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Research Article

‘Then you realise you can actually do it’: young disabled people negotiating challenges during times of transitioning into adulthood

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Received 16 Aug 2022, Accepted 13 Jun 2023, Published online: 26 Jun 2023

References

  • Arnett, J. J. 2004. Emerging Adulthood: The Winding Road from Late Teens through the Twenties. Oxford University Press.
  • Austin, J. F. 2000. “The Role of Parents as Advocates for the Transition Rights of Their Disabled Youth.” Disability Studies Quarterly 20 (4): 1–10. https://doi.org/10.18061/dsq.v20i4.265
  • Bagatell, N., D. Chan, K. K. Rauch, and D. Thorpe. 2017. “Thrust into Adulthood’: Transition Experiences of Young Adults with Cerebral Palsy.” Disability and Health Journal 10 (1): 80–86. https://doi.org/10.1016/j.dhjo.2016.09.008
  • Bailey, S., K. Boddy, S. Briscoe, and C. Morris. 2015. “Involving Disabled Children and Young People as Partners in Research: A Systematic Review.” Child: Care, Health and Development 41 (4): 505–514. https://doi.org/10.1111/cch.12197
  • Bekken, W. 2022. “Negotiating Embodied Knowledge in the Transitionto Adulthood: A Social Model of Human Rights.” Disability & Society 37 (2): 163–182. https://doi.org/10.1080/09687599.2020.1816902
  • Bekken, W., B. Ytterhus, and S. Söderström. 2021. “In the Next Moment I Answer, It is Not Possible.’ Professionals’ Experiences from Transition Planning for Young People.” Scandinavian Journal of Disability Research 23 (1): 338–347. https://doi.org/10.16993/sjdr
  • Bell, J. 2018. “Adultism.” In The SAGE Encyclopedia of Educational Research, Measurement, and Evaluation, edited by B. Frey, 55–57. London: SAGE. https://doi.org/10.4135/9781506326139.n26
  • Besley, T. (. 2010. “Governmentality of Youth: Managing Risky Subjects.” Policy Futures in Education 8 (5): 528–547. https://doi.org/10.2304/pfie.2010.8.5.528
  • Best, A. L. 2007. “Introduction.” In Representing Youth Methodological Issues in Critical Youth Studies, edited by A. L. Best, 1–36. New York: NYU Press.
  • Bjarnason, D. S., and G. L. Marinósson. 2015. “Salamanca and beyond. Inclusive Education Still up for Debate.” In Inclusive Education Twenty Years after Salamanca, edited by F. Kiuppis and R. S. Hausstätter, 133–143. New York: Peter Lang Publishing Inc.
  • Björnsdóttir, K. 2017. “Belonging to Higher Education: Inclusive Education for Students with Intellectual Disabilities.” European Journal of Special Needs Education 32 (1): 125–136. https://doi.org/10.1080/08856257.2016.1254968
  • Björnsdóttir, K., G. V. Stefánsdóttir, and Á. Stefánsdóttir. 2015. “It’s My Life’: Autonomy and People with Intellectual Disabilities.” Journal of Intellectual Disabilities : JOID 19 (1): 5–21. https://doi.org/10.1177/1744629514564691
  • Campbell, F. K. 2009. “Contours of Ableism: The Production of Disability and Abledness.” Palgrave https://doi.org/10.1057/97802 30245181
  • Campbell, F. K. 2012. “Stalking Ableism: Using Disability to Expose ‘Abled’ Narcissism.” In Disability and Social Theory: New Developments and Directions, edited by D. Goodley, B. Hughes and L. Davis, 212–230. Basingstoke: Palgrave.
  • Charmaz, K. 2014. Constructing Grounded Theory. Thousand Oaks: SAGE.
