What determines low satisfaction with life in individuals with spinal cord injury?

References

• van Koppenhagen CF, Post MW, van der Woude LH, de Witte LP, van Asbeck FW, de Groot, et al. Changes and determinants of life satisfaction after spinal cord injury: a cohort study in the Netherlands. Arch Phys Med Rehabil 2008;89(9):1733–40.
   PubMed Web of Science ®Google Scholar
• Post MW, van Leeuwen CM, van Koppenhagen CF, de Groot. Validity of the Life Satisfaction questions, the Life Satisfaction Questionnaire, and the Satisfaction with Life Scale in persons with spinal cord injury. Arch Phys Med Rehabil 2012; 93(10):1832–7.
   PubMed Web of Science ®Google Scholar
• Krause JS, Clark JMR, Saunders LL. SCI longitudinal aging study: 40 years of research. Top Spinal Cord Inj Rehabil 2015;21(3):189–200.
   PubMedGoogle Scholar
• Geyh S, Kunz S, Muller R, Peter C, SwiSCI Study Group. Describing functioning and health after spinal cord injury in the light of psychological-personal factors. J Rehabil Med 2016;48:219–34.
   PubMed Web of Science ®Google Scholar
• Post MWM, Reinhardt JD. Participation and life satisfaction in aged people with spinal cord injury: Does age at onset make a difference. Top Spinal Cord Inj Rehab 2015;21(3):233–40.
   PubMedGoogle Scholar
• van Leeuwen CM, Post MW, van Asbeck FW, Bongers-Janssen HM, van der Woude LH, de Groot S. Life satisfaction in people with spinal cord injury during the first five years after discharge from inpatient rehabilitation. Disabil Rehabil 2012;34(1):76–83.
   PubMed Web of Science ®Google Scholar
• Richardson EJ, Brooks LG, Richards JS, Bombardier CH, Barber J, Tate D, et al. Changes in pain and quality of life in depressed individuals with spinal cord injury: does type of pain matter? J Spinal Cord Med 2016;39(5):535–43.
   PubMed Web of Science ®Google Scholar
• Garshick E, Mulroy S, Graves DE, Greenwald K, Horton JA, Morse LR. Active lifestyle is associated with reduced dyspnea and greater life satisfaction in spinal cord injury. Arch Phys Med Rehabil 2016;97(10):1721–7.
   PubMed Web of Science ®Google Scholar
• Bailey J, Dijkers MP, Gassaway J, Thomas J, Lingefelt P, Kreider SE, et al. Relationship of nursing education and care management inpatient rehabilitation interventions and patient characteristics to outcomes following spinal cord injury: The SCIRehab project. J Spinal Cord Med 2012;35(6):593–610.
   PubMed Web of Science ®Google Scholar
• Pavot W, Diener E. Review of the Satisfaction with Life Scale. Psych Assess 1993;5(2):164–72.
   Google Scholar
• Shumaker S, Brownel LA. Toward a theory of social support: Closing conceptual gaps. J Soc Issues 1984;40(4):11–36.
   Web of Science ®Google Scholar
• Chiodo A, Scelza M, Kirshblum S, Wuermser LA, Ho CH, Priebe MM. Spinal cord injury medicine. 5. Long-term medical issues and health maintenance. Arch Phys Med Rehabil 2007;88(3 Suppl 1):S76–83.
   PubMed Web of Science ®Google Scholar
• Müller R, Peter C, Cieza A, Geyh S. The role of social support and social skills in people with spinal cord injury—a systematic review of the literature. Spinal Cord 2012;50(2):94–106.
   PubMed Web of Science ®Google Scholar
• Bonanno GA. Loss, trauma, and human resilience: Have we underestimated the human capacity to thrive after extremely aversive events? Am Psychol 2004;59 (1): 20–8.
   PubMed Web of Science ®Google Scholar
• Mayo Clinic. Diseases and Conditions: Complicated grief. [cited 2016 November 1]. Available at: http://www.mayoclinic.org/diseases-conditions/complicated-grief/basics/definition/con-20032765
   Google Scholar
• Niemeier J, Kennedy R, McKinley W, Cifu D. The Loss Inventory: preliminary reliability and validity data for a new measure of emotional and cognitive responses to disability. Disabili Rehabil 2004;26(10):614–23.
   PubMed Web of Science ®Google Scholar
• Kalpakjian CZ, Tulsky DS, Kisala PA, Bombardier CH. Measuring grief and loss after spinal cord injury: Development, validation and psychometric characteristics of the SCI-QOL Grief and Loss item bank and short form. J Spinal Cord Med 2015;38(3):347–55.
