Burden, anxiety and depressive symptoms in partners – course and predictors during the first two years after stroke

References

• Benjamin EJ, Muntner P, Alonso A, et al. Heart disease and stroke statistics—2019 update: a report from the American heart association. Circulation. 2019;139(10):e56–e528. doi:10.1161/CIR.0000000000000659.
   PubMed Web of Science ®Google Scholar
• Wilz G, Kalytta T. Anxiety symptoms in spouses of stroke patients. Cerebrovascular Dis. 2008;25(4):311–315. doi:10.1159/000118375.
   PubMed Web of Science ®Google Scholar
• Forsberg-Wärleby G, Möller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil. 2004;18(4):430–437. doi:10.1191/0269215504cr740oa.
   PubMed Web of Science ®Google Scholar
• Visser-Meily A, Post M, van de Port I, Maas C, Forstberg-Wärleby G, Lindeman E. Psychosocial functioning of spouses of patients with stroke from initial inpatient rehabilitation to 3 years poststroke: course and relations with coping strategies. Stroke. 2009;40(4):1399–1404. doi:10.1161/STROKEAHA.108.516682.
   PubMed Web of Science ®Google Scholar
• Kruithof WJ, Post MW, van Mierlo ML, van den Bos GA, Janneke M, Visser-Meily JM. Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke: determinants and prediction. Patient Educ Couns. 2016;99(10):1632–1640. doi:10.1016/j.pec.2016.04.007.
   PubMed Web of Science ®Google Scholar
• Cox V, Schepers V, Ketelaar M, van Heugten C, Visser-Meily A. Participation restrictions and satisfaction with participation in partners of patients with stroke. Arch Phys Med Rehabil. 2020;101(3):464–471. doi:10.1016/j.apmr.2019.09.012.
   PubMed Web of Science ®Google Scholar
• McCullagh E, Brigstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36(10):2181–2186. doi:10.1161/01.STR.0000181755.23914.53.
   PubMed Web of Science ®Google Scholar
• Vincent C, Desrosiers J, Landreville P, Demers L. Burden of caregivers of people with stroke: evolution and predictors. Cerebrovascular Dis. 2009;27(5):456–464. doi:10.1159/000210092.
   PubMed Web of Science ®Google Scholar
• Jaracz K, Grabowska-Fudala B, Górna K, Jaracz J, Moczko J, Kozubski W. Burden in caregivers of long-term stroke survivors: prevalence and determinants at 6 months and 5 years after stroke. Patient Educ Couns. 2015;98(8):1011–1016. doi:10.1016/j.pec.2015.04.008.
   PubMed Web of Science ®Google Scholar
• Olai L, Borgquist L, Svärdsudd K. Life situations and the care burden for stroke patients and their informal caregivers in a prospective cohort study. Ups J Med Sci. 2015;120(4):290–298. doi:10.3109/03009734.2015.1049388.
   PubMed Web of Science ®Google Scholar
• Godwin KM, Ostwald SK, Cron SG, Wasserman J. Long-term health related quality of life of survivors of stroke and their spousal caregivers. J Neurosci Nurs: J Am Assoc Neurosci Nurs. 2013;45(3):147. doi:10.1097/JNN.0b013e31828a410b.
   PubMed Web of Science ®Google Scholar
• Rigby H, Gubitz G, Phillips S. A systematic review of caregiver burden following stroke. Int J Stroke. 2009;4(4):285–292. doi:10.1111/j.1747-4949.2009.00289.x.
   PubMed Web of Science ®Google Scholar
• Tooth L, McKenna K, Barnett A, Prescott C, Murphy S. Caregiver burden, time spent caring and health status in the first 12 months following stroke. Brain Inj. 2005;19(12):963–974. doi:10.1080/02699050500110785.
   PubMed Web of Science ®Google Scholar
• Pucciarelli G, Ausili D, Galbussera AA, et al. Quality of life, anxiety, depression and burden among stroke caregivers: a longitudinal, observational multicentre study. J Adv Nurs. 2018;74(8):1875–1887. doi:10.1111/jan.13695.
   Web of Science ®Google Scholar
• Berg A, Palomäki H, Lönnqvist J, Lehtihalmes M, Kaste M. Depression among caregivers of stroke survivors. Stroke. 2005;36(3):639–643. doi:10.1161/01.STR.0000155690.04697.c0.
   PubMed Web of Science ®Google Scholar
• Cameron JI, Cheung AM, Streiner DL, Coyte PC, Stewart DE. Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke. 2011;42(2):302–306. doi:10.1161/STROKEAHA.110.597963.