  • Charmaz, K. 2017. “The Power of Constructivist Grounded Theory for Critical Inquiry.” Qualitative Inquiry 23 (1): 34–45. https://doi.org/10.1177/1077800416657105
  • Charmaz, K., R. Thornberg, and E. Keane. 2017. “Evolving Grounded Theory and Social Justice Inquiry.” In The SAGE Handbook of Qualitative Research, edited by N. K. Denzin and Y. S. Lincoln, 705–760. Thousand Oaks: SAGE.
  • Creswell, J. P., and C. N. Poth. 2018. Qualitative Inquiry & Research Design: Choosing among Five Approaches (4th ed.). Thousand Oaks: SAGE.
  • Curran, T., M. Jones, S. Ferguson, M. Reed, A. Lawrence, N. Cull, and M. Stabb. 2021. “Disabled Young People’s Hopes and Dreams in a Rapidly Changing Society: A Co-Production Peer Research Study.” Disability & Society 36 (4): 561–578. https://doi.org/10.1080/09687599.2020.1755234
  • Curran, T., and K. Runswick-Cole. 2014. “Disabled Children’s Childhood Studies: A Distinct Approach?” Disability & Society 29 (10): 1617–1630. https://doi.org/10.1080/09687599.2014.966187
  • Eakin, J., A. Robertson, B. Poland, D. Coburn, and R. Edwards. 1996. “Towards a Critical Social Science Perspective on Health Promotion Research.” Health Promotion International 11 (2): 157–165. https://doi.org/10.1093/heapro/11.2.157
  • Egilson, S. T., L. B. Ólafsdóttir, A. S. Ingimarsdóttir, F. Haraldsdóttir, Á. Jóhannsdóttir, B. E. Gibson, and S. Hardonk. 2021. “Life Quality and Participation of Disabled Children and Young People: Design and Methods of a Transformative Study.” International Journal of Qualitative Methods 20: 160940692110167. https://doi.org/10.1177/16094069211016713
  • Einarsdóttir, M., J. Einarsdóttir, and G. L. Rafnsdóttir. 2015. “We Are like the Poles’: On the Ambiguous Labour Market Position of Young Icelanders.” Veftímaritið Stjórnmál Og Stjórnsýsla 11 (2): 269–288. https://doi.org/10.13177/irpa.a.2015.11.2.8
  • Fine, M. 2019. “Critical Disability Studies: Looking Back and Forward.” Journal of Social Issues 75 (3): 972–984. https://doi.org/10.1111/josi.12344
  • Fraser, N., and L. Gordon. 1994. “A Genealogy of Dependency: Tracing a Keyword of the U.S. welfare State.” Signs: Journal of Women in Culture and Society 19 (2): 309–336. https://doi.org/10.1086/494886
  • Friese, S. 2019. “Grounded Theory Analysis and CAQDAS: A Happy Pairing or Remodeling GT to QDA?.” In The SAGE Handbook of Current Developments in Grounded Theory, edited by A. Bryant and K. Charmaz, 282–313. Thousand Oaks: SAGE.
  • Gibson, B. E., B. Mistry, B. Smith, K. K. Yoshida, D. Abbott, S. Lindsay, and Y. Hamdani. 2014. “Becoming Men: Gender, Disability, and Transitioning to Adulthood.” Health (London, England : 1997) 18 (1): 95–114. https://doi.org/10.1177/1363459313476967
  • Gillies, V., J. McCarthy, and J. Holland. 2001. Pulling Together, Pulling apart: The Family Lives of Young People Aged 16-18. New York: Family Policy Studies Centre/Joseph Rowntree Foundation.
  • Goodley, D., R. Lawthom, K. Liddiard, and K. Runswick-Cole. 2019. “Provocations for Critical Disability Studies.” Disability & Society 34 (6): 972–997. https://doi.org/10.1080/09687599.2019.1566889
  • Gorter, J. W., D. Stewart, and M. Woodbury-Smith. 2011. “Youth in Transition: Care, Health and Development.” Child: Care, Health and Development 37 (6): 757–763. https://doi.org/10.1111/j.1365-2214.2011.01336.x
  • Groce, N. E. 2004. “Adolescents and Youth with Disabilities: Issues and Challenges.” Asia Pacific Disability Rehabilitation Journal 15 (2): 13–32.
