1,224
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Maintaining autonomy: How older persons with chronic conditions and their significant others interpret, navigate, and overcome everyday difficulties

ORCID Icon &
Article: 2249959 | Received 07 Jul 2022, Accepted 16 Aug 2023, Published online: 07 Sep 2023

References

  • Eurostat. Zensus 2011. [Internet]. 2014 https://ec.europa.eu/eurostat/web/population-and-housing-census/census-data/2011-census.
  • Federal Council. Strategie für eine Schweizerische Alterspolitik [Strategy for a swiss ageing policy]. Bern: Federal Council; 2007.
  • Federal Statistics Office. Szenarien zur Bevölke­rungsentwicklung der Kantone der Schweiz 2015-2045 [Scenarios for population development of the Swiss cantons 2015–2045] [Internet]. Neuchâtel: Federal Statistics Office; 2015. https://www.bfs.admin.ch/bfsstatic/dam/assets/350324/master
  • Eurostat. [Internet]. Bevölkerungsstruktur und Bevölker­ungsalterung. 2018. https://ec.europa.eu/eurostat/statistics-explained/index.php?title=Population_structure_and_ageing/de&oldid=84589
  • Bähler C, Huber CA, Brüngger B, et al. Multimorbidity, health care utilization and costs in an elderly community-dwelling population: a claims data based observational study. BMC Health Serv Res. 2015;15:1. DOI:10.1186/s12913-015-0698-2.
  • Griffith LE, Raina P, Levasseur M, et al. Functional disability and social participation restriction associated with chronic conditions in Middle-aged and older adults. J Epidemiol Community Health. 2017;71:381–11. DOI:10.1136/jech-2016-207982.
  • Henchoz Y, Büla C, Guessous I, et al. Chronic symptoms in a representative sample of community-dwelling older people: a cross-sectional study in Switzerland. BMJ Open. 2017;7:e014485. DOI:10.1136/bmjopen-2016-014485.
  • Clegg A, Young J, Iliffe S, et al. Frailty in elderly people. Lancet. 2013;381:752–762. DOI:10.1016/S0140-6736(12)62167-9.
  • Ahmed N, Mandel R, Fain MJ. Frailty: an emerging geriatric syndrome. Am J Med. 2007;120:748–753. DOI:10.1016/j.amjmed.2006.10.018.
  • Eloranta S, Routasalo P, Arve S. Personal resources supporting living at home as described by older home care clients. Int J Nurs Pract. 2008;14:308–314. DOI:10.1111/j.1440-172X.2008.00698.x.
  • Ewart I, Luck R. Living from home: older people looking beyond the house. Home Cultures. 2013;10:25–42. DOI:10.2752/175174213X13500467495726.
  • Haak M, Fänge A, Iwarsson S, et al. Home as a signification of independence and autonomy: experiences among very old swedish people. Scand J Occup Ther. 2007;14:16–24. DOI:10.1080/11038120601024929.
  • Nicholson C, Meyer J, Flatley M, et al. The experience of living at home with frailty in old age: a psychosocial qualitative study. Int J Nurs Stud. 2013;50:1172–1179. DOI:10.1016/j.ijnurstu.2012.01.006.
  • Kruse RL, Moore CM, Tofle RB, et al. Older adults’ attitudes toward home modifications for fall prevention. J Hous Elderly. 2010;24:110–129. DOI:10.1080/02763891003757031.
  • Simpson JM, Darwin C, Marsh N. What are older people prepared to do to avoid falling? A qualitative study in London. Br J Community Nurs. 2003;8:152, 154–159. DOI:10.12968/bjcn.2003.8.4.11190.
  • Wray S. What constitutes agency and empowerment for women in later life? The Sociol Rev. 2004;52:22–38. DOI:10.1111/j.1467-954X.2004.00440.x.
  • Bundesamt für Statistik. Die Wohnverhältnisse der älteren Menschen in der Schweiz [Living situation of older persons in Swirterland]. Neuchâtel: Bundesamt für Statistik; 2016.
  • van Nes F, Runge U, Jonsson H. One body, three hands and two minds: a case study of the intertwined occupations of an older couple after a stroke. J Occup Sci. 2009;16:194–202. DOI:10.1080/14427591.2009.9686662.
  • van Nes F, Jonsson H, Hirschler S, et al. Meanings created in co-occupation: construction of a late-life couple’s photo story. J Occup Sci. 2012;19:341–357. DOI:10.1080/14427591.2012.679604.
  • Martire LM, Helgeson VS. Close relationships and the management of chronic illness: associations and interventions. Am Psychol. 2017;72:601–612. DOI:10.1037/amp0000066.