   PubMed Web of Science ®Google Scholar
• Nir Z, Greenberger C, Bachner YG. Profile, burden, and quality of life of Israeli stroke survivor caregivers: a longitudinal study. J Neurosci Nurs. 2009;41(2):92–105. doi:10.1097/jnn.0b013e318193456b.
   PubMed Web of Science ®Google Scholar
• Malhotra R, Chei C-L, Menon E, et al. Short-term trajectories of depressive symptoms in stroke survivors and their family caregivers. J Stroke Cerebrovascular Dis. 2016;25(1):172–181. doi:10.1016/j.jstrokecerebrovasdis.2015.09.012.
   PubMed Web of Science ®Google Scholar
• Han Y, Liu Y, Zhang X, Tam W, Mao J, Lopez V. Chinese family caregivers of stroke survivors: determinants of caregiving burden within the first six months. J Clin Nurs. 2017;26(23–24):4558–4566. doi:10.1111/jocn.13793.
   PubMed Web of Science ®Google Scholar
• van den Heuvel ET, Witte LPD, Schure LM, Sanderman R, Jong BM-D. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil. 2001;15(6):669–677. doi:10.1191/0269215501cr446oa.
   PubMed Web of Science ®Google Scholar
• Loh AZ, Tan JS, Zhang MW, Ho RC. The global prevalence of anxiety and depressive symptoms among caregivers of stroke survivors. J Am Med Dir Assoc. 2017;18(2):111–116. doi:10.1016/j.jamda.2016.08.014.
   PubMed Web of Science ®Google Scholar
• Bjelland I, Krokstad S, Mykletun A, Dahl AA, Tell GS, Tambs K. Does a higher educational level protect against anxiety and depression? The HUNT study. Soc Sci Med. 2008;66(6):1334–1345. doi:10.1016/j.socscimed.2007.12.019.
   PubMed Web of Science ®Google Scholar
• Visser-Meily A, Post M, Schepers V, Lindeman E. Spouses’ quality of life 1 year after stroke: prediction at the start of clinical rehabilitation. Cerebrovascular Dis. 2005;20(6):443–448. doi:10.1159/000088983.
   PubMed Web of Science ®Google Scholar
• Panzeri A, Rossi Ferrario S, Vidotto G. Interventions for psychological health of stroke caregivers: a systematic review. Front Psychol. 2019;10. doi:10.3389/fpsyg.2019.02045.
   PubMed Web of Science ®Google Scholar
• van Mierlo ML, van Heugten CM, Post MW, Lindeman E, de Kort PL, Visser-Meily JM. A longitudinal cohort study on quality of life in stroke patients and their partners: restore4Stroke cohort. Int J Stroke. 2014;9(1):148–154. doi:10.1111/j.1747-4949.2012.00882.x.
   PubMed Web of Science ®Google Scholar
• Mahoney FI. Functional evaluation: the Barthel index. Maryland state Med J. 1965;14(2):61–65.
   PubMedGoogle Scholar
• Meijer R, van Limbeek J, de Haan R. Development of the stroke-unit discharge guideline: choice of assessment instruments for prediction in the subacute phase post-stroke. Int J Rehabil Res. 2006;29(1):1–8. doi:10.1097/01.mrr.0000175269.59788.41.
   PubMed Web of Science ®Google Scholar
• Robinson BC. Validation of a caregiver strain index. J Gerontol. 1983;38(3):344–348. doi:10.1093/geronj/38.3.344.
   PubMedGoogle Scholar
• van Exel NJA, op Reimer WJS, Brouwer WB, van den Berg B, Koopmanschap MA, van den Bos GA. Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden. Clin Rehabil. 2004;18(2):203–214. doi:10.1191/0269215504cr723oa.
   PubMed Web of Science ®Google Scholar
• Visser-Meily JA, Post MW, Riphagen II, Lindeman E. Measures used to assess burden among caregivers of stroke patients: a review. Clin Rehabil. 2004;18(6):601–623. doi:10.1191/0269215504cr776oa.
   PubMed Web of Science ®Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–370. doi:10.1111/j.1600-0447.1983.tb09716.x.
   PubMed Web of Science ®Google Scholar
• Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the hospital anxiety and depression scale: an updated literature review. J Psychosom Res. 2002;52(2):69–77. doi:10.1016/s0022-3999(01)00296-3.
   PubMed Web of Science ®Google Scholar
• Bode C, Thoolen B, de Ridder D. Het meten van proactieve copingvaardigheden. Psychometrische eigenschappen van de Utrechtse Proactieve Coping Competentie lijst (UPCC) [Measuring proactive coping. Psychometric characteristics of the Utrecht Proactive Coping Competence scale (UPCC)]. Psychologie & Gezondheid. 2008;36(2):81–91. doi:10.1007/BF03077476.
