Understanding paid support relationships: possibilities for mutual recognition between young people with disability and their support workers

References

• Bigby, C., and I. Wiesel. 2015. “Mediating Community Participation: Practice of Support Workers in Initiating, Facilitating or Disrupting Encounters between People with and without Intellectual Disability.” Journal of Applied Research in Intellectual Disabilities : JARID 28 (4): 307–318. doi:10.1111/jar.12140.
   PubMed Web of Science ®Google Scholar
• Blonk, L., T. Huijben, F. Bredewold, and E. Tonkens. 2020. “Balancing Care and Work: A Case Study of Recognition in a Social Enterprise.” Disability & Society 35 (6): 972–992. doi:10.1080/09687599.2019.1669434.
   Web of Science ®Google Scholar
• Carey, G., E. Malbon, S. Olney, and D. Reeders. 2018. “The Personalisation Agenda: The Case of the Australian National Disability Insurance Scheme.” International Review of Sociology 28 (1): 20–34. doi:10.1080/03906701.2018.1425084.
   Web of Science ®Google Scholar
• Christensen, K. 2012. “Towards Sustainable Hybrid Relationships in Cash-for Care Systems.” Disability & Society 27 (3): 399–412. doi:10.1080/09687599.2012.654990.
   Web of Science ®Google Scholar
• Clark, J. 2012. “Using Diamond Ranking as Visual Cues to Engage Young People in the Research Process.” Qualitative Research Journal 12 (2): 222–237. doi:10.1108/14439881211248365.
   Google Scholar
• Cummins, R. A. 2005. “Moving from the Quality of Life Concept to a Theory.” Journal of Intellectual Disability Research : JIDR 49 (Pt 10): 699–706. doi:10.1111/j.1365-2788.2005.00738.x.
   PubMed Web of Science ®Google Scholar
• Danermark, B., and L. C. Gellerstedt. 2004. “Social Justice: Redistribution and Recognition—A Non‐Reductionist Perspective on Disability.” Disability & Society 19 (4): 339–353. doi:10.1080/09687590410001689458.
   Web of Science ®Google Scholar
• Fisher, K. R., S. Gendera, A. Graham, S. Robinson, K. Johnson, and K. Neale. 2018. “Disability and Support Relationships: What Role Does Policy Play?” Australian Journal of Public Administration, 78 (1): 37–55. doi:10.1111/1467-8500.12351.
   Web of Science ®Google Scholar
• Fisher, P., and V. Byrne. 2012. “Identity, Emotion and the Internal Goods of Practice: A Study of Learning Disability Professionals.” Sociology of Health & Illness 34 (1): 79–94. doi:10.1111/j.1467-9566.2011.01365.x.
   PubMed Web of Science ®Google Scholar
• Fraser, N. 1995. “From Redistribution to Recognition?: Dilemmas of Justice in a ‘Post-Socialist’ Age.” New Left Review 212: 68–93.
   Google Scholar
• Fraser, N. 2001. “Recognition without Ethics? Theory.” Culture & Society 18 (2–3): 21–42. doi:10.1177/02632760122051760.
   Web of Science ®Google Scholar
• Graham, A., M. A. Powell, and J. Truscott. 2016. “Facilitating Student Well-Being: Relationships Do Matter.” Educational Research 58 (4): 366–383. doi:10.1080/00131881.2016.1228841.
   Web of Science ®Google Scholar
• Hall, E. 2010. “Spaces of Social Inclusion and Belonging for People with Intellectual Disaibilities.” Journal of Intellectual Disability Research 54 (1): 48–57. doi:10.1111/j.1365-2788.2009.01237.x.
   PubMed Web of Science ®Google Scholar
• Hastings, R. P. 2010. “Support Staff Working in Intellectual Disability Services: The Importance of Relationships and Positive Experiences.” Journal of Intellectual & Developmental Disability 35 (3): 207–210. doi:10.3109/13668250.2010.492710.