  • Hamdani, Y., and B. Gibson. 2019. “Challenging Assumptions about ‘Normal’ Development in Children’s Rehabilitation: The Promise of Critical Qualitative Research.” In Enhancing Healthcare and Rehabilitation: The Impact of Qualitative Research, edited by C. M. Hayre and D. J. Muller, 209–222. Boca Raton: CRC Press.
  • Hamdani, Y., B. Mistry, and B. E. Gibson. 2015. “Transitioning to Adulthood with a Progressive Condition: Best Practice Assumptions and Individual Experiences of Young Men with Duchenne Muscular Dystrophy.” Disability and Rehabilitation 37 (13): 1144–1151. https://doi.org/10.3109/09638288.2014.956187
  • Holdsworth, C., and D. Morgan. 2005. Transitions in Contexts Leaving Home, Independence and Adulthood. Maidenhead: Open University Press.
  • Ibrahim, A. 2014. “Critical Youth Studies: An Introduction.” In Critical Youth Studies Reader, edited by A. Ibrahim and S. R. Steinberg, 15–19. Lausanne: Peter Lang Publishers.
  • Ibrahim, A., and S. R. Steinberg. 2014. Critical Youth Studies Reader. Lausanne: Peter Lang Publishers.
  • Jóhannsdóttir, Á., S. Þ. Egilson, and F. Haraldsdóttir. 2022. “Implications of Internalised Ableism for the Health and Wellbeing of Disabled Young People.” Sociology of Health & Illness 44 (2): 360–376. https://doi.org/10.1111/1467-9566.13425
  • Kamp, A., and P. Kelly. 2014. “On Becoming.” In A Critical Youth Studies for the 21st Century, edited by P. Kelly and A. Kamp, 15–23. Leiden: Brill.
  • Kincheloe, J. L., P. McLaren, and S. R. Steinberg. 2011. “Critical Pedagogy and Qualitative Research.” In The Sage Handbook of Qualitative Research, edited by N. K. Denzin and Y. S. Lincoln, 4th ed., 163–177. Thousand Oaks: SAGE.
  • Krueger, R. A., and M. A. Casey. 2014. Focus Groups: A Practical Guide for Applied Research (5th ed.). Thousand Oaks: SAGE Publications Inc.
  • Liddiard, K., K. Runswick-Cole, D. Goodley, S. Whitney, E. Vogelmann, and L. Watts Mbe. 2019a. “I Was Excited by the Idea of a Project That Focuses on Those Unasked Questions’ Co-Producing Disability Research with Disabled Young People.” Children & Society 33 (2): 154–167. https://doi.org/10.1111/chso.12308
  • Liddiard, K., S. Whitney, K. Evans, L. Watts, E. Vogelmann, R. Spurr, C. Aimes, K. Runswick-Cole, and D. Goodley. 2019b. “Working the Edges of Posthuman Disability Studies: Theorising with Disabled Young People with Life-Limiting Impairments.” Sociology of Health & Illness 41 (8): 1473–1487. https://doi.org/10.1111/1467-9566.12962
  • Lindsay, S., E. Cagliostro, M. Albarico, N. Mortaji, and D. Srikanthan. 2019. “Gender Matters in the Transition to Employment for Young Adults with Physical Disabilities.” Disability and Rehabilitation 41 (3): 319–332. https://doi.org/10.1080/09638288.2017.1390613
  • Ljuslinder, K., K. Ellis, and L. Vikström. 2020. “Cripping Time – Understanding the Life Course through the Lens of Ableism.” Scandinavian Journal of Disability Research 22 (1): 35–38. https://doi.org/10.16993/sjdr.710
  • Löve, L. E., R. Traustadóttir, and H. B. Sigurjónsdóttir. 2010. “Fatlaðir Háskólanemendur Óskast! Þróun Rannsókna á Aðgengi Fatlaðra Nemenda Að Námi á Háskólastigi [Disabled University Students Wanted! Development of Research on the Access of Disabled Students to Studies at University Level].” In Rannsóknir í Félagsvísindum [Social Science Research] XI, edited by H. Ólafs and H. Proppé, 164–171. Reykjavík: University of Iceland.
