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Research Recruitment

Barriers and Opportunities for Recruitment for Nonintervention Studies on HIV Risk: Perspectives of Street Drug Users

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Pages 1642-1659 | Published online: 08 Oct 2009

References

  • Adrian M. Addiction and sexually transmitted disease (STD), human immunodeficiency virus (HIV), and acquired immune deficiency syndrome (AIDS): their mutual interactions. Substance Use and Misuse 2006; 41: 1337–1348
  • Barratt M. J., Norman J. S., Fry C. L. Positive and negative aspects of participation in illicit drug research: implications for recruitment and ethical conduct. International Journal of Drug Policy 2007; 18: 235–238
  • Broadhead R., Fox K. Takin' it to the Streets: AIDS outreach as ethnography. Journal of Contemporary Ethnography 1990; 19: 322–348
  • Buchanan D., Khoshnood K., Stopka T., Shaw S., Santelices C., Singer M. Ethical dilemmas created by the criminalization of status behaviors: case examples from ethnographic field research with injection drug users. Health Education and Behavior 2002; 29: 30–42
  • Charmaz K. Reconstructing grounded theory. The Sage handbook of social research methods, P. Alasuutari, L. Bickman, J. Brannen. Sage, Thousand Oaks, CA 2008; 460–478
  • Deren S., Oliver-Velez D., Finlinson A., Robles R., Andia J., Colon H. M., et al. Integrating qualitative and quantitative methods: comparing HIV-related risk behaviors among Puerto Rican drug users in Puerto Rico and New York. Substance Use and Misuse 2003; 38: 1–24
  • Dickert N., Grady C. What's the price of a research subject: Approaches to the payment for research participation. New England Journal of Medicine 1999; 341: 198–203
  • Emanuel E. J. Undue inducement: nonsense on stilts?. American Journal of Bioethics 2005; 5: 9–13
  • Fairchild A. L., Bayer R. Uses and abuses of Tuskegee. Science 1999; 284: 919–921
  • Festinger D. S., Marlowe D. B., Croft J. R., Dugosh K. L., Mastro N. K., Lee P. A., et al. Do research payments precipitate drug use or coerce participation?. Drug and Alcohol Dependence 2005; 78: 275–281
  • Fisher C. B. Ethics in drug abuse and related HIV risk research. Applied Developmental Science 2004; 8: 90–102
  • Fisher C. B., Oransky M., Mahadevan M., Singer M., Mirhej G., Hodge G. D. Marginalized populations and drug addiction research: realism, mistrust, and misconception. IRB: Ethics and Human Research 2008; 30: 1–9
  • Fisher C. B., Oransky M., Mahadevan M., Singer M., Mirhej G., Hodge G. D. Do drug abuse researchers have a “duty to protect” third parties from HIV transmission? Moral perspectives of street drug users. Ethical and legal issues in research with high risk populations, D Buchanan, C. B. Fisher, L. Gable. APA Books, Washington, DC, in press
  • Fisher C. B., Ragsdale K. A goodness-of-fit ethics for multicultural research. The handbook of ethical research with ethnocultural populations and communities, J. Trimble, C. B. Fisher. Sage, Thousand Oaks, CA 2006; 3–26
  • Fisher C. B., Wallace S. A. Through the community looking glass: re-evaluating the ethical and policy implications of research on adolescent risk and psychopathology. Ethics and Behavior 2000; 10: 99–118
  • Fitzgerald J. L., Hamilton M. H. The Consequences of Knowing: ethical and legal liabilities in illicit drug research. Social Science and Medicine 1996; 43: 1591–1600
  • Fry C., Dwyer R. For love or money? An exploratory study of why injecting drug users participate in research. Addiction 2001; 96: 1319–1325
  • Fry C. L., Madden A., Brogan D., Loff B. Australian resources for ethical participatory processes in publish health research. Journal of Medical Ethics 2006; 32: 186
  • Fry C., Ritter A., Baldwin S., Bowen K. J., Gardiner P., Holt T., et al. Paying research participants: a study of current practices in Australia. Journal of Medical Ethics 2005; 31: 542–547
  • Glaser B. G., Strauss A. L. The discovery of grounded theory. Aldine, Chicago, IL 1967
  • Grady C., Wagman J., Ssekubugu R., Wawer M. J., Serwadda D., Kiddugavu M., et al. Research benefits for hypothetical HIV vaccine trials: the views of Ugandans in the Rakai District. IRB 2008; 30: 1–7
  • Herek G. M., Glunt E. K. An epidemic of stigma: public reactions to AIDS. American Psychologist 1988; 43: 886–891
  • Higgs P., Moore D., Aitken C. Engagement, reciprocity and advocacy: ethical harm reduction practice in research with injecting drug users. Drug and Alcohol Review 2006; 25: 419–423