   PubMed Web of Science ®Google Scholar
• Honneth, A. 1995. The Struggle for Recognition: The Moral Grammar of Social Conflicts. Cambridge: Polity Press.
   Google Scholar
• Honneth, A. 2001. “Recognition or Redistribution? Changing Perspectives on the Moral Order of Society.” Theory, Culture & Society 18 (2–3): 43–55.
   Web of Science ®Google Scholar
• Honneth, A. 2004. “Recognition and Justice: Outline of a Plural Theory of Justice.” Acta Sociologica 47 (4): 351–364. doi:10.1177/0001699304048668.
   Web of Science ®Google Scholar
• Jones, C., K. Stalker, A. Franklin, D. Fry, A. Cameron, and J. Taylor. 2017. “Enablers of Help-Seeking for Deaf and Disabled Children following Abuse and Barriers to Protection: A Qualitative Study.” Child & Family Social Work 22 (2): 762–771. doi:10.1111/cfs.12293
   Web of Science ®Google Scholar
• Kelly, C. 2011. “Making ‘Care’ Accessible: Personal Assistance for Disabled People and the Politics of Language.” Critical Social Policy 31 (4): 562–582. doi:10.1177/0261018311410529.
   Web of Science ®Google Scholar
• Martineau, W., Meer, N. & Thompson, S. (2012) Theory and practice in the politics of recognition and misrecognition. Res Publica, 18, 1–9. doi:10.1007/s11158-012-9181-7
   Google Scholar
• Marquis, R., and R. Jackson. 2000. “Quality of Life and Quality of Service Relationships: Experiences of People with Disabilities.” Disability & Society 15 (3): 411–425. doi:10.1080/713661967.
   Web of Science ®Google Scholar
• Mason, P., K. Timms, T. Hayburn, and C. Watters. 2013. “How Do People Described as Having a Learning Disability Make Sense of Friendship?” Journal of Applied Research in Intellectual Disabilities : JARID 26 (2): 108–118. doi:10.1111/jar.12001.
   PubMed Web of Science ®Google Scholar
• Muir, K., and F. Salignac. 2017. “Can Market Forces Stimulate Social Change? A Case Example Using the National Disability Insurance Scheme in Australia.” Third Sector Review 23 (2): 57–80.
   Google Scholar
• Neale, J. 2016. “Iterative Categorization (IC): A Systematic Technique for Analysing Qualitative Data.” Addiction (Abingdon, England) 111 (6): 1096–1106. doi:10.1111/add.13314.
   PubMed Web of Science ®Google Scholar
• Neale, K., S. Robinson, J. Speeding, and S. Poredos. 2017. Relationships and Recognition: Photos about Working Together. Lismore: Southern Cross University.
   Google Scholar
• O’Brien, J. 2013. ““It’s Not So Much a Job But a Relationship”: A Response to Romer and Walker.” Research & Practice for Persons with Severe Disabilities 38 (3): 196–201.
   Web of Science ®Google Scholar
• Overmars-Marx, T., F. Thomese, and X. Moonen. 2018. “Photovoice in Research Involving People with Intellectual Disabilities: A Guided Photovoice Approach as an Alternative.” Journal of Applied Research in Intellectual Disabilities : JARID 31 (1): e92. doi:10.1111/jar.12329.
   PubMed Web of Science ®Google Scholar
• Powell, M. A., A. Graham, and J. Truscott. 2016. “Ethical Research Involving Children: Facilitating Reflexive Engagement.” Qualitative Research Journal 16 (2): 197–208. doi:10.1108/QRJ-07-2015-0056.
   Web of Science ®Google Scholar
• Prain, M., K. McVilly, and P. Ramcharan. 2012. “Interacting with Adults with Congenital Deafblindness: The Experiences of Disability Support Workers.” Journal of Intellectual & Developmental Disability 37 (1): 27–34. doi:10.3109/13668250.2012.647808.