   PubMed Web of Science ®Google Scholar
• Tulsky DS, Kisala PA, Victorson D, Tate DG, Heinemann AW, Charlifue S, et al. Overview of the Spinal Cord Injury--Quality of Life (SCI-QOL) measurement system. J Spinal Cord Med 2015;38(3):257–69.
   PubMed Web of Science ®Google Scholar
• Aberg AC, Sidenvall B, Hepworth M, O'Reilly K, Lithell H. On loss of activity and independence, adaptation improves life satisfaction in old age--a qualitative study of patients’ perceptions. Qual Life Res 2005;14(4):1111–25.
   PubMed Web of Science ®Google Scholar
• Diener E, Emmons RA, Larson RJ, Griffin Sl. The Satisfaction with Life Scale. J Pers Assess 1985;49(1):71–5.
   PubMed Web of Science ®Google Scholar
• Vassar M, Ridge JW, Hill AD. Inducing score reliability from previous reports: An examination of life satisfaction studies. Social Indicators Res 2008;87:27–45.
   Web of Science ®Google Scholar
• Diener E. Understanding scores on the Satisfaction with Life Scale. February 13, 2006. [cited 2016 November 5] . Available at https://internal.psychology.illinois.edu/~ediener/Documents/Understanding%20SWLS%20Scores.pdf
   Google Scholar
• Whiteneck G, Meade MA, Dijkers M, Tate DG, Bushnik T, Forchheimer MB. Environmental factors and their role in participation and life satisfaction after spinal cord injury. Arch Phys Med Rehabil 2004;85:1793–803.
   PubMed Web of Science ®Google Scholar
• Fugl-Meyer AR, Melin R, Fugl-Meyer KS. Life satisfaction in 18- to 64-year old Swedes: in relation to gender, age, partner and immigrant status. J Rehab Med 2002;34:239–46.
   PubMed Web of Science ®Google Scholar
• Moser A, Stuck AE, Silliman RA, Ganz PA, Clough-Gorr KM. The eight-item modified Medical Outcomes Study Social Support Survey: Psychometric evaluation showed excellent performance. J Clin Epidemiol 2012;65(10):1107–16.
   PubMed Web of Science ®Google Scholar
• Health Measures. Intro to PROMIS ®. [cited 2016 August 2]. Available at http://www.healthmeasures.net/
   Google Scholar
• Tulsky DS, Kisala PA, Victorson D, Tate D, Heinemann AW, Amtmann D, et al. Developing a contemporary patient-reported outcomes measure for spinal cord injury. Arch Phys Med Rehabil 2011;92(10 Suppl 1):S44–51.
   PubMed Web of Science ®Google Scholar
• Carr D, Freedman VA, Cornman JC, Swartz N. Happy marriage, happy life? Marital quality and subjective well-being in later life. J Marriage Fam 2014;76(5):930–48.
   PubMed Web of Science ®Google Scholar
• Hernandez CL, Elliott TR, Berry JW, Underhill AT, Fine PR, Lai MH. Trajectories of life satisfaction five years after medical discharge for traumatically acquired disability. Rehabil Psychol 2014;59(2):183–92.
   PubMed Web of Science ®Google Scholar
• Chen Y, Anderson CJ, Vogel LC, Chlan KM, Betz RR, McDonald CM. Change in life satisfaction of adults with pediatric-onset spinal cord injury. Arch Phys Med Rehabil 2008;89(12):2285–92.
   PubMed Web of Science ®Google Scholar
• Jensen MP, Truitt AR, Schomer KG, Yorkston KM, Baylor C, Molton IR. Frequency and age effects of secondary health conditions in individuals with spinal cord injury: a scoping review. Spinal Cord 2013;51(12):882–92.
   PubMed Web of Science ®Google Scholar
• Bourke JA, Hay-Smith EJ, Snell DL, DeJong G. Attending to biographical disruption: the experience of rehabilitation following tetraplegia due to spinal cord injury. Disabil Rehabil 2015;37(4):296–303.
   PubMed Web of Science ®Google Scholar
• Monden KR, Trost Z, Catalano D, Garner AN, Symcox J, Driver S, et al. Resilience following spinal cord injury: a phenomenological view. Spinal Cord 2014;52(3):197–201.
   PubMed Web of Science ®Google Scholar
• Felix ER. Chronic neuropathic pain in SCI: evaluation and treatment. Phys Med Rehabil Clin N Am 2014;25(3):545–71.
   PubMed Web of Science ®Google Scholar
• Andresen SR, Biering-Sørensen F, Hagen EM, Nielsen JF, Bach FW, Finnerup NB. Pain, spasticity and quality of life in individuals with traumatic spinal cord injury in Denmark. Spinal Cord 2016;54(11):973–79.