  • Mahaffy, K. A. 2003. “Gender, Race, Class, and the Transition to Adulthood: A Critical Review of the Literature.” In Sociological Studies of Children and Youth, Vol. 9, pp. 15–47. Bingley: Emerald Group Publishing Limited. https://doi.org/10.1016/S1537-4661(03)09003-2
  • Meekosha, H., and R. Shuttleworth. 2009. “What’s so ‘Critical’ about Critical Disability Studies?” Australian Journal of Human Rights 15 (1): 47–75. https://doi.org/10.1080/1323238X.2009.11910861
  • Meyer, J. M., V. M. Hinton, and N. Derzis. 2015. “Emerging Adults with Disabilities: Theory, Trends, and Implications.” Journal of Applied Rehabilitation Counseling 46 (4): 3–10. https://doi.org/10.1891/0047-2220.46.4.3
  • Mitchell, W. 1999. “Leaving Special School: The Next Step and Future Aspirations.” Disability & Society 14 (6): 753–770. https://doi.org/10.1080/09687599925876
  • Nguyen, T., D. Stewart, and J. W. Gorter. 2018. “Looking Back to Move Forward: Reflections and Lessons Learned about Transitions to Adulthood for Youth with Disabilities.” Child: Care, Health and Development 44 (1): 83–88. https://doi.org/10.1111/cch.12534
  • Oliver, M. 2013. “The Social Model of Disability: Thirty Years on.” Disability & Society 28 (7): 1024–1026. https://doi.org/10.1080/09687599.2013.818773
  • Pao, M. 2017. “Conceptualization of Success in Young Adulthood.” Child and Adolescent Psychiatric Clinics of North America 26 (2): 191–198. https://doi.org/10.1016/j.chc.2016.12.002
  • Priestley, M. 2003. Disability: A Life Course Approach. Cambridge: Polity Press.
  • Rice, J. G., K. Björnsdóttir, and E. Smith. 2015. “Spaces of Indifference. Bureaucratic Governance and Disability Rights in Iceland.” In T. Shakespeare (ed.), Disability Research Today. International Perspectives (pg. 135–148). Routledge.
  • Rice, J. G., and R. Traustadóttir. 2011. “Fátækt, Fötlun Og Velferð [Poverty, Disability and Welfare].” Stjórnmál Og Stjórnsýsla [Politics and Policy ]7 (2): 381–398. https://doi.org/10.13177/irpa.a.2011.7.2.9
  • Sanders, K. Y. 2006. “Overprotection and Lowered Expectations of Persons with Disabilities: The Unforeseen Consequences.” Work 27 (2): 181–188.
  • Scott, S. 2009. Making Sense of Everyday Life. Cambridge: Polity Press.
  • Settersten, R. A., T. M. Ottusch, and B. Schneider. 2015. “Becoming Adult: Meanings of Markers to Adulthood.” In Emerging Trends in the Social and Behavioral Sciences, edited by R. Scott, S. Kosslyn, and M. C. Buchmann, 1–16. Hoboken: John Wiley & Sons. https://doi.org/10.1002/9781118900772.etrds0021
  • Shah, S. 2010. “Role of Family in Empowering the Young Disabled People.” International Journal of Disability Studies 4 (1&2): 100–125.
  • Slater, J. 2013. “Research with Dis/Abled Youth: Taking a Critical Cisability, Critically Young Positionality.” In Disabled Children’s Childhood Studies Critical Approaches in a Global Context, edited by T. Curran and K. Runswick-Cole, 180–195. Hampshire: Palgrave Macmillan.
