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Articles

Stroke survivors’ experiences of upper limb recovery: a systematic review of qualitative studies

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Pages 316-330 | Received 28 Jul 2020, Accepted 25 Aug 2020, Published online: 29 Oct 2020

References

  • Johnson W, Onuma O, Owolabi M, et al. Stroke: a global response is needed. Bulletin of the World Health Organisation. 2016;94(9):633–708.
  • World Stroke Organization. Global Stroke Fact Sheet. [Internet]. Geneva: World Stroke Organization; 2016. Available from: https://www.world-stroke.org/assets/downloads/WSO_Global_Stroke_Fact_Sheet.pdf?fbclid=IwAR0eJYQniSl1txXoWsj0h_1C_eics4O_Gxjepp9zNRNysLFA6v9nRu-zyNM.
  • Poltawski L, Allison R, Briscoe S, et al. Assessing the impact of upper limb disability following stroke: a qualitative enquiry using internet-based personal accounts of stroke survivors. Disabil Rehabil. 2016;38(10):945–951.
  • Barker R, Brauer S. Upper limb recovery after stroke: the stroke survivors' perspective. Disabil Rehabil. 2005;27(20):1213–1223.
  • Adamson J, Beswick A, Ebrahim S. Is stroke the most common cause of disability? J Stroke Cerebrovasc Dis. 2004;13(4):171–177.
  • Meadmore K, Hallewell E, Freeman C, et al. Factors affecting rehabilitation and use of upper limb after stroke: views from healthcare professionals and stroke survivors. Top Stroke Rehabil. 2019;26(2):94–100.
  • Bearman M, Dawson P. Qualitative synthesis and systematic review in health professions education. Med Educ. 2013;47(3):252–260.
  • Tong A, Flemming K, McInnes E, et al. Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Med Res Methodol. 2012;12:181.
  • Booth A, Clarke M, Dooley G, et al. The nuts and bolts of PROSPERO: an international prospective register of systematic reviews. Syst Rev. 2012;1:2–10.
  • Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol. 2008;8:45–55.
  • Noyes J, Booth A, Cargo M, et al. Chapter 21: qualitative evidence. Cochrane training handbook. London: The Cochrane Collaboration; 2020.
  • Critical Appraisal Skills Programme. CASP Checklists. [Internet]. Oxford: Critical Appraisal Skills Programme; 2020. Available from: https://casp-uk.net/casp-tools-checklists/.
  • Stewart D, Shamdasani P, Rook D. Focus groups theory and practice. 2nd ed. Thousand Oaks: Sage; 2007.
  • Lewin S, Glenton C, Munthe-Kaas H, et al. Using qualitative evidence in decision making for health and social interventions: an approach to assess confidence in findings from qualitative evidence syntheses (GRADE-CERQUAL). PLoS Med. 2015;12(10):e1001895.
  • Sabini R, Dijkers M, Raghavan P. Stroke survivors talk while doing: development of a therapeutic framework for continued rehabilitation of hand function post stroke. J Hand Ther. 2013;26(2):124–131.
  • Carlsson H, Gard G, Brogardh C. Upper-limb sensory impairments after stroke: self-reported experiences of daily life and rehabilitation. J Rehabil Med. 2018;50(1):45–51.
  • Duncan Millar J, van Wijck F, Pollock A, et al. Outcome measures in post-stroke arm rehabilitation trials: do existing measures capture outcomes that are important to stroke survivors, carers, and clinicians? Clin Rehabil. 2019;33(4):737–749.
  • Smith R, Burgess C, Sorinola I. The effect of a dysfunctional upper limb on community-dwelling stroke survivors and their carers: An interpretative phenomenological analysis. Physiother Res Int. 2018;23(4):e1726.
  • Doyle S, Bennett S, Dudgeon B. Upper limb post-stroke sensory impairments: the survivor's experience. Disabil Rehabil. 2014;36(12):993–1000.
  • Kulnik S, Mohapatra S, Gawned S, et al. Managing the severely impaired arm after stroke: a mixed-methods study with qualitative emphasis. Disabil Rehabil. 2020;42(13):1826–1829.
  • Connell L, McMahon N, Adams N. Stroke survivors' experiences of somatosensory impairment after stroke: an interpretative phenomenological analysis. Physiotherapy. 2014;100(2):150–155.
  • Lindgren I, Gard G, Brogardh C. Shoulder pain after stroke - experiences, consequences in daily life and effects of interventions: a qualitative study. Disabil Rehabil. 2018; May40(10):1176–1182.
