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Articles

Patients’ Online Information-Seeking Behavior Throughout Treatment: The Impact on Medication Beliefs and Medication Adherence

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References

  • Ajzen, I. (1991). The theory of planned behavior. Organizational Behavior and Human Decision Processes, 50(2), 179–211. doi:10.1016/0749-5978(91)90020-T
  • Barber, N., Parsons, J., Clifford, S., Darracott, R., & Horne, R. (2004). Patients’ problems with new medication for chronic conditions. Quality and Safety in Health Care, 13, 172–175. doi:10.1136/qshc.2003.005926
  • Baumgartner, S. E., & Hartmann, T. (2011). The role of health anxiety in online health information search. Cyberpsychology, Behavior, and Social Networking, 14, 613–618. doi:10.1089/cyber.2010.0425
  • Becker, M. H. (1974). The health belief model and personal health behavior (2nd ed.). San Francisco: Slack Thorofare, NJ.
  • Bernard, A., Langille, M., Hughes, S., Rose, C., Leddin, D., & van Zanten, S. V. (2007). A systematic review of patient inflammatory bowel disease information resources on the world wide web. The American Journal of Gastroenterology, 102, 2070–2077. doi:10.1111/j.1572-0241.2007.01325.x
  • Bernstein, K. I., Promislow, S., Carr, R., Rawsthorne, P., Walker, J. R., & Bernstein, C. N. (2011). Information needs and preferences of recently diagnosed patients with inflammatory bowel disease. Inflammatory Bowel Diseases, 17, 590–598. doi:10.1002/ibd.21363
  • Billioud, V., Laharie, D., Filippi, J., Roblin, X., Oussalah, A., & Peyrin-Biroulet, L. (2011). Adherence to adalimumab therapy in Crohn’s disease: A French multicenter experience. Inflammatory Bowel Diseases, 17, 152–159. doi:10.1002/ibd.21491
  • Bylund, C. L., Gueguen, J. A., Sabee, C. M., Imes, R. S., Li, Y., & Sanford, A. A. (2007). Provider–patient dialogue about internet health information: An exploration of strategies to improve the provider–patient relationship. Patient Education and Counseling, 66, 346–352. doi:10.1016/j.pec.2007.01.009
  • Caiata-Zufferey, M., Abraham, A., Sommerhalder, K., & Schulz, P. J. (2010). Online health information seeking in the context of the medical consultation in Switzerland. Qualitative Health Research, 20, 1050–1061. doi:10.1177/1049732310368404
  • Caiata-Zufferey, M., & Schulz, P. J. (2012). Physicians’ communicative strategies in interacting with internet-informed patients: Results from a qualitative study. Health Communication, 27, 738–749. doi:10.1080/10410236.2011.636478
  • Carpenter, D. M., DeVellis, R. F., Fisher, E. B., DeVellis, B. M., Hogan, S. L., & Jordan, J. M. (2010). The effect of conflicting medication information and physician support on medication adherence for chronically ill patients. Patient Education and Counseling, 81, 169–176. doi:10.1016/j.pec.2009.11.006
  • Carpenter, D. M., DeVellis, R. F., Hogan, S. L., Fisher, E. B., DeVellis, B. M., & Jordan, J. M. (2011). Use and perceived credibility of medication information sources for patients with a rare illness: Differences by gender. Journal of Health Communication, 16, 629–642. doi:10.1080/10810730.2011.551995
  • Carpenter, D. M., Elstad, E. A., Blalock, S. J., & DeVellis, R. F. (2014). Conflicting medication information: Prevalence, sources, and relationship to medication adherence. Journal of Health Communication, 19, 67–81. doi:10.1080/10810730.2013.798380
  • Carter, S. R., Moles, R., White, L., & Chen, T. F. (2013). Medication information seeking behavior of patients who use multiple medicines: How does it affect adherence? Patient Education and Counseling, 92, 74–80. doi:10.1016/j.pec.2013.01.019
  • Clifford, S., Barber, N., & Horne, R. (2008). Understanding different beliefs held by adherers, unintentional nonadherers, and intentional nonadherers: Application of the necessity-concerns framework. Journal of Psychosomatic Research, 64, 41–46. doi:10.1016/j.jpsychores.2007.05.004
  • Diviani, N., van den Putte, B., Meppelink, C. S., & van Weert, J. C. (2016). Exploring the role of health literacy in the evaluation of online health information: Insights from a mixed-methods study. Patient Education and Counseling, 99, 1017–1025. doi:10.1016/j.pec.2016.01.007
  • Donovan, J. L. (1995). Patient decision making: The missing ingredient in compliance research. International Journal of Technology Assessment in Health Care, 11, 443–455.