  • Jenkins R. A., Tougsa K., Markowitz L. E., Mason C. J., Jamroentana V., Brown A. E., et al. Willingness to participate in HIV-1 vaccine trials among young Thai men. Sexually Transmitted Infections 2000; 76: 386–392
  • Katz S. Secular morality. Morality and health, A. M. Brand, P. Rozin. Routledge, London 1997; 297–330
  • Klitzman R. The importance of social, cultural, and economic contexts, and empirical research in examining “undue inducement.”. American Journal of Bioethics 2005; 5: 19–21
  • Krueger R. A. Analyzing and reporting focus group results. Sage, Thousand Oaks 1998
  • National Institute on Drug Abuse. Policy on HIV education, counseling, testing, and treatment for research subjects. 2007, Retrieved July 11, 2008, from http://grants.nih.gov/grants/guide/notice-files/NOT-DA-07-013.html
  • National Institute on Drug Abuse. Drug abuse and risky behaviors: the evolving dynamics of HIV/AIDS. Proceedings of National Institutes of Health, Natcher Conference Center, Bethesda, MD, May, 8–9, 2007
  • Nichter M., Quintero G., Nichter M., Mock J., Shakib S. Qualitative research: contributions to the study of drug use, drug abuse, and drug use-related interventions. Substance Use and Abuse 2004; 39: 1907–1969
  • Ompad D., Galea S., Marchall G., Fuller C., Weiss L., Beard J., et al. Sampling and recruitment in multilevel studies among marginalized urban populations: the IMPACT studies. Journal of Urban Health 2008; 85: 268–280
  • Plumridge E. W., Chetwynd J. The moral universe of injecting drug users in the era of AIDS: sharing injecting equipment and the protection of moral standing. AIDS Care 1998; 10: 723–733
  • Ritter A., Fry C., Swan A. The ethics of reimbursing injecting drug users for public health research interviews: what price are we prepared to pay. International Journal of Drug Policy 2003; 14: 1–3
  • Scott G. “They got their program, and I got mine”: a cautionary tale concerning the ethical implications of using respondent-driven sampling to study injection drug users. International Journal of Drug Policy 2008; 19: 42–51
  • Seddon T. Paying drug users to take part in research: justice, human rights and business perspectives on the use of incentive payments. Addiction Research and Theory 2005; 13: 101–109
  • Shaw V. N. Research with participants in problem experience: challenges and strategies. Qualitative Health Research 2005; 15: 841–854
  • Sherman S., Latkin C. A qualitative study of injection drug users' participation in a long-term epidemiological study of HIV. AIDS and Behavior 1999; 3: 289–299
  • Singer E. N., Van Hoewyk J., Gebler T., Raghunathan T., McGonagle K. The effect of incentives on response rates in interviewer-mediated research. Journal of Official Statistics 1999; 15: 217–230
  • Singer M. Knowledge for use: anthropology and community-centered substance abuse research. Social Science and Medicine 1993; 37: 15–26
  • Singer M. Studying hidden populations. Mapping networks, spatial data and hidden populations: the ethnographer's toolkit, J. Schensul, M. LeCompte, T. Robert, E. Cromley, M. Singer. Altamira Press, Walnut Creek, CA 1999; 125–191
  • Singer M., Scott G., Wilson S., Easton D., Weeks M. “War stories”: AIDS prevention and the street narratives of drug users. Qualitative Health Research 2001; 11: 589–611
  • Slomka J., McCurdy S., Ratliff E. A., Timpson S., Williams M. Perceptions of financial payment for research participation among African-American drug users in HIV studies. Journal of General Internal Medicine 2007; 22: 1403–1409
  • Smithson J. Focus groups. The Sage handbook of social research methods, P. Alasuutari, L. Bickman, J. Brannen. Sage, Thousand Oaks, CA 2008; 357–370
  • Stevenson H. S., DeMoya D., Boruch R. F. Ethical issues and approaches in AIDS research. Methodological issues in AIDS behavioral research, D. G. Ostrow, R. C. Kessler. Plenum, New York 1993; 19–51
  • Swanson G. M., Ward A. J. Recruiting minorities into clinical trials: toward a participant-friendly system. Journal of the National Cancer Institute 1995; 87: 1747–1759
  • Vernon I. S. American Indian women, HIV/AIDS, and health disparity. Substance Use and Misuse 2007; 42: 741–752
  • Watters J. K., Biernacki P. Targeted sampling: options for the study of hidden populations. Social Problems 1989; 36: 416–430
  • Worthington C., Myers T. Desired elements of HIV testing services: test recipient perspectives. AIDS Patient Care and STDs 2002; 16: 537–548
  • Wright S., Klee H., Reid P. Interviewing illicit drug users: observations from the field. Addiction Research 1998; 6: 517–535

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