Within moments of becoming—everyday citizenship in nursing homes

References

• Universal declaration of human rights. Paris (FR): United Nations [cited 2021 Nov 5]. Available from: https://www.un.org/en/about-us/universal-declaration-of-human-rights.
   Google Scholar
• Global action plan on the public health response to dementia 2017–2025. Geneva (CH): World Health Organization [cited 2021 Nov 5]. Available from: https://www.who.int/publications/i/item/global-action-plan-on-the-public-health-response-to-dementia-2017–-2025.
   Google Scholar
• Dementiaplan 2020: A more dementia friendly society. Oslo (NO): Norwegian Ministry of Health and Care Services; 2015.
   Google Scholar
• Scott S. Making sense of everyday life. Cambridge (UK): Polity Press; 2009.
   Google Scholar
• Wilcock AA, Hocking C. An occupational perspective of health. 3rd ed. West Deptford (NJ): Slack Incorporated; 2015.
   Google Scholar
• Carlson M, Park DJ, Kuo A, et al. Occupation in relation to the self. J Occup Sci. 2014;21(2):117–129.
   Google Scholar
• Hammell KW. Engagement in living: critical perspectives on occupation, rights, and wellbeing. Ottawa (CA): Canadian Association of Occupational Therapists; 2020.
   Google Scholar
• Hammell KW. Dimensions of meaning in the occupations of daily life. Can J Occup Ther. 2004;71(5):296–305.
   PubMedGoogle Scholar
• Mello ACC, Dituri DR, Marcolino TQ. The meaning making of what is meaningful: dialogues with Wilcock and Benetton. Cad Bras Ter Ocup. 2020;28(1):352–373.
   Google Scholar
• Hitch D, Pépin G, Stagnitti K. In the footsteps of Wilcock, part one: the evolution of doing, being, becoming, and belonging. Occup Ther Health Care. 2014;28(3):231–246.
   PubMedGoogle Scholar
• Hitch D, Pépin G, Stagnitti K. In the footsteps of Wilcock, part two: the interdependent nature of doing, being, becoming, and belonging. Occup Ther Health Care. 2014;28(3):247–263.
   PubMedGoogle Scholar
• Swan J, Hitch D, Pattison R, et al. Meaningful occupation with iPads: experiences of residents and staff in an older person’s mental health setting. Br J Occup Ther. 2018;81(11):649–656.
   Web of Science ®Google Scholar
• Hooper EK, Collins T. An occupational perspective of the lived experience of familial dementia caregivers: a thematic review of qualitative literature. Dementia (London). 2019;18(1):323–346.
   PubMedGoogle Scholar
• Ong M, Baker A, Aguilar A, et al. The meanings attributed to community gardening: a qualitative study. Health Place. 2019;59:102190.
   PubMed Web of Science ®Google Scholar
• Stafford PBE. Grey areas: ethnographic encounters with nursing home culture. Santa Fe (NM): School of American Research Press; 2003.
   Google Scholar
• O'Rourke HM, Duggleby W, Fraser KD, et al. Factors that affect quality of life from the perspective of people with dementia: a metasynthesis. J Am Geriatr Soc. 2015;63(1):24–38.
   PubMed Web of Science ®Google Scholar
• Tak SH, Kedia S, Tongumpun TM, et al. Activity engagement: perspectives from nursing home residents with dementia. Educ Gerontol. 2015;41(3):182–192.
   PubMed Web of Science ®Google Scholar
• Heggestad AKT, Nortvedt P, Slettebø Å. Like a prison without bars’: dementia and experiences of dignity. Nurs Ethics. 2013;20(8):881–892.
   PubMed Web of Science ®Google Scholar
• Mjørud M, Engedal K, Røsvik J, et al. Living with dementia in a nursing home, as described by persons with dementia: a phenomenological hermeneutic study. BMC Health Serv. Res. 2017;17(1):93.
   PubMed Web of Science ®Google Scholar
• Bartlett R, O’Connor D, Mann J. Broadening the dementia debate: towards social citizenship. 1st ed. Bristol (UK): Policy Press; 2010.
   Google Scholar
• Kelly F, Innes A. Human rights, citizenship and dementia care nursing. Int J Older People Nurs. 2013;8(1):61–70.
   PubMedGoogle Scholar
• O'Connor D, Nedlund A-C. Editorial introduction: special issue on citizenship and dementia. Dementia (London). 2016;15(3):285–288.
   PubMedGoogle Scholar
• Baldwin C, Greason M. Micro-citizenship, dementia and long-term care. Dementia (London). 2016;15(3):289–303.
   PubMedGoogle Scholar
• Ursin G. Praktisering av medborgerskap: en studie av hverdagslivet til familier som lever med demens. NOST. 2017;1(6):436–452.
   Google Scholar
• Ursin G, Lotherington AT. Citizenship as distributed achievement: shaping new conditions for an everyday life with dementia. Scand J Disabil Res. 2018;20(1):62–71.