   Google Scholar
• Schwarzer R, Jerusalem M. Generalized self-efficacy scale. In: Weinman J, Wright S, Johnston M, eds. Generalized Self-Efficacy Scale, in Measures in Health Psychology: A User’s Portfolio. Causal and Control Beliefs. Windsor, UK: NFER-NELSON; 1995: 35–37.
   Google Scholar
• Scholz U, Doña BG, Sud S, Schwarzer R. Is general self-efficacy a universal construct? Psychometric findings from 25 countries. Eur. J Psychol Assess. 2002;18(3):242–251. doi:10.1027//1015-5759.18.3.242.
   Web of Science ®Google Scholar
• Brott T, Adams HP Jr., Olinger CP, et al. Measurements of acute cerebral infarction: a clinical examination scale. Stroke. 1989;20(7):864–870. doi:10.1161/01.str.20.7.864.
   PubMed Web of Science ®Google Scholar
• Nasreddine ZS, Phillips NA, Bedirian V, et al. The Montreal cognitive assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc. 2005;53(4):695–699. doi:10.1111/j.1532-5415.2005.53221.x.
   PubMed Web of Science ®Google Scholar
• Hultman MT, Everson-Rose SA, Tracy MF, Lindquist R, Hadidi NN. Associations between characteristics of stroke survivors and caregiver depressive symptoms: a critical review. Top Stroke Rehabil. 2019;1–10. doi:10.1080/10749357.2019.1641010.
   Web of Science ®Google Scholar
• Volksgezondheidenzorg I. Beroerte > Cijfers & Context > Huidige situatie. 2018. https://www.volksgezondheidenzorg.info/onderwerp/beroerte/cijfers-context/huidige-situatie#node-prevalentie-beroerte-huisartsenpraktijk-naar-leeftijd-en-geslacht Accessed November 13, 2019.
   Google Scholar
• Tielemans NS, Visser-Meily JM, Schepers VP, Post MW, van Heugten CM. Proactive coping poststroke: psychometric properties of the utrecht proactive coping competence scale. Arch Phys Med Rehabil. 2014;95(4):670–675. doi:10.1016/j.apmr.2013.11.010.
   PubMed Web of Science ®Google Scholar
• Chung ML, Bakas T, Plue LD, Williams LS. Effects of self-esteem, optimism, and perceived control on depressive symptoms in stroke survivor-spouse dyads. J Cardiovasc Nurs. 2016;31(2):E8–E16. doi:10.1097/jcn.0000000000000232.
   PubMed Web of Science ®Google Scholar
• Epstein-Lubow GP, Beevers CG, Bishop DS, Miller IW. Family functioning is associated with depressive symptoms in caregivers of acute stroke survivors. Arch Phys Med Rehabil. 2009;90(6):947–955. doi:10.1016/j.apmr.2008.12.014.
   PubMed Web of Science ®Google Scholar
• Anderson MI, Simpson GK, Morey PJ, Mok MMC, Gosling TJ, Gillett LE. Differential pathways of psychological distress in spouses vs. parents of people with severe traumatic brain injury (TBI): multi-group analysis. Brain Inj. 2009;23(12):931–943. doi:10.3109/02699050903302336.
   PubMed Web of Science ®Google Scholar
• Clark PC, Dunbar SB, Shields CG, Viswanathan B, Aycock DM, Wolf SL. Influence of stroke survivor characteristics and family conflict surrounding recovery on caregivers. Mental and Phys Health Nurs Res. 2004;53(6):406–413. doi:10.1097/00006199-200411000-00009.
   Google Scholar
• King RB, Carlson CE, Shade-Zeldow Y, Bares KK, Roth EJ, Heinemann AW. Transition to home care after stroke: depression, physical health, and adaptive processes in support persons. Res Nurs Health. 2001;24(4):307–323. doi:10.1002/nur.1032.
   PubMed Web of Science ®Google Scholar
• Cox V, Mulder M, Nijland R, et al. Agreement and differences regarding family functioning between patients with acquired brain injury and their partners. Brain Inj. 2020;34(4):489–495. doi:10.1080/02699052.2020.1725978.
   PubMed Web of Science ®Google Scholar
• Cox VCM, Schepers VPM, Ketelaar M, van Heugten CM, Visser-Meily JMA. Evaluating the CARE4Carer blended care intervention for partners of patients with acquired brain injury: protocol for a randomized controlled trial. JMIR Res Protoc. 2018;7(2):e60. doi:10.2196/resprot.9108.
   PubMed Web of Science ®Google Scholar