Environmental barriers and participation restrictions in community-dwelling individuals with spinal cord injury in Jiangsu and Sichuan Provinces of China: Results from a cross-sectional survey

References

• World Health Organization (WHO). Fact sheets: spinal cord injury. September 19, 2013. Available at: https://www.who.int/news-room/fact-sheets/detail/spinal-cord-injury.
   Google Scholar
• World Health Organization (WHO). World Report on Disability. Geneva: WHO Press; 2011.
   Google Scholar
• World Health Organization (WHO). International Perspectives on Spinal Cord Injury. Geneva: WHO Press; 2013.
   Google Scholar
• Divanoglou A, Augutis M, Sveinsson T, Hultling C, Levi R. Self-reported health problems and prioritized goals in community-dwelling individuals with spinal cord injury in Sweden. J Rehabil Med. 2018;50(10):872–8.
   PubMed Web of Science ®Google Scholar
• Kashif M, Jones S, Darain H, Iram H, Raqib A, Butt AA. Factors influencing the community integration of patients following traumatic spinal cord injury: a systematic review. J Pak Med Assoc. 2019;69(9):1337–43.
   PubMed Web of Science ®Google Scholar
• Cobb JE, Leblond J, Dumont FS, Noreau L. Perceived influence of intrinsic/extrinsic factors on participation in life activities after spinal cord injury. Disabil Health J. 2018;11(4):583–90.
   PubMed Web of Science ®Google Scholar
• Wang Y, Zhao X, Xie H. Quality of life and its predictors in people with traumatic spinal cord injury in mainland China. Spinal Cord. 2019;57(9):739–46.
   PubMed Web of Science ®Google Scholar
• Norin L, Slaug B, Haak M, Jorgensen S, Lexell J, Iwarsson S. Housing accessibility and its associations with participation among older adults living with long-standing spinal cord injury. J Spinal Cord Med. 2017;40(2):230–40.
   PubMed Web of Science ®Google Scholar
• Barclay L, McDonald R, Lentin P, Bourke-Taylor H. Facilitators and barriers to social and community participation following spinal cord injury. Aust Occup Ther J. 2016;63(1):19–28.
   PubMed Web of Science ®Google Scholar
• Reinhardt JD, Ballert C, Brinkhof MW, Post MW. Perceived impact of environmental barriers on participation among people living with spinal cord injury in Switzerland. J Rehabil Med. 2016;48(2):210–8.
   PubMed Web of Science ®Google Scholar
• Tsai IH, Graves DE, Chan W, Darkoh C, Lee MS, Pompeii LA. Environmental barriers and social participation in individuals with spinal cord injury. Rehabil Psychol. 2017;62(1):36–44.
   PubMed Web of Science ®Google Scholar
• Smith EM, Sakakibara BM, Miller WC. A review of factors influencing participation in social and community activities for wheelchair users. Disability Rehabil Assistive Technol. 2016;11(5):361–74.
   PubMed Web of Science ®Google Scholar
• Hanapi NHM, Zainin ES, Aziz MHA, Darus D. The impact of personal and environmental factors on the rehabilitation of persons with neglected spinal cord injury in Malaysia. Spinal Cord Series Cases. 2019;5:10.
   PubMedGoogle Scholar
• Dorjbal D, Prodinger B, Zanini C, Avirmed B, Stucki G, Rubinelli S. Living with spinal cord injury in Mongolia: a qualitative study on perceived environmental barriers. J Spinal Cord Med. 2020;43(4):518–31.
   PubMed Web of Science ®Google Scholar
• Reinhardt JD, Mansmann U, Fellinghauer BA, Strobl R, Grill E, von Elm E, et al. Functioning and disability in people living with spinal cord injury in high- and low-resourced countries: a comparative analysis of 14 countries. Int J Public Health. 2011;56(3):341–52.
   PubMed Web of Science ®Google Scholar
• Reinhardt JD, Middleton J, Bokel A, Kovindha A, Kyriakides A, Hajjioui A, et al. Environmental barriers experienced by people With spinal cord injury across 22 countries: results from a cross-sectional survey. Arch Phys Med Rehabil. 2020;101(12):2144–56.
   PubMed Web of Science ®Google Scholar
• Xu M, Li H, Zhao Z, Yang Y, Sun Z, Han H, et al. Environmental barriers, functioning and quality of life in 2008 Wenchuan earthquake victims with spinal cord injury eight years after the disaster: A cross-sectional study. J Rehabil Med. 2018;50(10):866–71.
   PubMed Web of Science ®Google Scholar
• Reinhardt JD, Zheng Y, Xu G, Lu X, Yin Y, Liu S, et al. People with spinal cord injury in China. Am J Phys Med Rehabil. 2017;96(2 Suppl. 1):S61–S5.
   PubMed Web of Science ®Google Scholar
• Gross-Hemmi MH, Post MW, Ehrmann C, Fekete C, Hasnan N, Middleton JW, et al. Study protocol of the International Spinal Cord Injury (InSCI) community survey. Am J Phys Med Rehabil. 2017;96(2 Suppl. 1):S23–S34.
   PubMed Web of Science ®Google Scholar
• Rimmer JH. Use of the ICF in identifying factors that impact participation in physical activity/rehabilitation among people with disabilities. Disabil Rehabil. 2006;28(17):1087–95.
   PubMed Web of Science ®Google Scholar
• World Health Organization (WHO). International Classification of Functioning, Disability and Health. Geneva: WHO Press; 2001.