  • Slater, J. 2015. Youth and Disability: A Challenge to Mr Reasonable. Farnham: Ashgate.
  • Slater, J., E. Ágústsdóttir, and F. Haraldsdóttir. 2018. “Becoming Intelligible Woman: Gender, Disability and Resistance at the Border Zone of Youth.” Feminism & Psychology 28 (3): 409–426. https://doi.org/10.1177/0959353518769947
  • Smith, C., K. Christoffersen, H. Davidson, and P. S. Herzog. 2011. Lost in Transition: The Dark Side of Emerging Adulthood. Oxford: Oxford University Press.
  • Smith, E., and R. Traustadóttir. 2015. “Childhood Disability, Identity and the Body.” In Childhood and Disability in the Nordic Countries: Being, Becoming, Belonging, edited by R. Traustadóttir, B. Ytterhus, S. Þ. Egilson, and B. Berg, 85–99. Basingstoke: Palgrave Macmillan.
  • Steinberg, L. 2016. Adolescence. New York: McGraw-Hill.
  • Stewart, D., M. Law, N. L. Young, M. Forhan, H. Healy, J. Burke-Gaffney, and M. Freeman. 2014. “Complexities during Transitions to Adulthood for Youth with Disabilities: Person-Environment Interactions.” Disability and Rehabilitation 36 (23): 1998–2004. https://doi.org/10.3109/09638288.2014.885994
  • Sverrisdóttir, A. B., and G. Van Hove. 2023. “Segregated and yet Inclusive? the Application Process for Upper Secondary School in Iceland for Students Labelled as Disabled through the Lens of Social Justice.” Pedagogy, Culture and Society 31 (1): 203–220. https://doi.org/10.1080/14681366.2021.1900344
  • Syed, M. 2015. “Emerging Adulthood: Developmental Stage, Theory, or Nonsense?” In The Oxford Handbook of Emerging Adulthood, edited by J. J. Arnett, 11–25. Oxford: Oxford University Press.
  • Tchibozo, G. 2013. “Leveraging Diversity to Promote Successful Transition from Education to Work.” In Cultural and Social Diversity and the Transition from Education to Work, edited by G. Tchibozo, 3–18. Dordrecht: Springer Netherlands. https://doi.org/10.1007/978-94-007-5107-1_1
  • Tisdall, E. K. M. 2017. “Conceptualising Children and Young People’s Participation: Examining Vulnerability, Social Accountability and Co-Production.” The International Journal of Human Rights 21 (1): 59–75. https://doi.org/10.1080/13642987.2016.1248125
  • Tryggvadóttir, G. B., H. Snæfríðar Og Gunnarsdóttir, and Á. A. Arnalds. 2016. “Staða Ungs Fólks Með Örorku- Eða Endurhæfingarlífeyri [The Situation of Young People with a Disability or Receiving Disability Pension].” Report for the Icelandic Ministry of Welfare. Reykjavík: University of Iceland Social Science Institute.
  • Valentine, G. 2003. “Boundary Crossings: Transitions from Childhood to Adulthood.” Children’s Geographies 1 (1): 37–52. https://doi.org/10.1080/14733280302186
  • Wyn, J., and R. White. 1997. Rethinking Youth. Melbourne: Allen & Unwin.
  • Ytterhus, B., S. Þ. Egilson, R. Traustadóttir, and B. Berg. 2015. “Perspectives on Childhood and Disability.” In Childhood and Disability in the Nordic Countries: Being, Becoming, Belonging, edited by R. Traustadóttir, B. Ytterhus, S. Þ. Egilson, and B. Berg, 15–33. Basingstoke: Palgrave Macmillan.
  • Zittoun, T. 2012. “Life-Course: A Socio-Cultural Perspective.” In J. Valsiner (Ed.), The Oxford Handbook of Culture and Psychology. Oxford: Oxford University Press.