Article

Illuminating their reality: the use of metaphor by parents of children with disabilities to express their experiences of health care

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Received 12 Sep 2023, Accepted 23 Apr 2024, Published online: 06 May 2024

References

  • Rosenbaum P, King S, Law M, et al. Family-centred service: a conceptual framework and research review. Phys. Occup Ther Pediatr. 1998;18(1):1–20. doi: 10.1300/J006v18n01_01.
  • Moore TG, Larkin H. More than my child’s disability": a comprehensive review of family-centred practice and family experiences of early childhood intervention services. Melbourne, Victoria: Scope (Vic) Inc.; 2006.
  • King G, Chiarello L. Family-centered care for children with cerebral palsy: conceptual and practical considerations to advance care and practice. J Child Neurol. 2014;29(8):1046–1054. doi: 10.1177/0883073814533009.
  • Moser KS. Metaphor analysis in psychology—method, theory, and fields of application. Forum: qualitative Social Research. 2000;1(2).
  • Lakoff G, Johnson M. Metaphors we live by. Chicago, IL: University of Chicago Press; 2008.
  • Fazio LS. Tell me a story: the therapeutic metaphor in the practice of pediatric occupational therapy. Am J Occup Ther. 1992;46(2):112–119. doi: 10.5014/ajot.46.2.112.
  • Tourish D, Hargie O. Metaphors of failure and the failures of metaphor: a critical study of root metaphors used by bankers in explaining the banking crisis. Org Stud. 2012;33(8):1045–1069. doi: 10.1177/0170840612453528.
  • Semino E. “Not soldiers but fire-fighters”–metaphors and COVID-19. Health Commun. 2021;36(1):50–58. doi: 10.1080/10410236.2020.1844989.
  • Gibbs RW. Researching metaphor. In: cameron L, Low G, editors. Researching and applying metaphor. Cambridge, UK: Cambridge University Press; 1999. p. 29–47.
  • Lakoff G, Johnson M. Why cognitive linguistics require embodied realism. Cognitive Linguistics. 2003;13(3):245–263.
  • Zaltman G, Zaltman LH. Marketing metaphoria: what deep metaphors reveal about the minds of consumers. Boston (MA): Harvard Business Press; 2008.
  • Mathieson F, Jordan J, Carter JD, et al. Nailing down metaphors in CBT: definition, identification and frequency. Behav Cogn Psychother. 2016;44(2):236–248. doi: 10.1017/S1352465815000156.
  • Levitt H, Korman Y, Angus L. A metaphor analysis in treatments of depression: metaphor as a marker of change. Counselling Psychol Quar. 2000;13(1):23–35. doi: 10.1080/09515070050011042.
  • Coakley R, Schechter N. Chronic pain is like… the clinical use of analogy and metaphor in the treatment of chronic pain in children. Pediatric Pain Letter. 2013;15(1):1–8.
  • Semino E, Demjén Z, Demmen J. An integrated approach to metaphor and framing in cognition, discourse and practice, with an application to metaphors for cancer. Applied Linguistics. 2018;39(5):625–645.
  • Thompson KM. Early intervention services in daily family life: mothers’ perceptions of ‘ideal’ versus ‘actual’ service provision. Occupation Therapy Intl. 1998;5(3):206–221. doi: 10.1002/oti.76.
  • Van Hove G, De Schauwer E, Mortier K, et al. Working with mothers and fathers of children with disabilities: metaphors used by parents in a continuing dialogue. Eur Early Childhood Educ Res J. 2009;17(2):187–201. doi: 10.1080/13502930902951379.
  • Smart E, Nalder E, Trentham B, et al. Expectations for therapy in pediatric rehabilitation: reframing meaning through metaphor. Disabil Rehabil. 2022;44(23):7134–7144. doi: 10.1080/09638288.2021.1984591.
  • King G, Phoenix M, VanderKaay S, et al. Seeing the light versus being in the dark: parent, child, and service providers’ use of metaphors to express system complexity, therapy engagement, and personal experiences of adaptation. Disabil Rehabil. 2023:1–11. doi: 10.1080/09638288.2023.2266372.
  • Stewart DA, Law MC, Rosenbaum P, et al. A qualitative study of the transition to adulthood for youth with physical disabilities. Phys Occup Ther Pediatr. 2001;21(4):3–21. doi: 10.1080/J006v21n04_02.
  • Sudajit-Apa M. A critical metaphor analysis of disability identity and ideology in the thai undergraduates’ home for children with disabilities website project. ALLS. 2017;8(5):79–88. doi: 10.7575/aiac.alls.v.8n.5p.79.