   Google Scholar
• Yeung P, Towers A. An exploratory study examining the relationships between the personal, environmental and activity participation variables and quality of life among young adults with disabilities. Disabil Rehabil. 2014;36(1):63–73.
   PubMed Web of Science ®Google Scholar
• Cieza A. The International Spinal Cord Injury Survey and the learning health system for spinal cord injury. Am J Phys Med Rehabil. 2017;96(2 Suppl. 1):S1.
   PubMedGoogle Scholar
• Stucki G, Bickenbach J. The International Spinal Cord Injury Survey and the learning health system for spinal cord injury. Am J Phys Med Rehabil. 2017;96(2 Suppl. 1):S2–4.
   PubMedGoogle Scholar
• Stucki G, Bickenbach J. The implementation challenge and the learning health system for SCI initiative. Am J Phys Med Rehabil. 2017;96(2 Suppl. 1):S55–60.
   PubMed Web of Science ®Google Scholar
• Fekete C, Brach M, Ehrmann C, Post MWM, Stucki G. Cohort profile of the International Spinal Cord Injury (InSCI) community survey implemented in 22 countries. Arch Phys Med Rehabil. 2020;101(12):2103–11.
   PubMed Web of Science ®Google Scholar
• Fekete C, Post MW, Bickenbach J, Middleton J, Prodinger B, Selb M, et al. A structured approach to capture the lived experience of spinal cord injury: data model and questionnaire of the International Spinal Cord Injury Community survey. Am J Phys Med Rehabil. 2017;96(2 Suppl. 1):S5–16.
   PubMed Web of Science ®Google Scholar
• The World Bank: Model Disability Survey. World Health Organization, 2016.
   Google Scholar
• World Health Organization (WHO). Model Disability Survey: Providing evidence for accountability and decision-making. 2014. Available at: https://www.who.int/disabilities/data/mds_v4.pdf.
   Google Scholar
• Ballert CS, Post MW, Brinkhof MW, Reinhardt JD, Swi SCISG. Psychometric properties of the Nottwil Environmental Factors Inventory Short form. Arch Phys Med Rehabil. 2015;96(2):233–40.
   PubMed Web of Science ®Google Scholar
• Juvalta S, Post MW, Charlifue S, Noreau L, Whiteneck G, Dumont FS, et al. Development and cognitive testing of the Nottwil Environmental Factors Inventory in Canada, Switzerland and the USA. J Rehabil Med. 2015;47(7):618–25.
   PubMed Web of Science ®Google Scholar
• Reinhardt JD, Zhang X, Van Dyke C, Ehrmann C, Li L, Zhao Z, et al. Post-traumatic stress disorder in a population of 2008 Wenchuan earthquake survivors with disabilities: the role of environmental barriers. Disabil Rehabil. 2020:1–9. doi:10.1080/09638288.2020.1714756.
   PubMed Web of Science ®Google Scholar
• Ballert CS, Adler NE, Kawachi I, Frazier AL, Huang B, Colditz GA. Adolescents’ perceptions of social status: development and evaluation of a new indicator. Pediatrics. 2001;108:E31.
   PubMed Web of Science ®Google Scholar
• Cohen J. The Statistical Power Analysis for the Behavioral Sciences, 2nd ed. New York: Taylor & Francis Group; 1988.
   Google Scholar
• Lambert DJT. Zero-inflated poisson regression, with an application to defects in manufacturing. Technometrics. 1992;34(1):1–14.
   Web of Science ®Google Scholar
• Famoye F, Singh K. Zero-inflated generalized poisson regression model with an application to domestic violence data. J Data Sci. 2006;4(1):117–30.
   Google Scholar
• Baron RM, Kenny DA. The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. J Pers Soc Psychol. 1986;51(6):1173–82.
   PubMed Web of Science ®Google Scholar
• Ridout M, Hinde J, Demetrio CG. A score test for testing a zero-inflated poisson regression model against zero-inflated negative binomial alternatives. Biometrics. 2001;57(1):219–23.
   PubMed Web of Science ®Google Scholar
• Ripat JD, Woodgate RL. Self-perceived participation among adults with spinal cord injury: a grounded theory study. Spinal Cord. 2012;50(12):908–14.
   PubMed Web of Science ®Google Scholar
• Fellinghauer B, Reinhardt JD, Stucki G, Bickenbach J. Explaining the disability paradox: a cross-sectional analysis of the Swiss general population. BMC Public Health. 2012;12:655.
   PubMed Web of Science ®Google Scholar
• Magasi S, Wong A, Gray DB, Hammel J, Baum C, Wang CC, et al. Theoretical foundations for the measurement of environmental factors and their impact on participation among people with disabilities. Arch Phys Med Rehabil. 2015;96(4):569–77.
   PubMed Web of Science ®Google Scholar
• Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil. 2009;90(11 Suppl.):S22–35.
   PubMed Web of Science ®Google Scholar
• Law of the People's Republic of China on the protection of people with disabilities. Labor security in China, 2008. (7): p. 53–6.
   Google Scholar
• Oderud T. Surviving spinal cord injury in low income countries. African J Disability. 2014;3(2):80.
   PubMedGoogle Scholar
• Hayes AF. Beyond Baron and Kenny: statistical mediation analysis in the new millennium. Commun Monogr. 2009;76(4):408–20.
   Web of Science ®Google Scholar