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Original Article

The unique experience of home for parents and carers of children with disabilities

ORCID Icon, & ORCID Icon
Pages 260-266 | Received 04 Feb 2016, Accepted 05 Jan 2017, Published online: 24 Jan 2017

References

  • Fox O’Mahony L. Meanings of home. In: Smith SJ, editor. International encyclopedia of housing and home. San Diego: Elsevier; 2012. p. 231–239.
  • Holdsworth C. Children and parenting. In: Smith SJ, editor. International encyclopedia of housing and home. San Diego: Elsevier; 2012. p. 131–136.
  • Yantzi N, Rosenberg M. The contested meanings of home for women caring for children with long-term care needs in Ontario, Canada. Gend Place Cult. 2008;15:301–315.
  • Macdonald H, Callery P. Parenting children requiring complex care: a journey through time. Child Care Health Dev. 2008;34:207–213.
  • O'Brien ME. Living in a house of cards: family experiences with long-term childhood technology dependence. J Pediatr Nurs. 2001;16:13–22.
  • Kirk S, Glendinning C, Callery P. Parent or nurse? The experience of being the parent of a technology-dependent child. J Adv Nurs. 2005;51:456–464.
  • Wang KW, Barnard A. Caregivers' experiences at home with a ventilator-dependent child. Qual Health Res. 2008;18:501–508.
  • Carnevale FA, Alexander E, Davis M, et al. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics . 2006;117:e48–e60.
  • Roy L, Rousseau J, Allard H, et al. Parental experience of home adaptation for children with motor disabilities. Phys Occup Ther Pediatr. 2008;2:353–368.
  • Aplin T, de Jonge D, Gustafsson L. Understanding home modifications impact on clients and their family's experience of home: a qualitative study. Aust Occup Ther J. 2015;62:123–131.
  • Lindblad BM, Holritz-Rasmussen B, Sandman PO. A life enriching togetherness – meanings of informal support when being a parent of a child with disability. Scand J Caring Sci. 2007;21:238–246.
  • Aplin T. Development and psychometric analysis of the Dimensions of Home Measure (DOHM): a measure of the home environment for home modification practice [dissertation]. Brisbane (QLD): The University of Queensland; 2013.
  • Jones A, de Jonge D, Phillips R. The role of home maintenance and modification services in achieving health. Community care and housing outcomes in later life. Melbourne: Australian Housing and Urban Research Institute; 2008.
  • Boyatzis RE. Transforming qualitative information: thematic analysis and code development. Thousand Oaks (California): Sage Publications; 1998.
  • Riemer F, Quartaroli MT, Lapan SD. Qualitative research: an introduction to methods and designs. San Francisco: Jossey-Bass; 2012.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
  • Krefting L. Rigor in qualitative research: the assessment of trustworthiness. Am J Occup Ther. 1991;45:214–222.
  • Spall S. Peer debriefing in qualitative research: Emerging operational models. Qual Inq. 1998;4:280–292.
  • Creswell JW, Miller DL. Determining validity in qualitative inquiry. Theory Pract. 2000;39:124–130.
  • Wehmever M, Schwartz M. Self-determination and positive adult outcomes: a follow-up study of your with mental retardation or learning disabilites. Except Child 1997;63:245–255.
  • Brotherson MJ, Cook CC, Erwin EJ, et al. Understanding self-determination and families of young children with disabilities in home environments. J Early Interv. 2008;31:22–43.
  • Piškur B, Beurskens A, Jongmans M, et al. Parents’ actions, challenges, and needs while enabling participation of children with a physical disability: a scoping review. BMC Pediatr. 2012;12:13.
  • Aplin T, de Jonge D, Gustafsson L. Understanding the dimensions of home that impact on home modification decision making. Aust Occup Ther J. 2013;60:101–109.
  • Tanner B, Tilse C, de Jonge D. Restoring and sustaining home: the impact of home modifications on the meaning of home for older people. J Hous Elderly. 2008;22:195–215.
  • Seligman M, Darling RB. Ordinary families, special children: a systems approach to childhood disability. New York: Guilford Press; 2007.
  • Novak I. Parent experience of implementing effective home programs. Phys Occup Ther Pediatr. 2011;31:198–213.
  • Poon KK, Koh L, Magiati I. Parental perspectives on the importance and likelihood of adult outcomes for children with autism spectrum disorders, intellectual disabilities or multiple disabilities. Res Autism Spectr Disord. 2013;7:382–390.

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