  • Phoenix M, Jack SM, Rosenbaum PL, et al. A grounded theory of parents’ attendance, participation and engagement in children’s developmental rehabilitation services: part 2. The journey to child health and happiness. Disabil Rehabil. 2020;42(15):2151–2160. doi: 10.1080/09638288.2018.1555618.
  • Hodgetts S, Nicholas D, Zwaigenbaum L, et al. Parents’ and professionals’ perceptions of family-centered care for children with autism spectrum disorder across service sectors. Soc Sci Med. 2013;96:138–146. doi: 10.1016/j.socscimed.2013.07.012.
  • Viscardis L. The family-centred approach to providing services: a parent perspective. Phys. & Occupational Therapy in Pediatrics. 1998;18(1):41–53. doi: 10.1300/J006v18n01_03.
  • Pozniak K, King G, Chambers E, et al. What do parents want from healthcare services? Reports of parents’ experiences with pediatric service delivery for their children with disabilities. Disabil Rehabil. 2023;:1–14. doi: 10.1080/09638288.2023.2229733.
  • Bowen S, Graham ID. Integrated knowledge translation. In: Straus SE, Tetroe J, Graham ID, editors. Knowledge translation in health care. Hoboken (NJ): John Wiley & Sons; 2013. p. 14–23.
  • Pozniak K, King G, Chambers E, et al. Family-centered service through the eyes of insiders: healthcare providers who are parents speak about receiving and providing healthcare in pediatric rehabilitation. Res Develop Disabil. 2024.
  • Schmitt R. Systematic metaphor analysis as a method of qualitative research. Qual Rep. 2005;10(2):358–394.
  • Group P. MIP: a method for identifying metaphorically used words in discourse. Metaphor Symbol. 2007;22(1):1–39. doi: 10.1080/10926480709336752.
  • Cila N, Hekkert P, Visch V. “Digging for meaning”: the effect of a designer’s expertise and intention on depth of product metaphors. Metaphor Symbol. 2014;29(4):257–277. doi: 10.1080/10926488.2014.948795.
  • Avelino F. Theories of power and social change. Power contestations and their implications for research on social change and innovation. J Political Power. 2021;14(3):425–448. doi: 10.1080/2158379X.2021.1875307.
  • Partzsch L. No change withour power - an agenda for a multidimensional understanding of power in sustainability research. GAIA-Ecological Persp Sci Soc. 2015;24(1):48–56. doi: 10.14512/gaia.24.1.10.
  • Morriss P. Power: a philosophical analysis. 2nd ed. Manchester, UK: Manchester University Press; 2002.
  • Huang YP, Kellett UM, St John W. Cerebral palsy: experiences of mothers after learning their child’s diagnosis. J Adv Nurs. 2010;66(6):1213–1221. doi: 10.1111/j.1365-2648.2010.05270.x.
  • Guerriere D, McKeever P. Mothering children who survive brain injuries: playing the hand you’re dealt. J Soc Pediatr Nurs. 1997;2(3):105–115. doi: 10.1111/j.1744-6155.1997.tb00067.x.
  • Arfa S, Solvang PK, Berg B, et al. Disabled and immigrant, a double minority challenge: a qualitative study about the experiences of immigrant parents of children with disabilities navigating health and rehabilitation services in Norway. BMC Health Serv Res. 2020;20(1):134. doi: 10.1186/s12913-020-5004-2.
  • Seligman ME. Learned helplessness. Annu Rev Med. 1972;23(1):407–412. doi: 10.1146/annurev.me.23.020172.002203.
  • Trogen B. The evidence-based metaphor. Jama. 2017;317(14):1411–1412. doi: 10.1001/jama.2016.17219.
  • Chapman RD. The use of metaphor in counselling: a discourse analysis. Vancouver, BC: University of British Columbia; 2009.
  • King G. Central yet overlooked: engaged and person-centred listening in rehabilitation and healthcare conversations. Disabil Rehabil. 2022;44(24):7664–7676. doi: 10.1080/09638288.2021.1982026.
  • Kagan PN. Listening: selected perspectives in theory and research. Nurs Sci Q. 2008;21(2):105–110. doi: 10.1177/0894318408315027.
  • Meldrum H. The listening practices of exemplary physicians. Int J Listen. 2011;25(3):145–160. doi: 10.1080/10904018.2011.604603.
  • Van Tongeren DR, Davis DE, Hook JN, et al. Humility. Curr Dir Psychol Sci. 2019;28(5):463–468. doi: 10.1177/0963721419850153.
  • King G, Williams L, Hahn Goldberg S. Family-oriented services in pediatric rehabilitation: a scoping review and framework to promote parent and family wellness. Child Care Health Dev. 2017;43(3):334–347. doi: 10.1111/cch.12435.
  • Rosenbaum PL, Novak-Pavlic M. Parenting a child with a neurodevelopmental disorder. Curr Dev Disord Rep. 2021;8(4):212–218. doi: 10.1007/s40474-021-00240-2.

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