  • Pilgrim D. Some implications of critical realism for mental health research. Soc Theory Health. 2014;12:1–21. DOI:10.1057/sth.2013.17.
  • Kinsella EA. Hermeneutics and critical hermeneutics: exploring possibilities within the art of interpretation. Forum Qualitative Sozialforschung/Forum Qualitative Social Research. 2006.
  • Braun V, Clarke V. Thematic analysis: a practical guide. Los Angeles: SAGE; 2022.
  • Krueger RA, Casey MA. Focus groups: a practical guide for applied research. Los Angeles: Sage publications; 2014.
  • Morgan DL. Basic and advanced focus groups. Los Angeles: SAGE Publications; 2018.
  • Ballmer T, Gantschnig BE. “What does ‘remaining living at home’ really mean?” stakeholders’ views on challenges for ageing-in-place. Manuscript submitted for publication. 2022.
  • Bundesamt für Statistik. [Internet]. Wohnverhältnisse nach Bewohnertyp und Haushaltstyp [Living situation by type of inhabitant and household]. 2023. https://www.bfs.admin.ch/bfs/de/home/statistiken/bau-wohnungswesen/wohnungen/wohnverhaeltnisse/mieter-eigentuemer.assetdetail.24129049.html
  • Braun V, Clarke V, Thematic a APA handbook of research methods in psychology, vol 2: research designs. Washington (DC): American Psychological Association; 2012. p. 57–71.
  • Kleinheksel AJ, Rockich-Winston N, Tawfik H, et al. Demystifying content analysis. Am J Pharm Educ. 2020;84:7113. DOI:10.5688/ajpe7113.
  • Norman RJ. Autonomy in applied ethics. In: Honderich T, editor. The Oxford companion to philosophy. Oxford: OUP Oxford; 2005.
  • Kielhofner G. Model of human occupation. In: Theory and application. 5th ed. Philadelphia: Wolters Kluwer; 2017.
  • Lawton MP, Nahemow L. Ecology and the aging process. 1973.
  • Wahl H-W, Iwarsson S, Oswald F. Aging well and the environment: toward an integrative model and research agenda for the future. Gerontologist. 2012;52:306–316. DOI:10.1093/geront/gnr154.
  • Romaioli D, Contarello A. Redefining agency in late life: the concept of ‘disponibility. Ageing Soc. 2019;39:194–216. DOI:10.1017/S0144686X17000897.
  • Lawton MP. Environmental proactivity in older people. In: Bengtson VL, Schaie KW, editors. The course of later life. New York: Springer; 1989. p. 15–23.
  • Nyman A, Josephsson S, Isaksson G. A narrative of agency enacted within the everyday occupations of an older swedish woman. J Occup Sci. 2014;21:459–472. DOI:10.1080/14427591.2013.803433.
  • Hammell KW. Perspectives on disability & rehabilitation: contesting assumptions, challenging practice [Internet]. Edinburgh: Churchill Livingstone/Elsevier Online: Elsevier ScienceDirect Books; 2006.
  • Reindal SM. Independence, dependence, interdependence: Some reflections on the subject and personal autonomy. Disability & Society. 1999;14:353–367. DOI:10.1080/09687599926190.
  • Hitch D, Pépin G, Stagnitti K. In the footsteps of Wilcock, part two: the interdependent nature of doing, being, becoming, and belonging. Occup Ther Health Care. 2014;28:247–263. DOI:10.3109/07380577.2014.898115.
  • Hitch D, Pépin G, Stagnitti K. In the footsteps of Wilcock, part one: the evolution of doing, being, becoming, and belonging. Occup Ther Health Care. 2014;28:231–246. DOI:10.3109/07380577.2014.898114.
  • Wilcock AA. An occupational perspective of health. Thorofare: Slack Incorporated; 2006.
  • Wilcock AA. Reflections on doing, being and becoming. Austral Occup Ther J. 2002;46:1–11. DOI:10.1046/j.1440-1630.1999.00174.x.
  • Hitch D, Pepin G. Doing, being, becoming and belonging at the heart of occupational therapy: an analysis of theoretical ways of knowing. Scand J Occup Ther. 2021;28:13–25. DOI:10.1080/11038128.2020.1726454.
  • Hansson SO, Björklund Carlstedt A, Morville A-L. Occupational identity in occupational therapy: a concept analysis. Scand J Occup Ther. 2022;29:198–209. DOI:10.1080/11038128.2021.1948608.
  • Lincoln YS, Guba EG. Naturalistic inquiry. California: Sage Publications; 1985.
  • Nowell LS, Norris JM, White DE, et al. Thematic analysis: Striving to meet the trustworthiness criteria. Int J Qual Methods. 2017;16:160940691773384. DOI:10.1177/1609406917733847.