  • Dowsett, S., Saul, J., Butow, P., Dunn, S., Boyer, M., Findlow, R., & Dunsmore, J. (2000). Communication styles in the cancer consultation: Preferences for a patient-centred approach. Psycho-Oncology, 9, 147–156.
  • Dutta-Bergman, M. J. (2004). Health attitudes, health cognitions, and health behaviors among internet health information seekers: Population-based survey. Journal of Medical Internet Research, 6, e15. doi:10.2196/jmir.6.2.e15
  • Eastin, M. S., & Guinsler, N. M. (2006). Worried and wired: Effects of health anxiety on information-seeking and health care utilization behaviors. CyberPsychology & Behavior, 9, 494–498. doi:10.1089/cpb.2006.9.494
  • Eheman, C. R., Berkowitz, Z., Lee, J., Mohile, S., Purnell, J., Marie Rodriguez, E., … Morrow, G. (2009). Information-seeking styles among cancer patients before and after treatment by demographics and use of information sources. Journal of Health Communication, 14, 487–502. doi:10.1080/10810730903032945
  • Elstad, E., Carpenter, D. M., Devellis, R. F., & Blalock, S. J. (2012). Patient decision making in the face of conflicting medication information. International Journal of Qualitative Studies on Health and Well-Being, 7, 1–11. doi:10.3402/qhw.v7i0.18523
  • Feathers, A., Yen, T., Yun, L., Strizich, G., & Swaminath, A. (2016). Internet searches about therapies do not impact willingness to accept prescribed therapy in inflammatory bowel disease patients. Digestive Diseases and Sciences, 61, 1013–1020. doi:10.1007/s10620-015-3981-5
  • Flanagin, A. J., & Metzger, M. J. (2000). Perceptions of internet information credibility. Journalism & Mass Communication Quarterly, 77, 515–540. doi:10.1177/107769900007700304
  • Horne, R., Chapman, S., Parham, R., Freemantle, N., Forbes, A., & Cooper, V. (2013). Understanding patients’ adherence-related beliefs about medicines prescribed for long-term conditions: A meta-analytic review of the necessity-concerns framework. PLoS One, 8, e80633. doi:doi:10.1371/journal.pone.0080633
  • Horne, R., Cooper, V., Gellaitry, G., Date, H. L., & Fisher, M. (2007). Patients’ perceptions of highly active antiretroviral therapy in relation to treatment uptake and adherence: The utility of the necessity-concerns framework. JAIDS Journal of Acquired Immune Deficiency Syndromes, 45, 334–341. doi:10.1097/QAI.0b013e31806910e3
  • Horne, R., & Weinman, J. (2002). Self-regulation and self-management in asthma: Exploring the role of illness perceptions and treatment beliefs in explaining non-adherence to preventer medication. Psychology and Health, 17(1), 17–32. doi:10.1080/08870440290001502
  • Horne, R., Weinman, J., & Hankins, M. (1999). The beliefs about medicines questionnaire: The development and evaluation of a new method for assessing the cognitive representation of medication. Psychology and Health, 14(1), 1–24. doi:10.1080/08870449908407311
  • Hugen, P. W. H., Langebeek, N., Burger, D. M., Zomer, B., van Leusen, R., Schuurman, R., … Hekster, Y. A. (2002). Assessment of adherence to HIV protease inhibitors: Comparison and combination of various methods, including MEMS (electronic monitoring), patient and nurse report, and therapeutic drug monitoring. JAIDS Journal of Acquired Immune Deficiency Syndromes, 30, 324–334. doi:10.1097/01.QAI.0000014768.35851.DE
  • Im, H., & Huh, J. (2017). Does health information in mass media help or hurt patients? Investigation of potential negative influence of mass media health information on patients’ beliefs and medication regimen adherence. Journal of Health Communication, 22, 214–222. doi:10.1080/10810730.2016.1261970
  • Initiative on Crohn’s and Colitis. (2015). Handleiding behandeling IBD – 2014–2015. Moderniseren van de richtlijn IBD 2009. Retrieved from https://www.crohn-colitis.nl/wp-content/uploads/2016/09/Modernisering-IBD-richtlijn-volwassenen-2009.pdf
  • Johnson, F. R., Özdemir, S., Mansfield, C., Hass, S., Miller, D. W., Siegel, C. A., & Sands, B. E. (2007). Crohn’s disease patients’ risk-benefit preferences: Serious adverse event risks versus treatment efficacy. Gastroenterology, 133, 769–779. doi:10.1053/j.gastro.2007.04.075,
  • Langille, M., Bernard, A., Rodgers, C., Hughes, S., Leddin, D., & van Zanten, S. V. (2010). Systematic review of the quality of patient information on the internet regarding inflammatory bowel disease treatments. Clinical Gastroenterology and Hepatology, 8, 322–328. doi:10.1016/j.cgh.2009.12.024
  • Lee, K., Hoti, K., Hughes, J. D., & Emmerton, L. (2014). Dr google and the consumer: A qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions. Journal of Medical Internet Research, 16, e262. doi:10.2196/jmir.3706
  • Leydon, G. M., Boulton, M., Moynihan, C., Jones, A., Mossman, J., Boudioni, M., & McPherson, K. (2000). Cancer patients’ information needs and information seeking behaviour: In depth interview study. BMJ, 320, 909–913.