  • Jones F, Postges H, Brimicombe L. Building bridges between healthcare professionals, patients and families: A coproduced and integrated approach to self-management support in stroke. NeuroRehabilitation. 2016;39(4):471–480.
  • Levack W, Dean S, Siegert R, et al. Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities. Patient Educ Couns. 2011;85(2):206–213.
  • Morris J, Oliver T, Kroll T, et al. From physical and functional to continuity with pre-stroke self and participation in valued activities: a qualitative exploration of stroke survivors', carers' and physiotherapists' perceptions of physical activity after stroke. Disabil Rehabil. 2015;37(1):64–77.
  • Mudge S, Stretton C, Kayes N. Are physiotherapists comfortable with person-centred practice? An autoethnographic insight. Disabil Rehabil. 2014;36(6):457–463.
  • Norris M, Kilbride C. From dictatorship to a reluctant democracy: stroke therapists talking about self-management. Disabil Rehabil. 2014;36(1):32–38.
  • Reunanen M, Talvitie U, Jarvikoski A, et al. Client's role and participation in stroke physiotherapy encournters: an observational study. Eur J Physiothe. 2016;18(4):210–217.
  • Rosewilliam S, Pandya A, Roskell C. Goal setting in stroke rehabilitation: theory, practice and future directions. In: Siegert R, Levack W, editors. Rehabilitation goal setting. Boca Raton: Taylor Francis; 2015.
  • Creasy K, Lutz B, Young M, et al. Clinical implications of family-centered care in stroke rehabilitation. Rehabil Nurs. 2015;40(6):349–359.
  • Lloyd A, Roberts A, Freeman J. 'Finding a balance' in involving patients in goal setting early after stroke: a physiotherapy perspective. Physiother Res Int. 2014;19(3):147–157.
  • Playford E. Goal setting as shared decision making. In: Siegert R, Levack W, editors. Rehabililtation goal setting. Boca Raton: Taylor Francis; 2015.
  • Batalden M, Batalden P, Margolis P, et al. Coproduction of healthcare service. BMJ Qual Saf. 2016;25(7):509–517.
  • Nicholls DA, Atkinson K, Bjorbaekmo WS, et al. Connectivity: an emerging concept for physiotherapy practice. Physiother Theory Pract. 2016;32(3):159–170.
  • Visvanathan A, Mead G, Dennis M, et al. Maintaining hope after a disabling stroke: a longitudinal qualitative study of patients' experiences, views, information needs and approaches towards making treatment decisions. PLoS One. 2019;14(9):e0222500.
  • Brown M, Levack W, McPherson K, et al. Survival, momentum, and things that make me "me": patients' perceptions of goal setting after stroke. Disabil Rehabil. 2014;36(12):1020–1026.
  • Shipley J, Luker J, Thijs V, et al. The personal and social experiences of community-dwelling younger adults after stroke in Australia: a qualitative interview study. BMJ Open. 2018;8(12):e023525.
  • Levack W, Kayes N, Fadyl J. Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research. Disabil Rehabil. 2010;32(12):986–999.
  • Sarre S, Redlich C, Tinker A, et al. A systematic review of qualitative studies on adjusting after stroke: lessons for the study of resilience. Disabil Rehabil. 2014;36(9):716–726.
  • Bandura A. Health promotion from the perspective of social cognitive theory. Psychol Health. 1998;13(4):623–649.
  • Brands I, Stapert S, Kohler S, et al. Life goal attainment in the adaptation process after acquired brain injury: the influence of self-efficacy and of flexibility and tenacity in goal pursuit. Clin Rehabil. 2015;29(6):611–612.
  • Roen-Smidt H, Jensen M, Pallensen H. Body and identity in physiotherapy after stroke. Physiother Theory Pract. 2019;DOI:10.1080/09593985.2019.1681041
  • Bright F, Kayes N, McCann C, et al. Understanding hope after stroke: a systematic review of the literature using concept analysis. Top Stroke Rehabil. 2011;18(5):490–508.
  • Cross A, Schneider M. A preliminary qualitative analysis of the impact of hope on stroke recovery in women. Top Stroke Rehabil. 2010;17(6):484–495.
  • Anderson S, Whitfield K. Social identity and stroke: 'they don't make me feel like, there's something wrong with me'. Scand J Caring Sci. 2013;27(4):820–830.

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