   PubMed Web of Science ®Google Scholar
• Hassanijirdehi M, Khak M, Afshari-Mirak S, Holakouie-Naieni K, Saadat S, Taheri T, et al. Evaluation of pain and its effect on quality of life and functioning in men with spinal cord injury. Korean J Pain 2015;28(2):129–36.
   PubMed Web of Science ®Google Scholar
• Putzke JD, Richards JS, Hicken BL, DeVivo MJ. Interference due to pain following spinal cord injury: important predictors and impact on quality of life. Pain 2002;100(3):231–42.
   PubMed Web of Science ®Google Scholar
• Chase BW, Cornile TA, English RW. Life satisfaction among persons with spinal cord injuries. J Rehab 2000;66(3):17–20.
   Web of Science ®Google Scholar
• Burns AS, Delparte JJ, Ballantyne EC, Boschen KA. Evaluation of an interdisciplinary program for chronic pain after spinal cord injury. PM R 2013;5(10):832–8.
   PubMedGoogle Scholar
• Klyce DW, Bombardier CH, Davis TJ, Hartoonian N, Hoffman JM, Fann JR, et al. Distinguishing grief from depression during acute recovery from spinal cord injury. Arch Phys Med Rehabil 2015;96(8):1419–25.
   PubMed Web of Science ®Google Scholar
• Backus D, Gassaway J, Smout RJ, Hsieh CH, Heinemann AW, DeJong G, et al. Relations between inpatient and postdischarge services and outcomes 1 year postinjury in people with traumatic spinal cord injury. Arch Phys Med Rehabil 2013;94(4 Suppl):S165–74.
   PubMed Web of Science ®Google Scholar
• Heinemann AW, Shontz FC. Adjustment following disability: Representative cases. Rehabil Counseling Bulletin 1984;28:3–14.
   Web of Science ®Google Scholar
• Clifton S. Grieving my broken body: an autoethnographic account of spinal cord injury as an experience of grief. Disabil Rehabil 2014;36(21):1823–9.
   PubMed Web of Science ®Google Scholar
• LaVela SL, Balbale SN, Hill JN. Experience and utility of using the participatory method, Photovoice, in individuals with spinal cord injury. Top Spinal Cord Inj Rehab. In Press.
   Google Scholar
• Weitzner E, Surca S, Wiese S, Dion A, Roussos Z, Renwick R, et al. Getting on with life: positive experiences of living with a spinal cord injury. Qual Health Res 2011;21(11):1455–68.
   PubMed Web of Science ®Google Scholar
• van Leeuwen CM, Post MW, van Asbeck FW, van der Woude LH, de Groot S, Lindeman E. Social support and life satisfaction in spinal cord injury during and up to one year after inpatient rehabilitation. J Rehabil Med 2010;42(3):265–71.
   PubMed Web of Science ®Google Scholar
• Phillips BN, Smedema SM, Fleming AR, Sung C, Allen MG. Mediators of disability and hope for people with spinal cord injury. Disabil Rehabil 2016;38(17):1672–83.
   PubMed Web of Science ®Google Scholar
• Binaei N, Moeini M, Sadeghi M, Najafi M, Mohagheghian Z. Effects of hope promoting interventions based on religious beliefs on quality of life of patients with congestive heart failure and their families. Iran J Nurs Midwifery Res 2016;21(1):77–83.
   PubMedGoogle Scholar
• Rose J. Lessons for spinal cord injury rehabilitation taken from adult developmental psychology: 2011 Essie Morgan Lecture. J Spinal Cord Med 2012;35(3):133–9.
   PubMed Web of Science ®Google Scholar
• Berendes D, Keefe FJ, Somers TJ, Kothadia SM, Porter LS, Cheavens JS. Hope in the context of lung cancer: relationships of hope to symptoms and psychological distress. J Pain Symptom Manage 2010;40(2):174–82.
   PubMed Web of Science ®Google Scholar
• Sweet SN, Noreau L, Leblond J, Martin Ginis KA. Peer support need fulfillment among adults with spinal cord injury: relationships with participation, life satisfaction and individual characteristics. Disabil Rehabil 2016;38(6):558–65.
   PubMed Web of Science ®Google Scholar
• National Spinal Cord Injury Statistical Center, Facts and Figures at a Glance. Birmingham, AL: University of Alabama at Birmingham, 2016.
   Google Scholar
• Boehm JK, Winning A, Segerstrom S, Kubzansky LD. Variability modifies life satisfaction's association with mortality risk in older adults. Psychol Sci 2015;26(7):1063–70.
   PubMed Web of Science ®Google Scholar
• Wiest M, Schuz B, Wurm S. Life satisfaction and feeling of control: Indicators of successful again predict mortality in old age. J Health Psych 2012;18(9):1199–208.
   PubMed Web of Science ®Google Scholar