  • Linn, A. J., van Weert, J. C. M., van Dijk, L., Horne, R., & Smit, E. G. (2016). The value of nurses’ tailored communication when discussing medicines: Exploring the relationship between satisfaction, beliefs and adherence. Journal of Health Psychology, 21, 798–807. doi:10.1177/1359105314539529
  • Linn, A. J., van Weert, J. M. C., Smit, E. G., Perry, K., & van Dijk, L. (2013). 1+1=3? the systematic development of a theoretical and evidence-based tailored multimedia intervention to improve medication adherence. Patient Education and Counseling, 93, 288–381. doi:10.1016/j.pec.2013.03.009
  • Madden, J. M., Graves, A. J., Zhang, F., Adams, A. S., Briesacher, B. A., Ross-Degnan, D., … Adler, G. S. (2008). Cost-related medication nonadherence and spending on basic needs following implementation of medicare part D. JAMA, 299, 1922–1928. doi:10.1001/jama.299.16.1922
  • Marton, C, & Wei Choo, C. (2012). A review of theoretical models of health information seeking on the web. Journal Of Documentation, 68, 330-352. doi. https://doi.org/10.1108/00220411211225575
  • Matsuyama, R. K., Kuhn, L. A., Molisani, A., & Wilson-Genderson, M. C. (2013). Cancer patients’ information needs the first nine months after diagnosis. Patient Education and Counseling, 90(1), 96–102. doi:10.1016/j.pec.2012.09.009
  • Menckeberg, T. T., Bouvy, M. L., Bracke, M., Kaptein, A. A., Leufkens, H. G., Raaijmakers, J. A. M., & Horne, R. (2008). Beliefs about medicines predict refill adherence to inhaled corticosteroids. Journal of Psychosomatic Research, 64(1), 47–54. doi:10.1016/j.jpsychores.2007.07.016
  • Muusses, L. D., van Weert, J. C. M., van Dulmen, S., & Jansen, J. (2012). Chemotherapy and information-seeking behaviour: Characteristics of patients using mass-media information sources. Psycho‐Oncology, 21, 993–1002. doi:10.1002/pon.1997
  • Nagler, R. H. (2014). Adverse outcomes associated with media exposure to contradictory nutrition messages. Journal of Health Communication, 19, 24–40. doi:10.1080/10810730.2013.798384
  • Närhi, U. (2007). Sources of medicine information and their reliability evaluated by medicine users. Pharmacy World & Science, 29, 688–694. doi:10.1007/s11096-007-9131-1
  • Niederdeppe, J., Lee, T., Robbins, R., Kim, H. K., Kresovich, A., Kirshenblat, D., ...Fowler, E. K. (2014). Content and effects of news stories about uncertain cancer causes and preventive behaviors. Health Communication, 29, 332–346. doi:10.1080/10410236.2012.755603
  • Phillips, L. A., Diefenbach, M. A., Kronish, I. M., Negron, R. M., & Horowitz, C. R. (2014). The necessity-concerns framework: A multidimensional theory benefits from multidimensional analysis. Annals of Behavioral Medicine, 48(1), 7–16. doi:10.1007/s12160-013-9579-2
  • Pittet, V, Rogler, G, Mottet, C, Froehlich, F, Michetti, P, de Saussure, P, & Vader, J. (2014). Patients' information-seeking activity is associated with treatment compliance in inflammatory bowel disease patients. Scandinavian Journal Of Gastroenterology, 49, 662-673.