   Web of Science ®Google Scholar
• Nedlund A-C, Bartlett R, Clarke CL. Everyday citizenship and people with dementia. Edinburgh (UK): Dunedin; 2019.
   Google Scholar
• Hydén LC, Antelius E. Communicative disability and stories: towards an embodied conception of narratives. Health (London). 2011;15(6):588–603.
   PubMed Web of Science ®Google Scholar
• Baldwin C. Narrative(,) citizenship and dementia: the personal and the political. J Aging Stud. 2008;22(3):222–228.
   Web of Science ®Google Scholar
• Wright-St Clair V. Doing (interpretive) phenomenology. In Nayar S, Stanley M, editors. Qualitative research methodologies for occupational science and therapy. New York (NY): Routledge; 2015. p.53–69.
   Google Scholar
• O’Reilly K. Key concepts in ethnography. Los Angeles (CA): SAGE; 2009.
   Google Scholar
• Shell L. Photo-elicitation with autodriving in research with individuals with mild to moderate Alzheimer’s disease: advantages and challenges. Int. J. Qual. Methods. 2014;13(1):170–184.
   Google Scholar
• Nygård L. How can we get access to the experiences of people with dementia? Suggestions and reflections. Scand J Occup Ther. 2006;13(2):101–112.
   PubMedGoogle Scholar
• The Norwegian Health Research Act (Lov om medisinsk og helsefaglig forskning). Oslo (NO): Ministry of Health and Care Services. (Published 20.06.08; Cited 05.11.21). Available from: https://lovdata.no/dokument/NL/lov/2008-06-20-44.
   Google Scholar
• Guidelines for Research Ethics in the Social Sciences, Humanities, Law and Theology. Oslo (NO): National Committee for Research Ethics in the Social Sciences and the Humanities; 2019 [cited 2021 Nov 5]. Available from: https://www.forskningsetikk.no/retningslinjer/hum-sam/forskningsetiske-retningslinjer-for-samfunnsvitenskap-humaniora-juss-og-teologi/.
   Google Scholar
• Squire A, Andrews M, Tamboukou M. Introduction. What is narrative research? In: Andrews M, Squire C, Tamboukou M, editors. Doing narrative research. Los Angeles (CA): SAGE; 2013. p. 1–26.
   Google Scholar
• Polkinghorne DE. Narrative configuration in qualitative analysis. In: JA Hatch, Wisniewski R, editors. Life history and narrative. Vol. 1. London: Falmer Press; 1995.
   Google Scholar
• Josephsson A. Narrative methodology. In Nayar S, Stanley M, editors. Qualitative research methodologies for occupational science and therapy. New York (NY): Routledge; 2015. p. 70–83.
   Google Scholar
• Alvesson M, Sköldberg K. Reflexive methodology: new vistas for qualitative research. Third edition. ed. Los Angeles (CA): SAGE; 2018.
   Google Scholar
• Laliberte-Rudman D. Linking occupation and identity: lessons learned through qualitative exploration. J Occup Sci. 2002;9(1):12–19.
   Google Scholar
• Eijkelenboom A, Verbeek H, Felix E, et al. Architectural factors influencing the sense of home in nursing homes: an operationalization for practice. Front Archit Res. 2017;6(2):111–122.
   Web of Science ®Google Scholar
• Milte R, Shulver W, Killington M, et al. Quality in residential care from the perspective of people living with dementia: the importance of personhood. Arch Gerontol Geriatr. 2016;63:9–17.
   PubMed Web of Science ®Google Scholar
• Rijnaard MD, van Hoof J, Janssen BM, et al. The factors influencing the sense of home in nursing homes: a systematic review from the perspective of residents. J Aging Res. 2016;2016:6143645.
   PubMedGoogle Scholar
• Fuchs T. Embodiment and personal identity in dementia. Med Health Care Philos. 2020;23(4):665–676.
   PubMed Web of Science ®Google Scholar
• Dupuis SL, Wiersma E, Loiselle L. Pathologizing behavior: meanings of behaviors in dementia care. J Aging Stud. 2012;26(2):162–173.
   Web of Science ®Google Scholar
• Boyle G. Recognising the agency of people with dementia. Disabil Soc. 2014;29(7):1130–1144.
   Web of Science ®Google Scholar
• Kielsgaard K, Horghagen S, Nielsen D, et al. Moments of meaning: enacted narratives of occupational engagement within a dementia town. J Occup Sci. 2021;28(4):510–524.
   Web of Science ®Google Scholar
• Killett A, Bowes A, Brooker D, et al. What makes a real difference to resident experience? Digging deep into care home culture: the CHOICE (Care Home Organisations Implementing Cultures of Excellence) research report Prevention of Abuse and Neglect in Care of Older Adults (UK); 2013.
   Google Scholar
• Du Toit SHJ, Shen X, McGrath M. Meaningful engagement and person-centered residential dementia care: a critical interpretive synthesis. Scand J Occup Ther. 2019;26(5):343–355.
   PubMed Web of Science ®Google Scholar