   PubMed Web of Science ®Google Scholar
• Robinson, S. 2015. “Preventing Abuse of Children and Young People with Disability under the National Disability Insurance Scheme: A Brave New World?” Australian Social Work 68 (4): 469–482. doi:10.1080/0312407X.2014.950977.
   Web of Science ®Google Scholar
• Robinson, S., and A. Graham. 2020. “Feeling Safe, Avoiding Harm: Safety Priorities of Children and Young People with Disability and High Support Needs.” Journal of Intellectual Disabilities, early online, 10.1177/1744629520917496.
   Web of Science ®Google Scholar
• Romer, L. T., and P. Walker. 2013. “Offering Person-Centered Supports on a Daily Basis: An Initial Appreciative Inquiry into the Relationship between Personal Assistants and Those Seeking Support.” Research and Practice for Persons with Severe Disabilities 38 (3): 186–195. doi:10.1177/154079691303800305.
   Web of Science ®Google Scholar
• Rossiter, A. 2014. “Axel Honneth’s Theory of Recognition and Its Potential for Aligning Social Work with Social Justice.” Critical and Radical Social Work 2 (1): 93–108. doi:10.1332/204986014X13912564145762.
   Google Scholar
• Salmon, N. 2013. “‘We Just Stick Together’: How Disabled Teens Negotiate Stigma to Create Lasting Friendship.” Journal of Intellectual Disability Research : JIDR 57 (4): 347–358. doi:10.1111/j.1365-2788.2012.01541.x.
   PubMed Web of Science ®Google Scholar
• Shakespeare, T., A. Stöckl, and T. Porter. 2018. “Metaphors to Work by: The Meaning of Personal Assistance in England.” International Journal of Care and Caring 2 (2): 165–179. doi:10.1332/239788218X15187915600658.
   Google Scholar
• Shakespeare, T., and N. Watson. 2018. “Disability and Social Justice.” In Handbook on Global Social Justice, edited by G. Craig. 201–212. London: Elgar. 10.4337/9781786431424.
   Google Scholar
• Shakespeare, T., T. Porter, and A. Stöckl. 2017. Personal Assistance Relationships: Power, Ethics and Emotions. Report on ESRC Project ES/L007894/1. Norwich: University of East Anglia.
   Google Scholar
• Skär, Lisa, and Maare Tam. 2001. “My Assistant and I: Disabled Children’s and Adolescents’ Roles and Relationships to Their Assistants.” Disability & Society 16 (7): 917–931. doi:10.1080/09687590120084010.
   Web of Science ®Google Scholar
• Taylor, C. 1995. Philosophical Arguments. London: Harvard University Press.
   Google Scholar
• Thomas, N., A. Graham, M. A. Powell, and R. Fitzgerald. 2016. “Conceptualisations of Children's Wellbeing at School: The Contribution of Recognition Theory.” Childhood 23 (4): 506–520. doi:10.1177/0907568215622802.
   Web of Science ®Google Scholar
• Turtiainen, K. 2012. “Possibilities of Trust and Recognition between Refugees and Authorities: Resettlement as a Part of Durable Solutions of Forced Migration.” Ph.D. thesis, University of Jyväskylä. https://jyx.jyu.fi/dspace/bitstream/handle/123456789/41130/978-951-39-4912-9_2012.pdf?sequence=1
   Google Scholar
• van Oorsouw, W. M., P. J., Embregts, and A. M. Bosman. 2013. “Evaluating Staff Training: Taking account of Interactions between Staff and Clients with Intellectual Disability and Challenging Behaviour.” Journal of Intellectual & Developmental Disability 38 (4): 356–364. doi:10.3109/13668250.2013.826787.
   PubMed Web of Science ®Google Scholar
• Yeung, P., and A. Towers. 2014. “An Exploratory Study Examining the Relationships between the Personal, Environmental and Activity Participation Variables and Quality of Life among Young Adults with Disabilities.” Disability and Rehabilitation 36 (1): 63–73. doi:10.3109/09638288.2013.777808.
   PubMed Web of Science ®Google Scholar