  • Rubin, A. M. (2002). The uses-and-gratifications perspective of media effects. Mahwah, NJ: Lawrence Erlbaum Associates Publishers.
  • Rutten, L. J. F., Arora, N. K., Bakos, A. D., Aziz, N., & Rowland, J. (2005). Information needs and sources of information among cancer patients: A systematic review of research (1980–2003). Patient Education and Counseling, 57, 250–261. doi:10.1016/j.pec.2004.06.006
  • Sabaté, E. (2003). Adherence to long-term therapies: Evidence for action. World Health Organization. Retrieved from http://apps.who.int/iris/bitstream/10665/42682/1/9241545992
  • Sanders, R., Linn, A. J., Araujo, T., Vliegenthart, R., & van Weert, J. C. M. (2017, April). Different platforms for different patients’ needs: Automatic content analysis on online health information for cancer patients. Paper presented at D. C. Health Communication Conference, Washington, USA.
  • Sivakumar, G., & Mares, M. (2016). The doctor versus the internet: Effects of low-, medium-, and high-quality websites on intentions to follow the doctor’s advice. Health Communication, 32, 1454–1462. doi:10.1080/10410236.2016.1228030
  • Squiers, L., Finney Rutten, L. J., Treiman, K., Bright, M. A., & Hesse, B. (2005). Cancer patients’ information needs across the cancer care continuum: Evidence from the cancer information service. Journal of Health Communication, 10, 15–34. doi:10.1080/10810730500263620
  • te Poel, F., Baumgartner, S. E., Hartmann, T., & Tanis, M. (2016). The curious case of cyberchondria: A longitudinal study on the reciprocal relationship between health anxiety and online health information seeking. Journal of Anxiety Disorders, 43, 32–40. doi:10.1016/j.janxdis.2016.07.009
  • Tustin, N. (2010). The role of patient satisfaction in online health information seeking. Journal of Health Communication, 15, 3–17. doi:10.1080/10810730903465491
  • van den Bemt, B. J. F., Zwikker, H. E., & van den Ende, C. H. M. (2012). Medication adherence in patients with rheumatoid arthritis: A critical appraisal of the existing literature. Expert Review of Clinical Immunology, 8, 337–351. doi:10.1586/eci.12.23
  • van der Marel, S., Duijvestein, M., Hardwick, J. C., van den Brink, G. R., Veenendaal, R., Hommes, D. W., & Fidder, H. H. (2009). Quality of web‐based information on inflammatory bowel diseases. Inflammatory Bowel Diseases, 15, 1891–1896. doi:10.1002/ibd.20976
  • Vogel, B. A., Bengel, J., & Helmes, A. W. (2008). Information and decision making: Patients’ needs and experiences in the course of breast cancer treatment. Patient Education and Counseling, 71, 79–85. doi:10.1016/j.pec.2007.11.023
  • Vrijens, B., De Geest, S., Hughes, D. A., Przemyslaw, K., Demonceau, J., Ruppar, T., … Lewek, P. (2012). A new taxonomy for describing and defining adherence to medications. British Journal of Clinical Pharmacology, 73, 691–705. doi:10.1111/j.1365-2125.2012.04167.x
  • Weaver, J. B., Thompson, N. J., Weaver, S. S., & Hopkins, G. L. (2009). Healthcare non-adherence decisions and internet health information. Computers in Human Behavior, 25(6), 1373–1380. doi:10.1016/j.chb.2009.05.011
  • Wetzels, G. E. C., Nelemans, P. J., Schouten, J. S. A. G., van Wijk, B. L. G., & Prins, M. H. (2006). All that glisters is not gold: A comparison of electronic monitoring versus filled prescriptions–An observational study. BMC Health Services Research, 6(1), 8. doi:10.1186/1472-6963-6-8
  • Zwikker, H. E., van den Bemt, B. J., Vriezekolk, J. E., van den Ende, C. H., & van Dulmen, S. (2014). Psychosocial predictors of non-adherence to chronic medication: Systematic review of longitudinal studies. Patient Preference and Adherence, 8, 519–563. doi:10.2147/PPA.S47290